Re: [OEM] Chemical Sensitivity Awareness Month / Kathy Blanco

[Guest guest]

I was corresponding with a couple of years ago.

Here's a copy of one of my messages sent in Nov 2002.

Hi Kathy, I liked your letter.

I've watched people do the most amazing diets -each one thinking that

vegetarianism, proteinism, fruitarianism, breathairianism...and every

other stinking " ism " must surely be the cure for this problem.

I haven't seen awesome results come out of any of these diets.

You yourself have seen the association between exposure to mycotoxins

and exacerbation of symptoms.

I decided to pursue that avenue years ago and took myself out of Dr

s Ampligen program and have been mountain climbing and

otherwise exercising a degree of control over my problems that is

unmatched by any other therapy.

I've also been contradicted, told I am outright wrong, crazy or

delusional ever since.

I offer to get extra permits for climbing Mt Whitney and we can swap

theories together and see which theory makes it to the top first, but

no takers.

I also try to nudge the " experts " in the direction I have taken but

have only convinced them I'm nuts. So I just wait for more people to

drop and try to post enough clues out there to eventually get the

attention of a serious researcher who can take advantage of the

lessons I've learned to make some extra headway on this problem.

I can assure you that no government legislation over mold levels

could ever help anybody who has acquired this level of sensitivity.

When there is a period of barometric pressure change, I simply cannot

be anywhere near accumulations left by spore plumes - indoors or

out.

I'm actually lucky that the " experts " abandoned me in my efforts to

explore to connection between my symptoms and mold exposure. Their

understanding of mold is so wrong that taking their advice is

counterproductive and would lead you to think that the problem could

not possibly be from mold at all.

If you go into a building contaminated by Stachy during high pressure

when the spores aren't releasing mycotoxins and get intact spores on

your clothing, you can carry them around and NOT have much of a

response until they dry out or you get into an elevator or drive up a

hill in a car or go into an air conditioned building and set them

off. Things like this lead to what are apparently impossible

contradictions in an association between contaminated areas and

symptoms.

There is a fine art to mold avoidance that cannot be understood

by " experts " who lack the sensitivity to understand our complaints.

I am certainly not advising against diet to try to address this

problem, in fact I'm willing to explore anything that seems

reasonable, but until then, I haven't found anything that deals with

the symptoms as well as strict avoidance of the perception of

exposure to mycotoxins.

You may recall that my girlfriend fell below the " immune power curve "

by not carefully regulating her overall exposure to mold. This summer

was hell and it took every trick of avoidance I've learned to get her

functional again, but we did it. We climbed Mt Whitney together on

Sept 21.

We feel sorry for others in our situation who are subject to this

horrible reactivity but have no effective means to deal with it. But

our efforts to help others who are obviously suffering from the same

reactivity is totally rejected in favor of advice from doctors who

are completely clueless.

I think Ritchie Shoemaker offers the best hope for a doctor who will

eventually arrive at an understanding of the nature of this

reactivity. I want him to have every clue available to resolve this

as quickly as possible because I sure am tired of living this crazy

mold avoidance lifestyle, but unfortunately I am considered too crazy

for anyone to listen to.

Whether you think I'm crazy or not, I still appreciate your work on

raising awareness of these issues.

-

[Guest guest]

I was corresponding with a couple of years ago.

Here's a copy of one of my messages sent in Nov 2002.

Hi Kathy, I liked your letter.

I've watched people do the most amazing diets -each one thinking that

vegetarianism, proteinism, fruitarianism, breathairianism...and every

other stinking " ism " must surely be the cure for this problem.

I haven't seen awesome results come out of any of these diets.

You yourself have seen the association between exposure to mycotoxins

and exacerbation of symptoms.

I decided to pursue that avenue years ago and took myself out of Dr

s Ampligen program and have been mountain climbing and

otherwise exercising a degree of control over my problems that is

unmatched by any other therapy.

I've also been contradicted, told I am outright wrong, crazy or

delusional ever since.

I offer to get extra permits for climbing Mt Whitney and we can swap

theories together and see which theory makes it to the top first, but

no takers.

I also try to nudge the " experts " in the direction I have taken but

have only convinced them I'm nuts. So I just wait for more people to

drop and try to post enough clues out there to eventually get the

attention of a serious researcher who can take advantage of the

lessons I've learned to make some extra headway on this problem.

I can assure you that no government legislation over mold levels

could ever help anybody who has acquired this level of sensitivity.

When there is a period of barometric pressure change, I simply cannot

be anywhere near accumulations left by spore plumes - indoors or

out.

I'm actually lucky that the " experts " abandoned me in my efforts to

explore to connection between my symptoms and mold exposure. Their

understanding of mold is so wrong that taking their advice is

counterproductive and would lead you to think that the problem could

not possibly be from mold at all.

If you go into a building contaminated by Stachy during high pressure

when the spores aren't releasing mycotoxins and get intact spores on

your clothing, you can carry them around and NOT have much of a

response until they dry out or you get into an elevator or drive up a

hill in a car or go into an air conditioned building and set them

off. Things like this lead to what are apparently impossible

contradictions in an association between contaminated areas and

symptoms.

There is a fine art to mold avoidance that cannot be understood

by " experts " who lack the sensitivity to understand our complaints.

I am certainly not advising against diet to try to address this

problem, in fact I'm willing to explore anything that seems

reasonable, but until then, I haven't found anything that deals with

the symptoms as well as strict avoidance of the perception of

exposure to mycotoxins.

You may recall that my girlfriend fell below the " immune power curve "

by not carefully regulating her overall exposure to mold. This summer

was hell and it took every trick of avoidance I've learned to get her

functional again, but we did it. We climbed Mt Whitney together on

Sept 21.

We feel sorry for others in our situation who are subject to this

horrible reactivity but have no effective means to deal with it. But

our efforts to help others who are obviously suffering from the same

reactivity is totally rejected in favor of advice from doctors who

are completely clueless.

I think Ritchie Shoemaker offers the best hope for a doctor who will

eventually arrive at an understanding of the nature of this

reactivity. I want him to have every clue available to resolve this

as quickly as possible because I sure am tired of living this crazy

mold avoidance lifestyle, but unfortunately I am considered too crazy

for anyone to listen to.

Whether you think I'm crazy or not, I still appreciate your work on

raising awareness of these issues.

-