Guest guest Posted May 27, 2011 Report Share Posted May 27, 2011 Next week my 8 year old daughter JinMei is having her 10th ear surgery. All in less than 4 year's time. She has Cholesteatomas in both ears that keep growing back. Plus her grafted in ear drums fail. Plus she has lost the titanium that was grafted in. We aren't going to try that again until she can have some significant healthy ears time. But how do we KEEP her ears healthy? I keep them as dry as possible. She doesn't swim. We are careful during showers. We DO fly home to Alaska within a few days of surgery each time. The Dr. said flying is fine. Is that true? Is there ANYTHING I could be doing wrong? I feel she has a really good Dr. at Seattle Children's Hospital. Her hearing is significantly impaired by this. JinMei also had a cleft palate & has had about 10 more surgeries for that & associated problems. I just feel like I'm missing some key info somewhere. Or maybe that's just wishful thinking. HELP!!! Ideas? Thoughts? Suggestions? Donna DeBoer Quote Link to comment Share on other sites More sharing options...
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