Quick Question

[Guest guest]

My problems with RLS started long before my MGB.

Leg cramps are commonly caused by a lack of potassium. It might help you

if you ate a banana a couple of times per day. I think gatorade also has

a fair bit of potassium in it - yep, my bottle here says it has 65 mg

per 591 ml.

I know how distressing it can be. Good luck - I hope you find relief.

1/20/06

285/171/125

High/Now/Goal

sgmtmom wrote:

> I had my surgery 4 months ago and in the past month or so I have been

> having Restless Legs Syndrome. Prior to surgery I used to have about

> 1 episode every 1-2 months, now it is several times a week and the

> effects are worse. I went to my daughter's Christmas program last

> night and for 2 1/2 hours as I sat there I had to move my legs

> constantly and get up several times to walk. I know that not

> everything is related to the surgery, but am curious if this has

> happened to anyone else.

>

> Thanks,

>

> 8/16/06

> 335/267/???

> Pre-op/Now/Goal

[Guest guest]

Thanks for all the information, I will certainly look into these things.

pam morrison wrote:

>

> Hi,

> Everyone with restless leg should have their iron

> level and ferritin checked. If your ferritin level is

> below 60 it will make your symptoms much worse. I

> have had restless leg as well and found taking SlowFe

> 1-2 times a day helped. I have been able to absorb

> iron since my surgery. Be careful taking sinemet

> daily becasue you can get a rebound problem and the

> restless leg can get worse. Requip is a medication

> for restless leg but you should have your iron checked

> first. Probably more info than you needed.

> Pam

> --- sgmtmom <skymtn@... <mailto:skymtn%40infowest.com>> wrote:

>

> > I had my surgery 4 months ago and in the past month

> > or so I have been

> > having Restless Legs Syndrome. Prior to surgery I

> > used to have about

> > 1 episode every 1-2 months, now it is several times

> > a week and the

> > effects are worse. I went to my daughter's

> > Christmas program last

> > night and for 2 1/2 hours as I sat there I had to

> > move my legs

> > constantly and get up several times to walk. I know

> > that not

> > everything is related to the surgery, but am curious

> > if this has

> > happened to anyone else.

> >

> > Thanks,

> >

> > 8/16/06

> > 335/267/???

> > Pre-op/Now/Goal

> >

> >

>

> __________________________________________________

>

[Guest guest]

Thanks, I have been really trying to make the most of this surgery. I

was going to join a gym, but money was tight....so I decided to get a

second job as a waitress. Now I get paid to work out!

brenwwjdn@... wrote:

>

> by the way, congratulations on the weight loss. That is great for 4

> months.

>

> Hugs,

> Dr. Rutledge

> 5/17/06

> 246/177/140 = 69 lbs

> high/today/goal

> 34 minutes/6 ft. by-pass

>

>

[Guest guest]

Thanks, a banana is a perfect breakfast!

Kenny wrote:

>

> My problems with RLS started long before my MGB.

>

> Leg cramps are commonly caused by a lack of potassium. It might help you

> if you ate a banana a couple of times per day. I think gatorade also has

> a fair bit of potassium in it - yep, my bottle here says it has 65 mg

> per 591 ml.

>

> I know how distressing it can be. Good luck - I hope you find relief.

>

>

> 1/20/06

> 285/171/125

> High/Now/Goal

>

> sgmtmom wrote:

> > I had my surgery 4 months ago and in the past month or so I have been

> > having Restless Legs Syndrome. Prior to surgery I used to have about

> > 1 episode every 1-2 months, now it is several times a week and the

> > effects are worse. I went to my daughter's Christmas program last

> > night and for 2 1/2 hours as I sat there I had to move my legs

> > constantly and get up several times to walk. I know that not

> > everything is related to the surgery, but am curious if this has

> > happened to anyone else.

> >

> > Thanks,

> >

> > 8/16/06

> > 335/267/???

> > Pre-op/Now/Goal

>

>

> ------------------------------------------------------------------------

>

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> Forget previous vote

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>

[Guest guest]

Thanks for the information. I will certainly have my blood levels

checked.

>

> > I had my surgery 4 months ago and in the past month

> > or so I have been

> > having Restless Legs Syndrome. Prior to surgery I

> > used to have about

> > 1 episode every 1-2 months, now it is several times

> > a week and the

> > effects are worse. I went to my daughter's

> > Christmas program last

> > night and for 2 1/2 hours as I sat there I had to

> > move my legs

> > constantly and get up several times to walk. I know

> > that not

> > everything is related to the surgery, but am curious

> > if this has

> > happened to anyone else.

> >

> > Thanks,

> >

> > 8/16/06

> > 335/267/???

> > Pre-op/Now/Goal

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Thanks, I have really been putting forth an effort to make the most of

this opportunity given me and begin to make better choices.

>

> by the way, congratulations on the weight loss. That is great for 4

months.

>

> Hugs,

> Dr. Rutledge

> 5/17/06

> 246/177/140 = 69 lbs

> high/today/goal

> 34 minutes/6 ft. by-pass

>

>

>

[Guest guest]

We use Pamper's Cruisers and that seems to work best for us because of the

stretchy tabs. I always get them to tape the antibacterial shirt to the bottom

of the cast...we didn't do that the first time and it ended up being a

nightmare. I try to always keep him in an outfit that completely covers he

cast.

Noelle (12-2-01)

Ian (8-15-04)

Quick question

First, it looks like it's all been confirmed for our first appointment in Erie

with Dr. Kourey on Feb 12th. We're very glad to have gotten in so soon!

Next - we just wanted to know if you guys have any good tips on keeping your

kids' casts clean (both inside and out.) We already got some good advise from

Heater (Lily's mom) and wanted to know what else you guys would suggest.

--Matt and Angie

[Guest guest]

You really do need a FT3 level but the FT4 will be a clue. If it has tanked

majorly as well then you are truly in a hypo situation more than likely.

You can order your own FT3 & FT4 levels through www.healthcheckusa.com if

you cannot get the doc to do it. I would never have told him about the

iodine but used it as leverage that the levoxyl was not working and Armour

should be tried. But now you are committed. Dr. B does not treat by TSH.

When starting iodine and the TSH increases he uses clinical symptoms along

with the frees to manage it for up to 6 mos. That is sometimes how long it

takes to bring it down. TSH has gone as high as 30. How are her body

temps? Take her basal temp to see if she is showing low metabolic symptoms

in temps. My son's temps drop quite a bit when he needs more thyroid

hormone.

Steph

Quick question

> I'm sorry I didn't ask this sooner and now the Endo appt for my 2 girls

> is tomorrow!

> LM, who you've seen pictures of, is on Iodoral. LM is 11 & weighs 50

> lbs

> or so. I was thrilled that her goiter went away in a month. But she had

> blood work done & the endo was not pleased. As you've said recently

> , her TSH went UP on Iodoral.

>

> 10/08/07

> TSH 0.040

> Free T4 1.03 (0.50-1.60)

> This doc refuses to do FT3

>

> 12/18/07

> TSH 6.260

> FT4 0.67

>

> So since her TSH went up so much her dr was alarmed I told him about

> the

> iodine. He said that's probably what caused it. He told me to stop giving

> it

> to her, which I did not. He told me he'd have to up her thyroid meds.

> That's

> OK with me, as long as he switches her to armour. LM also had TSH & FT4 on

> 1/8/08 but I won't have those number till I see him tomorrow.

> So, what do I say about the increase TSH? Is it really necessary to

> increase thyroid med? You said Dr. B has people whose TSH goes way up for

> months....then comes down. Does he treat elevated TSH? (I'm thinking this

> is

> a stupid question even as I type it out). LM does not seem hypo to me at

> 6.260. What should we do with her dose of thyroid? In looking at the

> Armour

> site, I think she should start on 15 mg now. But I'll need to find someone

> to order FT3 & FT4.

> TIA for your help!

> B

> God Bless America!

> One nation under God

>

>

>

>

>

>

>

>

[Guest guest]

Thanks Steph. I figured I had to tell him about the iodine anyway or explain

the disappearing goiter ;-) I will find someone else to order the lab work &

Armour if I have to. I am determined that she go on it.

We live in NY so can't order our own labs ... I wish I could. But the

girls pediatrician will do just about anything I ask her to. She has ordered

all the tests before.

I haven't taken her temps yet. I'll start.

Thanks for all the good info. I'll let you know how the visit goes :-)

B

God Bless America!

One nation under God

----- Original Message -----

From: " ladybugsandbees "

> You really do need a FT3 level but the FT4 will be a clue. If it has

> tanked

> majorly as well then you are truly in a hypo situation more than likely.

> You can order your own FT3 & FT4 levels through www.healthcheckusa.com if

> you cannot get the doc to do it. I would never have told him about the

> iodine but used it as leverage that the levoxyl was not working and Armour

> should be tried. But now you are committed. Dr. B does not treat by TSH.

> When starting iodine and the TSH increases he uses clinical symptoms along

> with the frees to manage it for up to 6 mos. That is sometimes how long

> it

> takes to bring it down. TSH has gone as high as 30. How are her body

> temps? Take her basal temp to see if she is showing low metabolic

> symptoms

> in temps. My son's temps drop quite a bit when he needs more thyroid

> hormone.

>

> Steph

[Guest guest]

You are welcome. Best of luck!

Re: Quick question

> Thanks Steph. I figured I had to tell him about the iodine anyway or

> explain

> the disappearing goiter ;-) I will find someone else to order the lab work

> &

> Armour if I have to. I am determined that she go on it.

> We live in NY so can't order our own labs ... I wish I could. But the

> girls pediatrician will do just about anything I ask her to. She has

> ordered

> all the tests before.

> I haven't taken her temps yet. I'll start.

> Thanks for all the good info. I'll let you know how the visit goes :-)

> B

> God Bless America!

> One nation under God

>

> ----- Original Message -----

> From: " ladybugsandbees "

>> You really do need a FT3 level but the FT4 will be a clue. If it has

>> tanked

>> majorly as well then you are truly in a hypo situation more than likely.

>> You can order your own FT3 & FT4 levels through www.healthcheckusa.com if

>> you cannot get the doc to do it. I would never have told him about the

>> iodine but used it as leverage that the levoxyl was not working and

>> Armour

>> should be tried. But now you are committed. Dr. B does not treat by

>> TSH.

>> When starting iodine and the TSH increases he uses clinical symptoms

>> along

>> with the frees to manage it for up to 6 mos. That is sometimes how long

>> it

>> takes to bring it down. TSH has gone as high as 30. How are her body

>> temps? Take her basal temp to see if she is showing low metabolic

>> symptoms

>> in temps. My son's temps drop quite a bit when he needs more thyroid

>> hormone.

>>

>> Steph

>

>

>

>

>

>

>

>

[Guest guest]

***> sorry to be a pest again, but just wanted to ask is TPO test ever repeated once done ( mine 150 ) and can the anitbodies ever increase over time as you age, even on medication..? Currently on 50mcg LT daily.

Yes, Jill, and yes again .... if your doctor is agreeable, you can have them checked again (mine does it once a year, but only if I ask specifically for it). However, it is really just for information purposes to know what is happening inside your body. - When you have positive thyroid autoantibodies (TPO and/or TgAB), it means you suffer from Hashimoto's disease. The actual amount of those AAs (autoantibodies) can go up or down, but they will be there (in varying numbers) until their goal has been achieved - which is to destroy your thyroid gland. Nothing you do will prevent that from happening. As I understand it, it is the nature of autoimmunity ... once activated, you can't stop the clock.

Thyroid medication can keep the AAs down, but it can't eradicate them. So in a way, it does not matter how many you've got, but I assume, the more there are, the greater the risk of those autoimmune attacks - which can cause you to feel really awful. The only thing you have some sort of control over, is to limit these attacks by taking the correct amount of thyroid medication, to keep the little b***ers down.

Best wishes,

[Guest guest]

Thanks , will keep that in mind, thank you

[Edit Abbrev Mod]

[Guest guest]

I have IH. I am just curious about what his opinion is about you and IH. TianaFrom: Tami Klumpyan <tami1961@...>samters <samters >Sent: Sunday, June 28, 2009 12:00:21 PMSubject: quick question

I've noticed that it seems most samterites have an overload of mucus. I don't. I hardly ever have to blow my nose. I Know that I have a lot go down the back of my throat and when I do have to blow my nose it comes out extremely thick and jelled. I wonder if mine just stays in my head.

The other day I had my eyes check for IH and my eye doctor seemed really concerned that my eyes did not react at all to the little light that they use to check for this. He later tried a very strong light and they finally reacted. I assured him that I was not dead and it must be from the meds. Has anyone else experienced this?

So much for 1 quick question!

My hands are also still itching and blistering like mad. It is driving me absolutely insane. It was good for two weeks and came back with a vengence. Help!

That's it for now. Thanks, Tami

[Guest guest]

What is IH? Maggiesamters From: jonzbyz3@...Date: Sun, 28 Jun 2009 21:07:56 -0700Subject: Re: quick question

I have IH. I am just curious about what his opinion is about you and IH. TianaFrom: Tami Klumpyan <tami1961verizon (DOT) net>samters <samters >Sent: Sunday, June 28, 2009 12:00:21 PMSubject: quick question

I've noticed that it seems most samterites have an overload of mucus. I don't. I hardly ever have to blow my nose. I Know that I have a lot go down the back of my throat and when I do have to blow my nose it comes out extremely thick and jelled. I wonder if mine just stays in my head.

The other day I had my eyes check for IH and my eye doctor seemed really concerned that my eyes did not react at all to the little light that they use to check for this. He later tried a very strong light and they finally reacted. I assured him that I was not dead and it must be from the meds. Has anyone else experienced this?

So much for 1 quick question!

My hands are also still itching and blistering like mad. It is driving me absolutely insane. It was good for two weeks and came back with a vengence. Help!

That's it for now. Thanks, Tami

Create a cool, new character for your Windows Live™ Messenger. Check it out

[Guest guest]

Intercranial Hypertension. I thought maybe that was what was causing my chronic headaches.

Tami

quick question

I've noticed that it seems most samterites have an overload of mucus. I don't. I hardly ever have to blow my nose. I Know that I have a lot go down the back of my throat and when I do have to blow my nose it comes out extremely thick and jelled. I wonder if mine just stays in my head.

The other day I had my eyes check for IH and my eye doctor seemed really concerned that my eyes did not react at all to the little light that they use to check for this. He later tried a very strong light and they finally reacted. I assured him that I was not dead and it must be from the meds. Has anyone else experienced this?

So much for 1 quick question!

My hands are also still itching and blistering like mad. It is driving me absolutely insane. It was good for two weeks and came back with a vengence. Help!

That's it for now. Thanks, Tami

Create a cool, new character for your Windows Live™ Messenger. Check it out

[Guest guest]

He said my optic nerve is fine. I know there's something more than samters going on here though. Call it a gut feeling. There was someone who had a tiny leak in a ventrical in her head or something like that and it took a long time to diagnose as they always thought it was sinus issues. Now they fixed the tiny leak and she is better. I just wonder if something got poked when I had my first surgery. I just never ever get rid of the headaches, no matter what sinus surgery has been done. I don't have money to go any farther at this point, but will be tested extensively once I have finances coming in.

Is your optic nerve flattening or anything with IH?

What are your symptoms?

Tami

quick question

I've noticed that it seems most samterites have an overload of mucus. I don't. I hardly ever have to blow my nose. I Know that I have a lot go down the back of my throat and when I do have to blow my nose it comes out extremely thick and jelled. I wonder if mine just stays in my head.

The other day I had my eyes check for IH and my eye doctor seemed really concerned that my eyes did not react at all to the little light that they use to check for this. He later tried a very strong light and they finally reacted. I assured him that I was not dead and it must be from the meds. Has anyone else experienced this?

So much for 1 quick question!

My hands are also still itching and blistering like mad. It is driving me absolutely insane. It was good for two weeks and came back with a vengence. Help!

That's it for now. Thanks, Tami

[Guest guest]

My optic nerve is flattened when my pressure is really high. My doctor can detect my pressure being a little high (which is uncomfortable) by the heart beat in the veins around my optic nerve. That probably would not have been true before I had an official diagnosis and a very specialized specialist. It took along time and an emergency to get a diagnosis. I now go to a nuero-opthamologist who specializes is IH. Your constant headaches just sounds to familiar and didn't you say you have that swooshing version of tinnitus? I hope they get it figured out for you soon! TianaFrom: Tami Klumpyan <tami1961@...>samters Sent: Monday, June 29, 2009 9:29:56 AMSubject: Re: quick question

He said my optic nerve is fine. I know there's something more than samters going on here though. Call it a gut feeling. There was someone who had a tiny leak in a ventrical in her head or something like that and it took a long time to diagnose as they always thought it was sinus issues. Now they fixed the tiny leak and she is better. I just wonder if something got poked when I had my first surgery. I just never ever get rid of the headaches, no matter what sinus surgery has been done. I don't have money to go any farther at this point, but will be tested extensively once I have finances coming in.

Is your optic nerve flattening or anything with IH?

What are your symptoms?

Tami

quick question

I've noticed that it seems most samterites have an overload of mucus. I don't. I hardly ever have to blow my nose. I Know that I have a lot go down the back of my throat and when I do have to blow my nose it comes out extremely thick and jelled. I wonder if mine just stays in my head.

The other day I had my eyes check for IH and my eye doctor seemed really concerned that my eyes did not react at all to the little light that they use to check for this. He later tried a very strong light and they finally reacted. I assured him that I was not dead and it must be from the meds. Has anyone else experienced this?

So much for 1 quick question!

My hands are also still itching and blistering like mad. It is driving me absolutely insane. It was good for two weeks and came back with a vengence. Help!

That's it for now. Thanks, Tami

[Guest guest]

As far as mucus goes, I have tons of it. It really is a bit ridiculous. But,

yes, most of the time it is thick and jelly-like. Sometimes it looks more like

tissue. I was recently desensitized to aspirin, so we'll see if that cuts down

on mucus production.

Christy

>

> I've noticed that it seems most samterites have an overload of mucus. I

don't. I hardly ever have to blow my nose. I Know that I have a lot go down

the back of my throat and when I do have to blow my nose it comes out extremely

thick and jelled. I wonder if mine just stays in my head.

>

> The other day I had my eyes check for IH and my eye doctor seemed really

concerned that my eyes did not react at all to the little light that they use to

check for this. He later tried a very strong light and they finally reacted. I

assured him that I was not dead and it must be from the meds. Has anyone else

experienced this?

> So much for 1 quick question!

>

> My hands are also still itching and blistering like mad. It is driving me

absolutely insane. It was good for two weeks and came back with a vengence.

Help!

>

> That's it for now. Thanks, Tami

>

[Guest guest]

Hi Tiana,

Do you have whooshing in your ears all the time? Mine is intermittent. I think also that my symtoms are too similar to IH not to have something to do with some extra fluid outside of my sinuses. Too many sinus surgeries without a day of relief tells me something isn't right. What would be your first suggestion on who to see to continue checking into this?

Thanks

Tami

It's too bad illness can't just be black and white. My husband thinks illness is and that everything can be fixed by going to a doctor the first time.

quick question

I've noticed that it seems most samterites have an overload of mucus. I don't. I hardly ever have to blow my nose. I Know that I have a lot go down the back of my throat and when I do have to blow my nose it comes out extremely thick and jelled. I wonder if mine just stays in my head.

The other day I had my eyes check for IH and my eye doctor seemed really concerned that my eyes did not react at all to the little light that they use to check for this. He later tried a very strong light and they finally reacted. I assured him that I was not dead and it must be from the meds. Has anyone else experienced this?

So much for 1 quick question!

My hands are also still itching and blistering like mad. It is driving me absolutely insane. It was good for two weeks and came back with a vengence. Help!

That's it for now. Thanks, Tami

[Guest guest]

Certainly somthing to bring up to my neurologist. I also get a little freaked out whenever I get a migraine because I have a vein on the left side of my forehead that will really bulge out! I always forget to mention this to my doctor, but maybe should do so sooner than later.

Jane

From: Tiana <jonzbyz3@...>Subject: Re: quick questionsamters Date: Monday, June 29, 2009, 9:29 PM

My optic nerve is flattened when my pressure is really high. My doctor can detect my pressure being a little high (which is uncomfortable) by the heart beat in the veins around my optic nerve. That probably would not have been true before I had an official diagnosis and a very specialized specialist. It took along time and an emergency to get a diagnosis. I now go to a nuero-opthamologist who specializes is IH. Your constant headaches just sounds to familiar and didn't you say you have that swooshing version of tinnitus? I hope they get it figured out for you soon! Tiana

From: Tami Klumpyan <tami1961verizon (DOT) net>samters@groups .comSent: Monday, June 29, 2009 9:29:56 AMSubject: Re: quick question

He said my optic nerve is fine. I know there's something more than samters going on here though. Call it a gut feeling. There was someone who had a tiny leak in a ventrical in her head or something like that and it took a long time to diagnose as they always thought it was sinus issues. Now they fixed the tiny leak and she is better. I just wonder if something got poked when I had my first surgery. I just never ever get rid of the headaches, no matter what sinus surgery has been done. I don't have money to go any farther at this point, but will be tested extensively once I have finances coming in.

Is your optic nerve flattening or anything with IH?

What are your symptoms?

Tami

quick question

I've noticed that it seems most samterites have an overload of mucus. I don't. I hardly ever have to blow my nose. I Know that I have a lot go down the back of my throat and when I do have to blow my nose it comes out extremely thick and jelled. I wonder if mine just stays in my head.

The other day I had my eyes check for IH and my eye doctor seemed really concerned that my eyes did not react at all to the little light that they use to check for this. He later tried a very strong light and they finally reacted. I assured him that I was not dead and it must be from the meds. Has anyone else experienced this?

So much for 1 quick question!

My hands are also still itching and blistering like mad. It is driving me absolutely insane. It was good for two weeks and came back with a vengence. Help!

That's it for now. Thanks, Tami

[Guest guest]

These are my favorite posts (below) because I can't really discuss the joys of

mucus with my husband--he finds it very gross. Ah, this group is great.

Oh by the way, speaking of mucus, does Mucinex do anything for you guys? I find

it completely ineffective.

Cheers,

Becca

> >

> > I've noticed that it seems most samterites have an overload of mucus. I

don't. I hardly ever have to blow my nose. I Know that I have a lot go down

the back of my throat and when I do have to blow my nose it comes out extremely

thick and jelled. I wonder if mine just stays in my head.

> >

> > The other day I had my eyes check for IH and my eye doctor seemed really

concerned that my eyes did not react at all to the little light that they use to

check for this. He later tried a very strong light and they finally reacted. I

assured him that I was not dead and it must be from the meds. Has anyone else

experienced this?

> > So much for 1 quick question!

> >

> > My hands are also still itching and blistering like mad. It is driving me

absolutely insane. It was good for two weeks and came back with a vengence.

Help!

> >

> > That's it for now. Thanks, Tami

> >

>

[Guest guest]

Hi L,

Could you tell me what site you looked on for the IH info? I've looked it up before but didn't see anything about floaters. I do have floaters, or sparks alot, and when I lay down and roll to try and drain my frontals I get so nauseated I have to sit for a bit.

Thanks

Tami

quick question

I've noticed that it seems most samterites have an overload of mucus. I don't. I hardly ever have to blow my nose. I Know that I have a lot go down the back of my throat and when I do have to blow my nose it comes out extremely thick and jelled. I wonder if mine just stays in my head.

The other day I had my eyes check for IH and my eye doctor seemed really concerned that my eyes did not react at all to the little light that they use to check for this. He later tried a very strong light and they finally reacted. I assured him that I was not dead and it must be from the meds. Has anyone else experienced this?

So much for 1 quick question!

My hands are also still itching and blistering like mad. It is driving me absolutely insane. It was good for two weeks and came back with a vengence. Help!

That's it for now. Thanks, Tami

[Guest guest]

Sorry I am so late in answering your questions I have been out of pocket. I do not have swooshing at all because my IH is under control. When I am having problems with it I have all of the symptoms you have all mentioned and each of them are intermittent. I have the swooshing, the headaches (daily), the floaters, and the rainbow sparks. I had these things for over a year before things got really ugly and they were able to make a diagnosis. Really ugly was intense headaches, loss of vision(full black outs of vision), extreme light sensitivity, stiff neck. They hospitalized me thinking I had menengitis and my nuerologist confirm IH instead. He was able to make this diagnosis by a spinal tap(yuck) which is the only real way to confirm cerebral spinal

pressure. By the time I was diagnosed I had a clot in my venus sinus ( a valveless vein in the brain) and had to stay in the hospital for 9 days on Heparin and a year on Coumadin. My really ugly episode came after a sinus surgery that did not help followed by an intense round of steroids and antibiotics. I let it get dangerous because everybody was looking at my sinuses as the only problem. I have now figured out that everytime I have an IH flairup it goes hand and hand with me sinuses getting worse. This clouds that black and white thing you were saying. Steroids send my pressure soaring every time. I avoid them like the plague. If I have to take them I also take Diamox to relieve the pressure. On how to get a proper diagnosis without a really ugly episode, I am not sure what you should do. I see an IH specialist in OKC,OK if anyone is interested. I would say be

dilligent and learn as much about it as possible. It is being diagnosed more and more so doctors are becoming more knowledgable all the time. They have even changed the name since my diagnosis to more acurately describe it. Just some interesting info my doctor says he sees certain types of people with IH. The extremely obese, people with pituatary issues (also me) and people with grave sinus issues. I have occasions when I lean over and water runs out my nose. I asked him and he said that it is possible for intercranial fluid to drain out the nose when pressure is to high. In case you are wondering what medications I am on today the only thing I take daily is a growth hormone injection (for pituatary problem). I see a naturopathic doctor and occasionally take something she prescribes. She is awesome and is knowledgable about all of my problems. I

watch my food some what and try to avoid any artificial salicylates. I have also quit drinking my beloved coffee which has eliminated all of my asthma symptoms (uggh very hard). For a sinus flair up I use Omnaris and it has been the only prescibed nasal spray that doesn't seem to cause me any other problems. I cannot tolerate the other steroid nasal sprays, IH goes up. I do not take the Omnaris all the time like I am suppose to. I will use it for a week or two and watch my foods better and then quit taking it. I hope this is helpful. Good luck with getting help. TianaFrom: Tami Klumpyan <tami1961@...>samters Sent: Tuesday, June 30, 2009 3:07:21 PMSubject: Re: quick question

Hi L,

Could you tell me what site you looked on for the IH info? I've looked it up before but didn't see anything about floaters. I do have floaters, or sparks alot, and when I lay down and roll to try and drain my frontals I get so nauseated I have to sit for a bit.

Thanks

Tami

quick question

I've noticed that it seems most samterites have an overload of mucus. I don't. I hardly ever have to blow my nose. I Know that I have a lot go down the back of my throat and when I do have to blow my nose it comes out extremely thick and jelled. I wonder if mine just stays in my head.

The other day I had my eyes check for IH and my eye doctor seemed really concerned that my eyes did not react at all to the little light that they use to check for this. He later tried a very strong light and they finally reacted. I assured him that I was not dead and it must be from the meds. Has anyone else experienced this?

So much for 1 quick question!

My hands are also still itching and blistering like mad. It is driving me absolutely insane. It was good for two weeks and came back with a vengence. Help!

That's it for now. Thanks, Tami

[Guest guest]

Thank you so much for your reply. It confirms to me that I can not give up looking. I am way too similar to you. Even the nose drip thing. My pressure feels extremely high when that happens. I don't want to get to your grave position before checking more into this.

I always get more severe headaches with nasal sprays, and that's why I don't use them. It sends my number 4-6 pressure headache up to a non functioning 8. I am slightly overweight, but was much heavier when this all started. I had quit smoking at the time, gained 50 lbs and a twelve year headache and counting!

Thanks so much again. Better days ahead for all of us. I find that when I'm feeling down it helps to go to a glitter site called glitterfly.com ! Lots of beautiful pics there. I'm not advertising it, just letting people know what helps me, also a very large freezy pop and old Bob Newhart shows tend to help!

Tami

quick question

I've noticed that it seems most samterites have an overload of mucus. I don't. I hardly ever have to blow my nose. I Know that I have a lot go down the back of my throat and when I do have to blow my nose it comes out extremely thick and jelled. I wonder if mine just stays in my head.

The other day I had my eyes check for IH and my eye doctor seemed really concerned that my eyes did not react at all to the little light that they use to check for this. He later tried a very strong light and they finally reacted. I assured him that I was not dead and it must be from the meds. Has anyone else experienced this?

So much for 1 quick question!

My hands are also still itching and blistering like mad. It is driving me absolutely insane. It was good for two weeks and came back with a vengence. Help!

That's it for now. Thanks, Tami

[Guest guest]

Hi Tricia, antibody attacks come in waves, so the levels fluctuate, and cease when there is no more thyroid to destroy. thyroid treatment From: tricia.wiley@...Date: Mon, 5 Oct 2009 07:40:04 -0700Subject: Quick Question

Hi Everyone

Can anyone tell me if you have high thyroid antibodies e.g. 1340 do they ever reduce or will you always have high antibodies? I am taking thyroxine but the doctor indicated that once they are high they will never come down......is this correct?

Many Thanks

Tricia

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