Guest guest Posted April 21, 2004 Report Share Posted April 21, 2004 Rene... I had surgery Feb 25th for my T70, L52 curves. Fusion about T 4 to L3. E mail me directly and Ill give you any info you want. My email address is azjan@... Jan upcoming surgery Hi all. I am a 31 yr old female with a double major. Thoracic at 63degrees and lumbar at 62 degrees. I will be having surgery within the next two months. I am not sure of the exact date yet as they are still trying to coordinate everything. the fusion will be from T5 to L5 (for now). I was wondering how some of you did with pain after then surgery both at the hospital and later at home. What types of things are the hardest to deal with. and any other advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Hi, Rene - I had surgery on February 11th and February 16th of this year - curve was approximately 60 degrees. I was fused from T9 to S1. If there is anything at all that I can help you with, please let me know - if you want you can email me directly at kmartin4802@.... I will be going back to work on May 3rd (4 hours only) but check my emails constantly - good luck! Kathleen upcoming surgery Hi all. I am a 31 yr old female with a double major. Thoracic at 63degrees and lumbar at 62 degrees. I will be having surgery within the next two months. I am not sure of the exact date yet as they are still trying to coordinate everything. the fusion will be from T5 to L5 (for now). I was wondering how some of you did with pain after then surgery both at the hospital and later at home. What types of things are the hardest to deal with. and any other advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Hi , I can't believe Tyler is 3 1/2! It has been a long time since our get together in Atlanta, GA. You guys are in our prayers! It is scary anytime our children have to have surgery. (mom to Bridget 12) in SC upcoming surgery Hi everyone - My son Tyler is about to have open heart surgery at the Cleveland Clinic June 28th. If you can please pray for him on this day and the post-op week afterward would be great. He had a hard time his first surgery but is better going in this time. I'll hopefully send another reminder. I have our story and picture on our down syndrome website at www.dsaj.org under The Whites if you want to take a look. Thanks for any prayers. For those who have contacted me before if you live there, please contact me again. Thanks in FL mom to Tyler DS 3 1/2yr and Mike 8 yr Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Hi , I can't believe Tyler is 3 1/2! It has been a long time since our get together in Atlanta, GA. You guys are in our prayers! It is scary anytime our children have to have surgery. (mom to Bridget 12) in SC upcoming surgery Hi everyone - My son Tyler is about to have open heart surgery at the Cleveland Clinic June 28th. If you can please pray for him on this day and the post-op week afterward would be great. He had a hard time his first surgery but is better going in this time. I'll hopefully send another reminder. I have our story and picture on our down syndrome website at www.dsaj.org under The Whites if you want to take a look. Thanks for any prayers. For those who have contacted me before if you live there, please contact me again. Thanks in FL mom to Tyler DS 3 1/2yr and Mike 8 yr Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 Welcome, Janet! I know I speak for other members in saying we're glad to have you as a " Feisty " participant. Your post implies that you have flatback syndrome or fixed sagittal imbalance -- is that correct, or will you be undergoing revision for some other condition? (I myself had a progressive and ultimately very severe flatback deformity, now successfully corrected. Most of our members likewise have or had flatback syndrome, but some have undergone revision for failed fusion, pseudarthrosis, or evolving instability above or below the previous fusion.) If you know, it would be interesting to learn more details of your upcoming surgery, such as whether you will need both anterior and posterior incisions or posterior only and what kind of osteotomy your surgeon anticipates using. A BIG issue at this group is locating and choosing a revision surgeon. We have started a listing of some surgeons we have personally consulted -- see " Database, " to the left of any page at our website -- to which you may want to add Dr. Hey. Since the pool of fully qualified revision subspecialists is still relatively small, we are always interested in learning about new orthopedic or neurological surgeons with the requisite spinal deformity training and revision experience. Hence, anything more you can tell us about Dr. Hey should be very helpful to our membership, especially those in your state or region. As you may know, we also maintain a calendar of surgical and hospitalization dates, doctor's appointments -- any important events members may care to share. (This is usually administered by Loriann, who is recovering from major hip surgery at the moment.)You can access the calendar and input any information of your own by clicking on " Calendar " at the Feisty website. You may also be inerested in some of our other resources, such as those in the " Files " section. Again, a very warm welcome! I know you will find many kindred spirits here (including some nurses like yourself). Best, -- In , " cu76rn " <chaquita53@h...> wrote: > Hi all! I am new to this group. I had Harrington placed and spinal > fusion (T4-L1) in 1976. I feel lucky that I am just now facing surgery. > Also thankful that I only have to have fusion extension to L5 as > opposed to full revision. My surgery is scheduled for October 12th in > Raleigh, NC with Dr. Lloyd Hey. Getting nervous as surgery date gets > closer. But, on " bad back days " will be glad when it's done. I am a > nurse in NICU and live in Greenwood, SC. Am very grateful for groups > like this to vent and possibly help others. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 My surgery on October 12th is to correct curve below my original fusion which has caused mild flatback. I still stand rather straight so the is why I termed it " mild " . Dr. Hey will extend my fusion to L5 (present fusion is T3-L1). He will also place some kind of spacers between a couple of vertebra where the disc is very damaged. Will be posterior only for which I am thankful. I have some degeneration lumbar as well cervical. Will see how much this surgery helps my neck issues. Dr. Hey hopes that my neck will be helped some after the surgery for flatback which should help center my head rather than it protruding forward. Does this make sense? Myy scoliosis was discovered at age 13 or 14. Original curve 42 or 43 degrees--thoracic S curve. I saw my ortho surgeon regularly. Unfortunately my curve kept curving after I quit growing. So--at age 22 when my curve was 60ish I had surgery. Fusion and Harrington rod. My original surgery was in Greenville,SC with Dr. Stelling- a wonderful surgeon who has passed away now. My first problems were muscle spasms in left shoulder. As I got older, low back pain was problem. (I am now 51 yrs young.) About 5 years ago, I began having bouts of left leg pain starting in hip and going all the way to my foot. Sciatis nerve I guess. This is off and on--worse when I have worked alot. Low back pain of varying degrees always now. These days when I am off I try to rest as much as possible. I am wondering if pj's or nightgowns are easier in hospital after surgery. Wondering if it is easier to put on pj pants or just pull a gown on. Any ideas from those who have gone through this would be appreciated. Thanks for all the wonderful support and advice from this group. Wishing you all pain free days--Janet in SC > > Hi all! I am new to this group. I had Harrington placed and spinal > > fusion (T4-L1) in 1976. I feel lucky that I am just now facing > surgery. > > Also thankful that I only have to have fusion extension to L5 as > > opposed to full revision. My surgery is scheduled for October 12th > in > > Raleigh, NC with Dr. Lloyd Hey. Getting nervous as surgery date gets > > closer. But, on " bad back days " will be glad when it's done. I am a > > nurse in NICU and live in Greenwood, SC. Am very grateful for groups > > like this to vent and possibly help others. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 Thanks for sharing your story. I do not recall hearing from anyone else who had a Harrington rod installed, as I did, in adulthood, following a previous childhood fusion. I was in my late thirties when I got my Harrington rod -- and the rest, as they say, is history. I would think you could wear whatever you find is most comfortable after the surgery. By the time I was cognizant of what I was wearing after each operation, I always wore underwear regardless of what else I had on. So I suppose I always had a "pants" issue I actually never stopped to consider until now whether some people may prefer to wear hospital gowns with no underwear. I generally prefer to wear my own PJs -- actually lightweight sweats and T shirts, sometimes with a nice robe over them -- in the hospital. I especially prefer to be more "dressed" for PT. As someone once commented here, I feel a little more dignified or self-respecting or something like that -- when trying to communicate with medical personnel while constrained by the "patient" role -- if I am wearing my own "civilian" garb from home. But of course this means more laundry for me or my family. Also, I think some of the staff at the hospital thought I was odd for wearing my own clothes so much of the time. I guess I am just the antsy-rebellious type when it comes to such role-expectations as the obligatory "hospital uniform." I had no problems with clothing until I was ultimately fused (in a series of anterior and posterior revision procedures) to the pelvis (having previously been fused to around L-4). After the fusion to S-1, I had trouble with socks, and especially with shoes that needed tying, for at least a month or two. (Even so, I think it is always wise to have some comfortable gym shoes with you.) I also stopped wearing skirts and dresses for good! -- until about two years post-op, when I discovered, to my surprise, that I was once again capable of putting on pantyhose unassisted. You may not have any such problems, though, with a fusion terminating at L-5. One thing you might want to consider is whether you will have an orthotic device post-op. My first revision surgeon preferred not to prescribe any kind of brace or support, but my second revision surgeon wanted me to wear a TLSO for three months or so. This kind of custom-made jacket is just thick enough that you may need to allow for extra bulk when you select your post-op "wardrobe." For instance, you will need to make sure that any waistbands are sufficiently elasticized to stretch over the brace. Also, it is important not to wear a TLSO without a cotton tank top underneath to protect your skin -- so if you know you will be getting a TLSO, you will want to bring at least two or three of these tops with you to the hospital.. Best, cu76rn <chaquita53@...> wrote: My surgery on October 12th is to correct curve below my original fusion which has caused mild flatback. I still stand rather straight so the is why I termed it "mild". Dr. Hey will extend my fusion to L5 (present fusion is T3-L1). He will also place some kind of spacers between a couple of vertebra where the disc is very damaged. Will be posterior only for which I am thankful. I have some degeneration lumbar as well cervical. Will see how much this surgery helps my neck issues. Dr. Hey hopes that my neck will be helped some after the surgery for flatback which should help center my head rather than it protruding forward. Does this make sense?Myy scoliosis was discovered at age 13 or 14. Original curve 42 or 43 degrees--thoracic S curve. I saw my ortho surgeon regularly. Unfortunately my curve kept curving after I quit growing. So--at age 22 when my curve was 60ish I had surgery. Fusion and Harrington rod. My original surgery was in Greenville,SC with Dr. Stelling- a wonderful surgeon who has passed away now. My first problems were muscle spasms in left shoulder. As I got older, low back pain was problem. (I am now 51 yrs young.) About 5 years ago, I began having bouts of left leg pain starting in hip and going all the way to my foot. Sciatis nerve I guess. This is off and on--worse when I have worked alot. Low back pain of varying degrees always now.These days when I am off I try to rest as much as possible.I am wondering if pj's or nightgowns are easier in hospital after surgery. Wondering if it is easier to put on pj pants or just pull a gown on. Any ideas from those who have gone through this would be appreciated.Thanks for all the wonderful support and advice from this group.Wishing you all pain free days--Janet in SC> > Hi all! I am new to this group. I had Harrington placed and spinal > > fusion (T4-L1) in 1976. I feel lucky that I am just now facing > surgery. > > Also thankful that I only have to have fusion extension to L5 as > > opposed to full revision. My surgery is scheduled for October 12th > in > > Raleigh, NC with Dr. Lloyd Hey. Getting nervous as surgery date gets > > closer. But, on "bad back days" will be glad when it's done. I am a > > nurse in NICU and live in Greenwood, SC. Am very grateful for groups > > like this to vent and possibly help others. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 ..So you don't feel it's that common to have the rods put in as an adult?..I'm just curious because I never had mine put in until I was 48 and I've always wondered if the doctor should have told me that he was going to do this to me before the surgery..Jill -- Re: Re: Upcoming Surgery Thanks for sharing your story. I do not recall hearing from anyone else who had a Harrington rod installed, as I did, in adulthood, following a previous childhood fusion. I was in my late thirties when I got my Harrington rod -- and the rest, as they say, is history. I would think you could wear whatever you find is most comfortable after the surgery. By the time I was cognizant of what I was wearing after each operation, I always wore underwear regardless of what else I had on. So I suppose I always had a "pants" issue I actually never stopped to consider until now whether some people may prefer to wear hospital gowns with no underwear. I generally prefer to wear my own PJs -- actually lightweight sweats and T shirts, sometimes with a nice robe over them -- in the hospital. I especially prefer to be more "dressed" for PT. As someone once commented here, I feel a little more dignified or self-respecting or something like that -- when trying to communicate with medical personnel while constrained by the "patient" role -- if I am wearing my own "civilian" garb from home. But of course this means more laundry for me or my family. Al so, I think some of the staff at the hospital thought I was odd for wearing my own clothes so much of the time. I guess I am just the antsy-rebellious type when it comes to such role-expectations as the obligatory "hospital uniform." I had no problems with clothing until I was ultimately fused (in a series of anterior and posterior revision procedures) to the pelvis (having previously been fused to around L-4). After the fusion to S-1, I had trouble with socks, and especially with shoes that needed tying, for at least a month or two. (Even so, I think it is always wise to have some comfortable gym shoes with you.) I also stopped wearing skirts and dresses for good! -- until about two years post-op, when I discovered , to my surprise, that I was once again capable of putting on pantyhose unassisted. You may not have any such problems, though, with a fusion terminating at L-5. One thing you might want to consider is whether you will have an orthotic device post-op. My first revision surgeon preferred not to prescribe any kind of brace or support, but my second revision surgeon wanted me to wear a TLSO for three months or so. This kind of custom-made jacket is just thick enough that you may need to allow for extra bulk when you select your post-op "wardrobe." For instance, you will need to make sure that any waistbands are sufficiently elasticized to stretch over the brace. & n bsp;Also, it is important not to wear a TLSO without a cotton tank top underneath to protect your skin -- so if you know you will be getting a TLSO, you will want to bring at least two or three of these tops with you to the hospital.. Best, cu76rn <chaquita53@...> wrote: My surgery on October 12th is to correct curve below my original fusion which has caused mild flatback. I still stand rather straight so the is why I termed it "mild". Dr. Hey will extend my fusion to L5 (present fusion is T3-L1). He will also place some kind of spacers between a couple of vertebra where the disc is very damaged. Will be posterior only for which I am thankful. I have some degeneration lumbar as well cervical. Will see how much this surgery helps my neck issues. Dr. Hey hopes that my neck will be helped some after the surgery for flatback which should help center my head rather than it protruding forward. Does this make sense?Myy scoliosis was discovered at age 13 or 14. Original curve 42 or 43 degrees--thoracic S curve. I saw my ortho surgeon regularly. Unfortunately my curve kept curving after I quit growing. So--at age 22 when my curve was 60ish I had surgery. Fusion and Harrington rod. My original surgery was in Greenville,SC with Dr. Stelling- a wonderful surgeon who has passed away now. My first problems were muscle spasms in left shoulder. As I got older, low back pain was problem. (I am now 51 yrs young.) About 5 years ago, I began having bouts of left leg pain starting in hip and going all the way to my foot. Sciatis nerve I guess. This is off and on--worse when I have worked alot. Low back pain of varying degrees always now.These days when I am off I try to rest as much as possible.I am wondering if pj's or nightgowns are easier in hospital after surgery. Wondering if it is easier to put on pj pants or just pull a gown on. Any ideas from those who have gone through this would be appreciated.Thanks for all the wonderful support and advice from this group.Wishing you all pain free days--Janet in SC> > Hi all! I am new to this group. I had Harrington placed and spinal > > fusion (T4-L1) in 1976. I feel lucky that I am just now facing > surgery. > > Also thankful that I only have to have fusion extension to L5 as > > opposed to full revision. My surgery is scheduled for October 12th > in > > Raleigh, NC with Dr. Lloyd Hey. Getting nervous as surgery date gets > > closer. But, on "bad back days" will be glad when it's done. I am a > > nurse in NICU and live in Greenwood, SC. Am very grateful for groups > > like this to vent and possibly help others. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 I just wore the hospital gowns because of the IV lines and the nurses needing to check the incision. It just seemed much easier and if it got messy for some reason they always had another one that looked exactly like the first to replace it with. > > > Hi all! I am new to this group. I had Harrington placed and > spinal > > > fusion (T4-L1) in 1976. I feel lucky that I am just now facing > > surgery. > > > Also thankful that I only have to have fusion extension to L5 as > > > opposed to full revision. My surgery is scheduled for October > 12th > > in > > > Raleigh, NC with Dr. Lloyd Hey. Getting nervous as surgery date > gets > > > closer. But, on " bad back days " will be glad when it's done. I am > a > > > nurse in NICU and live in Greenwood, SC. Am very grateful for > groups > > > like this to vent and possibly help others. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 Good luck with it all Jane! I hope everything goes well. I'll be thinking of you on Friday. How old are your kids? > > Thanks for the update - its great to know that people will be > thinking about me - and those who know what I'm going through at that! > > I'm busy trying to complete things and work, home (how things do pile > up). I'm working right to the end (tomorrow) as I figure if I'm home > I'll just think about the surgery and I don't need that stress. > > Up early as its an hour drive to hospital from where we live (but > only 10 minutes from where my husband and I work). Must be there by > 7 (checked weather forecasts - no snow in them yet) and on the table > at 9. Hope to be done by 3. Will be out of the hospital by the > following weekend. > > Not too nervous - being the 3rd surgery and quite confident in my > doctor. Not looking forward to the pain of course - but the waiting > on hand and foot by my husband and parents (and kids) will be > enjoyable! > > I'll get back on and let everyone know how it went once I'm recovered > enough to work the laptop! > > Jane > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 JANE---Good luck!!! Been there, done that 5mos. ago. Much better now!! Hoping things go very well for you. Corirebeccamaas <rebeccamaas@...> wrote: Good luck with it all Jane! I hope everything goes well. I'll be thinking of you on Friday. How old are your kids?>> Thanks for the update - its great to know that people will be > thinking about me - and those who know what I'm going through at that!> > I'm busy trying to complete things and work, home (how things do pile > up). I'm working right to the end (tomorrow) as I figure if I'm home > I'll just think about the surgery and I don't need that stress.> > Up early as its an hour drive to hospital from where we live (but > only 10 minutes from where my husband and I work). Must be there by > 7 (checked weather forecasts - no snow in them yet) and on the table > at 9. Hope to be done by 3. Will be out of the hospital by the > following weekend. > > Not too nervous - being the 3rd surgery and quite confident in my > doctor. Not looking forward to the pain of course - but the waiting > on hand and foot by my husband and parents (and kids) will be > enjoyable! > > I'll get back on and let everyone know how it went once I'm recovered > enough to work the laptop!> > Jane> Never miss an email again! Toolbar alerts you the instant new Mail arrives. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 Jane, all the best to you during your surgery and recovery. I will keep you in my thoughts and prayers. I know you will come out of this with shining colours! Thank you for all the help you have given me over the past few emails/weeks. Take good care and please, please keep in touch when you are able. Karyn. meadsem <janemeadus@...> wrote: Thanks for the update - its great to know that people will be thinking about me - and those who know what I'm going through at that!I'm busy trying to complete things and work, home (how things do pile up). I'm working right to the end (tomorrow) as I figure if I'm home I'll just think about the surgery and I don't need that stress.Up early as its an hour drive to hospital from where we live (but only 10 minutes from where my husband and I work). Must be there by 7 (checked weather forecasts - no snow in them yet) and on the table at 9. Hope to be done by 3. Will be out of the hospital by the following weekend. Not too nervous - being the 3rd surgery and quite confident in my doctor. Not looking forward to the pain of course - but the waiting on hand and foot by my husband and parents (and kids) will be enjoyable! I'll get back on and let everyone know how it went once I'm recovered enough to work the laptop!JaneAn awkward morning is always better than a boring night.... No need to miss a message. Get email on-the-go with for Mobile. Get started. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2007 Report Share Posted January 25, 2007 Good luck, Jane! We'll be thinking of you and hoping all goes well. Best wishes to you, loriann > > Thanks for the update - its great to know that people will be > thinking about me - and those who know what I'm going through at that! > > I'm busy trying to complete things and work, home (how things do pile > up). I'm working right to the end (tomorrow) as I figure if I'm home > I'll just think about the surgery and I don't need that stress. > > Up early as its an hour drive to hospital from where we live (but > only 10 minutes from where my husband and I work). Must be there by > 7 (checked weather forecasts - no snow in them yet) and on the table > at 9. Hope to be done by 3. Will be out of the hospital by the > following weekend. > > Not too nervous - being the 3rd surgery and quite confident in my > doctor. Not looking forward to the pain of course - but the waiting > on hand and foot by my husband and parents (and kids) will be > enjoyable! > > I'll get back on and let everyone know how it went once I'm recovered > enough to work the laptop! > > Jane > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2007 Report Share Posted January 25, 2007 Jane, I think that they gave me valium when I was a kid before my original fusion. I'd hope if you mention your nerves and ask for something, they will give you something to help. Do you have good childcare set up for your kids during your recovery? Do they know/understand that you are having surgery? Where are you having it done again? Do you have anyone that can update us? > > My chidlren are 4 & 6 - so its tough for them. I'm still working away > today - not trying to think about surgery but of course that's > impossible. > > The worst will be tomorrow when I ahve to get up at 5:30 - drive > downtown (I hope hubby will rive and I can sleep) - then check in and > WAIT! I really hope they give me drugs to calm me down during that > time! > > Jane > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2007 Report Share Posted February 21, 2007 Dear , I am sending you positive vibes across the miles. Keep looking ahead and knowing that you are doing this for yourself, for a better life. You owe this to yourself. This is the way to move forward. You also need a smidgeon of Good Luck, so I am wishing you that too. Lots of love from Ann (England) XX Leekley <melj916@...> wrote: Hello everyone, I will be having my Heller Myotomy tomorrow and would ask for as many prayers and positive healthy energy you can send my way. I am pretty nervous about it, but am looking forward to getting past this part and figuring out what comes next in this journey. Hopefully it will be a nice easy A road for a long time. I will let you know how things went when I get back home. Thank you all for your support and prayers. Take care, 8:00? 8:25? 8:40? Find a flick in no timewith the Search movie showtime shortcut. The all-new goes wherever you go - free your email address from your Internet provider. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2007 Report Share Posted February 21, 2007 Hi , Positive energy will definitely be sent your way tomorrow. Think of tomorrow as the first step to feeling better. Your going to do wonderful. Best wishes! and Tia Leekley <melj916@...> wrote: Hello everyone, I will be having my Heller Myotomy tomorrow and would ask for as many prayers and positive healthy energy you can send my way. I am pretty nervous about it, but am looking forward to getting past this part and figuring out what comes next in this journey. Hopefully it will be a nice easy A road for a long time. I will let you know how things went when I get back home. Thank you all for your support and prayers. Take care, 8:00? 8:25? 8:40? Find a flick in no timewith the Search movie showtime shortcut. Sucker-punch spam with award-winning protection. Try the free Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2007 Report Share Posted February 21, 2007 Hi , Here is a big GOOD LUCK wish and hug for you from Holland! I will be thinking of you tomorrow - I know all about the nerves, I am due to have my HM next week and know what you are going through.I look at it as one more hurdle to take before I get my life back. Do keep us up to date! Big hug for youAstrid upcoming surgery Hello everyone, I will be having my Heller Myotomy tomorrow and would ask for as many prayers and positive healthy energy you can send my way. I am pretty nervous about it, but am looking forward to getting past this part and figuring out what comes next in this journey. Hopefully it will be a nice easy A road for a long time. I will let you know how things went when I get back home. Thank you all for your support and prayers. Take care, 8:00? 8:25? 8:40? Find a flick in no timewith the Search movie showtime shortcut. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2007 Report Share Posted February 21, 2007 Prayers coming your way-Let us know how things go afterward. xoxoxo Tonia > > Hello everyone, > > I will be having my Heller Myotomy tomorrow and would ask for as many prayers and positive healthy energy you can send my way. I am pretty nervous about it, but am looking forward to getting past this part and figuring out what comes next in this journey. Hopefully it will be a nice easy A road for a long time. I will let you know how things went when I get back home. Thank you all for your support and prayers. > > Take care, > > > > --------------------------------- > 8:00? 8:25? 8:40? Find a flick in no time > with the Search movie showtime shortcut. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 Be careful with anesthesia. When I had a surgical procedure the anesthisiologist had to give me one that did not cause muscle cramps. I thought I wrote it down but cannot find it. Be sure to tell them about your fibromyalgia. Also talk to your doctor or see a physical therapist afterwards to help with adhesions in the pelvic muscle area. I did not do this after my hysterectomy and continue to have problems in this area 18 years after. Good luck. > > I am going for a hysterectomy on the 18th of February... I read some > article a long time ago that people can find some relief of fibro pain > after going under anesthetic, due to the deep relaxation your muscles > go to. I was wondering if anyone had read anything about this? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 I don't remember reading this, but I had a colon resection done 18 months ago, due to severe diverculitis. I was in hospital for a week. Needed pain med for incisional pain. But after I came home I think I only took 5 Lortabs, Tylenol controlled my pain, so I would think that would be true. Sandie -- upcoming surgery I am going for a hysterectomy on the 18th of February... I read some article a long time ago that people can find some relief of fibro pain after going under anesthetic, due to the deep relaxation your muscles go to. I was wondering if anyone had read anything about this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 > > > > I am going for a hysterectomy on the 18th of February... I read some > > article a long time ago that people can find some relief of fibro > pain > > after going under anesthetic, due to the deep relaxation your muscles > > go to. I was wondering if anyone had read anything about this? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 I had surgery 3 times (years ago) and always got sick (nausea/vomiting) lasting several days. However, I have a friend with fibro who had surgery a few years ago and because she hadn't slept much in so long she was actually looking forward to anesthesia! I don't think she got sick from it either. Strangely, the third time I had surgery (hysterectomy 20 years ago for endometriosis) I told the anesthesiologist the night before how sick I always get and he promised me this wouldn't make me sick. He was very nice. Well, I got sicker from that one than ever before! Also I woke up in recovery with my body thrashing about wildly and the nurses saying, " They gave her too much!! " So they gave me a shot of something and my body settled down. I think my chemistry is weird, because no one I know has had these things happen to them with anesthesia. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Yes of course I have been given all the info to prepare for surgery and aneset guy knows i have fibro and i am only taking 2 meds and neither are a problem; effexor and flexeril. my doc doesn't treat my fibro with anything buy flexeril. > > > > > > I am going for a hysterectomy on the 18th of February... I read > some > > > article a long time ago that people can find some relief of fibro > > pain > > > after going under anesthetic, due to the deep relaxation your > muscles > > > go to. I was wondering if anyone had read anything about this? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Thanks Dom, I have had no problems in the past, but our bodies change all the time, so hopefully it will be the same as the past. I certainly do not want cancer to continue to grow, so... I am just hoping they get it all and nothing further is required. Thank you all for your input, I appreciate it! > > I had surgery 3 times (years ago) and always got sick (nausea/vomiting) > lasting several days. However, I have a friend with fibro who had > surgery a few years ago and because she hadn't slept much in so long > she was actually looking forward to anesthesia! I don't think she got > sick from it either. Strangely, the third time I had surgery > (hysterectomy 20 years ago for endometriosis) I told the > anesthesiologist the night before how sick I always get and he promised > me this wouldn't make me sick. He was very nice. Well, I got sicker > from that one than ever before! Also I woke up in recovery with my > body thrashing about wildly and the nurses saying, " They gave her too > much!! " So they gave me a shot of something and my body settled down. > I think my chemistry is weird, because no one I know has had these > things happen to them with anesthesia. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 I probably missed some of this conversation, but....has your doctor considered an Endometrial Ablasion? It is what my OB/GYN did instead of a hysterectomy. I had to have it done because of really abnormal periods that were making me very, very anemic for way too long. The procedure was amazing! I was under general anethestic and the whole procedure took 45 minutes. I still have all body parts, just no more really bad periods. 75% of women never have another period, and 25% have mild periods, as in my case. Besides, I never did tolerate hormone therapy well at all, not to mention the HUGE increase in breast cancer caused by hormone therapy. Even my OB/GYN sited many problems associated with hormone therapy. Leaving ovaries is not an option. Too many women are dying from Ovarian cancer because of having their ovaries left after a hysterectomy. This has become a huge no no in most of the gyno world. My mother's best friend died at 63 because of this very reason. Way too young......and she was diligent about getting a pap and her exam every year. Nadine "carmen.niemi" <carmen@...> wrote: Yes of course I have been given all the info to prepare for surgery and aneset guy knows i have fibro and i am only taking 2 meds and neither are a problem; effexor and flexeril. my doc doesn't treat my fibro with anything buy flexeril.> > >> > > I am going for a hysterectomy on the 18th of February... I read > some > > > article a long time ago that people can find some relief of fibro > > pain > > > after going under anesthetic, due to the deep relaxation your > muscles > > > go to. I was wondering if anyone had read anything about this?> > >> >> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
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