Hi everyone

[Guest guest]

Tara,

Yes, I've had all the tests done more than once thus the Synovitis diagnosis

instead of RA or Lupus. However, rheumy put me on an NSAID and a DMARD so

she's taking it seriously. My goal is to change things with diet and

supplements. I don't want to continue with the meds but if I've missed a

dose, my body reminds me. I've had a couple of flares this summer but since

the DMARD, I'm doing much better. However, we all know about drugs and the

harm they can do so I desire to be off them and conquer this the natural way

Too bad the meds haven't helped my back pain... you would think the NSAID

would help some but I don't feel it has. I see my rheumy in a couple of

weeks so I'm sure the round of tests will be done again to see if anything

has changed. So far all tests are fine.

Thanks for the info and for caring! I'll keep you posted if symptoms

changed or if I get a new diagnosis.

Serena

-- Re: Re: Hi everyone

Serena,

Have you had blood tests for ANA or rhematoid factor? With the symptoms

you said, I agree that you may have some sort of rheumatoid disease

process going on (also because you are a woman in your 30s). There are

many tests that could diagnose exactly what you have (or don't have) -

just having one be positive isn't necessarily diagnostic - I myself had

a positive ANA once along with my Raynaud's disease (which can be

associated with rheumatoid disease if you didn't already know) - but

then I had a negative ANA and no further symptoms. I would suggest that

you go for the blood tests and do some research along with talking to

your rheumatologist. I hope you get this figured out soon - best of luck

to you -

Tara

I had surgery when I was 16 and by my early 20s I had significant back

pain

which was supposedly from arthritis around the surgical area. Now I'm

34

and have been diagnosed with Synovitis in many joints and my rheumy

believes

it could be early stages of an auto-immune disease like RA or Lupus.

I'm

thinking the scoliosis could be a cause but I guess nobody else thinks

that

way.... I just know when you stand a certain way for 15+ years to

compensate

for a curve and one leg takes the load of two then you are bound to

cause

some significant damage. But that doesn't explain the elbow, wrist and

fingers hurting (even though they aren't near as painful as the knees

and

feet).... it may be a whole new condition.... we will see in time. I'm

just

trying to make better choices in my diet and hoping to hold off any

attack

that's started.

Anyone else dealing with RA or Lupus symptoms?

Serena

__________________________________________________

[Guest guest]

Hi Serena...

If the screws are a part of an anterior system, they go through the

body of the vertebrae. (Pedicle screws go through the pedicle.) Here

are some pictures of screws in the vertebral bodies:

http://www.spineuniverse.com/displaygraphic.php/1864/dp_090301betz_fig1d-UB.jpg

ww.scoliosisassociates.com/photos/spine_surg/ais-add5.jpg

And, you can see a video of how the system is implanted here:

http://tristan.membrane.com/aona/video/spine/25035.html

And, you can see a video of how a universal system, with pedicle

screws, is implaned here:

http://tristan.membrane.com/aona/video/spine/25033.html

Regards,

> ,

> I'm curious.... what kind of screws would it be? I'm remembering a

word but

> I was so young so I'm not sure if I'm remembering correctly.

> Serena

>

[Guest guest]

Hi Jake,

Welcome!! I have not heard of this disorder, so I just did a bit of

research.

I will start by helping you to understand immunics a bit more. I am not

sure how much you have read, but the most important thing to understand is

that you can take control over your immune system, and that is what we are

doing. Your immune system doesn¹t only effect your physical health, but

also your mental, emotional etc. When we do immunics we RIK things.

Remove..Install...Know. Have you watched the video tutorial on the website.

If not, it is at http://www.immunics.org. Scroll down and there is a link

to the video. If your computer can not watch video¹s, there is an audio

version. Follow this up with the rest of the nine day intensive. This will

help you better understand what you are doing when you practice immunics.

This will also teach you how to connect and get a signal.

As for the disorder, start by releasing it. It isn¹t your disorder. It is

a disorder you have been experiencing. The time has come to start removing

it. I would start by removing pathologies...especially Trauma. I am

testing yes that part of your disorder was caused by trauma. You can also

remove the side affects of this disorder.

In my experience mental diseases are a bit harder than viral to remove, BUT

it can be done. I have done it myself. It takes a lot of accessing. You

can not give up. Immunics is something you have do do consistently

throughout your day. We are all here as a group to help and support each

other. Please never hesitate to ask questions.

Love,

Susie

On 9/2/05 5:11 PM, " moi_teddy " <moi_teddy@...> wrote:

> I'm still having a great deal of problem understanding what exactly

> immunics is. Let me start by telling u something about me. From what

> little i could understand, it can cure viral diseases. What about

> mental ones ?

>

> I've been suffering from depersonalization disorder for over 20 yrs.

> now. Not sure how many of u know of this disorder. Just know that it

> is very difficult to visualize anything. Therfore, i'm not sure if

> this modality would help me. I've tried just about every healing

> technique there is and nothing has helped. I'm also a 3rd degree Reiki

> channel.

>

> Can someone help, please !!

>

> jake

>

>

>

>

>

>

> http://www.TheCureDrive.org

> 15,000 cures and counting

>

> Please forward these e-mails because they find their way into the right hands

> -- you'll save somebody's life. Immunics taught imperfectly still cures

> people. Show anybody you can how to do this as best you can, and as soon as

> possible. Don¹t explain it ­ just give it.

>

> The tutorials to teach yourself immunics are in the " links " folder:

> /links

>

> " Hot links " in many of these e-mails require a pass word ­ NOT your PW.

> If you haven't got your PW for those links, get it on this page:

> http://www.wayimmune.org/give/question.htm

>

> http://www.TheCureShow.org

> Hear immunics working

>

> -- -- --

>

>

>

>

>

>

[Guest guest]

Have you done the tutorials? You'll find them on the welcome page:

http://www.immunics.org

Doing will help you understand (or will obviate the need to).

Love,

Keely Stahl

(The Lesson Maven)

keely@...

-- --

> [Original Message]

> From: moi_teddy <moi_teddy@...>

> < >

> Date: 9/2/2005 11:27:07 PM

> Subject: Hi everyone

>

> I'm still having a great deal of problem understanding what exactly

> immunics is. Let me start by telling u something about me. From what

> little i could understand, it can cure viral diseases. What about

> mental ones ?

>

> I've been suffering from depersonalization disorder for over 20 yrs.

> now. Not sure how many of u know of this disorder. Just know that it

> is very difficult to visualize anything. Therfore, i'm not sure if

> this modality would help me. I've tried just about every healing

> technique there is and nothing has helped. I'm also a 3rd degree Reiki

> channel.

>

> Can someone help, please !!

>

> jake

>

>

>

>

>

[Guest guest]

My dd is in Brooklyn!! Maybe ya'll can go to the NYVIC meetings together!

She may be able to babysit for nominal costs.

Laurie

However, I have just moved to Brooklyn, NY, & know

no one in this area. Also, I was

wondering if anyone lives in this area,

[Guest guest]

Hi Laurie! Sure, I wouldn't mind meeting someone to go

to the NYVIC meetings with I've never been to one

yet.

Have a good one,

Ki

--- BirthWarrior <llandes1@...> wrote:

> My dd is in Brooklyn!! Maybe ya'll can go to the

> NYVIC meetings together!

> She may be able to babysit for nominal costs.

> Laurie

>

> However, I have just moved to Brooklyn, NY, &

> know

> no one in this area. Also, I was

> wondering if anyone lives in this area,

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________

Start your day with - Make it your home page!

http://www./r/hs

[Guest guest]

Hi Kathy,

Thank you for emailing me back. How much did it cost you for your surgery

and hospital stay. The shabang. So I have a idea on how much money I need.

Sounds like your doing great. Im so happy for you. Keep up the great work.

Debbie

[Guest guest]

good job!! I bet you feel so much better. Isn't it funny to think that if

you were to try to pick up something that weighed 100 pounds that most likely

you wouldn't be able to. And if you did you would probably hurt yourself.. No

wonder we are in so much pain when we are over 100 pounds overweight. I can't

wait to loose my first 100.. then I will have another 100 to go

errrrrrrrrrrrrrrrrg...

keep us posted on the good work your doing.. We're all proud of you!!

Debbie

[Guest guest]

Hi Debbie

I live in SE Washington. I chose NWWLS first because

I wasn't able to find anybody else nearby...bit dense

on internet stuff even tho on computer all day. Boy

am I glad to have found the team at NWWLS. They are

absolutely terrific. I had consult 10/7/05...surgery

10/13/2005...fill 11/21/2005. I feel so much better

since surgery. I lost 21 lbs preop plus 19+ lbs post

op and am doing exercises I never thought I could ever

do. I am down 2+ sizes in clothes, fit in regular

chairs, and just got into two sets of silky pajamas

that I had put away before my daughter was born 17

years ago. My daughter actually told me one set is to

baggy and to old fashioned and to go buy new ones. Ha

Ha! It seems that many people on this site have had

wonderful luck with Mexico docs..I have no first hand

knowledge there. I like having my support team closer

by.

Hope to hear from you again.

Kathy R. in Walla Walla

--- cassysays <cassysays@...> wrote:

> Hello fellow NW'ener's

>

> I live in Oregon and am checking out NWWLS to see

> how much they charge

> for this surgery since I am a self-payer. I have

> checked all kinds of

> places even Mexico. I would love to hear from you

> all and let me know

> how your doing with your lapband. And to make new

> friends.

> Good luck to each and every one of you with your new

> life to fat-no-

> more freedom. I can't wait to start that journey

> myself.

>

> Debbie

>

>

>

>

__________________________________________________

[Guest guest]

I had my surgery at NWWLS and live in the Seattle area. I have heard

great things about some of the mexican doctors as well. Dr. Kuri in T

J has a great reputation as well as Dr Rumbaut in Monterry to name a

few. You need to factor in after care as well as cost which is why I

chose NWWLS. You need to make sure that you can get the care you need

after you get the band as well. I think NWWLS is awesome!

>

> Hello fellow NW'ener's

>

> I live in Oregon and am checking out NWWLS to see how much they

charge

> for this surgery since I am a self-payer.

[Guest guest]

Hello,

I had my surgery on February 17th 2005 in Mexico with dr. . I have

lost 100 pounds as of november 25th. I feel wonderful. I still have 60 pounds to

go but the difference in the way that I feel is amazing. I live in Dallas oregon

and as a self-payer I decided to make it a vacation. I went shopping on the 3rd

and 4th day in mexico. I got some great stuff for my kids. I hope that this will

be a positive thing for you like it has been for me.

Hi Everyone

Hello fellow NW'ener's

I live in Oregon and am checking out NWWLS to see how much they charge

for this surgery since I am a self-payer. I have checked all kinds of

places even Mexico. I would love to hear from you all and let me know

how your doing with your lapband. And to make new friends.

Good luck to each and every one of you with your new life to fat-no-

more freedom. I can't wait to start that journey myself.

Debbie

[Guest guest]

Hi Tracie,

I am not a mum to a deaf child (she is hearing) but I am deaf myself and I

remember what it was like growing up in a mainstream school environment. I

can remember a girl pulling out my hearing aids and understand how upset

your daughter felt!

I think the best thing you can do in the years ahead (she is still young!)

though is to help her deal with the issue of being different. You can do

this by doing role play, giving her advice, allowing her to talk about her

days at kindergarten/school and perhaps maybe even seeing a professional

counselor when she is older. Many schools have counselors and it would be

worth asking about them. The counselor may have some ideas about how to

re-educate her class at school?

I think you are doing great by matching her implant to her clothes! I don't

think going to any great length to make the cochlear implant less obvious is

the way to go (even if she wants you to do this) because it will give her

the message that it is something to be ashamed and embarrassed about. It

will give her more to worry about. I remember getting a new hearing aid

once and I sweated for several days wondering how to hide it from the other

children at school. I was so scared the other children would see it and

make it an issue. But in the end they just didn't care. All that worry for

nothing!

Another possible thing you can do is meet up with other families who have

children with implants. I am sure they must have gatherings and camps.

That will help your daughter feel that she isn't the only one! When she is

older it may give her an opportunity to talk to those children about their

own experiences at school. Children basically want to feel " normal " and

that there are other people like them. It would also help you as you talk

to other parents who understand your worries and know how you feel!

Looking back I wish that I had been able to talk to my own mother more about

difficult situations at school. I think I would have found doing role play

really helpful as it would have taught me the skills to know what to do when

other children were making it an issue.

You sound a great mum. Please don't be too discouraged by your daughter's

slow language development at this stage. I was 2.5 years old when I first

got my hearing aid and didn't learn to speak until the age of 3. I did feel

behind my peers languagewise in the early years of school but it was my love

of reading books that saw me through and my mother was really good with that

by having us visit the library frequently. People tell me that I speak very

well now.

_____

From: [mailto: ] On Behalf Of

rileycalcutta

Sent: Tuesday, 7 February 2006 8:02 AM

Subject: Hi Everyone

My daughter is in kindergarden and has had her implant since she was

16 months. She is still behind in language but academically a little

ahead. I am just wanting to know what other issues moms have had or

that their daughter may have faced in school.

Do you try to make her implant low-key or as I have

been doing dress her to match her colors. I put hair accessories,

tops and all to match..but wonder if I am drawing undo attention to

her. One girl actually came up and touched her implant and my

daughter was extrememly upset.

I by no means am saying hide it...This is who she

is...and she is so lucky to have hearing. I just know that kids can

be cruel and wonder what to excpect down the road. I would like to

hear from moms that have older girls! Or anyone that has some

experiecne with this. Thanks for your input! My daughter is also

having some mild aprxia issues that have slown her progress. She has

speech from 3 different sources which I am all involved in and therapy

is 4 times a week. Have a great day!

Tracie

[Guest guest]

Tracie,

I think you should do whatever your daughter is comfortable with. Does she have

one of the Advanced Bionic CIs? I am thinking she does because you mention

matching it with her clothes. If your daughter really gets upset when others

touch it, it might be better to make it less obvious so that it doesn't make it

something other children want to explore.

I grew up hiding my hearing aid, thinking that I could fool others into thinking

I was hearing. I didn't realize until I was much later that once I spoke, it was

obvious I was different so hiding my hearing aid didn't make a difference. I

would rather have been confident enough to have folks see it and to know that I

wasn't being rude if I didn't respond to them but rather couldn't hear them.

As an adult though, I actually had a red hearing aid in my 20's and would put

holiday stickers on it. I was teaching at the time and the kids loved it. I

would put stickers on their hearing aids as well. I loved that red hearing aid.

I love the new different colored ear molds that are made now and the different

colored hearing aids. I almost got the one that is clear so you can see the

insides of the hearing aid three years ago but I ended up deciding that another

company made the hearing aid that worked for me the best and they didn't have

anything but different skin colors to choose from. I was disappointed but knew I

had to go with the one I heard with best.

in SC, hopeful CI candidate

Hi Everyone

My daughter is in kindergarden and has had her implant since she was

16 months. She is still behind in language but academically a little

ahead. I am just wanting to know what other issues moms have had or

that their daughter may have faced in school.

Do you try to make her implant low-key or as I have

been doing dress her to match her colors. I put hair accessories,

tops and all to match..but wonder if I am drawing undo attention to

her. One girl actually came up and touched her implant and my

daughter was extrememly upset.

I by no means am saying hide it...This is who she

is...and she is so lucky to have hearing. I just know that kids can

be cruel and wonder what to excpect down the road. I would like to

hear from moms that have older girls! Or anyone that has some

experiecne with this. Thanks for your input! My daughter is also

having some mild aprxia issues that have slown her progress. She has

speech from 3 different sources which I am all involved in and therapy

is 4 times a week. Have a great day!

Tracie

[Guest guest]

On 2/25/2006 at 11:43:31 A.M. Central Standard Time Ann wrote:

The first message I read was from Maggie. Your words were so kind Maggie, but you made such a cute little typing error, advising a poster to "Go to Goggle". That made me laugh so much and my thought was - Yes, I'm home now.

LOL....Okay, I'll have to confess, I am the world's worse

speller. Before AOL put in an automatic spell check as I

type, I had to run the checker before I sent anything. The

bad part is when I use the wrong word altogether as I did

here and it's not recognized as an error and I do that all

the time. I pretend that's because my brain works faster

than my fingers. You do believe that don't you?

Maggie

[Guest guest]

,

I know what ya mean. I had the worst day about two days ago. I

have had depression for five years and it got worse and worse over

time. I finally seeked help for it and I am now taking Lexapro. I

have been on it for nearly six weeks. It has helped quite a bit but

I think I may need to up my dose. I was horrible a few days ago. I

think I cried for about two hours or so and I was very irritable.

On top of all this I am pregnant. The good thing is I am great

today and I was also great yesterday. Just remember that today will

pass and hopefully tomorrow will be a much better one. It's the

weekend so go do something for yourself today. Get your hair done

or go shop for something that you need. Get yourself out of the

house and go take a look at new spring wardrobes or something.

Don't sit inside and dwell on it. If you live on the east coast is

is sunny out so that should make ya happy ( I live in New Jersey ).

If ya don't want to get out, call a friend or relative that you

havn't spoken with in a while. That always works for me!! Just

remember this is only one day of your life. Feel better I am

thinkin about you.

Stella:)

[Guest guest]

Wanted to ask you one thing. What medication are you taking and at

what dose?? Do you think that you might need to increase it?? And

for how long have you been on the med? It is possible that if you are

on a high enough dose and you have been on it for a while, that it may

have pooped out on you. I would talk to your doctor if you continue

to feel this way for another week or so. He or she may want to

increase your dose or try a new medication. I know there are some

people who add wellbutrin to the lexapro when the lexapro gets to the

point where it just doesn't work as well anymore. You may want to ask

yourself if you have had more stress in your life lately too.

Remember that the medication can't take away the stressors in life

that just happent to us. Sorry. I know this is more than one

question. Feel free to chat with me anytime you need to talk!!

Stella

[Guest guest]

Hi Kathy

Welcome to the group! I am way older than you. 66

years old and have had my band for 6 months. I feel

sooooo much better. More energy, no back pain, knees

don't hurt anymore and my feet don't hurt either. It

is just amazing how much better you will feel within 4

weeks after surgery! Best wishes to you and good luck

finding a way to get banded! Be sure to ask any

questions you have. There are many people on the

board who will help to answer all your questions.

Penny

Penny Manville

Walden, Colorado

DOB 9/26/05

230/184/135

1st fill 12/9/05 1cc

2nd fill 1/27/06 0.5 cc 1.5 cc total

5'4 "

__________________________________________________

[Guest guest]

Hi Kathy, Well, I got banded on March 21st and I am 60 years old....No problem. Have had a bit of pain in my shoulder recently, but aside from that, I am doing fine and feel well. The Clear liquids is a little rough...you are hungary, but that is to be expected. I am doing it for the same reason....looking for a more active and a better quality of life....Age is only a number.....if you dwell on it you will feel old..... I am 60 years young and getting younger with every pound I am loosing..... kathy2wayne <kathy2wayne@...> wrote: I am new to the group hoping to have my band done in July. I am a grandma/mother of a 9 year old, And having a hard time keeping up with her. I am almost 50 years old and want to be around to raise her and see her married. I feel if

I can get this weight off I will feel so much better and be more healthy then I am now. I am a little scared and excited both I want to get this done right away but money seems to get in the way. Anyone one out there as old as I am and did you have any trouble with banding and did it make you feel a lot better. Look forward to hearing from you

How low will we go? Check out Messenger’s low PC-to-Phone call rates.

[Guest guest]

Hi Myssi,

Sorry to hear you had to go through all of that, but good for you! You did good, from the sounds of it. I agree, don't worry your son too early. Hang in there, keep up the good work.

[Guest guest]

> We had my uncles funeral this past friday and Saturday.

My condolences.

> Everyone was crying because they all had memories and I was crying because

I had very little to none.

Sounds like how things were at my dad's wake last year. I remember growing

up with him in his alcoholic years, being disowned by him soon after my mom

died when he remarried and she wanted nothing to do with his family (they

even tossed my younger brother out of the house in his last year of

college); and the only time I really had contact with him were last last 15

or so years when he remarried again, this time to a *nice* woman, but it was

mostly via long distance phone calls and the few months we lived 10 minutes

away in FL. At the wake, all these people are coming in telling me what a

nice guy he was, how he was always there to help anyone in need, that they

always had a great time when they were out together. HUH? When did all this

happen? When I was a kid, the family joke was, Was there really an Uncle

?, as he never attended any family gathering, and to this day I have

some cousins on my mom's side who never saw him in their lives, and they're

in their 40's.

>It was so nice to see family members I have not seen in well over 20+

years.

I saw some uncles and their kids I hadn't seen since the 1970's.

>He went on a trip to Chicago this Monday with his school.

That's great! How did he like being away from home?

>The kids spring break will be over this Monday and I am sorta glad for them

to get back, maybe then I cant get back into my full routine.

That's how I feel today with hubby back at work. I mean, it was nice having

him around and all, and we did get a lot accomplished (but not all that we

wanted to), but man, it's good to have peace and quiet around here again and

to be able to just sit and have a slow cup of coffee - alone!

Sue in NJ

[Guest guest]

Thanks

[Guest guest]

Thanks Sue, Its nice to know someone can relate. Most people look at me like I am nuts. My son had a great time and said he liked it, I dont think he minded being away from home but I do think he was glad when he was home! lol But it is a "guy" thing he cant admit he missed home or Mommy.

[Guest guest]

> I dont think he minded being away from home but I do think he was glad

when he was home! lol But it is a " guy " thing he cant admit he missed home

or Mommy.

LOL!! My son is 22, and he's slept away from home . . . let's see, is it 2

or 3 times? He really doesn't like sleeping in a bed that's not his, and is

SO spoiled having me around doing everything for him. I already told him

that if he *doesn't* get a job during summer break (no grad school classes

during the summer sessions) he's going to be responsible for taking his own

laundry to the laundromat. I'm hoping that finally shocks him into applying

for the lab assistant or research assistant jobs on campus that are open to

grad students.

Sue in NJ

[Guest guest]

Shoot. My boys have been doing their own laundry since they started high school. I also insisted that one of their elective classes be a home ec cooking class. My oldest son found that it was a great way to meet girls during his freshman year. (This year he is taking an International Foods class and is enjoying it.) Mom ain't going to be around forever -- and they need to know how to do some of these things. They may or may not have a wife to do these things for them -- and I'm not going to do it for them forever. Sue in NJ <susang@...> wrote: > I dont think he minded being away from home but I do think he was glad when he was home! lol But it is a "guy" thing he cant admit he missed home or Mommy. LOL!! My son is 22, and he's slept away from home . . .

let's see, is it 2 or 3 times? He really doesn't like sleeping in a bed that's not his, and is SO spoiled having me around doing everything for him. I already told him that if he *doesn't* get a job during summer break (no grad school classes during the summer sessions) he's going to be responsible for taking his own laundry to the laundromat. I'm hoping that finally shocks him into applying for the lab assistant or research assistant jobs on campus that are open to grad students. Sue in NJ Dacia <>< He lives, all glory to his name! He lives, my savior, still the same;What joy this blest assurance gives: I know that my Redeemer lives!

[Guest guest]

Thanks, . I've been so busy during those moments when I'm NOT resting, and didn't even read my medical record until last night. I thought I was being so good using "diet" or "low sugar" products - duh!! Thanks again! Phyllis

Re: Hi everyone

Hi Karlie,I am glad you are back! Keep us posted on what'sgoing on with you!Best wishes,PennyPenny ManvilleWalden, ColoradoDOB 9/26/05230/178.5/135 1st fill 12/9/05 1cc2nd fill 1/27/06 0.5 cc 3rd fill 4/21/06 0.3 cc 1.8 cc total5'4"__________________________________________________