Guest guest Posted June 30, 2011 Report Share Posted June 30, 2011 We have finally heard from JinMei's team & I don't know what to think. They have decided she has been through too much & to stop everything for an extended period of time if possible. They were considering a Radical Mastoidectomy as they discovered erosion into the eustacian tube during a Canal Wall Down. They were also considering surgeries & other interventions dealing with Cleft Palate issues. The plan is to now have her see an ENT every 6 months & that's it. I don't know what to think. The erosion has me freaked out. The cholesteatomas are usually discovered during surgeries. Perhaps I'm just too used to all this intervention & it has me freaked out to be let loose? Since we adopted her less then 4 years ago, she has had 10 ear surgeries plus 9 more for all her other craniofacial issues. Donna DeBoer Quote Link to comment Share on other sites More sharing options...
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