Re: Recurrance?

[Guest guest]

I had a canal wall down surgery and the opening closed up quite a bit during the

following recovery months after I had the surgery. When I show people that ear

right after surgery they of course have their jaws open but believe me it does

heal and close up it won't look the same as before surgery but no one notices on

me unless I have them compare the two ears.

shirley <justshirleym@...> wrote:

>My daughter had this eight years ago in the left ear, two hearing bones were

destroyed by the c-toma, and they put in prostetics, which worked fine. She had

all her hearing back, and now all these years later she suddenly could not hear

in the ear at all, went to the dr. and he discovered the bones had pulled away

from the ear drum, and must be replaced, but he also found c-toma in the right

ear! So we had surgery for that ear, and it went well, no damage at all,

hearing came right back to normal. Go back to discuss the repair in the bones

in the left ear, and he says there is a c-toma in that ear! Now he wants to do

a " Wall Down " surgery, and from pictures I found on the net I am not sure I want

that done to her ear. Anyone have that surgery? Consequences? What does it

really look like, like a huge hole? She is 14 and just makes the best of all

this but is she likely to eventually be deaf totaly, does this just keep coming

back. Lots of questions, please any info you might want to share would be

helpful

>Shirley

>

[Guest guest]

I had a wall-down mastoidectomy in my right ear (prosthetic ossicles) and a wall-up mastoidectomy in my left ear (prosthetic ossicles). I have experienced some of the same things as far as those prosthetic hearing bones pulling away from my drums and losing effectiveness. It's frustrating I understand. I've had the reconstruction on my right side revisited once, and will be having it done again in the next year or so. As far as the wall-down procedure, I had mine back in 1995(ish). I never noticed an major 'hole' or anything. My ear did sit much more flatly against my head though. I say it is an okay option, not great, but better than NOT doing it, especially if re-occurrence is going to be an issue. I now

have a bone anchored hearing aid (implant) on my right side. THAT is noticeable in comparison to a wall-down mastoidectomy. For me, I've had a total of eight (8) surgeries on both my ears and at least two more to go.

I am 32 years old and my problems started around age 15. I hope this won't be a life-long struggle for you guys, but it will definitely be something you will have to stay on top of.

From: Jenni - <moonshadow2447@...>cholesteatoma Sent: Sun, May 22, 2011 2:18:56 PMSubject: Re: Recurrance?

I had a canal wall down surgery and the opening closed up quite a bit during the following recovery months after I had the surgery. When I show people that ear right after surgery they of course have their jaws open but believe me it does heal and close up it won't look the same as before surgery but no one notices on me unless I have them compare the two ears. shirley <justshirleym@...> wrote:>My daughter had this eight years ago in the left ear, two hearing bones were destroyed by the c-toma, and they put in prostetics, which worked fine. She had all her hearing back, and now all these years later she suddenly could not hear in the ear at all, went to the dr. and he discovered the bones had pulled away from the ear drum, and must be replaced, but he also found c-toma in the right ear! So we had surgery for

that ear, and it went well, no damage at all, hearing came right back to normal. Go back to discuss the repair in the bones in the left ear, and he says there is a c-toma in that ear! Now he wants to do a "Wall Down" surgery, and from pictures I found on the net I am not sure I want that done to her ear. Anyone have that surgery? Consequences? What does it really look like, like a huge hole? She is 14 and just makes the best of all this but is she likely to eventually be deaf totaly, does this just keep coming back. Lots of questions, please any info you might want to share would be helpful>Shirley>

[Guest guest]

My son who is now 10, had a mastoidectomy done a few years ago. I believe this

is the same thing as a 'wall-down but there are so many specifcs that can be

different I don't know that it is exact.

You can't tell his ear is different unless you are looking for it.

I did manage to find a Neuro-Otologist that loved kids so we were very lucky. He

is a kind and understanding man.

Just a bit of hope that you won't be able to tell unless you are looking for it!

>

> My daughter had this eight years ago in the left ear, two hearing bones were

destroyed by the c-toma, and they put in prostetics, which worked fine. She had

all her hearing back, and now all these years later she suddenly could not hear

in the ear at all, went to the dr. and he discovered the bones had pulled away

from the ear drum, and must be replaced, but he also found c-toma in the right

ear! So we had surgery for that ear, and it went well, no damage at all,

hearing came right back to normal. Go back to discuss the repair in the bones

in the left ear, and he says there is a c-toma in that ear! Now he wants to do

a " Wall Down " surgery, and from pictures I found on the net I am not sure I want

that done to her ear. Anyone have that surgery? Consequences? What does it

really look like, like a huge hole? She is 14 and just makes the best of all

this but is she likely to eventually be deaf totaly, does this just keep coming

back. Lots of questions, please any info you might want to share would be

helpful

> Shirley

>