Re: If it was true - I would have heard of it

June 9, 2004

is right. We need to stay focused and see if we can help each other

as we are all we have from what I call " the outsiders " who dont understand or

want to believe. Some days I am still so angry that the government did this to

me and they won. Here is where I can share that to get it off my chest.

God Bless to all

Janet

June 9, 2004

is right. We need to stay focused and see if we can help each other

as we are all we have from what I call " the outsiders " who dont understand or

want to believe. Some days I am still so angry that the government did this to

me and they won. Here is where I can share that to get it off my chest.

God Bless to all

Janet

June 9, 2004

I see a kinisiologist but have never done this " energy test " in my home. What

is it?

Janet

June 9, 2004

Ditto....I am intrigued also, what is the energy test?

God Bless,

ML

June 9, 2004

and group --

This is so true it's not funny. Oh! -- you weren't trying to be funny?

Try and prequalify a doctor as to his potential for interpretive thought. That

is, if you're in the mood for an argument ending in an ultimate trump

card of authority, which is generally hanging on the office wall in a frame.

Don't forget to pay on your way out.

I came to this group AFTER figuring out on my own that this is externally

caused. However, with my increased (increasing?) reactivity, I have to

look to the reason why I have this condition and others do not, especially the

residents who followed me in the apartment where I got sick.

We have to continue to share our experiences, look for clues, and keep open

minds here. We're all we got. Don't forget the alternative forum of

mold-help.org, either.

> " If it was true - I would have heard of it.

> I haven't heard of it - so it can't be true " .

>

> It's amazing how many people subscribe to this concept and to the

> theory that " If someone came up with a treatment - word of it would

> sweep the world like wildfire " .

> My experience says that if anybody comes up with a treatment, the

> people in greatest need of it would kill the messenger and the

> doctors would help to bury the body.

> I got a backchannel message saying how strange it is to have an

> illness that, " When you get it, people yell at you " .

> Get ready for something infinitely more bizarre!

> If you figure out a way to get out of it - the very people who have

> the illness will take the lead in rejecting your attempts to help and

> will fight you harder than the doctors ever did.

> This is what Rick told me in 1998 and it's true.

> I've already found others who discovered the " mycotoxin connection "

> on their own despite total contradictions from virtually everyone

> around them and proceeded to act in accordance with their perceptions

> instead of mental denial of reality.

> I've told some famous doctors " At this point, it doesn't even matter

> if I'm lying or not. The very fact that I can claim to be who I am

> and accomplished what I have done and induce the " disinterest

> response " means that the medical system is constructed to dismiss

> rather than investigate " .

> This was clearly seen in the medical systems refusal to investigate

> Dr Barry Marshall's H Pylori concept because he had no peer reviewed

> literature to cite supporting his claims;

> " If we haven't already heard about it, then it can't be true " .

> One guy on Naugles CFS group tried desperately to explain

> his experience and the more he protested that he was just relaying

> verification of the Stachy remediation concept, the more vehemently

> the group rejected his story. Finally he just got burned out and

> left them to their suffering.

> So as strange as you think it has been to get an illness that causes

> people to disbelieve, contradict and argue with you - just wait until

> you find something that gets you out of it!

> The amazing response you will get from others complaining of the same

> illness will change your conceptions about the manner in which humans

> acquire knowledge!

> -

June 9, 2004

and group --

This is so true it's not funny. Oh! -- you weren't trying to be funny?

Try and prequalify a doctor as to his potential for interpretive thought. That

is, if you're in the mood for an argument ending in an ultimate trump

card of authority, which is generally hanging on the office wall in a frame.

Don't forget to pay on your way out.

I came to this group AFTER figuring out on my own that this is externally

caused. However, with my increased (increasing?) reactivity, I have to

look to the reason why I have this condition and others do not, especially the

residents who followed me in the apartment where I got sick.

We have to continue to share our experiences, look for clues, and keep open

minds here. We're all we got. Don't forget the alternative forum of

mold-help.org, either.

> " If it was true - I would have heard of it.

> I haven't heard of it - so it can't be true " .

>

> It's amazing how many people subscribe to this concept and to the

> theory that " If someone came up with a treatment - word of it would

> sweep the world like wildfire " .

> My experience says that if anybody comes up with a treatment, the

> people in greatest need of it would kill the messenger and the

> doctors would help to bury the body.

> I got a backchannel message saying how strange it is to have an

> illness that, " When you get it, people yell at you " .

> Get ready for something infinitely more bizarre!

> If you figure out a way to get out of it - the very people who have

> the illness will take the lead in rejecting your attempts to help and

> will fight you harder than the doctors ever did.

> This is what Rick told me in 1998 and it's true.

> I've already found others who discovered the " mycotoxin connection "

> on their own despite total contradictions from virtually everyone

> around them and proceeded to act in accordance with their perceptions

> instead of mental denial of reality.

> I've told some famous doctors " At this point, it doesn't even matter

> if I'm lying or not. The very fact that I can claim to be who I am

> and accomplished what I have done and induce the " disinterest

> response " means that the medical system is constructed to dismiss

> rather than investigate " .

> This was clearly seen in the medical systems refusal to investigate

> Dr Barry Marshall's H Pylori concept because he had no peer reviewed

> literature to cite supporting his claims;

> " If we haven't already heard about it, then it can't be true " .

> One guy on Naugles CFS group tried desperately to explain

> his experience and the more he protested that he was just relaying

> verification of the Stachy remediation concept, the more vehemently

> the group rejected his story. Finally he just got burned out and

> left them to their suffering.

> So as strange as you think it has been to get an illness that causes

> people to disbelieve, contradict and argue with you - just wait until

> you find something that gets you out of it!

> The amazing response you will get from others complaining of the same

> illness will change your conceptions about the manner in which humans

> acquire knowledge!

> -

June 9, 2004

Just read 's post to and all in which he said we need to

share with each other as much as we can about our exposures, etc. (my

words) and I want to let you know something I've been doing lately---we

have been in this house for over a year and a half now, and I've been ill

with MCS since day one. Recently I have been doing energy testing on

myself (for info on what supplements are OK, etc. for me) and just for

the heck of it, I energy tested myself on the topic of our bedroom. It

boiled down to the rug---the rug is toxic because it has had so much

pesticide spray on it over the years (several families have been in here

before us) It also could have had flea bombs set off in the room before.

Long story short, my body energy tells me that I should have been

sleeping upstairs long ago!!! So we moved our bedside tables and lamp,

etc.up to the guest room and that is where we will be. You may ask the

obvious question---why on earth haven't we removed this rug??? In

checking the underlayment (wood?) we found that it is in terrible shape

and to replace it and put in a hard wood floor would cost over a thousand

dollars--impossible for us to do---we just claimed bankruptcy recently.

We are in the process of hopefully selling this house and moving closer

to Atlanta for those trips to the hospital (husband's cancer treatments).

The bottom line for me is that I wish I had begun the energy testing long

ago---it would have saved me much agony.

Anyone out there using Kinesiology to test things in their environment? I

tested for mold this way in the kitchen and it is still there, under or

behind the dishwasher (unused for some time now)--can't remove the

dishwasher without removing the entire counter top---the bozos who put

that together must really be something!!!!!

Getting out of here as soon as we can,

Ruth

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June 9, 2004