I am not an achon thank you

February 25, 2011

Hello all,

Adelaide's story reminded me of my own situation for the past few years. I have

not felt like a celebrity with any of my docs or hospitals as I've been lucky,

no matter what insurance, to stay with the same docs and medical group since I

was 12, however, I will say that I feel like some think they can treat all

dwarfs the same. I was sent to see a surgeon at my local hospital to discuss my

hip replacement. I had asked him if he had worked on any LP's, and he said yes,

achons...then he went on to say the achon's were taller, had more bone length,

these are there results, you may not be so lucky, why are you here, can't you

wait a few more years, do you really have pain, etc? I know that for a lot of

things it doesn't matter if you're achon or pseudo, what not, some of the

situations call for the same treatment. Luckily though I didn't go with that

doctor, Mr. Doubt My Pain, but found a doctor who has worked on Pseudos! I told

her about what the other surgeon said and she thought he really did not want to

do the surgery because I was so short and half of what he said really was not

true.

If I was physiologically the same as an Achon...I'd be an Achon! Its just nice

to have a doctor/surgeon realize that there are over 200 types of dwarfisms and

you can't cookie cutter us all the time with the same proceedures, treatment,

etc.

I should say though my surgeon told me my hip replacement parts were the

smallest she's ever ordered! Well, that's a first lol (I'm 3'3 and

Pseudo). Nothing against Achon's btw, I love my achon friends and bf!

On a side note though, it's been 9 months since my first hip replacement and my

leg is pretty much back to normal! The pain I felt before is totally gone and

I've built up the confidence again to put all of my weight on that leg and no

problem! It is so nice to sleep, get dressed, walk, etc without having any

pain. I'm still working on the flexibility and I can finally reach my toes

(surgeon said that's not a problem). I do have to remember to becareful on how

I move my leg as these are now replacement parts, not the original, so I can't

be flinging my leg all over the place! I have noticed though that putting all

of my weight, during the year before my surgery and while recovering, on my

" good " leg has now sent it on the journey towards a hip replacement as well in

the next few years. For the time being though, I looooove the freedom of not

being on crutches, and just being able to get up and walk! You really learn to

value those simple things when it's been taken away from you.

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