New Member Question

[Guest guest]

Tame,

Welcome to CAST! So happy you found us. I do not think it is too late for your son to receive some correction with casting. It may take longer because he is older, but there have been many children here that cast later.

My son, , goes to Texas ish Rite Hospital for Children in Dallas, Texas. I am not sure if that is closest for you or not, but it is a great hospital and they are Mehta trained. I know you are Louisiana and they usually only accept Texas residents, but I would call and double check on that. It seems I remember someone else out of state found out they would be able to go. But I could be totally off.

I have family all around there in LA. Lake , Sulphur, Baton Rouge and Lafayette.

Anyway just wanted to welcome you to CAST. Please let me know if I can answer in questions about ish Rite.

And keep us posted on everything. TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, TexasSeries of 6 casts for 14 months followed by bracing since September 2007You can read 's story at.... http://www.infantilescoliosis.org/stories.html

From: Tame <dazies2001@...>infantile scoliosis treatment Sent: Sat, August 21, 2010 1:23:27 PMSubject: New member question

HiMy son is 3 1/2. He was diagnosed with scoliosis a little over a year ago. He is in his 3rd brace. The first was a bending brace wire only at night since he started out w/ a curve on top. The he was put in a brace fthat he wears all the time. He has an s shaped curve which is starting to rotate on the top and bottom. He may also be developing an aditional curve on the top.... Hope that makes sense. His curvature IN the brace ranges from 28 - 38 degrees. Right now he's being x rayed every 4- 6 weeks. The doc mentioned casting this week. He spoke about a cast I believe called a risser??? I asked about a mehta cast instead. Is it too late for him to get one since he's 3 1/2? He also has sotos syndrome which is partly characterized by low muscle tone and rapid growth between ages 2 and 5. Since he has an overgrowth syndrome surgery would not be in his best interest. We r hoping when he is 5 his back will stabalize, but at the moment it is

haywire and progressively getting worse. The brace isn't working and I am hoping we can try the cast. I guess I am looking for a bit of direction. We live on Louisiana. Thanks! Tame

[Guest guest]

As the others have stated, it's not too late, but it may take longer to work. The doctor in Alabama casted my son Ian. We absolutely love him and it was worth traveling to have him cast Ian. Personally, I would only go to a Mehta trained doctor who has the correct casting table. Good luck and you definitely came to the right place for advice! Noelle (12-2-01)Ian (8-15-04) From: Tame <dazies2001@...>infantile scoliosis treatment Sent: Sat, August 21, 2010 2:23:27 PMSubject: New member question

Hi

My son is 3 1/2. He was diagnosed with scoliosis a little over a year ago. He is in his 3rd brace. The first was a bending brace wire only at night since he started out w/ a curve on top. The he was put in a brace fthat he wears all the time. He has an s shaped curve which is starting to rotate on the top and bottom. He may also be developing an aditional curve on the top.... Hope that makes sense. His curvature IN the brace ranges from 28 - 38 degrees. Right now he's being x rayed every 4- 6 weeks. The doc mentioned casting this week. He spoke about a cast I believe called a risser??? I asked about a mehta cast instead. Is it too late for him to get one since he's 3 1/2? He also has sotos syndrome which is partly characterized by low muscle tone and rapid growth between ages 2 and 5. Since he has an overgrowth syndrome surgery would not be in his best interest. We r hoping when he is 5 his back will stabalize, but at the moment it is haywire

and progressively getting worse. The brace isn't working and I am hoping we can try the cast. I guess I am looking for a bit of direction. We live on Louisiana. Thanks! Tame

[Guest guest]

Tame if the ish Rite is not any closer for you, it will be worth the 7 hour drive to be casted by the Birmingham doctor. We drove 9 hours to see him (every 8 weeks in the beginning) and I would do it all over again. I cried when he left to go to Birmingham that's how much we loved him. Noelle (12-2-01)Ian (8-15-04) From: Tame Olson <dazies2001@...>"infantile scoliosis treatment " <infantile scoliosis treatment >Sent: Sat, August 21, 2010 7:53:12 PMSubject: Re: Re: New member question

We live in st. Parish which is about as far south as LA goes. We are 1 1/2 hrs from New Orleans and an hour the other direction from Lafayette. What part of TX are the physicians in that do casting? I think we are about 7 hours from Birmingham. TameSent from my iPhoneOn Aug 21, 2010, at 5:57 PM, Alyssa <rogersalyssa12@...> wrote:

Tame, Where in LA do you live? We do casting in Birmingham so that might be an option for you unless Texas is closer.AlyssaSent from my iPhone 4On Aug 21, 2010, at 5:19 PM, NIck Guthe <nickguthe@...> wrote:

Hello Tame,Yes, Jenn is absolutely right, you will want to find out who is the best Mehta trained doctor near you- who out there knows who that is?Welcome to CAST! Ask any and all questions you have of this great group! Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast)From: Tame Olson <dazies2001@...>"infantile scoliosis treatment " <infantile scoliosis treatment >Sent: Sat, August 21, 2010 2:22:09 PMSubject: Re: Re: New member

question

Good. I am really hoping it will be an option. When we first started treating scoliosis I asked about it but our first doc wasn't into any kind of casting at all. We have since switched pysicians. Our new ortho surgeon is very aggressive and helpful. We spoke briefly of casting during our last visit since he feels we may be heading in that direction he wanted to plant a seed for thought:) I think based on shat I've read the Mehta sounds more user friendly in many aspects We go back on October 14th, so I guess we will see what the x ray shows and which path we need to take. I have a month and a half to research options.....

Thanks

Sent from my iPhone

On Aug 21, 2010, at 4:01 PM, "genericallyloud" <jennifer.leggett@...> wrote:

You could absolutely still do mehta casting he is past the age where they ideally like to start but that doesn't exclude him from doing it at all. It is much better than risser casting with fewer negative side effects. Rapid growth is key to mehta casting and if he is likely to have rapid growth between 3 and 5 then Mehta casting may still get fantastic correction for him.

Jenn

Mommy to Cole, 2.5 years old, 1st brace from rochester, 2 degrees in brace down from 47, after 10 months in 5 casts

Hi

My son is 3 1/2. He was diagnosed with scoliosis a little over a year ago. He is in his 3rd brace. The first was a bending brace wire only at night since he started out w/ a curve on top. The he was put in a brace fthat he wears all the time. He has an s shaped curve which is starting to rotate on the top and bottom. He may also be developing an aditional curve on the top.... Hope that makes sense. His curvature IN the brace ranges from 28 - 38 degrees. Right now he's being x rayed every 4- 6 weeks. The doc mentioned casting this week. He spoke about a cast I believe called a risser??? I asked about a mehta cast instead. Is it too late for him to get one since he's 3 1/2? He also has sotos syndrome which is partly characterized by low muscle tone and rapid growth between ages 2 and 5. Since he has an overgrowth syndrome surgery would not be in his best interest. We r hoping when he is 5 his back will stabalize, but at the moment it is haywire

and progressively getting worse. The brace isn't working and I am hoping we can try the cast. I guess I am looking for a bit of direction. We live on Louisiana. Thanks! Tame

------------------------------------

[Guest guest]

Last time we were at ish Rite with my son, the xray tech told us they take children from all over the world. So it wouldn't hurt to call and check, they may have exceptions. Just a thought Joanmom to Hayden 339 degrees down from 62After 4 casts, now in a brace 23 hours/dayTreated at ish Rite Hospital Dallas, TX

From: Tasha Fontenot <ryanswalk@...>infantile scoliosis treatment Sent: Sun, August 22, 2010 6:51:53 AMSubject: Re: New member question

Tame,

Welcome to CAST! So happy you found us. I do not think it is too late for your son to receive some correction with casting. It may take longer because he is older, but there have been many children here that cast later.

My son, , goes to Texas ish Rite Hospital for Children in Dallas, Texas. I am not sure if that is closest for you or not, but it is a great hospital and they are Mehta trained. I know you are Louisiana and they usually only accept Texas residents, but I would call and double check on that. It seems I remember someone else out of state found out they would be able to go. But I could be totally off.

I have family all around there in LA. Lake , Sulphur, Baton Rouge and Lafayette.

Anyway just wanted to welcome you to CAST. Please let me know if I can answer in questions about ish Rite.

And keep us posted on everything. TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, TexasSeries of 6 casts for 14 months followed by bracing since September 2007You can read 's story at.... http://www.infantilescoliosis.org/stories.html

From: Tame <dazies2001@...>infantile scoliosis treatment Sent: Sat, August 21, 2010 1:23:27 PMSubject: New member question

HiMy son is 3 1/2. He was diagnosed with scoliosis a little over a year ago. He is in his 3rd brace. The first was a bending brace wire only at night since he started out w/ a curve on top. The he was put in a brace fthat he wears all the time. He has an s shaped curve which is starting to rotate on the top and bottom. He may also be developing an aditional curve on the top.... Hope that makes sense. His curvature IN the brace ranges from 28 - 38 degrees. Right now he's being x rayed every 4- 6 weeks. The doc mentioned casting this week. He spoke about a cast I believe called a risser??? I asked about a mehta cast instead. Is it too late for him to get one since he's 3 1/2? He also has sotos syndrome which is partly characterized by low muscle tone and rapid growth between ages 2 and 5. Since he has an overgrowth syndrome surgery would not be in his best interest. We r hoping when he is 5 his back will stabalize, but at the moment it is

haywire and progressively getting worse. The brace isn't working and I am hoping we can try the cast. I guess I am looking for a bit of direction. We live on Louisiana. Thanks! Tame

[Guest guest]

Joanie,

That's weird! Dr S nurse told me if you aren't a Tx resident you have to go

thru an advisory board who will decide if they will take you on as a study case.

But its really hard to get in that way. Who knows then???

Joan Vallee <hayro1611@...> wrote:

>Last time we were at ish Rite with my son, the xray tech told us they take

>children from all over the world. So it wouldn't hurt to call and check, they

>may have exceptions. Just a thought

> Joan

>mom to Hayden 3

>39 degrees down from 62

>After 4 casts, now in a brace 23 hours/day

>Treated at ish Rite Hospital

>Dallas, TX

>

>

>

>

>________________________________

>From: Tasha Fontenot <ryanswalk@...>

>infantile scoliosis treatment

>Sent: Sun, August 22, 2010 6:51:53 AM

>Subject: Re: New member question

>

> 

>Tame,

>Welcome to CAST!  So happy you found us.  I do not think it is too late for

your

>son to receive some correction with casting.  It may take longer because he is

>older, but there have been many children here that cast later.

>My son, , goes to Texas ish Rite Hospital for Children in Dallas,

>Texas.  I am not sure if that is closest for you or not, but it is a great

>hospital and they are Mehta trained.  I know you are Louisiana and they

usually

>only accept Texas residents, but I would call and double check on that.  It

>seems I remember someone else out of state found out they would be able to

go. 

>But I could be totally off.

>I have family all around there in LA.  Lake , Sulphur, Baton Rouge and

>Lafayette. 

>

>Anyway just wanted to welcome you to CAST.  Please let me know if I can

>answer in questions about ish Rite.

>

>And keep us posted on everything.

> Tasha

>Mommy of 5 year old twin boys- and

>Fort Worth, Texas

> is treated at Texas ish Rite Hospital in Dallas, Texas

>Series of 6 casts for 14 months followed by bracing since September 2007

>You can read 's story at.... http://www.infantilescoliosis.org/stories.html

>

>

>

>

>

>

>

>

>________________________________

>From: Tame <dazies2001@...>

>infantile scoliosis treatment

>Sent: Sat, August 21, 2010 1:23:27 PM

>Subject: New member question

>

> 

>Hi

>My son is 3 1/2. He was diagnosed with scoliosis a little over a year

>ago. He is in his 3rd brace. The first was a bending brace wire only at night

>since he started out w/ a curve on top. The he was put in a brace fthat he

wears

>all the time. He has an s shaped curve which is starting to rotate on the top

>and bottom. He may also be developing an aditional curve on the top.... Hope

>that makes sense. His curvature IN the brace ranges from 28 - 38 degrees. Right

>now he's being x rayed every 4- 6 weeks. The doc mentioned casting this week.

He

>spoke about a cast I believe called a risser??? I asked about a mehta cast

>instead. Is it too late for him to get one since he's 3 1/2? He also has sotos

>syndrome which is partly characterized by low muscle tone and rapid growth

>between ages 2 and 5. Since he has an overgrowth syndrome surgery would not be

>in his best interest. We r hoping when he is 5 his back will stabalize, but at

>the moment it is haywire and progressively getting worse. The brace isn't

>working and I am hoping we can try the cast. I guess I am looking for a bit of

>direction. We live on Louisiana. Thanks! Tame

>

>

>

>

>

>

>

[Guest guest]

Hey---just my two cents...We go to shriners in SC and they do Mehta casting...but they call is risser casting. Dr. P was trained by Dr Mehta herself. He said a lot of places will actually call it risser casting due to insurance purposes...that is how it is classifed by CPT/ICD-9 codes. So the place might actually do the Mehta casting...but call it risser...just clarify with the place you choose. Thought that might help =)

Logan's mama (45 down to 0 in 3rd cast, 14 months old)

From: Tame <dazies2001@...>infantile scoliosis treatment Sent: Sat, August 21, 2010 2:23:27 PMSubject: New member question

HiMy son is 3 1/2. He was diagnosed with scoliosis a little over a year ago. He is in his 3rd brace. The first was a bending brace wire only at night since he started out w/ a curve on top. The he was put in a brace fthat he wears all the time. He has an s shaped curve which is starting to rotate on the top and bottom. He may also be developing an aditional curve on the top.... Hope that makes sense. His curvature IN the brace ranges from 28 - 38 degrees. Right now he's being x rayed every 4- 6 weeks. The doc mentioned casting this week. He spoke about a cast I believe called a risser??? I asked about a mehta cast instead. Is it too late for him to get one since he's 3 1/2? He also has sotos syndrome which is partly characterized by low muscle tone and rapid growth between ages 2 and 5. Since he has an overgrowth syndrome surgery would not be in his best interest. We r hoping when he is 5 his back will stabalize, but at the moment it is

haywire and progressively getting worse. The brace isn't working and I am hoping we can try the cast. I guess I am looking for a bit of direction. We live on Louisiana. Thanks! Tame

[Guest guest]

Hey again--Oops---I see some responces were the same as min--My fault for not logging on until today =)

From: Medlin <amanda.medlin@...>infantile scoliosis treatment Sent: Mon, August 23, 2010 9:49:32 AMSubject: Re: New member question

Hey---just my two cents...We go to shriners in SC and they do Mehta casting...but they call is risser casting. Dr. P was trained by Dr Mehta herself. He said a lot of places will actually call it risser casting due to insurance purposes...that is how it is classifed by CPT/ICD-9 codes. So the place might actually do the Mehta casting...but call it risser...just clarify with the place you choose. Thought that might help =)

Logan's mama (45 down to 0 in 3rd cast, 14 months old)

From: Tame <dazies2001@...>infantile scoliosis treatment Sent: Sat, August 21, 2010 2:23:27 PMSubject: New member question

HiMy son is 3 1/2. He was diagnosed with scoliosis a little over a year ago. He is in his 3rd brace. The first was a bending brace wire only at night since he started out w/ a curve on top. The he was put in a brace fthat he wears all the time. He has an s shaped curve which is starting to rotate on the top and bottom. He may also be developing an aditional curve on the top.... Hope that makes sense. His curvature IN the brace ranges from 28 - 38 degrees. Right now he's being x rayed every 4- 6 weeks. The doc mentioned casting this week. He spoke about a cast I believe called a risser??? I asked about a mehta cast instead. Is it too late for him to get one since he's 3 1/2? He also has sotos syndrome which is partly characterized by low muscle tone and rapid growth between ages 2 and 5. Since he has an overgrowth syndrome surgery would not be in his best interest. We r hoping when he is 5 his back will stabalize, but at the moment it is

haywire and progressively getting worse. The brace isn't working and I am hoping we can try the cast. I guess I am looking for a bit of direction. We live on Louisiana. Thanks! Tame

[Guest guest]

Hi ...I don't know about the odor, but time-released magnesium without calcium is available from Jigsaw health online. Good luck.

BarbF

In a message dated 2/25/2011 6:18:21 A.M. Eastern Standard Time, deejen1@... writes:

Hi, I have a question regarding my 14 yr old son. He had frequent migraines for about 5 years. I had him start taking 12.5 mg of Iodoral about six months ago. He quit getting migraines while taking it. I was amazed that it worked so fast and right away. I recently had him start taking Magnesium and Vitamin C daily as a supplement to iodine. He says that now kids at school are telling him he smells. They make fun of him so he has stopped taking iodine, even though he is not able to function well with a migraine. He thinks the odor started when he started magnesium/calcium supplement. I looked through the Iodine FAQ's and found that it is recommended to take magnesium without calcium for body odor. I am not able to find this type of magnesium. It seems they all have calcium added. Has anyone else had experience with body odor while on iodine and have you found anything that works to help cut down the odor? Does the magnesium only form help with odor and if so where can I get this?Thank you, ------------------------------------All off topic posts should go to the IodineOT group IodineOT/Commonly asked questions: http://tinyurl.com/yhnds5e

[Guest guest]

maybe he needs an increase in Iodoral? I think all the things he

is taking should only help eventually. when I first took iodine I

did have some strange odors but now nothing at all.

gracia

yOn 2/25/2011 3:30 AM, jenny.brausch wrote:

Hi, I have a question regarding my 14 yr old son. He had

frequent migraines for about 5 years. I had him start

taking 12.5 mg of Iodoral about six months ago. He quit

getting migraines while taking it. I was amazed that it

worked so fast and right away. I recently had him start

taking Magnesium and Vitamin C daily as a supplement to

iodine. He says that now kids at school are telling him he

smells. They make fun of him so he has stopped taking

iodine, even though he is not able to function well with a

migraine. He thinks the odor started when he started

magnesium/calcium supplement. I looked through the Iodine

FAQ's and found that it is recommended to take magnesium

without calcium for body odor. I am not able to find this

type of magnesium. It seems they all have calcium added.

Has anyone else had experience with body odor while on

iodine and have you found anything that works to help cut

down the odor? Does the magnesium only form help with odor

and if so where can I get this?

Thank you,

[Guest guest]

There are lots of magnesium supplements that do not contain calcium -- Swanson's (on-line) carries a bunch. Topical magnesium oil also does not contain calcium.For body odor, sweating is good -- through exercise, or through a FIR sauna if you can get access to one. The odor is likely to be toxins being shed by the skin, so the way to get ahead of those toxins would be to help toxins out of the skin. Also, epsom salts, magnesium chloride, or other detoxing substances in the bath should help.AnneOn Feb 25, 2011, at 12:30 AM, jenny.brausch wrote: Hi, I have a question regarding my 14 yr old son. He had frequent migraines for about 5 years. I had him start taking 12.5 mg of Iodoral about six months ago. He quit getting migraines while taking it. I was amazed that it worked so fast and right away. I recently had him start taking Magnesium and Vitamin C daily as a supplement to iodine. He says that now kids at school are telling him he smells. They make fun of him so he has stopped taking iodine, even though he is not able to function well with a migraine. He thinks the odor started when he started magnesium/calcium supplement. I looked through the Iodine FAQ's and found that it is recommended to take magnesium without calcium for body odor. I am not able to find this type of magnesium. It seems they all have calcium added. Has anyone else had experience with body odor while on iodine and have you found anything that works to help cut down the odor? Does the magnesium only form help with odor and if so where can I get this? Thank you,

[Guest guest]

In the past (the list owner) has also recommended a detox bath using 1

cup Epsom Salts & 1 Cup Hydrogen Peroxide, soaking for at least 20 minutes.

>

> > Hi, I have a question regarding my 14 yr old son. He had frequent migraines

for about 5 years. I had him start taking 12.5 mg of Iodoral about six months

ago. He quit getting migraines while taking it. I was amazed that it worked so

fast and right away. I recently had him start taking Magnesium and Vitamin C

daily as a supplement to iodine. He says that now kids at school are telling him

he smells. They make fun of him so he has stopped taking iodine, even though he

is not able to function well with a migraine. He thinks the odor started when he

started magnesium/calcium supplement. I looked through the Iodine FAQ's and

found that it is recommended to take magnesium without calcium for body odor. I

am not able to find this type of magnesium. It seems they all have calcium

added. Has anyone else had experience with body odor while on iodine and have

you found anything that works to help cut down the odor? Does the magnesium only

form help with odor and if so where can I get this?

> >

> > Thank you,

> >

> >

> >

> >

>

> Linn

> Sew Sweet Designz by Linn

> http://www.sewsweetdesignzbylinn.com

> http://www.facebook.com/pages/Sew-Sweet-Designz-by-Linn/126648997385690

> 281-778-1006

>

[Guest guest]

Epsom salts baths are a good detox tool, an easy thing to use for kids. My daughter loves to take them. Just a note to be careful with kids though, as the magnesium can make them sleepy, so supervision is always a must.LinnOn Feb 25, 2011, at 7:09 PM, baxrox wrote:

In the past (the list owner) has also recommended a detox bath using 1 cup Epsom Salts & 1 Cup Hydrogen Peroxide, soaking for at least 20 minutes.

>

> > Hi, I have a question regarding my 14 yr old son. He had frequent migraines for about 5 years. I had him start taking 12.5 mg of Iodoral about six months ago. He quit getting migraines while taking it. I was amazed that it worked so fast and right away. I recently had him start taking Magnesium and Vitamin C daily as a supplement to iodine. He says that now kids at school are telling him he smells. They make fun of him so he has stopped taking iodine, even though he is not able to function well with a migraine. He thinks the odor started when he started magnesium/calcium supplement. I looked through the Iodine FAQ's and found that it is recommended to take magnesium without calcium for body odor. I am not able to find this type of magnesium. It seems they all have calcium added. Has anyone else had experience with body odor while on iodine and have you found anything that works to help cut down the odor? Does the magnesium only form help with odor and if so where can I get this?

> >

> > Thank you,

> >

> >

> >

> >

>

> Linn

> Sew Sweet Designz by Linn

> http://www.sewsweetdesignzbylinn.com

> http://www.facebook.com/pages/Sew-Sweet-Designz-by-Linn/126648997385690

> 281-778-1006

>

Linn Sew Sweet Designz by Linnhttp://www.sewsweetdesignzbylinn.comhttp://www.facebook.com/pages/Sew-Sweet-Designz-by-Linn/126648997385690281-778-1006

[Guest guest]

It is interesting. Epsom salt baths always make my son hyper. Any ideas on this?Ayse

[Guest guest]

I don't understand all the detox reactions especially atypical ones. I deal with fairly straightforward (adult) impaired detox pathways.Here is a link that may give you some direction to explore with children. Joanhttp://www.thepeacefamily.force9.co.uk/epsom.html

It is interesting. Epsom salt baths always make my son hyper. Any ideas on this?Ayse

[Guest guest]

Ayse -

The Epsom Salt baths may be mobilizing too many toxins for him to handle. Do you know how his pathways are functioning (liver, kidney and intestines)? Is he autistic, ADD or something else? Children with emotional issues tend to have sluggish pathways. My son has issues with Phase II liver pathways.

RE: Re: New Member Question

I don't understand all the detox reactions especially atypical ones. I deal with fairly straightforward (adult) impaired detox pathways.Here is a link that may give you some direction to explore with children. Joanhttp://www.thepeacefamily.force9.co.uk/epsom.html

It is interesting. Epsom salt baths always make my son hyper. Any ideas on this?

Ayse

[Guest guest]

I think there may be something to that. I got a sample at a health food show. It

was sea salts for bathing etc. Well I thought it was for one bath ( there was

enough for 10 baths). So I used the whole container. Wow ! I slept for about 20

hours ! I awoke and felt spacey for several more hours. I think I inadvertently

gave my body too much to process.

Be well,

>

> Ayse -

>

> The Epsom Salt baths may be mobilizing too many toxins for him to handle. Do

you know how his pathways are functioning (liver, kidney and intestines)? Is he

autistic, ADD or something else? Children with emotional issues tend to have

sluggish pathways. My son has issues with Phase II liver pathways.

>

>

>

>

> RE: Re: New Member Question

>

>

>

> I don't understand all the detox reactions especially atypical ones. I deal

with fairly straightforward (adult) impaired detox pathways.

>

> Here is a link that may give you some direction to explore with children.

>

> Joan

>

> http://www.thepeacefamily.force9.co.uk/epsom.html

>

>

>

>

> ------------------------------------------------------------------------------

>

>

> It is interesting. Epsom salt baths always make my son hyper. Any ideas on

this?

>

>

>

> Ayse

>

[Guest guest]

,You guessed right. My son is autistic. His detox pathways probably not functioning very well because we see die-off after every single antimicrobial. I live in Turkey and sent a blood sample to USA for Nutrogenomics testing. I will hopefully have some ideas on some issues we have with some supplements. My biggest problem in this " recovering my son " journey is that I can not figure out the difference between the die-off reaction and allergies. For instance doctor gave him Augmentin for an infection last week and he became so aggressive, his OCD and hyperactivity increased and also his back was itching all day. I freaked out and stopped it because I thought it could be allergy. And then I thought may be it was a huge die-off. Do any of you happen to know how I can differenciate these two?  Thanks

[Guest guest]

How does one go about finding out if they have sluggish pathways?

Thank you.

>

> Ayse -

>

> The Epsom Salt baths may be mobilizing too many toxins for him to handle. Do

you know how his pathways are functioning (liver, kidney and intestines)? Is he

autistic, ADD or something else? Children with emotional issues tend to have

sluggish pathways. My son has issues with Phase II liver pathways.

>

>

>

>

> RE: Re: New Member Question

>

>

>

> I don't understand all the detox reactions especially atypical ones. I deal

with fairly straightforward (adult) impaired detox pathways.

>

> Here is a link that may give you some direction to explore with children.

>

> Joan

>

> http://www.thepeacefamily.force9.co.uk/epsom.html

>

>

>

>

> ------------------------------------------------------------------------------

>

>

> It is interesting. Epsom salt baths always make my son hyper. Any ideas on

this?

>

>

>

> Ayse

>

[Guest guest]

This has some good info http://livingnetwork.co.za/chelationnetwork/food/liver-detox-pathways/

RE: Re: New Member Question> > > > I don't understand all the detox reactions especially atypical ones. I deal with fairly straightforward (adult) impaired detox pathways.> > Here is a link that may give you some direction to explore with children. > > Joan> > http://www.thepeacefamily.force9.co.uk/epsom.html> > > > > ----------------------------------------------------------> > > It is interesting. Epsom salt baths always make my son hyper. Any ideas on this?> > > > Ayse>

[Guest guest]

Going back to first principles, dark smelly urine might suggest you are not getting enough water. Constipation indicates that you need to work on your bowels. Rashes & zits indicate that toxins are not leaving your body in an orderly manner. And any unpleasant symptoms you get while taking something that promotes detox suggests that the toxins are not moving smoothly. There is a list of detox symptoms in the files.AnneOn Feb 27, 2011, at 2:31 PM, alagonza2000 wrote: How does one go about finding out if they have sluggish pathways? Thank you. > > Ayse - > > The Epsom Salt baths may be mobilizing too many toxins for him to handle. Do you know how his pathways are functioning (liver, kidney and intestines)? Is he autistic, ADD or something else? Children with emotional issues tend to have sluggish pathways. My son has issues with Phase II liver pathways. > > > > > RE: Re: New Member Question > > > > I don't understand all the detox reactions especially atypical ones. I deal with fairly straightforward (adult) impaired detox pathways. > > Here is a link that may give you some direction to explore with children. > > Joan > > http://www.thepeacefamily.force9.co.uk/epsom.html > > > > > ---------------------------------------------------------- > > > It is interesting. Epsom salt baths always make my son hyper. Any ideas on this? > > > > Ayse >

[Guest guest]

No I do not. So many issues are so closely related. I struggle figuring out my own son.

Steph

Re: Re: New Member Question

,

You guessed right. My son is autistic. His detox pathways probably not functioning very well because we see die-off after every single antimicrobial. I live in Turkey and sent a blood sample to USA for Nutrogenomics testing. I will hopefully have some ideas on some issues we have with some supplements. My biggest problem in this "recovering my son" journey is that I can not figure out the difference between the die-off reaction and allergies. For instance doctor gave him Augmentin for an infection last week and he became so aggressive, his OCD and hyperactivity increased and also his back was itching all day. I freaked out and stopped it because I thought it could be allergy. And then I thought may be it was a huge die-off. Do any of you happen to know how I can differenciate these two? Thanks

[Guest guest]

Hi, I've had botox, the first time it didn't work well at all, so the 2nd time

they used double the amount, and it worked for about a year, and it might be

slowly coming back, but still isn't as bad as it was.

Jen

________________________________

From: fattsolove <fattsolove@...>

achalasia

Sent: Tue, March 1, 2011 4:24:03 PM

Subject: New member question

Hi all,

First let me say that I'm thrilled to be a part of the group. I have gotten

plenty of in site by reading older posts.

I have a question or two but wanted to give a quick overview of my A. I was

diagnosed with A when I was 13. I've had several balloon dialations and two

hellers. The second lasted about 15 years. I'm 34 now and seem to be in trouble

again. Liquid won't go down, have to regerg often and weight loss. I'm not a

canadite for another hellers. The doctor has discussed an ectomy but wants to

try botox first.

Does anyone have experience with botox? Is it even worth it? Any thoughts would

be appreciated.

Stefani SoCal

[Guest guest]

Hey Stefani - first of all, RUN - do not walk away from this doctor who is

telling you to use botox - botox is short term at best at your age. What you

should really do is find the best surgeon you can in your area - not too

familiar with SOCO but isn't Dr. Maish there? there's got to be others as well -

I'm sure some of the Cali members will offer you suggestions - find out what

they say and get 2 or 3 opinions if you can. I had the ectomy 3 years ago at the

age of 39 (I was 12 when I got A and only had 1 myo - lasted about 18 years) -

it's a tough surgery but I am so much better now and life is great. I make far

less accommodations now then I did before - my 'new normal' is really great.

Get some opinions from some experienced surgeons - I would think you should be

able to find someone who does at least 50 ectomies a year or so at the big

universities and then keep us posted and we'll do what we can to help!!

good luck!

~ in NC

achalasia free since 2008

>

> Hi all,

>

> First let me say that I'm thrilled to be a part of the group. I have gotten

plenty of in site by reading older posts.

>

> I have a question or two but wanted to give a quick overview of my A. I was

diagnosed with A when I was 13. I've had several balloon dialations and two

hellers. The second lasted about 15 years. I'm 34 now and seem to be in trouble

again. Liquid won't go down, have to regerg often and weight loss. I'm not a

canadite for another hellers. The doctor has discussed an ectomy but wants to

try botox first.

>

> Does anyone have experience with botox? Is it even worth it? Any thoughts

would be appreciated.

>

> Stefani SoCal

>

[Guest guest]

Stefani wrote:

> ... The doctor has discussed an ectomy but wants to try botox first. ...

Botox is a protein which your immune system can learn to target as an

invader. Once that happens Botox won't last long if at all. For some

people it never works. For some it stops working quickly. Some get a few

months, others a year, and some even more than a year. It may work the

first time and not the next or it may work many times. In any case it is

temporary and the result decreases with time until you have another.

Also because it is targeted by the immune system it causes inflammation

which leads to scarring. Many surgeons say that the scarring makes

surgery in that area harder. Even so there are times Botox can be

helpful. If for some reason you can't have surgery or just want to buy

some time before surgery Botox may be right. Also if Botox works it may

be an indication that a myotomy (or redo myotomy) of those same muscles

may work.

If esophagectomy is in your future you should probably start talking to

some surgeons (more than one) that are experts in both end stage

achalasia and in doing esophagectomies. Some of them may even suggest

trying another myotomy first.

notan

[Guest guest]

Dear Stefani,

There are quite a few of us in So Cal. Julee is the most recent active member

of this group, she is in the Riverside area, I'm in Long Beach and there is a

recent surgery success guy in Carson. It is very healing to meet any of us (if

I say so myself). Let us know where you live.

Botox is a no no for most people, usually recommended by doctors that don't have

much esperience with achalasia...in general go to UCLA, USC or Cedars and speak

to the heads of their esophageal department. They will call you back, usually

within hours. Or email. If they don't call you then they didn't get the

message.

If you are seeing anyone less than the heads of the department of these

hospitals you are probably wasting your time and getting scared unnecessarily.

If you have an HMO, they will refer you out, but it might take some time. Julee

has been posting some beautiful testimonials the last few months, you might

search back through her messages.

I had surgery in 2005 (or 2004, I forget) and eat at about 95% or better of

normal people. There is hope but you absolutely have to see the heads of the

departments! Many many members of this group had surgery and don't bother

coming back to the group. I've kept in touch with quite a few that aren't

active here anymore, so don't get discouraged that there isn't hope.

Run from botox, unless you have some other condition that limits your options.

Sandy

>

> Hi all,

>

> First let me say that I'm thrilled to be a part of the group. I have gotten

plenty of in site by reading older posts.

>

> I have a question or two but wanted to give a quick overview of my A. I was

diagnosed with A when I was 13. I've had several balloon dialations and two

hellers. The second lasted about 15 years. I'm 34 now and seem to be in trouble

again. Liquid won't go down, have to regerg often and weight loss. I'm not a

canadite for another hellers. The doctor has discussed an ectomy but wants to

try botox first.

>

> Does anyone have experience with botox? Is it even worth it? Any thoughts

would be appreciated.

>

> Stefani SoCal

>