Surgery Question

[Guest guest]

Mike, have you tried calling Dr. Rice at Cleveland Clinic.

Maybe a telephone conversation would help you in your

decision.

Maggie

AL

[Guest guest]

I have not had this procedure done for my daughter, however I have a parent in

my group, daughter with DS is 14, and having issues with very heavy periods,

lasting up to 10 days, and then occuring every couple of weeks, she was placed

on birth control pills, which aren't working. This procedure has been mentioned

as a possibility. So we are also interested in any answers to this question.

Sharon H.

Mom to , (16, DS) and , (13)

South Carolina

www.gsdss.net

" Be kinder than necessary, for everyone you meet is fighting some kind of

battle. "

" Life is too short for drama & petty things, so kiss slowly, laugh insanely,

love truly and forgive quickly. "

surgery question

Has anyone with an adult DS female child undergone an endometrial

ablation and if so what are their success stories for the completion of

the " dreaded " monthly cycle?

My DS daughter is undergoing this procedure mainly because she has a

lot of tactile issues therefore I hope you can understand one of my

main reasons for doing this. I do understand that it is not 100%

guarantee, but it's less invasive than a hysterectomy plus quicker

recovery.

Have had personal experience with this procedure just curious if/what

some of you parents have done when in a situation like mine.

[Guest guest]

Hello everyone - I felt compelled to answer this question although I was

a little hesitant due to the moral implications of your question. I had

this ablation surgery 3 years ago. I thought the surgery was very easy

- in and out same day. All I had was a little discharge for a couple of

days and some cramping. No bleeding since. HOWEVER, I do continue to

have all the other symptoms of a period, moody, bloated, crampy, etc.

just no bleeding. It is truly wonderful. No mess, no interrupted

vacations, no menopause, nothing to worry about.

However, if it is a moral issue you are concerned about - I can't help

you there. I don't think a dr. would recommend if there weren't

benefits - on your family and beliefs may be cause not to. Otherwise, I

see no reason why it wouldn't be a good idea.

Please this is just my opinion.

Dawn (mom to boys only)

Re: surgery question

I have not had this procedure done for my daughter, however I have a

parent in my group, daughter with DS is 14, and having issues with very

heavy periods, lasting up to 10 days, and then occuring every couple of

weeks, she was placed on birth control pills, which aren't working. This

procedure has been mentioned as a possibility. So we are also interested

in any answers to this question.

Sharon H.

Mom to , (16, DS) and , (13)

South Carolina

www.gsdss.net

" Be kinder than necessary, for everyone you meet is fighting some kind

of battle. "

" Life is too short for drama & petty things, so kiss slowly, laugh

insanely, love truly and forgive quickly. "

surgery question

Has anyone with an adult DS female child undergone an endometrial

ablation and if so what are their success stories for the completion of

the " dreaded " monthly cycle?

My DS daughter is undergoing this procedure mainly because she has a

lot of tactile issues therefore I hope you can understand one of my

main reasons for doing this. I do understand that it is not 100%

guarantee, but it's less invasive than a hysterectomy plus quicker

recovery.

Have had personal experience with this procedure just curious if/what

some of you parents have done when in a situation like mine.

[Guest guest]

I personally have not had this done. However when younger had very heavy

periods, cramping, long periods.....

My Dr. told me my only options were hysterectomy; or I could try a shot called

Depo-Provera as birth control pills didn't help at all. I opted for thel latter

however I know that the shot is very controversial because you can have weight

gain and some people just don't do well with it. It has been great for me as I

have had no periods in almost 14 years.

This is just what my experience was. Good luck with whatever decision you make.

Mattern

Mom to Ben 15(DS) and 13

surgery question

Has anyone with an adult DS female child undergone an endometrial

ablation and if so what are their success stories for the completion of

the " dreaded " monthly cycle?

My DS daughter is undergoing this procedure mainly because she has a

lot of tactile issues therefore I hope you can understand one of my

main reasons for doing this. I do understand that it is not 100%

guarantee, but it's less invasive than a hysterectomy plus quicker

recovery.

Have had personal experience with this procedure just curious if/what

some of you parents have done when in a situation like mine.

[Guest guest]

One of my good friends had one a few years back... she had many

problems, including on and off bleeding that never seemed to end, topped

off with an allery to most feminie hygine products, so that she get a

rash...

In any case, she had very few side effects from the procedure, some mild

cramping, and has been very pleased with the results. I think she's

having a bit of bleeding now and then these days, but nothing like a

typical cycle. She touts that we all should have it!

, mom to (12), (10 DS), and Sammy (8)

kittellk wrote:

> Has anyone with an adult DS female child undergone an endometrial

> ablation and if so what are their success stories for the completion of

> the " dreaded " monthly cycle?

>

> My DS daughter is undergoing this procedure mainly because she has a

> lot of tactile issues therefore I hope you can understand one of my

> main reasons for doing this. I do understand that it is not 100%

> guarantee, but it's less invasive than a hysterectomy plus quicker

> recovery.

>

> Have had personal experience with this procedure just curious if/what

> some of you parents have done when in a situation like mine.

>

>

[Guest guest]

On a different note.

Having had the procedure - painless, VERY mild bleeding post procedure - BUT

there is still the risk of pregnancy - as a parent all discussion regarding

safe practices must be had. IF pregnancy occurs after having the ablation

there is risk of rupturing the uterus as the fetus has no endometrial tissue

to adhere to.

Barb R. (very glad to have a son and so do not have to deal with this

particular issue :-))

surgery question

Has anyone with an adult DS female child undergone an endometrial

ablation and if so what are their success stories for the completion of

the " dreaded " monthly cycle?

My DS daughter is undergoing this procedure mainly because she has a

lot of tactile issues therefore I hope you can understand one of my

main reasons for doing this. I do understand that it is not 100%

guarantee, but it's less invasive than a hysterectomy plus quicker

recovery.

Have had personal experience with this procedure just curious if/what

some of you parents have done when in a situation like mine.

[Guest guest]

I have surgery on June 8th. I think they'll try and do the whole thing (I don't know for sure) though. Mastoidectomy, fix my ear bones, remove ctoma etc..

Anyway, we had vaca. sched. for June 13. That is 5 days after surgery. It is a driving vaca. I will be in a hotel.

Is it a good move to do this...or will I be miserable. I can just see not being able to sleep.

Thanks for any input you may have.

Brad

[Guest guest]

I think you are smart to stay home and skip shopping in the Hamptons! Chloe usually is feeling pretty well by five days out, but not for endurance shopping. And that is really saying something for her!

On Tue, May 24, 2011 at 7:42 PM, Bradford Burt <bradford_burt08@...> wrote:

my wife/partner/headache will be driving.

 

But I this is my chance to pass on a this little vacation which will inevitably end up with me following my wife/partner/headache around on a shopping spree in the Hamptons, NY.

 

I live 10 minutes from a ton great New England beaches already!  Why in the heck would I want to waste my time driving to the Hamptons?

 

Thank you CToma, you saved me at least for a little while.

 

I apologize to anyone who lives in the Hamptons.

 

bb

 

From: Teague <kbteague@...>Subject: Re: Surgery Question

cholesteatoma Date: Tuesday, May 24, 2011, 9:00 PM

When are you getting your packing out of your ear and having your follow-up? I think mine was about 3-5 days after, can't remember exactly. I think you should be fine. Is your wife or partner going to help drive, cause you may have some dizziness?

I would take ear plugs for the shower and ear covers (you can pick-up at the beauty supply store). I would pack dramemene for the car ride just in case. Pack your own pillow and be prepared to sleep on your opposite side or your stomache. Good luck on surgery and travels.

Sent on the Sprint® Now Network from my BlackBerry®

From: Bradford Burt <bradford_burt08@...>

Sender: cholesteatoma

Date: Tue, 24 May 2011 13:33:41 -0700 (PDT)

<cholesteatoma >

Replycholesteatoma

Subject: Surgery Question

 

I have surgery on June 8th.  I think they'll try and do the whole thing (I don't know for sure) though.  Mastoidectomy, fix my ear bones, remove ctoma etc..

 

Anyway, we had vaca. sched. for June 13.   That is 5 days after surgery.  It is a driving vaca.  I will be in a hotel.

 

Is it a good move to do this...or will I be miserable.  I can just see not being able to sleep.

 

Thanks for any input you may have.

 

Brad

[Guest guest]

Brad that is a toughy...for me personally vacation that soon after my surgeries would not have been fun. This last surgery though where they went in through my ear canal was much better. I had the nausea the first couple of days and that was it...I did sleep a lot though but no pain...no energy either. I believe each of us are different. I exercise daily as well but still just couldn't get myself up to do much of anything the first week. My packing was the kind that dissolved so I am not sure about having it removed but my appointments are every 3 weeks right now. Surgery was just a month ago...I think you will be OK in the hotel...are you driving a long distance?? You may want to be the passenger of course...not the driver but then again you might feel good enough to drive sooner than that. I wasn't released to drive for 3 weeks but it was because of the medications they had me on they made me super sleepy. Have fun!! Maybe your shirts will be waiting for you when you get back...I am expecting a call here anyday telling me I can come pick them up!

JenniOn Tue, May 24, 2011 at 1:33 PM, Bradford Burt <bradford_burt08@...> wrote:

 

I have surgery on June 8th.  I think they'll try and do the whole thing (I don't know for sure) though.  Mastoidectomy, fix my ear bones, remove ctoma etc..

 

Anyway, we had vaca. sched. for June 13.   That is 5 days after surgery.  It is a driving vaca.  I will be in a hotel.

 

Is it a good move to do this...or will I be miserable.  I can just see not being able to sleep.

 

Thanks for any input you may have.

 

Brad

[Guest guest]

Brad,Well, why in the heck didn't you say that in the beginning? No, it will absolutely not be good to go on a shopping frenzy in the Hamptons 5 days after surgery...wink, wink...it would be detrimental to your health and well being, not to mention your pocketbook (excuse me, your wallet)! LOL Tell your headache, I mean wife/partner that even us other headaches/wives/partners advise against it. If you were going on a relaxing trip to lay on the beach or by the pool maybe.... When you said vacation, I thought you meant a true vacation, not a bunch of running around being a bag boy for the love of your life!You now how something to be thankful for the c-toma. Good luck bowing out BB aka bag boy.Sent on the Sprint® Now Network from my BlackBerry®From: Bradford Burt <bradford_burt08@...>Sender: cholesteatoma Date: Tue, 24 May 2011 16:42:38 -0700 (PDT)<cholesteatoma >Reply cholesteatoma Subject: Re: Surgery Question my wife/partner/headache will be driving. But I this is my chance to pass on a this little vacation which will inevitably end up with me following my wife/partner/headache around on a shopping spree in the Hamptons, NY. I live 10 minutes from a ton great New England beaches already! Why in the heck would I want to waste my time driving to the Hamptons? Thank you CToma, you saved me at least for a little while. I apologize to anyone who lives in the Hamptons. bb From: Teague <kbteague@...>Subject: Re: Surgery Questioncholesteatoma Date: Tuesday, May 24, 2011, 9:00 PMWhen are you getting your packing out of your ear and having your follow-up? I think mine was about 3-5 days after, can't remember exactly. I think you should be fine. Is your wife or partner going to help drive, cause you may have some dizziness? I would take ear plugs for the shower and ear covers (you can pick-up at the beauty supply store). I would pack dramemene for the car ride just in case. Pack your own pillow and be prepared to sleep on your opposite side or your stomache. Good luck on surgery and travels.Sent on the Sprint® Now Network from my BlackBerry®From: Bradford Burt <bradford_burt08@...> Sender: cholesteatoma Date: Tue, 24 May 2011 13:33:41 -0700 (PDT)<cholesteatoma >Replycholesteatoma Subject: Surgery Question I have surgery on June 8th. I think they'll try and do the whole thing (I don't know for sure) though. Mastoidectomy, fix my ear bones, remove ctoma etc.. Anyway, we had vaca. sched. for June 13. That is 5 days after surgery. It is a driving vaca. I will be in a hotel. Is it a good move to do this...or will I be miserable. I can just see not being able to sleep. Thanks for any input you may have. Brad

[Guest guest]

Oh my Brad! Five days after surgery? Here's an option. Obtain or

bring along a DVD player and catch some movies while the wife shops til

she drops. If you're having any reconstruction work done, you'll have

the doc's permission to escape pack mule duty. At five days out you

might be up for a little reading ... I know my head was still fuzzy for

the first four days. I tried driving the day after surgery once ...

ONCE ... I really would recommend that until day five.

Jenni wrote:

>

>

> Brad that is a toughy...for me personally vacation that soon after my

> surgeries would not have been fun. This last surgery though where they

> went in through my ear canal was much better. I had the nausea the

> first couple of days and that was it...I did sleep a lot though but no

> pain...no energy either. I believe each of us are different. I

> exercise daily as well but still just couldn't get myself up to do

> much of anything the first week. My packing was the kind that

> dissolved so I am not sure about having it removed but my appointments

> are every 3 weeks right now. Surgery was just a month ago...I think

> you will be OK in the hotel...are you driving a long distance?? You

> may want to be the passenger of course...not the driver but then again

> you might feel good enough to drive sooner than that. I wasn't

> released to drive for 3 weeks but it was because of the medications

> they had me on they made me super sleepy. Have fun!! Maybe your shirts

> will be waiting for you when you get back...I am expecting a call here

> anyday telling me I can come pick them up!

>

>

> Jenni

>

> On Tue, May 24, 2011 at 1:33 PM, Bradford Burt

> <bradford_burt08@... <mailto:bradford_burt08@...>> wrote:

>

>

>

> I have surgery on June 8th. I think they'll try and do the

> whole thing (I don't know for sure) though. Mastoidectomy,

> fix my ear bones, remove ctoma etc..

>

> Anyway, we had vaca. sched. for June 13. That is 5 days

> after surgery. It is a driving vaca. I will be in a hotel.

>

> Is it a good move to do this...or will I be miserable. I can

> just see not being able to sleep.

>

> Thanks for any input you may have.

>

> Brad

>

>

>

--

[Guest guest]

My sons had his op on the Thursday and I took him out for a 'mutt of the year' picnic with his little dog on the Sunday (so day 3 post-op). It was about a 20min drive and short walk from the car. It really took it out of him and he was EXHAUSTED afterwards. I found for the full first week afterwards he got tired very easily and had very little energy. After that he was fine though.

I'd say it is possible to go on the trip, but to limit your planned activities as much as possible. You will need to rest.On 26 May 2011 04:12,