Anneliese

[Guest guest]

Hi Anneliese,

So many people think a CI is like a hearing aid, pop it on, hear

everything. No clue how much time is spent getting it mapped, listening

to weird sounds until your brain gets used to it and all that.

The best way to spread the word it tell anyone who asks what you've

got. I had someone ask me in a grocery store if I was wearing a 3G. She

had the older Esprit because she had an N22 implant. But imagine, in a

grocery store.

Someone in line behind me at WalMart singed " Is that a cochlear

implant " And I signed right back that it was and how long I've had it.

He said he was born deaf, has never heard and so he couldn't use it.

Which was probably true in his case. But at least he knew what it was

and was interested enough to ask.

My primary care physician went to a meeting of primary care types and

someone mentioned CIs and said all the primaries should be aware of them

in case they run across someone who cannot hear and cannot use a hearing

aid. Dr. said, " I have a patient with one, and if I ever had a

patient who needed information, I'd refer them to " I've left

flyers at his office. My dentist has information at his office. We have

to spread the word. They are here, and they work.

That's why I'm a volunteer advocate.

The Original

Subject: Re: Anneliese

Hi !

I was wondering if there was something we could do to get the word out

there

and educate people about the reality of Cochlear Implants in terms of how

important frequent mappings are especially for children.

Unfortunately, I continue to hear horror stories about how cochlear

implants

do NOT work and I ask, if given the chance, " what else is going on???? "

That is me - Miss Logic!!!!

Thank you for your feedback!

Regards,

Anneliese