Re: Mom of daughter with 'never-before-seen' form of dwarfism

[Guest guest]

is on Facebook and has been a member of POLP since McKenna was a baby....

From memory, her original diagnosis was SEMD or one of the SED group, but now

they don't know..

Regardless, she's beautiful )

Caela

>

> Now I tend to doubt it, but me not being a doctor, hey, maybe her daughter,

McKenna, really does have a new form of dwarfism? You get to see her in more

than one pic too, so look closely. When I first saw her head shot, I thought,

Achondroplasia. Then, when I scrolled down towards the bottom and saw her full

body shot, I felt differently, way differently then. I am now thinking, Morquio,

Kniest, and maybe even, SED??? However, I am trusting you are better than me at

this, especially if you're a parent of which I am not. Try and figure out what

she has, but more importantly invite her mom to the parents group, serious:).

>

> http://wheatleyfamilylovesjesus.blogspot.com/2011/01/i-cried-today.html

>

> http://www.facebook.com/#!/home.php?sk=group_181862048501882 & ap=1

>

> ~grady

>