Guest guest Posted December 30, 1999 Report Share Posted December 30, 1999 Found a little net info on what my doc thinks I might have (still not certain as I would be young for it). I thought this rather fascinating that some consider it to be caused by some sort of unidentified infection (myco's, etc.?). Many actually treat it with long term Doxy as well as the Presnisone. Seems we always come back to that, no matter what direction we come at CFS from.......I had a VERY infectious beginning to my illness, horrible pus in the tonsils till they came out and extremely swollen lymph glands in the neck the first 7 years......then they went down and the other symptoms started (aches, pains, joint probs.,insomnia, on and on). I think whatever we get just continues to go to a deeper level and migrates through the body and its systems. Going to have to talk to the doc about the Doxy, but don't think I'm up to all the herxing rxns. <groan>....... Marcia ____________ > POLYMYALGIA RHEUMATICA > > Report #6840 7/2/96 > > If you develop severe muscle pain and weakness, primarily in your shoulder or pelvic muscles, check with your doctor. > You may have a highly treatable condition called polymyalgia rheumatica. > > Polymyalgia rheumatica usually affects people over 60 years of age who were previously healthy. The pain in their > shoulder or pelvic muscles is so great that they often can't sleep nights and that they are afraid to move their muscles > days. Doctors order a blood test called a sed rate, and if it is very high, they suspect polymyalgia rheumatica. If a person > with polymyalgia rheumatica has headaches, doctors should suspect a much more serious condition that can cause > permanent blindness. They often biopsy arteries near the skull to diagnose that condition. The only effective treatment is > cortisone-type drugs like prednisone, which usually clear the horribly crippling muscle and joint pain within a few days. > Then doctors try to reduce the dose of prednisone to the smallest doses that suppress muscle pain. Most people with > this condition must continue to take prednisone for a year or two and then the condition often goes away as mysteriously > as it came. Most doctors feel that this condition is caused by some kind of infection, even though they have never been > able to associate any specific germ with this condition. Some doctors treat polymyalgia with long-term antibiotics, such > as doxycycline, in addition to the prednisone. > > I'm Dr. Gabe Mirkin on Fitness. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 I accidently brushed against a cactus and had a huge red spot swell on my leg. It eventually went away but it scard me. This was before my recent sll diagnosis and now it makes sense. Schoenknecht in Waukesha Wis. Hi everyone, > I was wondering if anyone else has had a problem with infections . I am stage4 SLL diagnosed in 2001. I was stuck or stung by something while working in my garden. Within 2 days my entire hand swoll up and I went to my doctor. I had to IV injections of antbiotics for 6 days and now the dcotor has given my oral antbiotics. My hand is still red but not swollen. I was doing pretty well and have been on watch and wait since my diagnosis. > Arlene > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2006 Report Share Posted May 15, 2006 Arlene, Unless you have very low neutrophil counts and/or other immune system compromises evident in your blood work results, there may not be a strong link between your hand infection and SLL. Insect and spider bites are full of infectious organisms, and the physical process of delivering the bite can can also carry bacteria from the skin surface into the underlying tissue. TJK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Tim, Thanks for responding. My doctor felt that 3 days of IV antbiotics would normally clear up the infection, but I needed 3 days more and I'm still not over it. I'm now on oral anibiotics. She feels the infection is taking longer to clear because of SLL. Then again she is not my oncologist. She is my general practioner. Arlene Tim Klug <timjkl@...> wrote: Arlene, Unless you have very low neutrophil counts and/or other immune system compromises evident in your blood work results, there may not be a strong link between your hand infection and SLL. Insect and spider bites are full of infectious organisms, and the physical process of delivering the bite can can also carry bacteria from the skin surface into the underlying tissue. TJK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 Hi, you could try plain organic yogurt with a few drops of tea tree oil.. not much is needed. I have used this before and it works well.. It may take a few days however. infection Hi all, I would really appreciate some suggestions for the most effective way to rid oneself of a vaginal infection. This infection is primarily bacterial based, with a possible hint of candida. Has anyone come across any information as the efficacy of using grapefruit seed extract in douche form for this purpose? In advance, Thank you for your help! Blessings, Meli Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 godzilla paddles should help, see group page photos menu > > Hi all, > > I would really appreciate some suggestions for the most effective way > to rid oneself of a vaginal infection. This infection is primarily > bacterial based, with a possible hint of candida. > > Has anyone come across any information as the efficacy of using > grapefruit seed extract in douche form for this purpose? > > In advance, Thank you for your help! > > Blessings, > Meli > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 why not both ingest & douche with CSilver ? i know nothing about the grapefruit seed extract, sorry. i'm just so amazed at the silver it's seeming like a magic bullet. bring on the werewolves, i'm ready! cheers, bobL myspace: http://www.myspace.com/bob021147 ebay: http://stores.ebay.com/bobLs-fine-flotsam homepage: http://www.toad.net/~blarson/ > infection > > > Hi all, > > I would really appreciate some suggestions for the most effective way > to rid oneself of a vaginal infection. This infection is primarily > bacterial based, with a possible hint of candida. > > Has anyone come across any information as the efficacy of using > grapefruit seed extract in douche form for this purpose? > > In advance, Thank you for your help! > > Blessings, > Meli > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2006 Report Share Posted November 22, 2006 Yogurt or even acidophilus capsule suppository might help and it's tried and true for vaginal infection, but you'll get 100% effectiveness with ozonated olive oil. Dr. Pressman makes it; write: saul at plasmafire dot com Duncan On 22 Nov 2006 at 16:01, Beck-blood- electrification Digest Number 1718 wrote: > > Posted by: " " mels.here@... mels.here > Date: Tue Nov 21, 2006 4:44 pm ((PST)) > > Hi all, > > I would really appreciate some suggestions for the most effective way > to rid oneself of a vaginal infection. This infection is primarily > bacterial based, with a possible hint of candida. > > Has anyone come across any information as the efficacy of using > grapefruit seed extract in douche form for this purpose? > > In advance, Thank you for your help! > > Blessings, > Meli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2006 Report Share Posted November 22, 2006 My wife had the same problem. We are treating with 'Godzilla' (see group in ) and twice daily insertion of yogurt to reestablish the natural bacteria. It's taking time but seems to be working. Good Luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2007 Report Share Posted June 14, 2007 " Roy: What test identified Chlamydia? " Thanks for asking, . I never actually tested positive for a current chlamydia infection. I was having very obvious symptoms in the fall of 06, and in fact had engaged in behavior that could very well have exposed me. ( Had unprotected sex.) I panicked and took some antibiotics (levaquin) on my own, but after three days (during which I got better, by the way) I realized I needed to see my doctor for a proper diagnosis and antibiotic treatment. When I went to him and explained that I had taken three days of antibiotic, but that I was pretty sure I had a chlamydia infection, he decided to do a serum antibody test for chlamydia. Such a test would not define a current infection, but would give some idea of exposure. The normal range on a serum antibody test for chlamydia, I was told, was 0 to .9 of whatever they were testing. My test showed 2.7, and I was put on doxycyline. (In fact, he started the doxycycline right away, even before the test results were back.) I took doxy for 3 weeks, and my worst ReA began almost exactly with my starting the doxy. As I have posted several times, I may never know how much of my suffering these six months is ReA, how much induced by doxy, or how much a strange combo. I have assumed since then that, whatever may still be wrong with me, 3 weeks of doxycyline 200mg a day had taken care of any chlamydia. In fact, my urethritis did get better and go away most of the time, with only short-term flares. It's this last flare of a month now that is so worrisome. By the way, in January and again last month I was given a swab test for chlamydia infection, was assured that the tests were very sensitive and accurate, and was told both times I do not have chlamydia (which I damn well shouldn't after 3 wks doxy and no sex). The second test, the nurse immediately examined the swab by microscope (before it was sent to lab for testing), She said this was of course not to check for chlamydia, which can not be detected visually, but just to see about white cell presence and some other things to indicate an infection of any sort. She said I actually had less visual signs of an infection than the average person tested, whether they were infected or not. Any discharge I have had has been completely clear. I have been sitting on a two-week prescription for levaquin which I had never used. I filled it a month ago and took it for 10 days (500 mg). I honestly can't say exactly why. I think I was hoping it would help. The bad news is it didn't seem to affect the urethritis. The good news is that it didn't devastate me the way the doxycycline did, which may mean that my underlying ReA is getting better. It may also mean I can tolerate a fluoroquinolone better than I can doxy, but if so I am probably the only soul on the planet for which that is true. Try Googling for adverse effects for doxy and all you ever get is heartburn and nausea. Google the same thing for levofloxacin (levaquin), and a whole universe of suffering and lawsuits will appear before you. Go figure. I am now going to try to live one day at a time and hope that this seemingly eternal flare of urethritis will just someday burn itself out. Thank all of you who share this site for your experience and encouragement. Roy Spencer --------------------------------- Pinpoint customers who are looking for what you sell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2007 Report Share Posted June 15, 2007 Ron, I am going through a similar scenario and have been for over a year. However, my problems intensified after a short course of Cipro, also an FQ antibiotic. My urinary tract pain has been unyielding since January of 2006. I went through extended courses of doxy just in case I had an STD or Lyme disease. No benefit or negative side effects during the doxy. I was also given a shorter course of a sulpha drug, again with no improvement. So, I continue to wonder if I have ReA or if the Cipro has caused the many crazy things that have gone on with my body. The docs reject the notice of long term reactions to FQ's even though as you pointed out there are a ton of people reporting problems on the web. I have several other symptoms which do not fit the ReA profile so I continue to struggle with the diagnosis. Don't know if this helps but I wouldn't down play the possibility of Levaquin causing at least some of your problems. Doug ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 Hi is been a while since the last time i was in touch, i can tell you that I had my second spinal fussion surgery in 18 months, they also change the battery of my SCS of my belly to my back because it was very sore. I have 2 SCS one for my lower extremities and another for my left arm, and suppose to have another one for my left arm, i am having a lot of problems with the SCS, and the last one was that when they change the battery i got a serious infection, my body was rejecting the battery. I spend 8 days in the hospital and send home with a picc line to have 21 days of antibiotics (vancomycin and zosyn), two days ago i finished and they tooked the picc line out. Hoping that the infection dont come back, because then the dr have to take out the battery with the leads. I am having a lot of pain in my right hip radiating to my leg. this is since they put the battery in my back. Is been 2 months of pain, infection and rehabilitation. Since they put the SCS i am having a lot of problems, because they did the implant in january and got infection also in all my wounds because i became allergic to the stitches and sterile strips that the dr. used. Is been very difficult i have RSD in both arms and trying the SCS to get rid of some narcotis. Take care and God bless you all From: Corn <butterfliesrfree309@...> Subject: Re: All wired & Buzzing Away Stimulator Date: Friday, September 4, 2009, 3:47 PM  So glad the surgery went well and the stimulator is helping you. Sorry for the setbacks, but the important thing is that the stimulator is giving you the pain relief that you were looking for. It is a miracle in how quickly you get pain relief from the stimulator. I felt the same way. I went into the hospital ready to give up hope, and came out a different woman. Just remember to take things slow, follow what the dr tells you, and let your  body heal. Sue C ____________ _________ _________ __ From: velria <radiant.salubrity@ bigpond.com> Stimulator@gro ups.com Sent: Friday, September 4, 2009 7:24:31 AM Subject: All wired & Buzzing Away  Hi All, Still in hospital. But I'm in mission complete stage. Wow - I couldn't believe after just half an hour of having it switched on the different feeling in my body. I know I still have a long way to go with it yet, but I'm feeling so excited about it now. I'm sure the days are going to get better in time. Had a couple of little upsets. The PCA drug they had me on, I ended up reacting to it. One of the side effects is that it triples your pain and gives you one awful migraine. Got that under control. They used 2 different type of dressings on for the top and the other for the bottom. Guess who's allergic to the one on the bottom, it blistered and they blisters broke. I'm considering these to be minor mishaps!! We share a great day now Deanne, You finally got to meet your little man on the 3rd and I got to start a new begining in life as welll. What a fantastic day the 3rd September is!! While i was feeling a little better, I just thought I'd let you know that so far touch wood *tapping head* all is going well. Won't be back home for another week yet. But I'll get around to reading everyone's messages. New Woman Cheers to all Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2011 Report Share Posted May 23, 2011 My son has had 3 surgeries, the last a Mastoidectomy. Saturday we went to see his allergist who noticed an infection in his bad ear. What is the chance this means the ctoma is coming back? Also his surgeon is out for an undefined amount of time, not sure he is coming back or not. So we see a NEW dr who is to a nuero-otologist. Very nervous.... Background: Found c-toma age 7 (?) after an ear infection would not go away. 1st surgery found a large congenital ctoma. destroyed hearing. 2nd surgery was supposed to use prothetic ear bones but found, again, a large c-toma reoccurance. His ear has been dry and clean since. until now.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2012 Report Share Posted February 8, 2012 Is it any particulary type of infection ?where did you find this question ?thank you From: Balsam_Majid <balsam_majid@...> Sent: Wednesday, February 8, 2012 1:21 PM Subject: Infection Ore question Percentage of people indicated to hospital by infection? 5% 10% 15% 20% Thanks Sent from my iPad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2012 Report Share Posted February 9, 2012 These r called nosocomial infections and the ans is 10%(scully)Sent from my iPhoneOn Feb 8, 2012, at 11:21 PM, Chloe Berg <chloe.berg86@...> wrote: Is it any particulary type of infection ?where did you find this question ?thank you From: Balsam_Majid <balsam_majid@...> Sent: Wednesday, February 8, 2012 1:21 PM Subject: Infection Ore question Percentage of people indicated to hospital by infection? 5% 10% 15% 20% Thanks Sent from my iPad Quote Link to comment Share on other sites More sharing options...
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