Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Hi- I live in Washington State. Here the family/person hires the provider. You can hire anyone you want-- as long as they pass the background check, are over age 18, and go through a series of training's- and now(as of this legislative session) join the SEIU union. There are some agencies that you can hire for respite. But the majority of it takes place with self hired providers. The state is working on a registry for people to call and get people that have already gone through the training. This system has its good and bad. It is nice to have control over who you hire/fire. But it can also be a burden trying to find someone. M Mom to 18, Holly 16 (DS) and 13 In a message dated 3/30/04 7:23:33 AM, writes: << I am speaking at a Grass Roots Summit this weekend about the shortage (understatement) of Respite Care Providers in our State (SD). I was wondering if any of you would be willing to share some information about your State's Respite Care program. Do many of you utilize it? Is there a shortage of providers? If not, why do you think that is? What's working and not working for your state? Any comments are welcomed. Thank you in advance to those that reply. Jayne Mom to (5 next month) Ds, 12, and Emma 7 >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 In a message dated 5/24/2004 11:33:58 AM Eastern Daylight Time, writes: I will be willing to set it up. My daughter is really struggling with her perception of herself because of her combined issues that make her feel very different. What do the parents of the almost-teens/teens think? Shall we set one up? Sandy (mom to Riley, age 12 (13 on Sunday), selective antibody deficiency, asthma, IVIG) Sandy, would like to join if others are interested. We could set it on " private " (by invitation only) or " by request " sending a note to the moderator for admission the way this group works. Since the girls are all teens I thought that this would be a consideration that we might want to think about. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 In a message dated 10/17/2004 2:35:12 PM Eastern Standard Time, writes: They DID find that pulmonary disease was produced by both mold and damp buildings, Semantics! Semantics! Your use of the word " produced " is perrhaps as misleading as the article you criticize. their is a positive relationship, even correlation, but the cause and effect of actual 'disease' is still a little sketchy. This is not to argue that damp and/or moldy buildings don't cause health problems. Alas, it's all in the wording! Also, the IOM did not " find' anything, they summarized findings from others. Armour Armour Applied Science, LLC Cleveland, OH 440-546-7068 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 In a message dated 10/17/2004 2:35:12 PM Eastern Standard Time, writes: They DID find that pulmonary disease was produced by both mold and damp buildings, Semantics! Semantics! Your use of the word " produced " is perrhaps as misleading as the article you criticize. their is a positive relationship, even correlation, but the cause and effect of actual 'disease' is still a little sketchy. This is not to argue that damp and/or moldy buildings don't cause health problems. Alas, it's all in the wording! Also, the IOM did not " find' anything, they summarized findings from others. Armour Armour Applied Science, LLC Cleveland, OH 440-546-7068 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 In a message dated 10/18/2004 12:04:51 PM Pacific Daylight Time, healthyhouse@... writes: They DID find that pulmonary disease was produced by both mold and damp buildings, Semantics! Semantics! Your use of the word " produced " is perrhaps as misleading as the article you criticize. their is a positive relationship, even correlation, but the cause and effect of actual 'disease' is still a little sketchy. This is not to argue that damp and/or moldy buildings don't cause health problems. Alas, it's all in the wording! Also, the IOM did not " find' anything, they summarized findings from others. Armour Armour Applied Science, LLC Cleveland, OH 440-546-7068 We will then use the exact words. These words are changing court cases and will have great impact - it may help some and harm others. We, the mold victims, know that this report leaves much to be desired, but it still goes beyond what the CDC previously had published. CDC is currently revising the public info on mold, I have been told, to align with the following: From Page 253 of the IOM report: FINDINGS, RECOMMENDATIONS AND RESEARCH NEEDS: Findings: " TABLE 5-12 Summary of Findings Regarding the Association Between Health Outcomes and Exposure to Damp Indoor Environments Sufficient Evidence of a Causal Relationship(a) (no outcomes met this definition) Sufficient Evidence of an Association Upper respiratory (nasal and throat) tract symptoms Wheeze Cough Asthma symptoms in sensitized asthmatic persons Limited or Suggestive Evidence of an Association Dyspnea (shortness of breath) Asthma development Lower respiratory illness in otherwise-healthy children Inadequate or Insufficient Evidence to Determine Whether an Association Exists Airflow obstruction (in otherwise-healthy persons) Skin symptoms Mucous membrane irritation syndrome Gastrointestinal tract problems Chronic obstructive pulmonary disease Fatigue Inhalation fevers (nonoccupational exposures) Neuropsychiatric symptoms Lower respiratory illness in otherwise-healthy adults Cancer Acute idiopathic pulmonary hemorrhage in infants Reproductive effects Rheumatologic and other immune diseases ------------------------ (a)These conclusions are not applicable to immunocompromised persons, who are at increased risk for fungal colonization or opportunistic infections. " Page 254 " TABLE 5-13 Summary of Findings Regarding the Association Between Health Outcomes and the Presence of Mold or Other Agents in Damp Indoor Environments (a) Sufficient Evidence of a Causal Relationship (no outcomes met this definition) Sufficient Evidence of an Association Upper respiratory (nasal and throat) tract symptoms Wheeze Asthma symptoms in sensitized asthmatic persons Cough Hypersensitivity pneumonitis in susceptible persons ( Limited or Suggestive Evidence of an Association Lower respiratory illness in otherwise-healthy children Inadequate or Insufficient Evidence to Determine Whether an Association Exists Dyspnea (shortness of breath) Skin symptoms Airflow obstruction (in otherwise-healthy persons) Asthma development Mucous membrane irritation syndrome Gastrointestinal tract problems Chronic obstructive pulmonary disease Fatigue Inhalation fevers (nonoccupational exposures) Neuropsychiatric symptoms Lower respiratory illness in otherwise-healthy adults Cancer Rheumatologic and other immune diseases Reproductive effects Acute idiopathic pulmonary hemorrhage in infants ---------------------- (a)These conclusions are not applicable to immunocompromised persons, who are at increased risk for fungal colonization or opportunistic infections. (b)For mold or bacteria in damp indoor environments. " ------------------- • Greater research attention to the possible role of damp indoor environments and the agents associated with them in less well understood disease entities is needed to address gaps in scientific knowledge and concerns among the public. (page 255, IOM Damp Indoor Spaces, Human Health Effects) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 In a message dated 10/18/2004 12:04:51 PM Pacific Daylight Time, healthyhouse@... writes: They DID find that pulmonary disease was produced by both mold and damp buildings, Semantics! Semantics! Your use of the word " produced " is perrhaps as misleading as the article you criticize. their is a positive relationship, even correlation, but the cause and effect of actual 'disease' is still a little sketchy. This is not to argue that damp and/or moldy buildings don't cause health problems. Alas, it's all in the wording! Also, the IOM did not " find' anything, they summarized findings from others. Armour Armour Applied Science, LLC Cleveland, OH 440-546-7068 We will then use the exact words. These words are changing court cases and will have great impact - it may help some and harm others. We, the mold victims, know that this report leaves much to be desired, but it still goes beyond what the CDC previously had published. CDC is currently revising the public info on mold, I have been told, to align with the following: From Page 253 of the IOM report: FINDINGS, RECOMMENDATIONS AND RESEARCH NEEDS: Findings: " TABLE 5-12 Summary of Findings Regarding the Association Between Health Outcomes and Exposure to Damp Indoor Environments Sufficient Evidence of a Causal Relationship(a) (no outcomes met this definition) Sufficient Evidence of an Association Upper respiratory (nasal and throat) tract symptoms Wheeze Cough Asthma symptoms in sensitized asthmatic persons Limited or Suggestive Evidence of an Association Dyspnea (shortness of breath) Asthma development Lower respiratory illness in otherwise-healthy children Inadequate or Insufficient Evidence to Determine Whether an Association Exists Airflow obstruction (in otherwise-healthy persons) Skin symptoms Mucous membrane irritation syndrome Gastrointestinal tract problems Chronic obstructive pulmonary disease Fatigue Inhalation fevers (nonoccupational exposures) Neuropsychiatric symptoms Lower respiratory illness in otherwise-healthy adults Cancer Acute idiopathic pulmonary hemorrhage in infants Reproductive effects Rheumatologic and other immune diseases ------------------------ (a)These conclusions are not applicable to immunocompromised persons, who are at increased risk for fungal colonization or opportunistic infections. " Page 254 " TABLE 5-13 Summary of Findings Regarding the Association Between Health Outcomes and the Presence of Mold or Other Agents in Damp Indoor Environments (a) Sufficient Evidence of a Causal Relationship (no outcomes met this definition) Sufficient Evidence of an Association Upper respiratory (nasal and throat) tract symptoms Wheeze Asthma symptoms in sensitized asthmatic persons Cough Hypersensitivity pneumonitis in susceptible persons ( Limited or Suggestive Evidence of an Association Lower respiratory illness in otherwise-healthy children Inadequate or Insufficient Evidence to Determine Whether an Association Exists Dyspnea (shortness of breath) Skin symptoms Airflow obstruction (in otherwise-healthy persons) Asthma development Mucous membrane irritation syndrome Gastrointestinal tract problems Chronic obstructive pulmonary disease Fatigue Inhalation fevers (nonoccupational exposures) Neuropsychiatric symptoms Lower respiratory illness in otherwise-healthy adults Cancer Rheumatologic and other immune diseases Reproductive effects Acute idiopathic pulmonary hemorrhage in infants ---------------------- (a)These conclusions are not applicable to immunocompromised persons, who are at increased risk for fungal colonization or opportunistic infections. (b)For mold or bacteria in damp indoor environments. " ------------------- • Greater research attention to the possible role of damp indoor environments and the agents associated with them in less well understood disease entities is needed to address gaps in scientific knowledge and concerns among the public. (page 255, IOM Damp Indoor Spaces, Human Health Effects) Quote Link to comment Share on other sites More sharing options...
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