Guest guest Posted May 19, 2004 Report Share Posted May 19, 2004 , I agree. I have gone from senatorr to the President. Newspaper to newspaper. TV station to TV station. No one out there believes us. It can be very discouraging. My case has high profile as it was from a government facility. You would not believe the lies and the coverups and all the politicians care about is themselves, money and THEIR standards, Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2004 Report Share Posted May 19, 2004 , I agree. I have gone from senatorr to the President. Newspaper to newspaper. TV station to TV station. No one out there believes us. It can be very discouraging. My case has high profile as it was from a government facility. You would not believe the lies and the coverups and all the politicians care about is themselves, money and THEIR standards, Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 My congresswoman is a co sponsor of the safe fragrances notification act. When she encountered someone in DC with a chemical injury she referred them to me, as she sees this is a problem. Everyone writes in emails to others but the email has no effect on politicans. My friend was a long shot grassroots and I hocked her to death on MCS. She saw it was a problem but didn't really address it as no other people were complaining of the issue. Now others are confronting on her and and she is addressing it in DC. I have been on tv here and my friend had a 5 part segement on the local news about SBS and the damage she sustained at UNLV. The media does get involved just have to feed them the story in a manner that piques their interest. IT's a game I'll give you a story if you do mine. Then again I have endorsements by elected officals supporting me...which came from making the effort to go and get their attention. Three phones calls to Sams Club corporate legal department got ADA accommodations here in NV. There is enough information on this site to arm everyone, but unless you take it and use it what good does it do. THey wants facts, science facts....someone going in and saying blah blah without knowing how to answer their questions on phsyical effects will get labeled a pain in the a$$. EMS/ hospitlas are not going to change their ways if you say I have mold or mcs...they have medical background and knowledge is power. When people call my office and ask for help as they are fighting a battle I ask what do you know about this/that and when they say nothing I just know I am sick/whatever, I send them to the library/bookstore to learn about the human body, get their facts straights and call me when they can answer my questions while playing devils advocate. I do not allow anyone to use my name to gain any accommodations unless they are armed to the teeth and can stand up to the critics. SO are state workers who are set once they are in and they are idiots also...it's a catch 22. There are a lot of groups that can assist in any state. ADA is very effective if you know the rules and can show them their liability. Risk managers are a great place to start, they have to protect businesses and will do even the MININMUM but its a start. By the time I was finished with the risk manager of the Rio Hotel here they went out bought HEPA FIlters for mcs patrons in show rooms, restuarants, wedding chapels, rooms, etc. Now I refer people to him as he sees its easy to do things MY WAY! Even housekeeping has my list of what to do. So it can be done and its done via a phone and fax. " If having endured much, we at last asserted our 'right to know' and if, knowing, we have concluded that we are being asked to take senseless and frightening risks, then we should no longer accept the counsel of those who tell us that we must fill our world with poisonous chemicals, we should look around and see what other course is open to us. " Carson " My toxicasa (world) is your toxicasa (world). " Judith Goode On Wed, 19 May 2004, Patilla DaHun wrote: > I went that route Angel. The politicians could care less and are > probably afraid to get involved because it would mean loss of jobs in > the area. The media also wouldn't get involved. I'm glad that you have > the energy to do what needs to be done to get results. Perhaps you > could outline some of those things for us or give us some examples of > how you managed to get results. It's been 5 years and I haven't had > the energy to put up the continual fight. It's a struggle to just > survive. If those lousy politicians didn't get the benefits that they > do, then maybe they'd be more inclined to help. Once they get in, > they're set for life. That needs to be changed. Maybe I should have > sent them some mold samples from the place where I was exposed. > > Barth > > TOXIC MOLD SURVEY: www.presenting.net/sbs/sbssurvey.html > > --- > > > > AM> Here is a shock...Gilbert is not considered valid authority by any of > AM> those in the MCS arena. > > AM> Ann Mc is a MD with MCS and she is not cured...WHy hasn't Sherry > AM> , Al Robbins etc., using all these lay peoples protocols? > > AM> Keep whining on a group that has NOOOOOOOOOOOOOO repeat > AM> NOOOOOOOOOO chance of changing the laws. Ya want a pissing contest call > AM> and get those running for offie to do something. YOu think positng to a > AM> goup is going to effect change? NO. > > AM> If you are so injured then complain get the regs changed, bring this to > AM> their attention! > > AM> If you have so much energy to post here you have the energy to pick up a > AM> phone and have these issues addressed and not rely on those fighting to > AM> get things done for you. > > AM> I get results....do you?! DO you have any credits to your name that made > AM> an effect on others in your state..I doubt it. > > AM> DOes your SS have the protocol to determine MCS from a blanket psych dx..I > AM> doubt it ONLY and I repeat ONLY NV has that and I DID it...so do something > AM> before you throw stones! > > AM> " If having endured much, we at last asserted our 'right to know' and if, > AM> knowing, we have concluded that we are being asked to take senseless and > AM> frightening risks, then we should no longer accept the counsel of those > AM> who tell us that we must fill our world with poisonous chemicals, we > AM> should look around and see what other course is open to us. " > AM> Carson > > AM> " My toxicasa (world) is your toxicasa (world). " > AM> Judith Goode > > > AM> On Wed, 19 May 2004 anorientaldancer@... wrote: > > >> Dear JAP 2bemc, I have been to 5 DOCTORS in the last 2 months including one > >> that cost thousands of dollars for testing,only to tell me I have very high > >> mycotoxin levels.Which did not take a brain scientist to figure out.I am > >> certainly not dispensing nor taking medical advice from this board or anywhere on the > >> internet.However I am a positive person with an open mind who wants to believe > >> I have a chance in getting better.The website recommended seemed genuine > >> and had information I found to be informative.I asked my Doctor if the > >> Magnesium,Zinc and Cysteine were appropriate and after he tested me I ordered the > >> supplements.The website I posted is one of a DOCTOR who had MCS and claims she > >> healed herself.If her books are helpful to myself and others than I am > >> grateful that information is available.Angel,I believe you may be a troll not an > >> angelic being! Mari > >> P.S Speaking of pissing contests - mine is a frothy orange brown with an > >> abnormal amount of protein and I drink a 10+ glasses of water. > >> > >> > >> FAIR USE NOTICE: > >> > >> This site contains copyrighted material the use of which has not always been specifically authorized by the copyright owner. We are making such material available in our efforts to advance > >> understanding of environmental, political, human rights, economic, democracy, scientific, and social justice issues, etc. We believe this constitutes a 'fair use' of any such copyrighted material > >> as provided for in section 107 of the US Copyright Law. In accordance with Title 17 U.S.C. Section 107, the material on this site is distributed without profit to those who have expressed a prior > >> interest in receiving the included information for research and educational purposes. For more information go to: http://www.law.cornell.edu/uscode/17/107.shtml. If you wish to use copyrighted > >> material from this site for purposes of your own that go beyond 'fair use', you must obtain permission from the copyright owner. > >> Quote Link to comment Share on other sites More sharing options...
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