Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 Thank you. No, I haven't taken them before. I have been prescribed 10 mg. Thank you so much!! Lexapro@...: jonboy75610@...: Thu, 24 Apr 2008 02:00:42 +0000Subject: Re: Newbie Welcome! Have you taken SSRI's in the past? What dose have you been prescribed? Lexapro promotes the fact that side effects are the least of all SSRI's. Barbara from the group offers great advice if she could chime in and offer some words of encouragement as well.Best wishes and hope this message board is beneficial to you.>> > I am new to this group. I have been prescribed Lexapro and have been afraid to take anti-depressants because of the side effects and the withdrawal symptoms... What have most have you experienced as side effects with Lexapro? Does it work for anxiety?> > > __________________________________________________________> In a rush? Get real-time answers with Windows Live Messenger.> http://www.windowslive.com/messenger/overview.html?ocid=TXT_TAGLM_WL_Refresh_rea\ ltime_042008> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 I'm a bit behind. ;-) Lex works on anxiety as well as depression. Note: When first beginning Lexapro you *might* experience an temporary increase in anxiety. This often depends on your starting dose and some people have no issues with an increase anxiety. It differs for each person. Withdrawal is mostly not a problem if one weans off the drug *slowly*. Quit cold turkey and all bets are off. What dose are you starting at? 5mg's is a good start if you're worried about the anxiety increasing even a little. And the 10mg pills can be cut in half. Also, if the Lex doesn't work quickly enough for your anxiety talk to your doctor about something to help with that...just until you've been on the Lex for a bit. Atarax is a good choice and most doctors don't have any issues with giving that one. Lex may make you sleepy or may make it more difficult for you to sleep. Adjust your dose time. For instance, if it makes you sleepy take it at night about an hour or so before bed. It can be taken with or without food but I'd advise taking it with food to start with just in case you experience a bit of mild nausea while weaning on. I'm fried...that's all I can think of for the moment. If anyone else can add anything, please do, or if you have questions, feel free to ask. And welcome to the group! :-) Barbara Re: Newbie Welcome! Have you taken SSRI's in the past? What dose have you been prescribed? Lexapro promotes the fact that side effects are the least of all SSRI's. Barbara from the group offers great advice if she could chime in and offer some words of encouragement as well. Best wishes and hope this message board is beneficial to you. > > > I am new to this group. I have been prescribed Lexapro and have been afraid to take anti-depressants because of the side effects and the withdrawal symptoms... What have most have you experienced as side effects with Lexapro? Does it work for anxiety? > > > _________________________________________________________________ > In a rush? Get real-time answers with Windows Live Messenger. > http://www.windowslive.com/messenger/overview.html? ocid=TXT_TAGLM_WL_Refresh_realtime_042008 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 I knew Barbara would pull through!! 5mg would be your best bet for seven days then up to 10mg. I have found that keeping a journal and posting problems/questions here that it helps alot while you are adjusting. Keep in touch and please let us know how you progress. When do you take your first dose? The group is pulling for you! > > > > > > I am new to this group. I have been prescribed Lexapro and have > been afraid to take anti-depressants because of the side effects and > the withdrawal symptoms... What have most have you experienced as > side effects with Lexapro? Does it work for anxiety? > > > > > > _________________________________________________________________ > > In a rush? Get real-time answers with Windows Live Messenger. > > http://www.windowslive.com/messenger/overview.html? > ocid=TXT_TAGLM_WL_Refresh_realtime_042008 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 I'm *so* glad you mentioned the time on 5mg's before going up to ten. I *just* realized I'd forgotten that part! And there's your email. LOL! Barbara Re: Newbie I knew Barbara would pull through!! 5mg would be your best bet for seven days then up to 10mg. I have found that keeping a journal and posting problems/questions here that it helps alot while you are adjusting. Keep in touch and please let us know how you progress. When do you take your first dose? The group is pulling for you! > > > > > > I am new to this group. I have been prescribed Lexapro and have > been afraid to take anti-depressants because of the side effects and > the withdrawal symptoms... What have most have you experienced as > side effects with Lexapro? Does it work for anxiety? > > > > > > _________________________________________________________________ > > In a rush? Get real-time answers with Windows Live Messenger. > > http://www.windowslive.com/messenger/overview.html? > ocid=TXT_TAGLM_WL_Refresh_realtime_042008 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2008 Report Share Posted April 24, 2008 Thank you. I haven't taken it yet. But will soon and let you know how it goes... Thank you again!! Thank you to you too Barbara!! Lexapro@...: jonboy75610@...: Thu, 24 Apr 2008 02:48:04 +0000Subject: Re: Newbie I knew Barbara would pull through!! 5mg would be your best bet for seven days then up to 10mg.I have found that keeping a journal and posting problems/questions here that it helps alot while you are adjusting. Keep in touch and please let us know how you progress. When do you take your first dose?The group is pulling for you!> >> > > > I am new to this group. I have been prescribed Lexapro and have > been afraid to take anti-depressants because of the side effects and > the withdrawal symptoms... What have most have you experienced as > side effects with Lexapro? Does it work for anxiety?> > > > > > __________________________________________________________> > In a rush? Get real-time answers with Windows Live Messenger.> > http://www.windowslive.com/messenger/overview.html?> ocid=TXT_TAGLM_WL_Refresh_realtime_042008> > > > [Non-text portions of this message have been removed]> >> > > > ------------------------------------> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2008 Report Share Posted April 24, 2008 HI all - I have been on 10mg of lex for 4 months here - for anxiety and associated depression.......................... My anxiety got pretty severe - a lot of physical symptoms - I didnt want to take anti-d's but in the end I was desperate The lex got me to a point where I could start working on my anxiety. I did a lot of walking at first - then cycling - relaxation tapes - meditation - pilates - yoga etc. Maybe for some people the meds are the complete answer but I have found I really need to work at reducing my anxiety - its tough but hopefully it will be worth it - what do other people think? Mike -Era <arobe00@...> wrote: Thank you. I haven't taken it yet. But will soon and let you know how it goes... Thank you again!! Thank you to you too Barbara!! Lexapro@...: jonboy75610@...: Thu, 24 Apr 2008 02:48:04 +0000Subject: Re: Newbie I knew Barbara would pull through!! 5mg would be your best bet for seven days then up to 10mg.I have found that keeping a journal and posting problems/questions here that it helps alot while you are adjusting. Keep in touch and please let us know how you progress. When do you take your first dose?The group is pulling for you!> >> > > > I am new to this group. I have been prescribed Lexapro and have > been afraid to take anti-depressants because of the side effects and > the withdrawal symptoms... What have most have you experienced as > side effects with Lexapro? Does it work for anxiety?> > > > > > __________________________________________________________> > In a rush? Get real-time answers with Windows Live Messenger.> > http://www.windowslive.com/messenger/overview.html?> ocid=TXT_TAGLM_WL_Refresh_realtime_042008> > > > [Non-text portions of this message have been removed]> >> > > > ------------------------------------> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2008 Report Share Posted April 24, 2008 I agree...for some people doing things like you are can help alot. That's situational anxiety more than anything else. It puts the person in control too which is no small thing for people like us which can really help anxiety. For people that have a life-long anxiety or panic disorder it can certainly help but for these kinds of disorders they need medication to keep their anxiety/panic under control. Many things can work for many different people and I believe with proper nutrition and exercise, etc. that many people can at least limit the amount of medication they need. But they have to get it under control first. From my own experiences I know that supplements can make a big difference too. Vitamins and herbs. Especially as we get older and our bodies don't process foods as well as they used to when we were younger. But this is another subject. ;-) Barbara Re: Newbie I knew Barbara would pull through!! 5mg would be your best bet for seven days then up to 10mg.I have found that keeping a journal and posting problems/questions here that it helps alot while you are adjusting. Keep in touch and please let us know how you progress. When do you take your first dose?The group is pulling for you!> >> > > > I am new to this group. I have been prescribed Lexapro and have > been afraid to take anti-depressants because of the side effects and > the withdrawal symptoms... What have most have you experienced as > side effects with Lexapro? Does it work for anxiety?> > > > > > __________________________________________________________> > In a rush? Get real-time answers with Windows Live Messenger.> > http://www.windowslive.com/messenger/overview.html?> ocid=TXT_TAGLM_WL_Refresh_realtime_042008> > > > [Non-text portions of this message have been removed]> >> > > > ------------------------------------> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2008 Report Share Posted April 26, 2008 Hi Barbara I have tried quite a few supplements - I dabbled with niacin for a while http://www.doctoryourself.com/niacin.html but I am now just on a multi vitamin plus omega oils and vitamin c - I am taking 150mg 3 times a day http://www.holistic-online.com/Remedies/Anxiety/anx_vitamin_therapy.htm it is supposed to help your body convery tryptophan to serotonin I am now considering trying a tryptophan supplement before trying to come of lex http://www.smart-drugs.net/ias-tryptophan-article.htm I would be interested in other people's experiences/comments Mike Barbara <bjarrett@...> wrote: I agree...for some people doing things like you are can help alot. That's situational anxiety more than anything else. It puts the person in control too which is no small thing for people like us which can really help anxiety. For people that have a life-long anxiety or panic disorder it can certainly help but for these kinds of disorders they need medication to keep their anxiety/panic under control. Many things can work for many different people and I believe with proper nutrition and exercise, etc. that many people can at least limit the amount of medication they need. But they have to get it under control first. From my own experiences I know that supplements can make a big difference too. Vitamins and herbs. Especially as we get older and our bodies don't process foods as well as they used to when we were younger. But this is another subject. ;-) Barbara Re: Newbie I knew Barbara would pull through!! 5mg would be your best bet for seven days then up to 10mg.I have found that keeping a journal and posting problems/questions here that it helps alot while you are adjusting. Keep in touch and please let us know how you progress. When do you take your first dose?The group is pulling for you!> >> > > > I am new to this group. I have been prescribed Lexapro and have > been afraid to take anti-depressants because of the side effects and > the withdrawal symptoms... What have most have you experienced as > side effects with Lexapro? Does it work for anxiety?> > > > > > __________________________________________________________> > In a rush? Get real-time answers with Windows Live Messenger.> > http://www.windowslive.com/messenger/overview.html?> ocid=TXT_TAGLM_WL_Refresh_realtime_042008> > > > [Non-text portions of this message have been removed]> >> > > > ------------------------------------> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2008 Report Share Posted May 1, 2008 Good going...you will be amazed if you follow Dr. Simmeons Protocal EXACTLY! I was so pleased with the quickness of results! > > I just started taking the shot 24 APR 08. > Iwill start the 500cal diet tommorow , looking forward to going from > 42 waist to 34 waist. > Thanks for the pictures they are a great encouragement > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2008 Report Share Posted May 1, 2008 May 1 and I'm 12lbs lighter ,feeling greatI'm following the protocol to the teeThe only thing is I need to lose more than 15 lbs , so skipped the shot today.I started last thursday will this affect my results? From: janthreadgill <janthreadgill@...>Subject: Re: Newbie Date: Thursday, May 1, 2008, 9:54 PM Good going...you will be amazed if you follow Dr. Simmeons Protocal EXACTLY! I was so pleased with the quickness of results! > > I just started taking the shot 24 APR 08. > Iwill start the 500cal diet tommorow , looking forward to going from > 42 waist to 34 waist. > Thanks for the pictures they are a great encouragement > Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 Absolutely. Brush yourself off and continue on the protocal as directed. -------------- Original message from "jirober1" <jirober1@...>: -------------- I really messed up and eat a steak with grilled veg . Can i just continue with the shots tomorrow? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2008 Report Share Posted May 23, 2008 The very best thing that you can do for yourself is to read Dr Simeons' Pounds and Inches manuscript. Then read it again. He states that you will average just under a pound a day over the 43 days. CC Guide to Implementing the Weight Loss Cure http://www.weightlosscureonline.com DO NOT ORDER FROM THE LINK ABOVE. As a member of this group, you can get my over 100-page eBook for $19.95 by sending it to me at this email address (apracticalidealist at dot com) through PayPal "Send Money" tab on www.paypal.com. Then I email you the eBook. I cannot refund the discount to you if you order from www.weightlosscureonline.com by mistake. ALERT: PayPal tries to get you to use your checking account rather than a credit card if you have multiple forms of payment set up. However, this causes a week's wait until your eCheck clears before I can send your eBook. For faster access to the eBook, use a credit card instead if you can. newbie ok- I am new to the hcg world & this group. i started the hcg daily injections on Tues. Today is Friday & I have lost 5.4 #s. I am on the 500 calorie diet. i weigh 200 # & would like to get down to my pre-preganancy weight of 125 but would be happy at 150. Can anyone tell me how much I should be able to lose on Phase 2 for 40 days? The DR says .5-1# a day but so far I have lost more than that I know it is going to slow down but how much? Any info would be great! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 welcome! Let us know how we can help.. sandy r > > Hi everyone..Im a newbie banded 7/17/09 I have lost 22lbs so far but I am having a bit of trouble. I would love help and support. Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 HI, I was banded 05/28/09 and have lost 31 lbs. Sounds, like you are off to a real good start at 22 lbs. What are you finding is your hardest parts? Mine is the exercising. I was doing real good even going for bike rides but then I started with side pain that resulted in appendicitis. So, I have been recovering from that surgery and have lost my motivation. Have you had any fills yet? I found that before I got the first fill I was very hungry. I just had to keep the hunger satisfied with healthy choices. Instead of a bunch of chips I ate the heck out of watermelon or tomatoes. Even sugarless pudding. I have stayed completely away from carbonated drinks and caffeine. Which doesn't leave a hole lot left. Do you have a good support system at home? that is also important. On my weakest days I found my husband to be a great motivator. Hang in there and just remember it is all going to be worth it. Getting skinny is a whole lot harder than getting fat. A ________________________________ From: pnkpassion06 <pnkpassion06@...> Sent: Thursday, August 20, 2009 9:55:25 AM Subject: Newbie  Hi everyone..Im a newbie banded 7/17/09 I have lost 22lbs so far but I am having a bit of trouble. I would love help and support. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 Hi I'm new here, too. I started last week. I am very actice in Dragon boat Sports out of Portland Oregon. So I get kinda wet in my practices and races.   these are good questions you are asking and I am certain you will have an answer really soon. I know these implants or most are water proof. Have a great day! Debbie Cole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 Hello and Debbie...I have the Nucleus Freedom implant and my speech processor is water resistant. None of the CI companies make a water-proof processor, but Cochlear Americas has developed the water resistent processor. Visit www.cochlearamericas.com and look at their latest and greatest, the Nucleus 5 that just came out. This is the smallest processor, and still has the water resistant feature. It is possible that the other companies, Advanced Bionics and MedEl has added this feature to their product, in all fairness. I haven't kept up with their products so you should look at their websites as well... www.bionicear.com and www.medel.com. Best of luck as you do your research and make your decisions. You are in for a wonderful journey!!  ________________________________ From: troymichael0808 <jmlejets@...> Sent: Mon, November 9, 2009 11:23:47 AM Subject: Newbie  Good Day All, I am a newbie to the list and am planning a CI within the next couple of months. I've done a fair amount of research and it is of course ongoing. I'm researching these archives as well as those on manufacturers sites and other talk groups. I am still very active physically, playing competition tennis 2 hours per day 5 days a week in the hot/humid conditions of South Florida. Last week heat index reached 105+ while I was playing. In my initial research I've not been able to find information on how solid the various external pieces are for bounding and bouncing around the court. Does anyone have any real time heavy athletic experience with any units? Will they hold up and will they stay in place? Although I don't become immersed in water during play, I sweat profusely in this humidity? Are there problems with that? Thanks in advance to all who respond and I apologize if the questions and answers have been noted previously. I'm still a newbie at this and searching the archives. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2009 Report Share Posted November 12, 2009 ,  To keep the processor securely to the ear Cochlear makes an accessory called SnugFit. It comes in both Nucleus 5 ($26) and Freedom ($36) versions.  My audiologist showed me how to use the Freedom SnugFit. The ear hook has to be taken off, and then the coil cable detached and reattached.  Also if the tip of the SnugFit is not around the ear the entire instrument can be lost. If the user is proactive this should work very good. Speaking for myself I did not want to have to keep changing components. I am not active except for walking.  The Freedom also has a Mic Lock. If you buy the Cochlear brand you should be getting the Nucleus 5.  Perhaps, other list members can filled in the rest.  Gerald  Does anyone have any real time heavy athletic experience with any units? Will they hold up and will they stay in place? Although I don't become immersed in water during play, I sweat profusely in this humidity? Are there problems with that? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2010 Report Share Posted January 25, 2010 a, I can relate. Sounds probably crazy to hear this from a 40 year old man but the first two months I would hide up at the house in Northern Az., sit on the deck that had blinds covering where people couldn't see me. They were always use to me being very outgoing and would talk to anyone. I would sit in the chair, watch my mother talk to her friends and I would start to tear like crazy. I worked off the phone all my life and logistics is the only thing I know. I would sit there on some days and just think to myself, how about I pop some valium and drink a 12 pack of beer and I wouldn't have to worry about it anymore. I finally did some research as well as my brother introducing me to a buddy of his from Canada. I found out that he is a moderator on HLAA. He invited me to come into there weekly chat on Monday. I got in there and met the most wonderful people, explained my situation and what was wrong with me. Alot of them were quite shocked at first since all of this hit me overnight. On April the 28th of 09 I woke up and couldn't hear a thing in any one of my ears, a month later they diagnosed me with Mineares Disease, a month after that I found out I had A.I.E.D. and a month after that I was told I have an arachnoid cyst in the lower part of my brain. So besides have Sudden Bilateral Sensenoreal Hearing Loss I have the other things to deal with. I am wearing Oticon Epoq XW Powers that work wonders, I can talk on the phone by using a streamer that I wear around my neck, it turns the hearing aids into a bluetooth, I have a TV Connect box that I use to watch TV as well as a Phone Connect box that I can use on the landline. My hearing isn't getting any better so I am not getting my first Cochlear Implant on Feb. the 9th and am looking forward to it. I am going to get the other one in about six months after this one is done. I have been getting alot of email from people with tips on the surgery and what to expect from here. It has been very helpful. If you want to chat with other people in a live chat room you can go where I go every Monday at 8:00PM EST, the site is http://myhearingloss.org You click on the orange chat button then make a name for yourself and click chat. When you get in there you want to double click the CI Chat room. You will see people in there that have the implants, are just wearing hearing aids, are new to hearing loss like myself when I got in there. They are wonderful people and it is my Monday ritual to get in there and get up to date on everyone and see how there doing as well as try to help people thru new hearing loss such as they did me when I lost mine. I have been telling alot of people about the group and they didn't even know about it. I know from asking that the surgery is out patient and they turn the device on in three to four weeks. I read what you wrote and just thought I would give you a little history on what I am dealing with and I can sympathize with you. It's horrible and you actually find out who your true friends are when something like this happens. Stay postive and up to date with information, I do it everyday to just keep gaining knoweledge of the hearing loss world. ________________________________ From: cherokee0897 <cherokee0897@...> Sent: Mon, January 25, 2010 2:40:41 PM Subject: Newbie  Hello, my name is a my Dr, ran the annual hearing test the this past Thurs. (Jan 21) and finally realized that it is time to run the tests to see if the Cochlear Implant will work for me, the first test is being done on Feb 19, 10. I have been totally deaf in my right ear for a little over 4 years now and the left year was slowly going until the past few months. Back in Aug.09 they ran a special test and found out that the 8th Cranial nerve is damaged. So now he has decided to try the Cochlear Implant. I have been looking it up online, but haven't found the answers to my questions & I was hoping that maybe someone here could help me. My questions are. Exactly how many tests are there before they find out if the Cochlear Implant will work for me? How long will I be in the hosp, if it is inpatient surgery? And how soon after the surgery will the external device be put in place? Loosing my hearing has been more frustrating on me then my husband and kids. I have actually cried myself to sleep a many nights because of it wondering if my doctor was ever going to give me any answers as to why I was losing my hearing and he never did. It is about time he is finally taking the next step into doing something for me so that I may be able to hear again. I am just hoping and praying that the test(s) he is running will show that the Cochlear Implant will work. If someone can answer these for me, I would greatly appreciate it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2010 Report Share Posted January 25, 2010 Hi a - I can give you some answers, but you should be sure to ask your doctor/audiologist the same questions. But, this will give you an idea of what to expect. How many tests before they can find out if the CI will work for you? The cochlear implant audiologist will need to put you through several different hearing tests that are specific for cochlear implants to see how much you can hear. This requires you to be in a sound proof booth listening to sounds, words, sentences and sentences in noise. It was my experience that the results from these tests and the audiologist's findings is what the surgeon went by to determine if I would benefit from a CI. Then the surgeon will need to do some tests to make sure that you physically can handle the implant by having you have a MRI or a cat scan, or sometimes both. This is to make sure there are no malformations that might prohibit you from being implanted. As for whether the CI will work for you, that is the unknown until after surgery. I was told that there was a chance I would not hear with the CI because I had been deaf for so long, but the only way to find out was to try. So once I opted for the surgery, it was just a matter of time before I knew if it was successful. How long in the hospital? Most patients surgeries are outpatient. You go in and have the surgery in the morning, and you go home to recover that afternoon. An overnight stay may be required if you have other health issues that the doctors want to monitor. How long before the processor is activated? Well, some doctors prefer to have their patients wait for a month, some 3 weeks, some will activate the next day. It all depends on your surgeon, and other situations. My doctor would have activatedme within a day or two because I live 8 hours away, but I opted to wait 3 weeks. I do know they have activated some patients a day later because they were from another country and were only here for a few weeks. I hope the doctor you are seeing is a cochlear implant surgeon. He is best qualified to determine whether you should be evaluated for a cochlear implant. They will have you see a cochlear audiologist to run specialized tests for potential cochlear implant candidates. You've come to the right place for answers. However, we are not doctors here, we can only share our experiences. Best of luck to you, and I hope to hear from you again  ________________________________ From: cherokee0897 <cherokee0897@...> Sent: Mon, January 25, 2010 3:40:41 PM Subject: Newbie  Hello, my name is a my Dr, ran the annual hearing test the this past Thurs. (Jan 21) and finally realized that it is time to run the tests to see if the Cochlear Implant will work for me, the first test is being done on Feb 19, 10. I have been totally deaf in my right ear for a little over 4 years now and the left year was slowly going until the past few months. Back in Aug.09 they ran a special test and found out that the 8th Cranial nerve is damaged. So now he has decided to try the Cochlear Implant. I have been looking it up online, but haven't found the answers to my questions & I was hoping that maybe someone here could help me. My questions are. Exactly how many tests are there before they find out if the Cochlear Implant will work for me? How long will I be in the hosp, if it is inpatient surgery? And how soon after the surgery will the external device be put in place? Loosing my hearing has been more frustrating on me then my husband and kids. I have actually cried myself to sleep a many nights because of it wondering if my doctor was ever going to give me any answers as to why I was losing my hearing and he never did. It is about time he is finally taking the next step into doing something for me so that I may be able to hear again. I am just hoping and praying that the test(s) he is running will show that the Cochlear Implant will work. If someone can answer these for me, I would greatly appreciate it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2010 Report Share Posted January 25, 2010 - wonderful sharing here. I'm glad you are here, and have also found the chat room too!  ________________________________ From: Ortis <qglphx1@...> Sent: Mon, January 25, 2010 4:40:32 PM Subject: Re: Newbie  a, I can relate. Sounds probably crazy to hear this from a 40 year old man but the first two months I would hide up at the house in Northern Az., sit on the deck that had blinds covering where people couldn't see me. They were always use to me being very outgoing and would talk to anyone. I would sit in the chair, watch my mother talk to her friends and I would start to tear like crazy. I worked off the phone all my life and logistics is the only thing I know. I would sit there on some days and just think to myself, how about I pop some valium and drink a 12 pack of beer and I wouldn't have to worry about it anymore. I finally did some research as well as my brother introducing me to a buddy of his from Canada. I found out that he is a moderator on HLAA. He invited me to come into there weekly chat on Monday. I got in there and met the most wonderful people, explained my situation and what was wrong with me. Alot of them were quite shocked at first since all of this hit me overnight. On April the 28th of 09 I woke up and couldn't hear a thing in any one of my ears, a month later they diagnosed me with Mineares Disease, a month after that I found out I had A.I.E.D. and a month after that I was told I have an arachnoid cyst in the lower part of my brain. So besides have Sudden Bilateral Sensenoreal Hearing Loss I have the other things to deal with. I am wearing Oticon Epoq XW Powers that work wonders, I can talk on the phone by using a streamer that I wear around my neck, it turns the hearing aids into a bluetooth, I have a TV Connect box that I use to watch TV as well as a Phone Connect box that I can use on the landline. My hearing isn't getting any better so I am not getting my first Cochlear Implant on Feb. the 9th and am looking forward to it. I am going to get the other one in about six months after this one is done. I have been getting alot of email from people with tips on the surgery and what to expect from here. It has been very helpful. If you want to chat with other people in a live chat room you can go where I go every Monday at 8:00PM EST, the site is http://myhearingloss.org You click on the orange chat button then make a name for yourself and click chat. When you get in there you want to double click the CI Chat room. You will see people in there that have the implants, are just wearing hearing aids, are new to hearing loss like myself when I got in there. They are wonderful people and it is my Monday ritual to get in there and get up to date on everyone and see how there doing as well as try to help people thru new hearing loss such as they did me when I lost mine. I have been telling alot of people about the group and they didn't even know about it. I know from asking that the surgery is out patient and they turn the device on in three to four weeks. I read what you wrote and just thought I would give you a little history on what I am dealing with and I can sympathize with you. It's horrible and you actually find out who your true friends are when something like this happens. Stay postive and up to date with information, I do it everyday to just keep gaining knoweledge of the hearing loss world. ____________ _________ _________ __ From: cherokee0897 <cherokee0897> groups (DOT) com Sent: Mon, January 25, 2010 2:40:41 PM Subject: Newbie  Hello, my name is a my Dr, ran the annual hearing test the this past Thurs. (Jan 21) and finally realized that it is time to run the tests to see if the Cochlear Implant will work for me, the first test is being done on Feb 19, 10. I have been totally deaf in my right ear for a little over 4 years now and the left year was slowly going until the past few months. Back in Aug.09 they ran a special test and found out that the 8th Cranial nerve is damaged. So now he has decided to try the Cochlear Implant. I have been looking it up online, but haven't found the answers to my questions & I was hoping that maybe someone here could help me. My questions are. Exactly how many tests are there before they find out if the Cochlear Implant will work for me? How long will I be in the hosp, if it is inpatient surgery? And how soon after the surgery will the external device be put in place? Loosing my hearing has been more frustrating on me then my husband and kids. I have actually cried myself to sleep a many nights because of it wondering if my doctor was ever going to give me any answers as to why I was losing my hearing and he never did. It is about time he is finally taking the next step into doing something for me so that I may be able to hear again. I am just hoping and praying that the test(s) he is running will show that the Cochlear Implant will work. If someone can answer these for me, I would greatly appreciate it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2010 Report Share Posted January 25, 2010 , Thank you as well. I am just lucky to get know know everyone in here as well as HLAA. I am looking forward to the convention in June so I can finally meet all the people that I have been talking to for almost a year. ________________________________ From: Kinsella <jmkinsella55@...> Sent: Mon, January 25, 2010 3:55:20 PM Subject: Re: Newbie  - wonderful sharing here. I'm glad you are here, and have also found the chat room too!  ____________ _________ _________ __ From: Ortis <qglphx1 (DOT) com> groups (DOT) com Sent: Mon, January 25, 2010 4:40:32 PM Subject: Re: Newbie  a, I can relate. Sounds probably crazy to hear this from a 40 year old man but the first two months I would hide up at the house in Northern Az., sit on the deck that had blinds covering where people couldn't see me. They were always use to me being very outgoing and would talk to anyone. I would sit in the chair, watch my mother talk to her friends and I would start to tear like crazy. I worked off the phone all my life and logistics is the only thing I know. I would sit there on some days and just think to myself, how about I pop some valium and drink a 12 pack of beer and I wouldn't have to worry about it anymore. I finally did some research as well as my brother introducing me to a buddy of his from Canada. I found out that he is a moderator on HLAA. He invited me to come into there weekly chat on Monday. I got in there and met the most wonderful people, explained my situation and what was wrong with me. Alot of them were quite shocked at first since all of this hit me overnight. On April the 28th of 09 I woke up and couldn't hear a thing in any one of my ears, a month later they diagnosed me with Mineares Disease, a month after that I found out I had A.I.E.D. and a month after that I was told I have an arachnoid cyst in the lower part of my brain. So besides have Sudden Bilateral Sensenoreal Hearing Loss I have the other things to deal with. I am wearing Oticon Epoq XW Powers that work wonders, I can talk on the phone by using a streamer that I wear around my neck, it turns the hearing aids into a bluetooth, I have a TV Connect box that I use to watch TV as well as a Phone Connect box that I can use on the landline. My hearing isn't getting any better so I am not getting my first Cochlear Implant on Feb. the 9th and am looking forward to it. I am going to get the other one in about six months after this one is done. I have been getting alot of email from people with tips on the surgery and what to expect from here. It has been very helpful. If you want to chat with other people in a live chat room you can go where I go every Monday at 8:00PM EST, the site is http://myhearingloss.org You click on the orange chat button then make a name for yourself and click chat. When you get in there you want to double click the CI Chat room. You will see people in there that have the implants, are just wearing hearing aids, are new to hearing loss like myself when I got in there. They are wonderful people and it is my Monday ritual to get in there and get up to date on everyone and see how there doing as well as try to help people thru new hearing loss such as they did me when I lost mine. I have been telling alot of people about the group and they didn't even know about it. I know from asking that the surgery is out patient and they turn the device on in three to four weeks. I read what you wrote and just thought I would give you a little history on what I am dealing with and I can sympathize with you. It's horrible and you actually find out who your true friends are when something like this happens. Stay postive and up to date with information, I do it everyday to just keep gaining knoweledge of the hearing loss world. ____________ _________ _________ __ From: cherokee0897 <cherokee0897> groups (DOT) com Sent: Mon, January 25, 2010 2:40:41 PM Subject: Newbie  Hello, my name is a my Dr, ran the annual hearing test the this past Thurs. (Jan 21) and finally realized that it is time to run the tests to see if the Cochlear Implant will work for me, the first test is being done on Feb 19, 10. I have been totally deaf in my right ear for a little over 4 years now and the left year was slowly going until the past few months. Back in Aug.09 they ran a special test and found out that the 8th Cranial nerve is damaged. So now he has decided to try the Cochlear Implant. I have been looking it up online, but haven't found the answers to my questions & I was hoping that maybe someone here could help me. My questions are. Exactly how many tests are there before they find out if the Cochlear Implant will work for me? How long will I be in the hosp, if it is inpatient surgery? And how soon after the surgery will the external device be put in place? Loosing my hearing has been more frustrating on me then my husband and kids. I have actually cried myself to sleep a many nights because of it wondering if my doctor was ever going to give me any answers as to why I was losing my hearing and he never did. It is about time he is finally taking the next step into doing something for me so that I may be able to hear again. I am just hoping and praying that the test(s) he is running will show that the Cochlear Implant will work. If someone can answer these for me, I would greatly appreciate it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2010 Report Share Posted January 25, 2010 Welcome a! I'm Debbie and you are right behind me in the tests. I ahd my MRI/CT scan earlier this afternoon and Surgeon visit is Friday. This group is most helpful and can answer any of your questions you might ahve. never hesitate to ask. Have a great day! Debbie Cole -_ __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2010 Report Share Posted January 26, 2010 Where will this convention be held at? I'm not a member of HLAA yet, although I've been hearing impaired all my life...  ________________________________ From: Ortis <qglphx1@...> Sent: Mon, January 25, 2010 4:58:56 PM Subject: Re: Newbie  , Thank you as well. I am just lucky to get know know everyone in here as well as HLAA. I am looking forward to the convention in June so I can finally meet all the people that I have been talking to for almost a year. ____________ _________ _________ __ From: Kinsella <jmkinsella55> groups (DOT) com Sent: Mon, January 25, 2010 3:55:20 PM Subject: Re: Newbie  - wonderful sharing here. I'm glad you are here, and have also found the chat room too!  ____________ _________ _________ __ From: Ortis <qglphx1 (DOT) com> groups (DOT) com Sent: Mon, January 25, 2010 4:40:32 PM Subject: Re: Newbie  a, I can relate. Sounds probably crazy to hear this from a 40 year old man but the first two months I would hide up at the house in Northern Az., sit on the deck that had blinds covering where people couldn't see me. They were always use to me being very outgoing and would talk to anyone. I would sit in the chair, watch my mother talk to her friends and I would start to tear like crazy. I worked off the phone all my life and logistics is the only thing I know. I would sit there on some days and just think to myself, how about I pop some valium and drink a 12 pack of beer and I wouldn't have to worry about it anymore. I finally did some research as well as my brother introducing me to a buddy of his from Canada. I found out that he is a moderator on HLAA. He invited me to come into there weekly chat on Monday. I got in there and met the most wonderful people, explained my situation and what was wrong with me. Alot of them were quite shocked at first since all of this hit me overnight. On April the 28th of 09 I woke up and couldn't hear a thing in any one of my ears, a month later they diagnosed me with Mineares Disease, a month after that I found out I had A.I.E.D. and a month after that I was told I have an arachnoid cyst in the lower part of my brain. So besides have Sudden Bilateral Sensenoreal Hearing Loss I have the other things to deal with. I am wearing Oticon Epoq XW Powers that work wonders, I can talk on the phone by using a streamer that I wear around my neck, it turns the hearing aids into a bluetooth, I have a TV Connect box that I use to watch TV as well as a Phone Connect box that I can use on the landline. My hearing isn't getting any better so I am not getting my first Cochlear Implant on Feb. the 9th and am looking forward to it. I am going to get the other one in about six months after this one is done. I have been getting alot of email from people with tips on the surgery and what to expect from here. It has been very helpful. If you want to chat with other people in a live chat room you can go where I go every Monday at 8:00PM EST, the site is http://myhearingloss.org You click on the orange chat button then make a name for yourself and click chat. When you get in there you want to double click the CI Chat room. You will see people in there that have the implants, are just wearing hearing aids, are new to hearing loss like myself when I got in there. They are wonderful people and it is my Monday ritual to get in there and get up to date on everyone and see how there doing as well as try to help people thru new hearing loss such as they did me when I lost mine. I have been telling alot of people about the group and they didn't even know about it. I know from asking that the surgery is out patient and they turn the device on in three to four weeks. I read what you wrote and just thought I would give you a little history on what I am dealing with and I can sympathize with you. It's horrible and you actually find out who your true friends are when something like this happens. Stay postive and up to date with information, I do it everyday to just keep gaining knoweledge of the hearing loss world. ____________ _________ _________ __ From: cherokee0897 <cherokee0897> groups (DOT) com Sent: Mon, January 25, 2010 2:40:41 PM Subject: Newbie  Hello, my name is a my Dr, ran the annual hearing test the this past Thurs. (Jan 21) and finally realized that it is time to run the tests to see if the Cochlear Implant will work for me, the first test is being done on Feb 19, 10. I have been totally deaf in my right ear for a little over 4 years now and the left year was slowly going until the past few months. Back in Aug.09 they ran a special test and found out that the 8th Cranial nerve is damaged. So now he has decided to try the Cochlear Implant. I have been looking it up online, but haven't found the answers to my questions & I was hoping that maybe someone here could help me. My questions are. Exactly how many tests are there before they find out if the Cochlear Implant will work for me? How long will I be in the hosp, if it is inpatient surgery? And how soon after the surgery will the external device be put in place? Loosing my hearing has been more frustrating on me then my husband and kids. I have actually cried myself to sleep a many nights because of it wondering if my doctor was ever going to give me any answers as to why I was losing my hearing and he never did. It is about time he is finally taking the next step into doing something for me so that I may be able to hear again. I am just hoping and praying that the test(s) he is running will show that the Cochlear Implant will work. If someone can answer these for me, I would greatly appreciate it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2010 Report Share Posted January 26, 2010 , I am going to the HLAA Conv. in Milwaukee, Wi. this year. It's June 17th to I think the 20th. ________________________________ From: Kinsella <jmkinsella55@...> Sent: Tue, January 26, 2010 8:03:42 AM Subject: Re: Newbie  Where will this convention be held at? I'm not a member of HLAA yet, although I've been hearing impaired all my life...  ____________ _________ _________ __ From: Ortis <qglphx1 (DOT) com> groups (DOT) com Sent: Mon, January 25, 2010 4:58:56 PM Subject: Re: Newbie  , Thank you as well. I am just lucky to get know know everyone in here as well as HLAA. I am looking forward to the convention in June so I can finally meet all the people that I have been talking to for almost a year. ____________ _________ _________ __ From: Kinsella <jmkinsella55> groups (DOT) com Sent: Mon, January 25, 2010 3:55:20 PM Subject: Re: Newbie  - wonderful sharing here. I'm glad you are here, and have also found the chat room too!  ____________ _________ _________ __ From: Ortis <qglphx1 (DOT) com> groups (DOT) com Sent: Mon, January 25, 2010 4:40:32 PM Subject: Re: Newbie  a, I can relate. Sounds probably crazy to hear this from a 40 year old man but the first two months I would hide up at the house in Northern Az., sit on the deck that had blinds covering where people couldn't see me. They were always use to me being very outgoing and would talk to anyone. I would sit in the chair, watch my mother talk to her friends and I would start to tear like crazy. I worked off the phone all my life and logistics is the only thing I know. I would sit there on some days and just think to myself, how about I pop some valium and drink a 12 pack of beer and I wouldn't have to worry about it anymore. I finally did some research as well as my brother introducing me to a buddy of his from Canada. I found out that he is a moderator on HLAA. He invited me to come into there weekly chat on Monday. I got in there and met the most wonderful people, explained my situation and what was wrong with me. Alot of them were quite shocked at first since all of this hit me overnight. On April the 28th of 09 I woke up and couldn't hear a thing in any one of my ears, a month later they diagnosed me with Mineares Disease, a month after that I found out I had A.I.E.D. and a month after that I was told I have an arachnoid cyst in the lower part of my brain. So besides have Sudden Bilateral Sensenoreal Hearing Loss I have the other things to deal with. I am wearing Oticon Epoq XW Powers that work wonders, I can talk on the phone by using a streamer that I wear around my neck, it turns the hearing aids into a bluetooth, I have a TV Connect box that I use to watch TV as well as a Phone Connect box that I can use on the landline. My hearing isn't getting any better so I am not getting my first Cochlear Implant on Feb. the 9th and am looking forward to it. I am going to get the other one in about six months after this one is done. I have been getting alot of email from people with tips on the surgery and what to expect from here. It has been very helpful. If you want to chat with other people in a live chat room you can go where I go every Monday at 8:00PM EST, the site is http://myhearingloss.org You click on the orange chat button then make a name for yourself and click chat. When you get in there you want to double click the CI Chat room. You will see people in there that have the implants, are just wearing hearing aids, are new to hearing loss like myself when I got in there. They are wonderful people and it is my Monday ritual to get in there and get up to date on everyone and see how there doing as well as try to help people thru new hearing loss such as they did me when I lost mine. I have been telling alot of people about the group and they didn't even know about it. I know from asking that the surgery is out patient and they turn the device on in three to four weeks. I read what you wrote and just thought I would give you a little history on what I am dealing with and I can sympathize with you.. It's horrible and you actually find out who your true friends are when something like this happens. Stay postive and up to date with information, I do it everyday to just keep gaining knoweledge of the hearing loss world. ____________ _________ _________ __ From: cherokee0897 <cherokee0897> groups (DOT) com Sent: Mon, January 25, 2010 2:40:41 PM Subject: Newbie  Hello, my name is a my Dr, ran the annual hearing test the this past Thurs. (Jan 21) and finally realized that it is time to run the tests to see if the Cochlear Implant will work for me, the first test is being done on Feb 19, 10. I have been totally deaf in my right ear for a little over 4 years now and the left year was slowly going until the past few months. Back in Aug.09 they ran a special test and found out that the 8th Cranial nerve is damaged. So now he has decided to try the Cochlear Implant. I have been looking it up online, but haven't found the answers to my questions & I was hoping that maybe someone here could help me. My questions are. Exactly how many tests are there before they find out if the Cochlear Implant will work for me? How long will I be in the hosp, if it is inpatient surgery? And how soon after the surgery will the external device be put in place? Loosing my hearing has been more frustrating on me then my husband and kids. I have actually cried myself to sleep a many nights because of it wondering if my doctor was ever going to give me any answers as to why I was losing my hearing and he never did. It is about time he is finally taking the next step into doing something for me so that I may be able to hear again. I am just hoping and praying that the test(s) he is running will show that the Cochlear Implant will work. If someone can answer these for me, I would greatly appreciate it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2010 Report Share Posted January 26, 2010 a, I understand your feelings, all of which I have experienced myself. When I was being evaluated for possible implants (at the NYU Medical Center in NYC), the testing and consultations stretched over 2-3 months. The hospital stay was overnight, with a few days of discomfort after I got out but nothing major. I was activated about a month later. Everyone is different, and I agree that you have to go by your own research analysis by audiologist and surgeon. For me, the results have been wonderful. I got very sick of people telling me that it is impossible to predict the outcome, but I'm afraid it's true. I also found that this group is the best source of information and support. Best of luck. > > - wonderful sharing here. I'm glad you are here, and have also found the chat room too! >  > > > > > ________________________________ > From: Ortis <qglphx1@...> > > Sent: Mon, January 25, 2010 4:40:32 PM > Subject: Re: Newbie > >  > a, > > I can relate. Sounds probably crazy to hear this from a 40 year old man but the first two months I would hide up at the house in Northern Az., sit on the deck that had blinds covering where people couldn't see me. They were always use to me being very outgoing and would talk to anyone. I would sit in the chair, watch my mother talk to her friends and I would start to tear like crazy. I worked off the phone all my life and logistics is the only thing I know. I would sit there on some days and just think to myself, how about I pop some valium and drink a 12 pack of beer and I wouldn't have to worry about it anymore. I finally did some research as well as my brother introducing me to a buddy of his from Canada. I found out that he is a moderator on HLAA. He invited me to come into there weekly chat on Monday. I got in there and met the most wonderful people, explained my situation and what was wrong with me. Alot of them were quite > shocked at first since all of this hit me overnight. On April the 28th of 09 I woke up and couldn't hear a thing in any one of my ears, a month later they diagnosed me with Mineares Disease, a month after that I found out I had A.I.E.D. and a month after that I was told I have an arachnoid cyst in the lower part of my brain. So besides have Sudden Bilateral Sensenoreal Hearing Loss I have the other things to deal with. I am wearing Oticon Epoq XW Powers that work wonders, I can talk on the phone by using a streamer that I wear around my neck, it turns the hearing aids into a bluetooth, I have a TV Connect box that I use to watch TV as well as a Phone Connect box that I can use on the landline. My hearing isn't getting any better so I am not getting my first Cochlear Implant on Feb. the 9th and am looking forward to it. I am going to get the other one in about six months after this one is done. I have been getting alot of email from people > with tips on the surgery and what to expect from here. It has been very helpful. If you want to chat with other people in a live chat room you can go where I go every Monday at 8:00PM EST, the site is http://myhearingloss.org You click on the orange chat button then make a name for yourself and click chat. When you get in there you want to double click the CI Chat room. You will see people in there that have the implants, are just wearing hearing aids, are new to hearing loss like myself when I got in there. They are wonderful people and it is my Monday ritual to get in there and get up to date on everyone and see how there doing as well as try to help people thru new hearing loss such as they did me when I lost mine. I have been telling alot of people about the group and they didn't even know about it. I know from asking that the surgery is out patient and they turn the device on in three to four weeks. I read what you wrote and just > thought I would give you a little history on what I am dealing with and I can sympathize with you. It's horrible and you actually find out who your true friends are when something like this happens. > > Stay postive and up to date with information, I do it everyday to just keep gaining knoweledge of the hearing loss world. > > > > ____________ _________ _________ __ > From: cherokee0897 <cherokee0897> > groups (DOT) com > Sent: Mon, January 25, 2010 2:40:41 PM > Subject: Newbie > >  > Hello, my name is a my Dr, ran the annual hearing test the this past Thurs. (Jan 21) and finally realized that it is time to run the tests to see if the Cochlear Implant will work for me, the first test is being done on Feb 19, 10. I have been totally deaf in my right ear for a little over 4 years now and the left year was slowly going until the past few months. Back in Aug.09 they ran a special test and found out that the 8th Cranial nerve is damaged. So now he has decided to try the Cochlear Implant. > I have been looking it up online, but haven't found the answers to my questions & I was hoping that maybe someone here could help me. My questions are. Exactly how many tests are there before they find out if the Cochlear Implant will work for me? How long will I be in the hosp, if it is inpatient surgery? And how soon after the surgery will the external device be put in place? > Loosing my hearing has been more frustrating on me then my husband and kids. I have actually cried myself to sleep a many nights because of it wondering if my doctor was ever going to give me any answers as to why I was losing my hearing and he never did. It is about time he is finally taking the next step into doing something for me so that I may be able to hear again. I am just hoping and praying that the test(s) he is running will show that the Cochlear Implant will work. > If someone can answer these for me, I would greatly appreciate it. > > Quote Link to comment Share on other sites More sharing options...
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