Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 Hello all!! My name is and I am a SAHM to Ethan (4) and (7 months). We live in , Texas which is a suburb of Dallas. I joined this board about 4 months ago and posted a few messages and received wonderful info and support at that time. had his first Cranio visit 3 months ago for Pagio and the specialist really did not feel that the flatness on 's head warranted a helmet but he wanted to follow up on his progress and we set an appt for 3 months later. So Thursday the 18th we went back for our follow up visit and I really thought it was going to be no big deal at all. But the doctor is concerned about the sutures in 's skull and his flat spot seems to have prematurely closed. So now we are scheduled for a CT scan, Ped Neurosurgeon visit and a visit back to the Cranio specialist all on Nov. 14th. 's Specialist is Dr. Jeff Fearon at Medical Center Dallas Craniofacial Center. The impression I got from Dr. Fearon is he can't really determine for sure if 's sutures have closed or not. He made the comment that usually he can tell almost immediately when a child walks in but he says has some indications but not all of what he normally looks for. I don't know if he is just trying to keep me from worrying until he can see the scans or what. 's soft spot is virtually non-existent and he has a ridge that goes from ear to ear ver the top of his head. Both of these things were mentioned at the original visit but didn't seem to be a huge concern at the time or at least that was the impression I got. So because this totally caught me off guard and I had my 4 year old climbing on a chair in his office I didn't ask one single question hardly. He has a website www.thecraniofacialcenter.com that he referred me to and told me to call him if I had any questions. After reading the info regarding craniosynostosis and plagiocephaly I still don't really know what exactly to ask. I understand the diagnosis and treatment etc...I think I am somewhat overwhelmed with everything is the biggest problem. I would love to hear from anyone that has a child that is going through this or has had the surgery or has dealth with Dr. Fearon. ***************** Mommy to Ethan (6/8/97) and (3/9/01) Visit My Avon Page Please use pass code *tiffany* Click here to subscribe to my online newsletter ***************** Quote Link to comment Share on other sites More sharing options...
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