Re: SURVEY: What do we want health practitioners to know?

[Guest guest]

In a message dated 10/17/2004 6:56:11 AM Pacific Standard Time,

pageang@... writes:

>

> 6. That we need their help in dealing with our workplaces, so that they can

> be supportive in aquiring felxible accomodations and understanding from

> employers who may have not been exposed before to this sort of disability.

>

I wish this would have happened. The government covered up the moldy basement

and forced me out of a job.

[Guest guest]

In a message dated 10/17/2004 6:56:11 AM Pacific Standard Time,

pageang@... writes:

>

> 6. That we need their help in dealing with our workplaces, so that they can

> be supportive in aquiring felxible accomodations and understanding from

> employers who may have not been exposed before to this sort of disability.

>

I wish this would have happened. The government covered up the moldy basement

and forced me out of a job.

[Guest guest]

In a message dated 10/17/2004 12:15:50 AM Pacific Daylight Time,

Stinkypouf@... writes:

What would you like physicians to know about the needs of people with MCS?

I want regional offices for MCS patients, specially equipped, that take

insurances of all types.

I would like physicians to mandate that no one in the office wear perfume or

heavily scented products, use dryer sheets, etc., to limit the chemicals in

the office, with a perfume-free safe room to wait in.

I would like physicians to run hepi-filters with charcoal in one of the 3-5

stages to clean the office air, throughout, and to have offices with open

windows and fresh air, rather than in sealed, chemical laden buildings.

I would not want an ozone generating machine in the physician's office.

I'd like them to know that drugs aren't always the solution but may be part

of the problem.

I'd like them to read about MCS from sources that provide info from the

patient's perspective and from validated studies that reflect the true facts.

I want them to know that MCS can develop in mold-exposed victims (68% in one

study)

I want them to know that MCS can be so debilitating that it can trap a

person in a room or outside of all buildings, unable to live in any.

I want them to know what Dr. Sherry knows (NY)

I want them to treat MCS with as much respect and attention as a person with

Cancer or AIDS might get. I want the government to view us as a protected

class and advertise that.

When I am sick with MCS I want a trained doctor to help me - and tell me

what to do next.

When my neighbor sprays and continues to spray pesticides

(%^$%%^@#$% & *( & *()*()) I want to have my doctor tell me what can be done.

I want my doctor to know what tests to give to analyze what is happening in

my body and also to prove the MCS for disability reasons.

I want my doctor to have an MCS brochure in the waiting room and have all

staff trained.

I want my doctor to have an understanding with the hospital for a protocol

for handling a MCS patient in the ER or hospital itself. The State of Ohio has

developed this.

I want it to be part of state and federal law, all of the above.

I think that is a beginning only.

[Guest guest]

In a message dated 10/17/2004 12:15:50 AM Pacific Daylight Time,

Stinkypouf@... writes:

What would you like physicians to know about the needs of people with MCS?

I want regional offices for MCS patients, specially equipped, that take

insurances of all types.

I would like physicians to mandate that no one in the office wear perfume or

heavily scented products, use dryer sheets, etc., to limit the chemicals in

the office, with a perfume-free safe room to wait in.

I would like physicians to run hepi-filters with charcoal in one of the 3-5

stages to clean the office air, throughout, and to have offices with open

windows and fresh air, rather than in sealed, chemical laden buildings.

I would not want an ozone generating machine in the physician's office.

I'd like them to know that drugs aren't always the solution but may be part

of the problem.

I'd like them to read about MCS from sources that provide info from the

patient's perspective and from validated studies that reflect the true facts.

I want them to know that MCS can develop in mold-exposed victims (68% in one

study)

I want them to know that MCS can be so debilitating that it can trap a

person in a room or outside of all buildings, unable to live in any.

I want them to know what Dr. Sherry knows (NY)

I want them to treat MCS with as much respect and attention as a person with

Cancer or AIDS might get. I want the government to view us as a protected

class and advertise that.

When I am sick with MCS I want a trained doctor to help me - and tell me

what to do next.

When my neighbor sprays and continues to spray pesticides

(%^$%%^@#$% & *( & *()*()) I want to have my doctor tell me what can be done.

I want my doctor to know what tests to give to analyze what is happening in

my body and also to prove the MCS for disability reasons.

I want my doctor to have an MCS brochure in the waiting room and have all

staff trained.

I want my doctor to have an understanding with the hospital for a protocol

for handling a MCS patient in the ER or hospital itself. The State of Ohio has

developed this.

I want it to be part of state and federal law, all of the above.

I think that is a beginning only.

[Guest guest]

I'm sorry for asking such a simple question but what is a MCS patient?

ken

==========================

----- Original Message -----

From: nomoreschoolmold@...<mailto:nomoreschoolmold@...>

<mailto: >

Sent: Sunday, October 17, 2004 3:42 PM

Subject: Re: [] SURVEY: What do we want health practitioners to

know?

In a message dated 10/17/2004 12:15:50 AM Pacific Daylight Time,

Stinkypouf@...<mailto:Stinkypouf@...> writes:

What would you like physicians to know about the needs of people with MCS?

I want regional offices for MCS patients, specially equipped, that take

insurances of all types.

I would like physicians to mandate that no one in the office wear perfume or

heavily scented products, use dryer sheets, etc., to limit the chemicals in

the office, with a perfume-free safe room to wait in.

I would like physicians to run hepi-filters with charcoal in one of the 3-5

stages to clean the office air, throughout, and to have offices with open

windows and fresh air, rather than in sealed, chemical laden buildings.

I would not want an ozone generating machine in the physician's office.

I'd like them to know that drugs aren't always the solution but may be part

of the problem.

I'd like them to read about MCS from sources that provide info from the

patient's perspective and from validated studies that reflect the true facts.

I want them to know that MCS can develop in mold-exposed victims (68% in one

study)

I want them to know that MCS can be so debilitating that it can trap a

person in a room or outside of all buildings, unable to live in any.

I want them to know what Dr. Sherry knows (NY)

I want them to treat MCS with as much respect and attention as a person with

Cancer or AIDS might get. I want the government to view us as a protected

class and advertise that.

When I am sick with MCS I want a trained doctor to help me - and tell me

what to do next.

When my neighbor sprays and continues to spray pesticides

(%^$%%^@#$% & *( & *()*()) I want to have my doctor tell me what can be done.

I want my doctor to know what tests to give to analyze what is happening in

my body and also to prove the MCS for disability reasons.

I want my doctor to have an MCS brochure in the waiting room and have all

staff trained.

I want my doctor to have an understanding with the hospital for a protocol

for handling a MCS patient in the ER or hospital itself. The State of Ohio has

developed this.

I want it to be part of state and federal law, all of the above.

I think that is a beginning only.

[Guest guest]

I'm sorry for asking such a simple question but what is a MCS patient?

ken

==========================

----- Original Message -----

From: nomoreschoolmold@...<mailto:nomoreschoolmold@...>

<mailto: >

Sent: Sunday, October 17, 2004 3:42 PM

Subject: Re: [] SURVEY: What do we want health practitioners to

know?

In a message dated 10/17/2004 12:15:50 AM Pacific Daylight Time,

Stinkypouf@...<mailto:Stinkypouf@...> writes:

What would you like physicians to know about the needs of people with MCS?

I want regional offices for MCS patients, specially equipped, that take

insurances of all types.

I would like physicians to mandate that no one in the office wear perfume or

heavily scented products, use dryer sheets, etc., to limit the chemicals in

the office, with a perfume-free safe room to wait in.

I would like physicians to run hepi-filters with charcoal in one of the 3-5

stages to clean the office air, throughout, and to have offices with open

windows and fresh air, rather than in sealed, chemical laden buildings.

I would not want an ozone generating machine in the physician's office.

I'd like them to know that drugs aren't always the solution but may be part

of the problem.

I'd like them to read about MCS from sources that provide info from the

patient's perspective and from validated studies that reflect the true facts.

I want them to know that MCS can develop in mold-exposed victims (68% in one

study)

I want them to know that MCS can be so debilitating that it can trap a

person in a room or outside of all buildings, unable to live in any.

I want them to know what Dr. Sherry knows (NY)

I want them to treat MCS with as much respect and attention as a person with

Cancer or AIDS might get. I want the government to view us as a protected

class and advertise that.

When I am sick with MCS I want a trained doctor to help me - and tell me

what to do next.

When my neighbor sprays and continues to spray pesticides

(%^$%%^@#$% & *( & *()*()) I want to have my doctor tell me what can be done.

I want my doctor to know what tests to give to analyze what is happening in

my body and also to prove the MCS for disability reasons.

I want my doctor to have an MCS brochure in the waiting room and have all

staff trained.

I want my doctor to have an understanding with the hospital for a protocol

for handling a MCS patient in the ER or hospital itself. The State of Ohio has

developed this.

I want it to be part of state and federal law, all of the above.

I think that is a beginning only.

[Guest guest]

Multiple Chemical Sensitive. It is horrible.

Janet

[Guest guest]

Multiple Chemical Sensitive. It is horrible.

Janet