Guest guest Posted May 22, 2011 Report Share Posted May 22, 2011 My daughter had this eight years ago in the left ear, two hearing bones were destroyed by the c-toma, and they put in prostetics, which worked fine. She had all her hearing back, and now all these years later she suddenly could not hear in the ear at all, went to the dr. and he discovered the bones had pulled away from the ear drum, and must be replaced, but he also found c-toma in the right ear! So we had surgery for that ear, and it went well, no damage at all, hearing came right back to normal. Go back to discuss the repair in the bones in the left ear, and he says there is a c-toma in that ear! Now he wants to do a " Wall Down " surgery, and from pictures I found on the net I am not sure I want that done to her ear. Anyone have that surgery? Consequences? What does it really look like, like a huge hole? She is 14 and just makes the best of all this but is she likely to eventually be deaf totaly, does this just keep coming back. Lots of questions, please any info you might want to share would be helpful Shirley Quote Link to comment Share on other sites More sharing options...
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