SURVEY: What do we want health practitioners to know?

[Guest guest]

, this is FANTASTIC. Thank you so very much. Getting input like this

will help us make the brochure as thorough and helpful as possible! I can't

think of everything on my own ...

Thanks,

writes:

> From: " Page, " <pageang@...>

> Subject: SURVEY: What do we want health practitioners to know?

>

> 1. That waiting in their offices for lengthy periods is difficult, perhaps

> we can wait outside or a non distrubing room (unlikely to be void of last

> patients smells, no latex gloves, no carpeting, no fragrances)

>

> 2. That what you cannot seesmell, doesnt mean it doesn't exist and isnt

> poison to someone esle

>

> 3. That their aftershave, laundry det residue, dryer sheet use, is potent

> and detectable by us and adding to our adverse reactions of post nasal drip,

> dry mouth and throat and lung burn.

>

> 4. That many of us cant/dont see doctors as we are squirreled away in

> fields etc, trying to cope with the toxic world in which they operate....so

> ...there are many more people wtih this than they could know.

>

> 5. That the very drugs they are used to using are not appropriate and

> actually perpetucate the symptoms we should be addressing. They need to think

> " differently " about treatment, and understand and support avoidance.

>

> 6. That we need their help in dealing with our workplaces, so that they can

> be supportive in aquiring felxible accomodations and understanding from

> employers who may have not been exposed before to this sort of disability.

>

> 7. That they read up on the illness which spans more than 30 documentabel

> years now. Speak to other professionals who are experiencing patients with

> this illness. Gaining knowledge about EI. will combat ignorance and denial.

>

> 8. Read about the toxins in everyday products, and post signs in

> offices.... " Did you know that dryer sheets contain.....and may agrivate...... "

>

> 9. Contact CDC or EPA to support indoor air quality regs. They need to be

> proactive in prevention.

I wish you health, peace, truth and prosperity.