Hi everyone

[Guest guest]

Hi Rhonda,

I'm sorry to hear about your grandfather, but at least you know that he

isn't in pain anymore. I guess that is one of things that helped me when

my dad died. He too had cancer and suffered for 9 months.

You and Karma sure have me thinking about my dad. Karma mentioned the

movie " The Sixth Sense " , I've never seen that movie, however about 10

years after my dad died I had a very vivid dream about him. I was working

at a daycare that I used to work at in my dream and he was there. He

looked at me and I looked at him. I was in shock because in my dream he

was dead, but he was there talking to me. He asked me what was the

matter? I told him that I missed him. The dream was really weird but it

was so real. I guess he was telling me that he was alright, knowing that

I missed so much. I woke up and cried for about an hour after that. I

remember that dream like it happened yesterday. I had the dream about 13

years ago.

I'll be praying for your grandmother, you and your family

Love, Liz

________________________________________________________________

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Juno offers FREE or PREMIUM Internet access for less!

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[Guest guest]

Hi Everyone,

What a day that we've had. I think it's good when we can share things

about our deceased loved ones. Although my dad died along time ago, he's

still in my heart and I still love him and miss him. We need to reminisce

about these things once in awhile. I am glad to be able to share my dream

with others. It causes me to really think about that night. I'll never

forget it and I don't want to forget. Thanks for letting me share.

Love, Liz

________________________________________________________________

GET INTERNET ACCESS FROM JUNO!

Juno offers FREE or PREMIUM Internet access for less!

Join Juno today! For your FREE software, visit:

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[Guest guest]

Hi <br><br>Sorry to hear about your CP...

You could try a magnetic knee wrap. I've been wearing

them for about 10 days now and I feel they work. I've

been moving about better since I put them on.

<br><br>You should make sure you have holes for the knee caps

though. I use cotton " tubes " which don't have holes in

them but today I had to cut holes because the

material/pressure etc got to me and caused quite sharp pain. The

holes are there now and they're comfortable again (I

hope).<br><br>Magnets don't cause damage like NSAIDs do. I was on

1200mg/day ibuprofen a couple of weeks ago and I'm

completely off it now. Well we'll see how long that

lasts.... I take the wraps off at night but they go

straight on again in the morning.<br><br>You could also

try <br><br>TENS

machine<br>acupuncture<br>glucosamine<br>SAM-e (expensive)<br><br>Someone in

this group has a

TENS machine and she loves it. They're about £60-£80

in the UK. I tried acupuncture last week and I don't

think it helped much, although my PT says it's a well

proven technique. I've been on glucosamine for 8 weeks

and the jury is still out... A lot of people say

SAM-e works, but be sure to use NatureMade brand (if

you can afford it)<br><br>Good luck<br>Joe

[Guest guest]

Kathleen!!!!!!!

****wave****

Hehe

SUE

[Guest guest]

Hey girl! Wave right back at ya!

I got some V Group messages today! I also got Sheri's message stating that

HAS been having some problems so maybe it's not me after all.

Kathleen

In a message dated 7/24/2001 1:57:30 AM Central Daylight Time,

suziesparkle@... writes:

> Kathleen!!!!!!!

> ****wave****

>

> Hehe

> SUE

>

>

>

[Guest guest]

Hi LaDonna,

I'm so sorry to hear that you are not doing well. I have decided not to take the treatment so far, and my doctor went nuts on me yesterday. I don't remember what your situation is, but I know that with some types of Hep C, the treatment is hell but the results are worth it. I know one man with genotype 3 who went with it for 48 weeks and is cleared, he never thought he could get to the end of the treatment. I know a nurse with genotype 1B who went through the treatment for a year and is also now cleared, a year later, who was ready to kill herself on the treatment. But then I know people who declined the treatment and went on to holistic things and are doing well, too. Different strokes for different folks, I suppose.

I'm so sorry to hear you are not feeling well. You have been such a strong person ever since I joined this list, and if there is anything I can do to help you, please let me know. I know what you mean about the jokes, I really don't appreciate the off-color ones, but I think there are people out there who are trying to make others feel better.

Please know that I and others are here for you. If you want, you can e-mail me at MarilynWilkinson@... if you want to correspond privately. No one knows but us what this is like. We are all trying to save our own lives.

Much love,

Marilyn

Hi everyone

I am really wore out these days, maybe a little brain fog. A whole lot of aches and pains. The people who are waiting for treatment should really check out the side effects. Not all the people feel the same some have light side effects other have it really hard. I find that it is hard to explain to people about HepC, sometime look at you like your evil or bad. I would like to now if there any people who don't want the treatments? I have always look forward to this support group for a little encouragement and information. I really don't like the little joke and other nice verse that are sent on the Hepc support line. I have to delete so much stuff now. I think that you should exchange email addresses to each other and send them that way. Once in a while is Ok but I don't even read joke sent to me by friends. Please don't make this support group a joke group. LaDonna

[Guest guest]

In our world of pain something to make you feel good or indifferent helps us to stay somewhere close to normal. Guess you will have to continue to delete, because what you want is called censorship. Original Message -----

From: LadonnaBrave1@...

Hepatitis C

Sent: Thursday, September 05, 2002 9:12 PM

Subject: Hi everyone

I am really wore out these days, maybe a little brain fog. A whole lot of aches and pains. The people who are waiting for treatment should really check out the side effects. Not all the people feel the same some have light side effects other have it really hard. I find that it is hard to explain to people about HepC, sometime look at you like your evil or bad. I would like to now if there any people who don't want the treatments? I have always look forward to this support group for a little encouragement and information. I really don't like the little joke and other nice verse that are sent on the Hepc support line. I have to delete so much stuff now. I think that you should exchange email addresses to each other and send them that way. Once in a while is Ok but I don't even read joke sent to me by friends. Please don't make this support group a joke group. LaDonna

[Guest guest]

Thank you lyn, I have taken the Interferon A in 1990 and the Interon and Rebtron in 1998. I really had a hard time with the side effects which basic left me bedridden most of the time, fever, pain, hair fell out, sore, etc etc. I am at this point being asked to take the Peg but have declined for now. I am doing my best to eat good and healthy food drink lots of water, rest when I can but I still have this dragon. LaDonna

[Guest guest]

Dear LaDonna, Do you keep up to date on statistics? I know it's your decision but just wanted to let you know they are having real good results with the Peg. I don't know what geno type you are, but I'm a 1a and that's the hardest to do anything with. Well I know two other people who just finished the Peg and they are 1a's also and they went undetectable as well. I know both I and Marcus had very minimal side affects, of course I prayed about doing this treatment because I didn't know if I was strong enough to go through that hell again. Did you read up on that I think it was holistic healing I sent? Thought maybe that could be something of use to you . Well hope your feling better Love,Teri

From: LadonnaBrave1@...

Hepatitis C

Sent: Friday, September 06, 2002 10:03 AM

Subject: Re: Hi everyone

Thank you lyn, I have taken the Interferon A in 1990 and the Interon and Rebtron in 1998. I really had a hard time with the side effects which basic left me bedridden most of the time, fever, pain, hair fell out, sore, etc etc. I am at this point being asked to take the Peg but have declined for now. I am doing my best to eat good and healthy food drink lots of water, rest when I can but I still have this dragon. LaDonna

[Guest guest]

Hi Teri,

I am also 1a......You said that you know a couple of people that have stopped treatments and are still showing negative. I would like to know more. Count Down is right around the corner, and I have so many questions. I will not bom bard you with all of them, but what I would like to know is how does the body do coming off of the medicines.....does it take a long time to build your counts up (I know everyone is different, and whether you do what your told..hehehe). I am so tired....of being sick and tired, I am looking forward to having energy again. I actually hired a personal trainer (got to get back to work so I can pay him) so when I stop the meds I can start back up at the gym. Even if I do not have any energy, I'l have something cute to look at....lolololol anyway any info...much appreciated.

Love Terri

Teri Covert wrote:

Dear LaDonna, Do you keep up to date on statistics? I know it's your decision but just wanted to let you know they are having real good results with the Peg. I don't know what geno type you are, but I'm a 1a and that's the hardest to do anything with. Well I know two other people who just finished the Peg and they are 1a's also and they went undetectable as well. I know both I and Marcus had very minimal side affects, of course I prayed about doing this treatment because I didn't know if I was strong enough to go through that hell again. Did you read up on that I think it was holistic healing I sent? Thought maybe that could be something of use to you . Well hope your feling better Love,Teri

From: LadonnaBrave1@...

Hepatitis C

Sent: Friday, September 06, 2002 10:03 AM

Subject: Re: Hi everyone

Thank you lyn, I have taken the Interferon A in 1990 and the Interon and Rebtron in 1998. I really had a hard time with the side effects which basic left me bedridden most of the time, fever, pain, hair fell out, sore, etc etc. I am at this point being asked to take the Peg but have declined for now. I am doing my best to eat good and healthy food drink lots of water, rest when I can but I still have this dragon. LaDonna

[Guest guest]

Hi Terri,

I am on treatment 2months now. Are you on treatment? I work 40 hrs. a week plus...lol

I am a teacher. It is hard just believe in God and let him take over. He will guide you through it. Believe me I know. If you need someone to talk with just email me.

God Bless you

Sablerae

-- Re: Hi everyone

Thank you lyn, I have taken the Interferon A in 1990 and the Interon and Rebtron in 1998. I really had a hard time with the side effects which basic left me bedridden most of the time, fever, pain, hair fell out, sore, etc etc. I am at this point being asked to take the Peg but have declined for now. I am doing my best to eat good and healthy food drink lots of water, rest when I can but I still have this dragon. LaDonna

[Guest guest]

Hi Pamela,

Thanks......How are you holding up with working? I tried to hang in there as long as I could but ended up taking a medical leave. You have my upmost respect....Yes I will hang in there. I figure no matter what happens i will find a way to make it, as long as i have my friends. You guys are great.

Love Terri

Pamela Davey wrote:

[Guest guest]

Hi Terri,

I am doing ok. Had a rough day today. Headaches and this

darn tongue ache. lol I don't know what it is with my tongue

but it has been hurting for a month now. Im ready for novacaine ...lol Well I hope the weekend goes better. I know

that God will bring us all through this. How long have you been on tx.? I hope you are well.

God Bless you

Pamela Rae

-- Re: Hi everyone

Thank you lyn, I have taken the Interferon A in 1990 and the Interon and Rebtron in 1998. I really had a hard time with the side effects which basic left me bedridden most of the time, fever, pain, hair fell out, sore, etc etc. I am at this point being asked to take the Peg but have declined for now. I am doing my best to eat good and healthy food drink lots of water, rest when I can but I still have this dragon. LaDonna

[Guest guest]

Hi Pam,

I have been on treatments for 10 months. Two to go. I can not wait. I think I have forgotten what it feels like to feel good. I think everyone here can relate to that. Take care, I need to get to the hospital.....Mom has phnemonia and congestive heart failure, please say a prayer for her and I will for you and everyone else. Love Terri

Pamela Davey wrote:

[Guest guest]

Welcome, !

Yes, I think you'll find you have lots of company at this list. I

hope you can find some helpful information here.

Legislation sometimes sounds better than it proves to be in real

life. But have you looked into reasonable accomodation you might be

entitled to under the Americans with Disabilities Act? Speaking very

generally, this means the employer is supposed to make adjustments in

the workplace so that you can work there.

I know how frustrating the work-dilemma can be, and I wish you the

best.

> Hi thier, I am a 27 yr old male, I had the Harrington rod surgery

in

> 1986, in the last couple of years I have been in increasing pain,

and

> I have been reading about flatback syndrome, thier are a lot of

things

> that are mentioned that fit me, tend to lean forward when walking

or

> sitting, trouble sleeping, in constant pain, cannot lay flat,

cannot

> stand for more than about 20 minutes at a time (had to quite my job

> because of this), and the list just goes on.

>

> I am dealing with the state right now, trying to get some kind of

> assistance, but all of the agencies that I have talked to have

> basically told me that I am not disabled, and that I can work, but

> they main question that I have is what type of work can someone do

who

> cannot stand for lond periods of time, cannot sit for long periods,

> and is in constant pain, and unable to bend do? I have been out

job

> searching for a while now, and have came up with nothing, hopefully

> something with come to mind soon. The only agency that I have been

> able to get any help from is Vocational Rehabilitation, and they

are

> wanting to send me back to school to get into Electronics, which

would

> be OK, but I will still need some type of work to suppord myself

while

> I am in school, which I do not see happeneing.

>

> Anyway, that is what I am dealing with now, just thought I would

drop

> in ans say " HI " to everyone. No do not get a chance to check my

> e-mail real often, so it may take a little while to get a respnse

from

> me, but I will be around.

>

>

[Guest guest]

,

I have had another thought. If you are too disabled to work at

anything right now, you should not give up on qualifying for Social

Security. Let me just give you some brief items. These apply only

to the U.S.-- I am unfortunately not familiar with similar programs

in Canada or elsewhere. You need to get to the right medical

specialist (someone who knows how to " speak the language " government

agencies understand). It can also help to have experienced legal

counsel if you have already applied and been turned down. In many

cases, you can qualify for Social Security Disability on appeal. You

need to find a lawyer who specializes in Social Security Disability

appeals and who has a good track record.

One good thing about SSD, if you qualify, is that they have good work

incentives built into the program. You won't lose your benefits while

you are trying out a new job or a new kind of work. This is also true

for SSI. SSI, or Supplemental Security Income, is for people who

have not worked long enough too qualify for SSD. SSI allows you to

get Medicaid coverage for health care, and SSD allows you to get

Medicare after two years. You could start researching all this, if

you aren't already two jumps ahead of me, at www.SSA.gov -- the

official Social Security site.

Eliana

> > Hi thier, I am a 27 yr old male, I had the Harrington rod surgery

> in

> > 1986, in the last couple of years I have been in increasing pain,

> and

> > I have been reading about flatback syndrome, thier are a lot of

> things

> > that are mentioned that fit me, tend to lean forward when walking

> or

> > sitting, trouble sleeping, in constant pain, cannot lay flat,

> cannot

> > stand for more than about 20 minutes at a time (had to quite my

job

> > because of this), and the list just goes on.

> >

> > I am dealing with the state right now, trying to get some kind of

> > assistance, but all of the agencies that I have talked to have

> > basically told me that I am not disabled, and that I can work,

but

> > they main question that I have is what type of work can someone

do

> who

> > cannot stand for lond periods of time, cannot sit for long

periods,

> > and is in constant pain, and unable to bend do? I have been out

> job

> > searching for a while now, and have came up with nothing,

hopefully

> > something with come to mind soon. The only agency that I have

been

> > able to get any help from is Vocational Rehabilitation, and they

> are

> > wanting to send me back to school to get into Electronics, which

> would

> > be OK, but I will still need some type of work to suppord myself

> while

> > I am in school, which I do not see happeneing.

> >

> > Anyway, that is what I am dealing with now, just thought I would

> drop

> > in ans say " HI " to everyone. No do not get a chance to check my

> > e-mail real often, so it may take a little while to get a respnse

> from

> > me, but I will be around.

> >

> >

[Guest guest]

> First and foremost I'd like to answer Knockaround girl's

question.

> My meds are Lexapro 5Mg, Klonopin 1/4 of .5 (Take as needed

usually 3

> to 4 times a day), Remeron 15 Mg, and Protonix 40Mg (Helps with

> Nausea).

> How is everyone else doing on the Lexapro? You know I want to

> apologise for sounding negative on my posts before, when it comes

to

> meds I'm very sensitive to them. I come to this site everyday and

I

> think the people here are great because we are all going through

this

> together. I think its great that this med is helping many

people. I

> hope that other meds like Prozac, Zoloft, and Paxil will look at

> Lexapro's success and make their meds stronger with less sides, so

it

> will help the people taking those meds.

> As for me I get to see my P Doc a week from today and I hope I can

go

> from 5 Mg to 10Mg of Lexapro, but if my nausea can get better I

will

> give it a try.

>

>

,

Just a suggestion...maybe take some soda crackers along with you and

have one every once in a while. Seems to help qualm the stomach, at

least for me.

The Lex hasn't really bothered me much...just a bit of a belly ache

after taking them but it has gone away each day. I usually do the

cracker routine and a large glass of water.

Hang in there with us!

Shauna

[Guest guest]

--Colleen dont give up, its easier to give up than sticking with it.

We all know its hard, but your health is important and events will

become important. I know stress and depression can temp you because

Iam going through the same thing. Just a run down of things, I moved

from a place after 20 years, gave up my friends,house, job. I just

recently lost that house because of circumstances, lost my 401k

200,000. My truck died and had to buy a new one. Gave up my

motorhome sold it and didnt make a profit. And during that time I

live in that motorhome for 10 months looking for a place to live. As

I said gave up my house a 4 bed.2bath 1/4 land. And now my landlord

is getting a divorce and I have to move again only the rent will go

up 400.00 more a month, and etc. But through it all I have found a

great group of people here that will listen and encourage you. So

please dont give up because when its all said and done you are the

only individual that counts.

-

In @y..., " Colleen " <mustang_baby@y...> wrote:

> WOW - I have been gone for a while so much has changed. I do not

even

>

[Guest guest]

In a message dated 12/18/2002 3:58:48 PM Eastern Standard Time,

az1home@... writes:

<< Would you believe somebody picked them up

and left the drawer. >>

LOL--Pretty desperate clothes pickers.

[Guest guest]

Hi Pat - welcome back! Look forward to getting to know you......

Take Care,

311/245/170

[Guest guest]

welcome back pat!

im doni i just joined.

doni

[Guest guest]

Welcome back pat. How did you do over the holidays.

NH

Mommy to Abby Liz 10-25-94

Mommy to Anne 7-1-99

[Guest guest]

> I was subscribed to this list a few months ago--then i went on

> vacation---then there was Christmas holidays--then I don't know what but I

am

Welcome back, Pat. This holiday season was hard on a lot of listmembers. I

think it's just the general feeling of doom in the air that made weight loss

low priority. Now that we all either have our duct tape and window plastic,

or decided to just let things be and take what comes, it's time to

concentrate on our food & exercise plans again.

So, have you made your dinner plans for the week yet?

Sue in NJ

[Guest guest]

Hi Ellen,

So nice to have you on ciHear with us. This is a terrific place to

ask and get answers to any questions you may have as well as finding

a great network of supportive folks.

Jump right in with questions, comments or whatever and if you don't

understand something someone has posted, ask.. we sometimes gat ahead

of ourselves in posting terms that some people don't yet understand

and we want to make sure we are understood.

Why don't you tell us a bit about your hearing history and maybe

where you live.. that's usually a pretty good place to start.

Once again, So glad to have you here and hope you enjoy your time

with us.

Cheers

Silly in MI

N24C and 3G activated

Hereditary bilateral progressive nerve deafness

Volunteer Advocate

In , <piglet@n...> wrote:

> I'm new to this group! told me about this group and I'm

hoping to learn about CI's Does this group have a chat line or just e-

mail to each other? Pls let me know as I am interested what you do.I

got a CI a year ago which I am still learning the words and sounds I

had not heard before and its great. Hope to hear from you.

> Ellen

>

>

>

[Guest guest]

Thanks for the big welcome,its nice to know that there are others who have

the same thing. I learn something every day from others which is a big help

dealing with my CI.

I do go to Hearing Exchange but did not know what the link was for the chat

on Monday and Tues night. Thanks for the information and look forward to

hearing from others.

Ellen

Re: Hi everyone

> Hi Ellen,

>

> Welcome to CI Hear. It's nice to have you here.

> Thanks for inviting her.

>

> We have a weekly chat on Tuesday nights which is

> announced each Monday and Tuesday with a link to go to

> for chatting. You can also chat at the Hearing

> Exchange on Wednesday nights as they have a CI chat

> there each week and many of us are there.

>

> You will also receive e mails daily. Some days are

> busier than others but this is a nice group and you

> are among friends here.

>

> I'm glad you are progressing with your implant. It

> sounds as if you have been working hard because you

> are able to notice the improvements and that is

> wonderful.

>

> Welcome to CI Hear.

>

> Alice

>

>

>