Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Hi Pam, I also have problems with EBV and have for over 20 years. http://www.netdoctor.co.uk/medicines/100001328.html There is a drug called Imunivor that helps me with this. You are really lucky of you are still able to exercise. What you could consider is cutting this right down and giving your body a chance to recover. I speak as a survivor of 2 graded exercise programs that made me much worse. Kindest regards, Annette ___________________________________________________________ Answers - Got a question? Someone out there knows the answer. Try it now. http://uk.answers./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2007 Report Share Posted September 27, 2007 1. A multitude of different kinds of Antioxidants to mop up the many kinds of free radicals which are being produced in your body and weakening your immune system. You will be amazed at the results. 2. Transfer Factor for specific viral infections. Boosts NK cells. An excellent treatment. 3. GHS by ProHealth 4. Stay away from high EMR environments: i.e. Cell phones, WiFi, WiMax, computers! 5. Chelation therapy if you have heavy metal (e.g. lead, aluminum, mercury) toxicity. 6. Acupuncture 7. Chinese Medicine 8. Qi Gong > > Hello, > > I was recently confirmed by blood test as positive for EBV as a > recurrence. I would guess I've dealt with EBV/CFS for about 4 years, > not having any idea what I was dealing with. Although I'm active, > professional, and a single parent who exercises regularly and eats > well, I'm still dealing with this horrid fatigue plus other classic > symptoms. It is hell! > > I am taking Neem, and drinking Mangosteen. > > What other alternative treatments are recommended? > > Pam > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2009 Report Share Posted May 22, 2009 It didn't do anything for me, kind of gave me a brain buzz, didn't sleep better and not less pain. Deb Halvorson From: lisacole641 <lisacole641@...> Sent: Friday, May 22, 2009 3:38:05 PMSubject: Recently diagnosedHello grp! I have been recently diagnosed with FM. I have so many questions, but my first one is does anything help with the pain? My Dr started me on gabapentin today. Does anyone have any experience with this drug?------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2009 Report Share Posted May 22, 2009 Hi there, Gababentin was a huge help for me. I started taking it to help with sleep. In the beginning I had alot of dizziness and that dizziness did decrease over time but I would still be dizzy in the mornings. I took it for about five years. I had to stop because I had so much memory loss with it. I also take Topomax for migraines and that drug causes lots of memory issues. So I had to decide which one to take off the menu. It was the Gabapentin. After a very, very difficult detox I began to REALLY realize how much it had been helping. I don't take any pain meds now. I bare the pain and use only Homeopathic and herbal remedies. I don't want to get into the cycle of pain meds. hugs, Sue From: Debbie Halvorson <djh_50fab@...>Subject: Re: Recently diagnosed Date: Friday, May 22, 2009, 7:01 PM It didn't do anything for me, kind of gave me a brain buzz, didn't sleep better and not less pain. Deb Halvorson From: lisacole641 <lisacole641@...> Sent: Friday, May 22, 2009 3:38:05 PMSubject: Recently diagnosedHello grp! I have been recently diagnosed with FM. I have so many questions, but my first one is does anything help with the pain? My Dr started me on gabapentin today. Does anyone have any experience with this drug?------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2009 Report Share Posted August 27, 2009 Generally, when people ask for surgeons, go to the websites and click on the thoracic surgical director or minimally invasive surgical director. There's your surgeon, usually. In Texas, I'd start w/ MD branch and find the top surgeon. Many sugeons are extremely fortunate if they trained there. Almost always we end up at the closest MAJOR teaching facility and with the top surgical director. They use us to train others, and usually they do the surgery themselves. They aren't hidden away. Sandy > > I have had dysphagia for 30 years, have seen numerous doctors and done numerous tests. I have FINALLY been diagnosed with classic achalasia in conjunction with hypertensive LES. I live in Texas but went to UNC Chapel Hill to see Dr. Shaheen. He has referred me to a GI by the name of Tarnasky. I have to have a Heller Myotomy. I am trying to find a surgeon in Texas if possible. I would appreciate it if anyone knows the names of any surgeons with a vast experience in this surgery located in Texas. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 My hubby went to usf health/tampa general group of Dr. Ross and Rosemurgy. Number is 813-259-0929/813-844-4006. They say they have 'pioneered' the laproscopic way of the myotomy surgery and do partial wraps. They have done 521 of them I think they said. Consultation first obviously. They are good surgeons. Good luck! Steph achalasia From: floridagators@... Date: Tue, 6 Apr 2010 18:20:09 -0700 Subject: Recently diagnosed I was recently diagnosed with Achalasia. I do not see to have severe symptoms yet, I can still eat and swallow normally half of the time. The other half there is some definite slowness at the LES area. I have regurgitated 3 times so far and wake up choking almost every night... I was wondering if anyone has the name of a good surgeon in the South Florida area. If not, anyone good in the state of Florida? Thanks so much! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2010 Report Share Posted April 23, 2010 Hi, my name is and my son was diagnosed when he was 11 with Achalasia. He had surgery that same year, by Dr. Rosemurgy> He had a Heller myotomy with fundiplication laproscopically. that was 5 years ago> I highly recommend him> We seem him as needed> If you have any question or concerns please feel free to email me @ devincentisg@... D > > I was recently diagnosed with Achalasia. I do not see to have severe symptoms yet, I can still eat and swallow normally half of the time. The other half there is some definite slowness at the LES area. I have regurgitated 3 times so far and wake up choking almost every night... > > I was wondering if anyone has the name of a good surgeon in the South Florida area. If not, anyone good in the state of Florida? > > Thanks so much! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2010 Report Share Posted April 23, 2010 WOW, I hate being 38 years old with Achalasia I can't imagine what it would be like to only be 11 and have it! It was pretty scary not knowing what was wrong with me when symptoms first started ... your kid sounds quite brave! Has he had any reoccurrence? Hopefully he is one of the lucky ones who have excellent results (I wasn't) > > > > I was recently diagnosed with Achalasia. I do not see to have severe symptoms yet, I can still eat and swallow normally half of the time. The other half there is some definite slowness at the LES area. I have regurgitated 3 times so far and wake up choking almost every night... > > > > I was wondering if anyone has the name of a good surgeon in the South Florida area. If not, anyone good in the state of Florida? > > > > Thanks so much! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Yes, he has had some recurrences< such as food getting stuck or severe chest spasms. However, he has been on prevacid 30mg 2x a day since the surgery and we notice these problems occur when he doesnt take the prevacid everyday twice a day. Of course, he's a kid, but I think he finally is seeing the differnce between compliance and non-compliance! > > > > > > I was recently diagnosed with Achalasia. I do not see to have severe symptoms yet, I can still eat and swallow normally half of the time. The other half there is some definite slowness at the LES area. I have regurgitated 3 times so far and wake up choking almost every night... > > > > > > I was wondering if anyone has the name of a good surgeon in the South Florida area. If not, anyone good in the state of Florida? > > > > > > Thanks so much! > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2011 Report Share Posted January 30, 2011 I have been recently diagnosed with ear canal cholesteatoma, after one primary Doc, 3 ENT's and an ear specialist. It has been a long haul. I have had this earache now for 9 months. The last visit to my doctor was very painful and since then, as of the last 2 weeks, the pain in my right ear has gotten worse, the fullness and pressure I feel near my right ear going down into my jaw area has increased by double, at least, the ringing in my ear has went from now and then to constantly in just the last week... the dizziness (vertigo) has also gotten worse in severity and longer in duration. They have scheduled surgery for Feb. 24th, I have already had 2 ct scans, and some other stuff done in prep for the operation. I am nervous to say the least about what to expect, and now that it seems to be progressing, I am worried what the real damage is going to be once they get in there. This ringng is really starting to get to me, as of today. It is louder and more bothersome than ever. And the pain is worse too. I am allergic to many pain meds so all I can take is something that I only take at night because it is so strong. During the day I have just been dealing with it but today it hurts worse than ever. Also, I am 45 years old and worried that my recovery time is going to be longer because of my age. I don't have much help and I have a seven year old. This is debillitating sometimes, putting me in bed or on the couch whether I like it or not. Any women out there my age, or anybody out there my age, that is going or has went through this? Any advice would be appreciated. Quote Link to comment Share on other sites More sharing options...
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