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I use sick, vacation, personal, etc. days depending on what I have available. When Grace has had surgery I still have to use those leaves in order to be paid, but my job is "safe" because I file for FMLA. Employers CAN require you to file your time loss under FMLA for even the single days or for most kids, even sick days. But so far my employer doesn't realize that and I haven't pointed it out! :)

Jane

From: Amy <amscales11@...>infantile scoliosis treatment Sent: Tue, July 6, 2010 10:32:51 AMSubject: Time off from Work

I used all my vacation time this last year on Makenna's doctors appointments. Is everyone else using vacation days for casting? Just curious... I coach gymnastics, so the business isn't very big - not like we have a human resource department :) LOL> So, I was just wondering what these medical days are technically counted as in the "real world".AmyMom to Makenna, 3. In 3rd cast from Chicago Shriners

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I do not work but my husband does use his vacation/sick time. He honestly takes

more time then he is technically given but he works for a very small company (5

people including the owner) and they have given him extra time over the past

year (and paid him for all of it) so that he can be with Cole and me through

this whole process.

I don't know how other people do it. I would hate to have to go alone.

Jenn

Mommy to Cole, 2.5 years, 1st brace from Rochester, 2 degrees down from 47 after

10 months in 5 casts.

>

> I use sick, vacation, personal, etc. days depending on what I have

available.  When Grace has had surgery I still have to use those leaves in

order to be paid, but my job is " safe " because I file for FMLA.  Employers CAN

require you to file your time loss under FMLA for even the single days or for

most kids, even sick days.  But so far my employer doesn't realize that and I

haven't pointed it out! :)

>  

> Jane

>

>

>

>

> ________________________________

> From: Amy <amscales11@...>

> infantile scoliosis treatment

> Sent: Tue, July 6, 2010 10:32:51 AM

> Subject: Time off from Work

>

>  

> I used all my vacation time this last year on Makenna's doctors appointments.

Is everyone else using vacation days for casting? Just curious... I coach

gymnastics, so the business isn't very big - not like we have a human resource

department :) LOL> So, I was just wondering what these medical days are

technically counted as in the " real world " .

>

> Amy

> Mom to Makenna, 3. In 3rd cast from Chicago Shriners

>

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You're lucky Jenn, my husband can't take time off like that with his company so I go alone.

Jane

From: genericallyloud <jennifer.leggett@...>infantile scoliosis treatment Sent: Tue, July 6, 2010 11:06:35 AMSubject: Re: Time off from Work

I do not work but my husband does use his vacation/sick time. He honestly takes more time then he is technically given but he works for a very small company (5 people including the owner) and they have given him extra time over the past year (and paid him for all of it) so that he can be with Cole and me through this whole process. I don't know how other people do it. I would hate to have to go alone. Jenn Mommy to Cole, 2.5 years, 1st brace from Rochester, 2 degrees down from 47 after 10 months in 5 casts.>> I use sick, vacation, personal, etc. days depending on what I have available. When Grace has had surgery I still have to use those leaves in order to be paid, but my job

is "safe" because I file for FMLA. Employers CAN require you to file your time loss under FMLA for even the single days or for most kids, even sick days. But so far my employer doesn't realize that and I haven't pointed it out! :)>  > Jane> > > > > ________________________________> From: Amy <amscales11@...>> infantile scoliosis treatment > Sent: Tue, July 6, 2010 10:32:51 AM> Subject: Time off from Work> >  > I used all my vacation time this last year on Makenna's doctors appointments. Is everyone else using vacation days for casting? Just curious... I coach gymnastics, so the business isn't very big - not like we have a human resource

department :) LOL> So, I was just wondering what these medical days are technically counted as in the "real world".> > Amy> Mom to Makenna, 3. In 3rd cast from Chicago Shriners>

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That must be so hard for you sometimes Jane. I can't imagine not having my husband with me during those times. Tomorrow we have to take Hayden to ish Rite for a follow up appt and my husband can't keep taking time off either, so I have to go by myself with both kids. He is going to try to leave work a little early to meet me there. I am nervous Joanmom to Hayden 339 degrees down from 62After 4 casts, now in a brace 23 hours/dayTreated at ish Rite Hospital Dallas, TX

From: Jane Bigler <janemhar@...>infantile scoliosis treatment Sent: Tue, July 6, 2010 1:15:10 PMSubject: Re: Re: Time off from Work

You're lucky Jenn, my husband can't take time off like that with his company so I go alone.

Jane

From: genericallyloud <jennifer.leggett@ gmail.com>infantile scoliosis treatment @groups. comSent: Tue, July 6, 2010 11:06:35 AMSubject: [infantile_scoliosi s] Re: Time off from Work

I do not work but my husband does use his vacation/sick time. He honestly takes more time then he is technically given but he works for a very small company (5 people including the owner) and they have given him extra time over the past year (and paid him for all of it) so that he can be with Cole and me through this whole process. I don't know how other people do it. I would hate to have to go alone. Jenn Mommy to Cole, 2.5 years, 1st brace from Rochester, 2 degrees down from 47 after 10 months in 5 casts.>> I use sick, vacation, personal, etc. days depending on what I have available. When Grace has had surgery I still have to use those leaves in order to be paid, but my

job is "safe" because I file for FMLA. Employers CAN require you to file your time loss under FMLA for even the single days or for most kids, even sick days. But so far my employer doesn't realize that and I haven't pointed it out! :)>  > Jane> > > > > ____________ _________ _________ __> From: Amy <amscales11@. ..>> infantile scoliosis treatment @groups. com> Sent: Tue, July 6, 2010 10:32:51 AM> Subject: [infantile_scoliosi s] Time off from Work> >  > I used all my vacation time this last year on Makenna's doctors appointments. Is everyone else using vacation days for casting? Just curious... I coach gymnastics, so the business isn't very big - not like we have a human

resource department :) LOL> So, I was just wondering what these medical days are technically counted as in the "real world".> > Amy> Mom to Makenna, 3. In 3rd cast from Chicago Shriners>

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We are very very lucky. my husband works for an incredible and very

understanding company. They really understand that you can not be a good

employee when you are worried about your child.

For all you moms and dads that travel alone my heart goes out to you. The whole

trip would be very draining to do alone. You are such strong parents!

Jenn

Mommy to Cole, 2.5 years, 1st brace from Rochester, 2 degrees down from 47 after

10 months in 5 casts.

> >

> > I use sick, vacation, personal, etc. days depending on what I have

available.  When Grace has had surgery I still have to use those leaves in

order to be paid, but my job is " safe " because I file for FMLA.  Employers

CAN require you to file your time loss under FMLA for even the single days

or for most kids, even sick days.  But so far my employer doesn't realize

that and I haven't pointed it out! :)

> >  

> > Jane

> >

> >

> >

> >

> > ________________________________

> > From: Amy <amscales11@>

> > infantile scoliosis treatment

> > Sent: Tue, July 6, 2010 10:32:51 AM

> > Subject: Time off from Work

> >

> >  

> > I used all my vacation time this last year on Makenna's doctors

appointments. Is everyone else using vacation days for casting? Just curious...

I coach gymnastics, so the business isn't very big - not like we have a human

resource department :) LOL> So, I was just wondering what these medical days are

technically counted as in the " real world " .

> >

> > Amy

> > Mom to Makenna, 3. In 3rd cast from Chicago Shriners

> >

>

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Good luck tomorrow Joan!

During casting days I was blessed to have my husband/parents go with me, but now for follow up appts I go alone. My husband has a small business and can not always just take off.

Joan, it makes for a long day, but the follow up appts alone are so much easier!!!

Keep us posted or call me tomorrow! I'll email you later.....walking out the door.

TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, TexasSeries of 6 casts for 14 months followed by bracing since September 2007You can read 's story at.... http://www.infantilescoliosis.org/stories.html

From: Joan Vallee <hayro1611@...>infantile scoliosis treatment Sent: Tue, July 6, 2010 1:17:49 PMSubject: Re: Re: Time off from Work

That must be so hard for you sometimes Jane. I can't imagine not having my husband with me during those times. Tomorrow we have to take Hayden to ish Rite for a follow up appt and my husband can't keep taking time off either, so I have to go by myself with both kids. He is going to try to leave work a little early to meet me there. I am nervous Joanmom to Hayden 339 degrees down from 62After 4 casts, now in a brace 23 hours/dayTreated at ish Rite Hospital Dallas, TX

From: Jane Bigler <janemhar (DOT) com>infantile scoliosis treatment @groups. comSent: Tue, July 6, 2010 1:15:10 PMSubject: Re: [infantile_scoliosi s] Re: Time off from Work

You're lucky Jenn, my husband can't take time off like that with his company so I go alone.

Jane

From: genericallyloud <jennifer.leggett@ gmail.com>infantile scoliosis treatment @groups. comSent: Tue, July 6, 2010 11:06:35 AMSubject: [infantile_scoliosi s] Re: Time off from Work

I do not work but my husband does use his vacation/sick time. He honestly takes more time then he is technically given but he works for a very small company (5 people including the owner) and they have given him extra time over the past year (and paid him for all of it) so that he can be with Cole and me through this whole process. I don't know how other people do it. I would hate to have to go alone. Jenn Mommy to Cole, 2.5 years, 1st brace from Rochester, 2 degrees down from 47 after 10 months in 5 casts.>> I use sick, vacation, personal, etc. days depending on what I have available. When Grace has had surgery I still have to use those leaves in order to be paid, but my

job is "safe" because I file for FMLA. Employers CAN require you to file your time loss under FMLA for even the single days or for most kids, even sick days. But so far my employer doesn't realize that and I haven't pointed it out! :)>  > Jane> > > > > ____________ _________ _________ __> From: Amy <amscales11@. ..>> infantile scoliosis treatment @groups. com> Sent: Tue, July 6, 2010 10:32:51 AM> Subject: [infantile_scoliosi s] Time off from Work> >  > I used all my vacation time this last year on Makenna's doctors appointments. Is everyone else using vacation days for casting? Just curious... I coach gymnastics, so the business isn't very big - not like we have a human

resource department :) LOL> So, I was just wondering what these medical days are technically counted as in the "real world".> > Amy> Mom to Makenna, 3. In 3rd cast from Chicago Shriners>

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Thanks Tasha :) Joanmom to Hayden 339 degrees down from 62After 4 casts, now in a brace 23 hours/dayTreated at ish Rite Hospital Dallas, TX

From: Tasha Fontenot <ryanswalk@...>infantile scoliosis treatment Sent: Tue, July 6, 2010 1:35:48 PMSubject: Re: Re: Time off from Work

Good luck tomorrow Joan!

During casting days I was blessed to have my husband/parents go with me, but now for follow up appts I go alone. My husband has a small business and can not always just take off.

Joan, it makes for a long day, but the follow up appts alone are so much easier!!!

Keep us posted or call me tomorrow! I'll email you later.....walking out the door.

TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, TexasSeries of 6 casts for 14 months followed by bracing since September 2007You can read 's story at.... http://www.infantil escoliosis. org/stories. html

From: Joan Vallee <hayro1611 (DOT) com>infantile scoliosis treatment @groups. comSent: Tue, July 6, 2010 1:17:49 PMSubject: Re: [infantile_scoliosi s] Re: Time off from Work

That must be so hard for you sometimes Jane. I can't imagine not having my husband with me during those times. Tomorrow we have to take Hayden to ish Rite for a follow up appt and my husband can't keep taking time off either, so I have to go by myself with both kids. He is going to try to leave work a little early to meet me there. I am nervous Joanmom to Hayden 339 degrees down from 62After 4 casts, now in a brace 23 hours/dayTreated at ish Rite Hospital Dallas, TX

From: Jane Bigler <janemhar (DOT) com>infantile scoliosis treatment @groups. comSent: Tue, July 6, 2010 1:15:10 PMSubject: Re: [infantile_scoliosi s] Re: Time off from Work

You're lucky Jenn, my husband can't take time off like that with his company so I go alone.

Jane

From: genericallyloud <jennifer.leggett@ gmail.com>infantile scoliosis treatment @groups. comSent: Tue, July 6, 2010 11:06:35 AMSubject: [infantile_scoliosi s] Re: Time off from Work

I do not work but my husband does use his vacation/sick time. He honestly takes more time then he is technically given but he works for a very small company (5 people including the owner) and they have given him extra time over the past year (and paid him for all of it) so that he can be with Cole and me through this whole process. I don't know how other people do it. I would hate to have to go alone. Jenn Mommy to Cole, 2.5 years, 1st brace from Rochester, 2 degrees down from 47 after 10 months in 5 casts.>> I use sick, vacation, personal, etc. days depending on what I have available. When Grace has had surgery I still have to use those leaves in order to be paid, but my

job is "safe" because I file for FMLA. Employers CAN require you to file your time loss under FMLA for even the single days or for most kids, even sick days. But so far my employer doesn't realize that and I haven't pointed it out! :)>  > Jane> > > > > ____________ _________ _________ __> From: Amy <amscales11@. ..>> infantile scoliosis treatment @groups. com> Sent: Tue, July 6, 2010 10:32:51 AM> Subject: [infantile_scoliosi s] Time off from Work> >  > I used all my vacation time this last year on Makenna's doctors appointments. Is everyone else using vacation days for casting? Just curious... I coach gymnastics, so the business isn't very big - not like we have a human

resource department :) LOL> So, I was just wondering what these medical days are technically counted as in the "real world".> > Amy> Mom to Makenna, 3. In 3rd cast from Chicago Shriners>

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Joan,

I didn't realize you had to go alone! Call or text me any time throughout the

day if you need to talk or vent.

Joan Vallee <hayro1611@...> wrote:

>That must be so hard for you sometimes Jane. I can't imagine not having my

husband with me during those times. Tomorrow we have to take Hayden to ish

Rite for a follow up appt and my husband can't keep taking time off either, so

I have to go by myself with both kids. He is going to try to leave work a

little early to meet me there. I am nervous

> Joan

>mom to Hayden 3

>39 degrees down from 62

>After 4 casts, now in a brace 23 hours/day

>Treated at ish Rite Hospital

>Dallas, TX

>

>

>

>

>________________________________

>From: Jane Bigler <janemhar@...>

>infantile scoliosis treatment

>Sent: Tue, July 6, 2010 1:15:10 PM

>Subject: Re: Re: Time off from Work

>

> 

>You're lucky Jenn, my husband can't take time off like that with his

company so I go alone.

> 

>Jane

>

>

>

>

>________________________________

>From: genericallyloud <jennifer.leggett@ gmail.com>

>infantile scoliosis treatment @groups. com

>Sent: Tue, July 6, 2010 11:06:35 AM

>Subject: [infantile_scoliosi s] Re: Time off from Work

>

> 

>I do not work but my husband does use his vacation/sick time. He honestly takes

more time then he is technically given but he works for a very small company (5

people including the owner) and they have given him extra time over the past

year (and paid him for all of it) so that he can be with Cole and me through

this whole process.

>

>I don't know how other people do it. I would hate to have to go alone.

>

>Jenn

>Mommy to Cole, 2.5 years, 1st brace from Rochester, 2 degrees down from 47

after 10 months in 5 casts.

>

>

>>

>> I use sick, vacation, personal, etc. days depending on what I have

available.  When Grace has had surgery I still have to use those leaves in

order to be paid, but my job is " safe " because I file for FMLA.  Employers

CAN require you to file your time loss under FMLA for even the single days

or for most kids, even sick days.  But so far my employer doesn't realize

that and I haven't pointed it out! :)

>>  

>> Jane

>>

>>

>>

>>

>> ____________ _________ _________ __

>> From: Amy <amscales11@. ..>

>> infantile scoliosis treatment @groups. com

>> Sent: Tue, July 6, 2010 10:32:51 AM

>> Subject: [infantile_scoliosi s] Time off from Work

>>

>>  

>> I used all my vacation time this last year on Makenna's doctors appointments.

Is everyone else using vacation days for casting? Just curious... I coach

gymnastics, so the business isn't very big - not like we have a human resource

department :) LOL> So, I was just wondering what these medical days are

technically counted as in the " real world " .

>>

>> Amy

>> Mom to Makenna, 3. In 3rd cast from Chicago Shriners

>>

>

>

>

>

>

>

>

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Jane,

I'm sorry you have such an less than understanding boss.

Jane Bigler <janemhar@...> wrote:

>I use sick, vacation, personal, etc. days depending on what I have available. 

When Grace has had surgery I still have to use those leaves in order to be paid,

but my job is " safe " because I file for FMLA.  Employers CAN require you to

file your time loss under FMLA for even the single days or for most kids, even

sick days.  But so far my employer doesn't realize that and I haven't pointed

it out! :)

> 

>Jane

>

>

>

>

>________________________________

>From: Amy <amscales11@...>

>infantile scoliosis treatment

>Sent: Tue, July 6, 2010 10:32:51 AM

>Subject: Time off from Work

>

> 

>I used all my vacation time this last year on Makenna's doctors appointments.

Is everyone else using vacation days for casting? Just curious... I coach

gymnastics, so the business isn't very big - not like we have a human resource

department :) LOL> So, I was just wondering what these medical days are

technically counted as in the " real world " .

>

>Amy

>Mom to Makenna, 3. In 3rd cast from Chicago Shriners

>

>

>

>

>

>

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Good luck tomorrow, Joan! I would be nervous to go alone, too. I know you'll do great! Heidi, Bexon's Mommy, (3 years old, in 7th cast from Salt Lake City Shriners, currently down from 62 degrees to 19.7 in cast)

From: Joan Vallee <hayro1611@...>infantile scoliosis treatment Sent: Tue, July 6, 2010 11:17:49 AMSubject: Re: Re: Time off from Work

That must be so hard for you sometimes Jane. I can't imagine not having my husband with me during those times. Tomorrow we have to take Hayden to ish Rite for a follow up appt and my husband can't keep taking time off either, so I have to go by myself with both kids. He is going to try to leave work a little early to meet me there. I am nervous Joanmom to Hayden 339 degrees down from 62After 4 casts, now in a brace 23 hours/dayTreated at ish Rite Hospital Dallas, TX

From: Jane Bigler <janemhar (DOT) com>infantile scoliosis treatment @groups. comSent: Tue, July 6, 2010 1:15:10 PMSubject: Re: [infantile_scoliosi s] Re: Time off from Work

You're lucky Jenn, my husband can't take time off like that with his company so I go alone.

Jane

From: genericallyloud <jennifer.leggett@ gmail.com>infantile scoliosis treatment @groups. comSent: Tue, July 6, 2010 11:06:35 AMSubject: [infantile_scoliosi s] Re: Time off from Work

I do not work but my husband does use his vacation/sick time. He honestly takes more time then he is technically given but he works for a very small company (5 people including the owner) and they have given him extra time over the past year (and paid him for all of it) so that he can be with Cole and me through this whole process. I don't know how other people do it. I would hate to have to go alone. Jenn Mommy to Cole, 2.5 years, 1st brace from Rochester, 2 degrees down from 47 after 10 months in 5 casts.>> I use sick, vacation, personal, etc. days depending on what I have available. When Grace has had surgery I still have to use those leaves in order to be paid, but my

job is "safe" because I file for FMLA. Employers CAN require you to file your time loss under FMLA for even the single days or for most kids, even sick days. But so far my employer doesn't realize that and I haven't pointed it out! :)>  > Jane> > > > > ____________ _________ _________ __> From: Amy <amscales11@. ..>> infantile scoliosis treatment @groups. com> Sent: Tue, July 6, 2010 10:32:51 AM> Subject: [infantile_scoliosi s] Time off from Work> >  > I used all my vacation time this last year on Makenna's doctors appointments. Is everyone else using vacation days for casting? Just curious... I coach gymnastics, so the business isn't very big - not like we have a human

resource department :) LOL> So, I was just wondering what these medical days are technically counted as in the "real world".> > Amy> Mom to Makenna, 3. In 3rd cast from Chicago Shriners>

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I don't know if any of you have pursued this avenue, or how you feel about it,

but Abigail just qualified for 240 personal care hours for 6 months to be used

when I need it. I can hire a personal care attendant to go to doctors

appointments with me, help with her bathing, go with me on vacation or anything

else I might need involving her care. And it can be anyone but the parent, so

you can hire your sister, aunt, mother etc. so you don't feel wierd about having

a stranger help out. And if it's someone you know they can sit with the siblings

while you do the actual care if you prefer.

-Ami

> >>

> >> I use sick, vacation, personal, etc. days depending on what I have

available.  When Grace has had surgery I still have to use those leaves in

order to be paid, but my job is " safe " because I file for FMLA.  Employers

CAN require you to file your time loss under FMLA for even the single days

or for most kids, even sick days.  But so far my employer doesn't realize

that and I haven't pointed it out! :)

> >>  

> >> Jane

> >>

> >>

> >>

> >>

> >> ____________ _________ _________ __

> >> From: Amy <amscales11@ ..>

> >> infantile scoliosis treatment @groups. com

> >> Sent: Tue, July 6, 2010 10:32:51 AM

> >> Subject: [infantile_scoliosi s] Time off from Work

> >>

> >>  

> >> I used all my vacation time this last year on Makenna's doctors

appointments. Is everyone else using vacation days for casting? Just curious...

I coach gymnastics, so the business isn't very big - not like we have a human

resource department :) LOL> So, I was just wondering what these medical days are

technically counted as in the " real world " .

> >>

> >> Amy

> >> Mom to Makenna, 3. In 3rd cast from Chicago Shriners

> >>

> >

> >

> >

> >

> >

> >

> >

>

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Ami,

That's so great! Where did she qualify, is that through your state? How did you apply for it? Thanks : ) Heidi, Bexon's Mommy, (3 years old, in 7th cast from Salt Lake City Shriners, currently down from 62 degrees to 19.7 in cast)

From: luckyvtmama <amibeautinet@...>infantile scoliosis treatment Sent: Wed, July 7, 2010 9:02:55 AMSubject: Re: Time off from Work

I don't know if any of you have pursued this avenue, or how you feel about it, but Abigail just qualified for 240 personal care hours for 6 months to be used when I need it. I can hire a personal care attendant to go to doctors appointments with me, help with her bathing, go with me on vacation or anything else I might need involving her care. And it can be anyone but the parent, so you can hire your sister, aunt, mother etc. so you don't feel wierd about having a stranger help out. And if it's someone you know they can sit with the siblings while you do the actual care if you prefer. -Ami > >>> >> I use sick, vacation, personal, etc. days depending on what I have available. When Grace has had surgery I still have to use those leaves in order to be paid, but my job is "safe" because I file for FMLA. Employers CAN require you to file your time loss under FMLA for even the single

days or for most kids, even sick days. But so far my employer doesn't realize that and I haven't pointed it out! :)> >>  > >> Jane> >> > >> > >> > >> > >> ____________ _________ _________ __> >> From: Amy <amscales11@ ..>> >> infantile scoliosis treatment @groups. com> >> Sent: Tue, July 6, 2010 10:32:51 AM> >> Subject: [infantile_scoliosi s] Time off from Work> >> > >>  > >> I used all my vacation time this last year on Makenna's doctors appointments. Is everyone else using vacation days for casting? Just curious... I coach gymnastics, so the business isn't very big - not like we have a human resource department :) LOL> So, I was just wondering what these medical days are technically counted as in the "real world".>

>> > >> Amy> >> Mom to Makenna, 3. In 3rd cast from Chicago Shriners> >>> >> >> >> >> >> >> >>

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Yeah, I meant to post on this yesterday...This is GREAT, Ami! I hope we

can hear more about individual family stories on how they are dealing with

PIS and ET.....The travel, fighting insurance, employers, medical

professionals & family, etc....

When Liv was diagnosed I had to make hard choices and made great sacrifice

to get her the care she deserved....It shouldnt have been so hard and I

hope that by sharing our challenges with the above on CAST, we can help

others...Things have got to change, as a family going through this should

not have to jump so many hurdles to get adequate care...

HRH

> Ami,

>

> That's so great! Where did she qualify, is that through your state? How

> did you

> apply for it? Thanks : )

>  Heidi, Bexon's Mommy, (3 years old, in 7th cast from Salt Lake City

> Shriners,

> currently down from 62 degrees to 19.7 in cast)

>

>

>

>

>

> ________________________________

> From: luckyvtmama <amibeautinet@...>

> infantile scoliosis treatment

> Sent: Wed, July 7, 2010 9:02:55 AM

> Subject: Re: Time off from Work

>

>  

> I don't know if any of you have pursued this avenue, or how you feel about

> it,

> but Abigail just qualified for 240 personal care hours for 6 months to be

> used

> when I need it. I can hire a personal care attendant to go to doctors

> appointments with me, help with her bathing, go with me on vacation or

> anything

> else I might need involving her care. And it can be anyone but the parent,

> so

> you can hire your sister, aunt, mother etc. so you don't feel wierd about

> having

> a stranger help out. And if it's someone you know they can sit with the

> siblings

> while you do the actual care if you prefer.

>

>

> -Ami

>

>

>> >>

>> >> I use sick, vacation, personal, etc. days depending on what I have

>>available.  When Grace has had surgery I still have to use those

>> leaves in

>>order to be paid, but my job is " safe " because I file for

>> FMLA.  Employers

>>CAN require you to file your time loss under FMLA

>> for even the single days

>>or for most kids, even sick days.  But so far my employer doesn't

>> realize

>>that and I haven't pointed it out! :)

>> >>  

>> >> Jane

>> >>

>> >>

>> >>

>> >>

>> >> ____________ _________ _________ __

>> >> From: Amy <amscales11@ ..>

>> >> infantile scoliosis treatment @groups. com

>> >> Sent: Tue, July 6, 2010 10:32:51 AM

>> >> Subject: [infantile_scoliosi s] Time off from Work

>> >>

>> >>  

>> >> I used all my vacation time this last year on Makenna's doctors

>>appointments. Is everyone else using vacation days for casting? Just

>> curious...

>>I coach gymnastics, so the business isn't very big - not like we have a

>> human

>>resource department :) LOL> So, I was just wondering what these medical

>> days are

>>technically counted as in the " real world " .

>> >>

>> >> Amy

>> >> Mom to Makenna, 3. In 3rd cast from Chicago Shriners

>> >>

>> >

>> >

>> >

>> >

>> >

>> >

>> >

>>

>

>

>

>

>

>

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I am pretty grateful they gave her those hours, I didn't even think about it

until my Mom told me to apply. It was very easy, usually your doctor puts in

the referal, I called the Visiting Nurses Association and did an over the phone

interview. They ask questions about care, do they need help bathing, dressing,

toileting, positioning in bed, emotional development, and things like that. I

can only explain how Vermont works, but we have extensive early intervention

services and you can contact anyone including Children With Special Health

Needs, Family Network, Medicaid, our daughter has Dr. Dynasaur (currently

applying for Beckett).

If you apply for Beckett (insurance for disabled children, no income

limits) or the State Children's Health Insurance they offer these kinds of

services , more info at

www.cms.hhs.gov/home/schip.asp or look up Children With Special Health Needs..

OK..too much information, I'm a fast typer..I know many mom's on here probably

don't considered their children disabled, but technically they fit the

definition so if it helps you and your child out to get services you need..?

> >> >>

> >> >> I use sick, vacation, personal, etc. days depending on what I have

> >>available.  When Grace has had surgery I still have to use those

> >> leaves in

> >>order to be paid, but my job is " safe " because I file for

> >> FMLA.  Employers

> >>CAN require you to file your time loss under FMLA

> >> for even the single days

> >>or for most kids, even sick days.  But so far my employer doesn't

> >> realize

> >>that and I haven't pointed it out! :)

> >> >>  

> >> >> Jane

> >> >>

> >> >>

> >> >>

> >> >>

> >> >> ____________ _________ _________ __

> >> >> From: Amy <amscales11@ ..>

> >> >> infantile scoliosis treatment @groups. com

> >> >> Sent: Tue, July 6, 2010 10:32:51 AM

> >> >> Subject: [infantile_scoliosi s] Time off from Work

> >> >>

> >> >>  

> >> >> I used all my vacation time this last year on Makenna's doctors

> >>appointments. Is everyone else using vacation days for casting? Just

> >> curious...

> >>I coach gymnastics, so the business isn't very big - not like we have a

> >> human

> >>resource department :) LOL> So, I was just wondering what these medical

> >> days are

> >>technically counted as in the " real world " .

> >> >>

> >> >> Amy

> >> >> Mom to Makenna, 3. In 3rd cast from Chicago Shriners

> >> >>

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >

> >>

> >

> >

> >

> >

> >

> >

>

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Guest guest

I hate to disagree, but it isn't always the fact that our children are considered "disabled". Even though Grace has had numerous medical conditions since she was born, because it doesn't keep her from typical day to day activities for her age (baths and whatnot are not included), our state does not recognize her as "disabled". I have looked it up not for getting additional help, but to at least claim her as disabled on our taxes.

This is a blurb re: the medical portion:

Medical Eligibility

Along with meeting the financial requirements, your child must meet all of Social Security's disability rules. Your child cannot be working and earning over $1,000 a month as of May 2010 (the amount changes every year) or the SSA will consider your child not disabled. In addition, your child must have a medical condition (physical, mental or both) that causes him to be severely limited in his daily living activities. Moreover, a child will only be considered disabled by the SSA if his medical condition has lasted or is expected to last for 12 months or more, or result in death.

Read more: SSI Disability Requirements for Children | eHow.com http://www.ehow.com/list_6496340_ssi-disability-requirements-children.html#ixzz0t7imZ86t

In addition, we are a two income household, and while we don't make that much per year, we are WAY over the amount allowed in our state to claim disability.

Congrats to those of you who have been successful, but please don't say as a blanket statement that "kids with scoliosis qualify". There are many factors into qualifying.

Jane

From: luckyvtmama <amibeautinet@...>infantile scoliosis treatment Sent: Thu, July 8, 2010 11:52:45 AMSubject: Re: Time off from Work

I am pretty grateful they gave her those hours, I didn't even think about it until my Mom told me to apply. It was very easy, usually your doctor puts in the referal, I called the Visiting Nurses Association and did an over the phone interview. They ask questions about care, do they need help bathing, dressing, toileting, positioning in bed, emotional development, and things like that. I can only explain how Vermont works, but we have extensive early intervention services and you can contact anyone including Children With Special Health Needs, Family Network, Medicaid, our daughter has Dr. Dynasaur (currently applying for Beckett). If you apply for Beckett (insurance for disabled children, no income limits) or the State Children's Health Insurance they offer these kinds of services , more info at www.cms.hhs.gov/home/schip.asp or look up Children With Special Health Needs..OK..too much information, I'm a fast typer..I know

many mom's on here probably don't considered their children disabled, but technically they fit the definition so if it helps you and your child out to get services you need..? > >> >>> >> >> I use sick, vacation, personal, etc. days depending on what I have> >>available. When Grace has had surgery I still have to use those> >> leaves

in> >>order to be paid, but my job is "safe" because I file for> >> FMLA. Employers> >>CAN require you to file your time loss under FMLA> >> for even the single days> >>or for most kids, even sick days. But so far my employer doesn't> >> realize> >>that and I haven't pointed it out! :)> >> >>  > >> >> Jane> >> >>> >> >>> >> >>> >> >>> >> >> ____________ _________ _________ __> >> >> From: Amy <amscales11@ ..>> >> >> infantile scoliosis treatment @groups. com> >> >> Sent: Tue, July 6, 2010 10:32:51 AM> >> >> Subject:

[infantile_scoliosi s] Time off from Work> >> >>> >> >>  > >> >> I used all my vacation time this last year on Makenna's doctors> >>appointments. Is everyone else using vacation days for casting? Just> >> curious...> >>I coach gymnastics, so the business isn't very big - not like we have a> >> human> >>resource department :) LOL> So, I was just wondering what these medical> >> days are> >>technically counted as in the "real world".> >> >>> >> >> Amy> >> >> Mom to Makenna, 3. In 3rd cast from Chicago Shriners> >> >>> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >>> >>

>> >> >> >> >>

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This is really interesting. Does anyone know what California's rules are? It sounds like it varies a lot from state to state. Heidi, Bexon's Mommy, (3 years old, in 7th cast from Salt Lake City Shriners, currently down from 62 degrees to 19.7 in cast)From: Jane Bigler <janemhar@...>infantile scoliosis treatment Sent: Thu, July 8, 2010 1:13:42 PMSubject: Re: Re: Time off from Work

I hate to disagree, but it isn't always the fact that our children are considered "disabled". Even though Grace has had numerous medical conditions since she was born, because it doesn't keep her from typical day to day activities for her age (baths and whatnot are not included), our state does not recognize her as "disabled". I have looked it up not for getting additional help, but to at least claim her as disabled on our taxes.

This is a blurb re: the medical portion:

Medical Eligibility

Along with meeting the financial requirements, your child must meet all of Social Security's disability rules. Your child cannot be working and earning over $1,000 a month as of May 2010 (the amount changes every year) or the SSA will consider your child not disabled. In addition, your child must have a medical condition (physical, mental or both) that causes him to be severely limited in his daily living activities. Moreover, a child will only be considered disabled by the SSA if his medical condition has lasted or is expected to last for 12 months or more, or result in death.

Read more: SSI Disability Requirements for Children | eHow.com http://www.ehow. com/list_ 6496340_ssi- disability- requirements- children. html#ixzz0t7imZ8 6t

In addition, we are a two income household, and while we don't make that much per year, we are WAY over the amount allowed in our state to claim disability.

Congrats to those of you who have been successful, but please don't say as a blanket statement that "kids with scoliosis qualify". There are many factors into qualifying.

Jane

From: luckyvtmama <amibeautinet>infantile scoliosis treatment @groups. comSent: Thu, July 8, 2010 11:52:45 AMSubject: [infantile_scoliosi s] Re: Time off from Work

I am pretty grateful they gave her those hours, I didn't even think about it until my Mom told me to apply. It was very easy, usually your doctor puts in the referal, I called the Visiting Nurses Association and did an over the phone interview. They ask questions about care, do they need help bathing, dressing, toileting, positioning in bed, emotional development, and things like that. I can only explain how Vermont works, but we have extensive early intervention services and you can contact anyone including Children With Special Health Needs, Family Network, Medicaid, our daughter has Dr. Dynasaur (currently applying for Beckett). If you apply for Beckett (insurance for disabled children, no income limits) or the State Children's Health Insurance they offer these kinds of services , more info at www.cms.hhs. gov/home/ schip.asp or look up Children With Special Health

Needs..OK..too much information, I'm a fast typer..I know

many mom's on here probably don't considered their children disabled, but technically they fit the definition so if it helps you and your child out to get services you need..? > >> >>> >> >> I use sick, vacation, personal, etc. days depending on what I have> >>available. When Grace has had surgery I still have to use those> >> leaves

in> >>order to be paid, but my job is "safe" because I file for> >> FMLA. Employers> >>CAN require you to file your time loss under FMLA> >> for even the single days> >>or for most kids, even sick days. But so far my employer doesn't> >> realize> >>that and I haven't pointed it out! :)> >> >>  > >> >> Jane> >> >>> >> >>> >> >>> >> >>> >> >> ____________ _________ _________ __> >> >> From: Amy <amscales11@ ..>> >> >> infantile scoliosis treatment @groups. com> >> >> Sent: Tue, July 6, 2010 10:32:51 AM> >> >> Subject:

[infantile_scoliosi s] Time off from Work> >> >>> >> >>  > >> >> I used all my vacation time this last year on Makenna's doctors> >>appointments. Is everyone else using vacation days for casting? Just> >> curious...> >>I coach gymnastics, so the business isn't very big - not like we have a> >> human> >>resource department :) LOL> So, I was just wondering what these medical> >> days are> >>technically counted as in the "real world".> >> >>> >> >> Amy> >> >> Mom to Makenna, 3. In 3rd cast from Chicago Shriners> >> >>> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >>> >>

>> >> >> >> >>

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the biggest factor: $

I feel for anyone having to apply for SSI. SSI was adamant that Liv was

not disabled...even though she spent months in hospital per yr in halo for

scoli, had a severely twisted spine at 9 months of age and wore plaster

for over 6 yrs! I am a single mom and had to make a choice to live at

poverty level just to get SSI for Liv. A choice that was not easy, but

necessary....When your child is hospitalized for months out of state, and

you are unable to work, help is needed.... Its criminal that we have to

fight for this on top of everything else. I think your childs disability

level should be determined by the parent w/ docs confirmation.

My 2 cents,

HRH

> I hate to disagree, but it isn't always the fact that our children are

> considered " disabled " .  Even though Grace has had numerous medical

> conditions

> since she was born, because it doesn't keep her from typical day to day

> activities for her age (baths and whatnot are not included), our state

> does not

> recognize her as " disabled " .  I have looked it up not for getting

> additional

> help, but to at least claim her as disabled on our taxes. 

>

>

> This is a blurb re: the medical portion:

>

> Medical Eligibility

>  

> Along with meeting the financial requirements, your child must meet all of

> Social Security's disability rules. Your child cannot be working and

> earning

> over $1,000 a month as of May 2010 (the amount changes every year) or the

> SSA

> will consider your child not disabled. In addition, your child must have a

> medical condition (physical, mental or both) that causes him to be

> severely

> limited in his daily living activities. Moreover, a child will only be

> considered disabled by the SSA if his medical condition has lasted or is

> expected to last for 12 months or more, or result in death.

>

>

> Read more: SSI Disability Requirements for Children | eHow.com

>

http://www.ehow.com/list_6496340_ssi-disability-requirements-children.html#ixzz0\

t7imZ86t

>

>

>

> In addition, we are a two income household, and while we don't make that

> much

> per year, we are WAY over the amount allowed in our state to claim

> disability.

>

> Congrats to those of you who have been successful, but please don't

> say as a

> blanket statement that " kids with scoliosis qualify " .  There are many

> factors

> into qualifying.

>  

> Jane

>

>

>

>

> ________________________________

> From: luckyvtmama <amibeautinet@...>

> infantile scoliosis treatment

> Sent: Thu, July 8, 2010 11:52:45 AM

> Subject: Re: Time off from Work

>

>  

> I am pretty grateful they gave her those hours, I didn't even think about

> it

> until my Mom told me to apply. It was very easy, usually your doctor puts

> in the

> referal, I called the Visiting Nurses Association and did an over the

> phone

> interview. They ask questions about care, do they need help bathing,

> dressing,

> toileting, positioning in bed, emotional development, and things like

> that. I

> can only explain how Vermont works, but we have extensive early

> intervention

> services and you can contact anyone including Children With Special Health

> Needs, Family Network, Medicaid, our daughter has Dr. Dynasaur (currently

> applying for Beckett).

>

> If you apply for Beckett (insurance for disabled children, no income

> limits) or the State Children's Health Insurance they offer these kinds of

> services , more info at

>

> www.cms.hhs.gov/home/schip.asp or look up Children With Special Health

> Needs..

>

> OK..too much information, I'm a fast typer..I know many mom's on here

> probably

> don't considered their children disabled, but technically they fit the

> definition so if it helps you and your child out to get services you

> need..?

>

>

>

>> >> >>

>> >> >> I use sick, vacation, personal, etc. days depending on what I have

>> >>available.  When Grace has had surgery I still have

>> to use those

>> >> leaves in

>> >>order to be paid, but my job is " safe " because I

>> file for

>> >> FMLA.  Employers

>> >>CAN require you to file your time loss under FMLA

>> >> for even the single days

>> >>or for most kids, even sick days.  But so far my

>> employer doesn't

>> >> realize

>> >>that and I haven't pointed it out! :)

>> >> >>  

>> >> >> Jane

>> >> >>

>> >> >>

>> >> >>

>> >> >>

>> >> >> ____________ _________ _________ __

>> >> >> From: Amy <amscales11@ ..>

>> >> >> infantile scoliosis treatment @groups. com

>> >> >> Sent: Tue, July 6, 2010 10:32:51 AM

>> >> >> Subject: [infantile_scoliosi s] Time off from Work

>> >> >>

>> >> >>  

>> >> >> I used all my vacation time this last year on Makenna's doctors

>> >>appointments. Is everyone else using vacation days for casting? Just

>> >> curious...

>> >>I coach gymnastics, so the business isn't very big - not like we have

>> a

>> >> human

>> >>resource department :) LOL> So, I was just wondering what these

>> medical

>> >> days are

>> >>technically counted as in the " real world " .

>> >> >>

>> >> >> Amy

>> >> >> Mom to Makenna, 3. In 3rd cast from Chicago Shriners

>> >> >>

>> >> >

>> >> >

>> >> >

>> >> >

>> >> >

>> >> >

>> >> >

>> >>

>> >

>> >

>> >

>> >

>> >

>> >

>>

>

>

>

>

>

>

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I am sorry you found my post offensive when I was only trying to be helpful.

For clarification I am quite familiar with the rules of SSI for unique

circumstances of my own, my job. I was 1. speaking of Medicaid which is based

on income, and personal care services are not decided by disability but by need.

and 2. Children with Special Health Needs medicaid waiver which is based on the

income of the child (usually $0 unless they have a big trust fund somewhere),

not the parents and is called different things in different states. This is

based on the SSI defintion but is NOT SSI. Sorry for the misunderstanding and

your frustration.

As for the day to day activities, it does affect us. My daughter lives to swim,

and she has to watch while everyone else swims in grandma's pool. Every summer

activity we do involves water. She can't bathe. She opens the door and says it's

too hot to go outside so is stuck inside. She can't play at her favorite

playground b/c it is all sand. This may seem like small stuff but we live 40

minutes from the nearest town, so for her it does limit her day to day

activities, severely. She needs help getting in and out of chairs, positioning

in bed, getting dressed, putting her shoes on, she was flying solo in gymnastics

but I now have to go with her on the floor. These are all things she could do

before getting her cast. They are worth it, but they are limitations. And it

does depend on the State you live in..baths are considered under the " self care "

and " health " sections for the Beckett application. But you are right,

there is not a blanket statement that fits everyone, and I should have been more

considerate.

-Ami

Mom to Abigail double S 45 down to 24 in 1st cast

ial TGA/VSD/ASD with C-Curve

> > >> >>

> > >> >> I use sick, vacation, personal, etc. days depending on what I have

> > >>available.ÃÆ'‚  When Grace has had surgery I still have to

use those

> > >> leaves in

> > >>order to be paid, butÃÆ'‚ my job is " safe " because I file

for

> > >> FMLA.ÃÆ'‚  Employers

> > >>CAN require you to file your time lossÃÆ'‚ under FMLA

> > >> forÃÆ'‚ even the single days

> > >>or for most kids, even sick days.ÃÆ'‚  But so far my

employer doesn't

> > >> realize

> > >>that and I haven't pointed it out! :)

> > >> >> ÃÆ'‚ 

> > >> >> Jane

> > >> >>

> > >> >>

> > >> >>

> > >> >>

> > >> >> ____________ _________ _________ __

> > >> >> From: Amy <amscales11@ ..>

> > >> >> infantile scoliosis treatment @groups. com

> > >> >> Sent: Tue, July 6, 2010 10:32:51 AM

> > >> >> Subject: [infantile_scoliosi s] Time off from Work

> > >> >>

> > >> >> ÃÆ'‚ 

> > >> >> I used all my vacation time this last year on Makenna's doctors

> > >>appointments. Is everyone else using vacation days for casting? Just

> > >> curious...

> > >>I coach gymnastics, so the business isn't very big - not like we have a

> > >> human

> > >>resource department :) LOL> So, I was just wondering what these medical

> > >> days are

> > >>technically counted as in the " real world " .

> > >> >>

> > >> >> Amy

> > >> >> Mom to Makenna, 3. In 3rd cast from Chicago Shriners

> > >> >>

> > >> >

> > >> >

> > >> >

> > >> >

> > >> >

> > >> >

> > >> >

> > >>

> > >

> > >

> > >

> > >

> > >

> > >

> >

>

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Heidi,

This is the website for CA Children With Special Health Needs

http://www.dhs.ca.gov/pcfh/cms/ccs/

This is the National Dissemination Center for Children with Disabilities..

This is the website to search by State all agencies including

health/advocates/parent groups/education groups for children with dsabilities

http://www.nichcy.org/Pages/StateSpecificInfo.aspx?State=CA

hope you find something helpful :)

-Ami

> > >> >>

> > >> >> I use sick, vacation, personal, etc. days depending on what I have

> > >>available.ÃÆ'‚ÂÂ When Grace has had surgery I still have to

use those

> > >> leaves in

> > >>order to be paid, butÃÆ'‚ÂÂ my job is " safe " because I file

for

> > >> FMLA.ÃÆ'‚ÂÂ Employers

> > >>CAN require you to file your time lossÃÆ'‚ÂÂ under FMLA

> > >> forÃÆ'‚ÂÂ even the single days

> > >>or for most kids, even sick days.ÃÆ'‚ÂÂ But so far my

employer doesn't

> > >> realize

> > >>that and I haven't pointed it out! :)

> > >> >> ÃÆ'‚ÂÂ

> > >> >> Jane

> > >> >>

> > >> >>

> > >> >>

> > >> >>

> > >> >> ____________ _________ _________ __

> > >> >> From: Amy <amscales11@ ..>

> > >> >> infantile scoliosis treatment @groups. com

> > >> >> Sent: Tue, July 6, 2010 10:32:51 AM

> > >> >> Subject: [infantile_scoliosi s] Time off from Work

> > >> >>

> > >> >> ÃÆ'‚ÂÂ

> > >> >> I used all my vacation time this last year on Makenna's doctors

> > >>appointments. Is everyone else using vacation days for casting? Just

> > >> curious...

> > >>I coach gymnastics, so the business isn't very big - not like we have a

> > >> human

> > >>resource department :) LOL> So, I was just wondering what these medical

> > >> days are

> > >>technically counted as in the " real world " .

> > >> >>

> > >> >> Amy

> > >> >> Mom to Makenna, 3. In 3rd cast from Chicago Shriners

> > >> >>

> > >> >

> > >> >

> > >> >

> > >> >

> > >> >

> > >> >

> > >> >

> > >>

> > >

> > >

> > >

> > >

> > >

> > >

> >

>

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Thank you, Ami! : ) I don't know if Bex would qualify, but it is good to find out. He does have all of the same needs you mentioned, but we have regular health insurance currently, not Medicaid. Our big issue is whether he really can't go to preschool because of the sand and water issues- especially sand. I'm torn, but we may have to decide to opt out. Very sweet of you to post these links! Heidi, Bexon's Mommy, (3 years old, in 7th cast from Salt Lake City Shriners, currently down from 62 degrees to 19.7 in cast)

From: luckyvtmama <amibeautinet@...>infantile scoliosis treatment Sent: Fri, July 9, 2010 8:33:38 PMSubject: Re: Time off from Work

Heidi,This is the website for CA Children With Special Health Needshttp://www.dhs.ca.gov/pcfh/cms/ccs/This is the National Dissemination Center for Children with Disabilities..This is the website to search by State all agencies including health/advocates/parent groups/education groups for children with dsabilities http://www.nichcy.org/Pages/StateSpecificInfo.aspx?State=CAhope you find something helpful :)-Ami > > >> >>> > >> >> I use

sick, vacation, personal, etc. days depending on what I have> > >>available.ÃÆ'‚ÂÂ When Grace has had surgery I still have to use those> > >> leaves in> > >>order to be paid, butÃÆ'‚ÂÂ my job is "safe" because I file for> > >> FMLA.ÃÆ'‚ÂÂ Employers> > >>CAN require you to file your time lossÃÆ'‚ÂÂ under FMLA> > >> forÃÆ'‚ÂÂ even the single days> > >>or for most kids, even sick days.ÃÆ'‚ÂÂ But so far my employer doesn't> > >> realize> > >>that and I haven't pointed it out! :)> > >> >> ÃÆ'‚ÂÂ > > >> >> Jane> > >> >>> >

>> >>> > >> >>> > >> >>> > >> >> ____________ _________ _________ __> > >> >> From: Amy <amscales11@ ..>> > >> >> infantile scoliosis treatment @groups. com> > >> >> Sent: Tue, July 6, 2010 10:32:51 AM> > >> >> Subject: [infantile_scoliosi s] Time off from Work> > >> >>> > >> >> ÃÆ'‚ÂÂ > > >> >> I used all my vacation time this last year on Makenna's doctors> > >>appointments. Is everyone else using vacation days for casting? Just> > >> curious...> > >>I coach gymnastics, so the business isn't very big - not like we have a> > >> human> > >>resource department :) LOL> So, I was just wondering what these

medical> > >> days are> > >>technically counted as in the "real world".> > >> >>> > >> >> Amy> > >> >> Mom to Makenna, 3. In 3rd cast from Chicago Shriners> > >> >>> > >> >> > >> >> > >> >> > >> >> > >> >> > >> >> > >> >> > >>> > >> > >> > >> > >> > >> > >> >>

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Your welcome Heidi :)

OK, my computer crashed twice so this will be quick. Abby is going to preschool

in September and we hope to set up a 504 plan, federal law requires all children

with physical needs to be met in order to go to school. If sand and water will

keep Bex from school, and you don't object to public schools, you can set up a

504 plan with the school. If Bex needs a special chair, no water, no pushing

etc. that's what the plan is all about.

There is a great post on it here

http://www.scoliosis.org/forum/archive/index.php/t-1583.html

good luck!

-Ami

> > > >> >>

> > > >> >> I use sick, vacation, personal, etc. days depending on what I have

> > > >>available.ÃÆ'Æ'‚ÃÆ'‚Â When Grace has had

surgery I still have to use

> >those

> > > >> leaves in

> > > >>order to be paid, butÃÆ'Æ'‚ÃÆ'‚Â my job is

" safe " because I file

> for

> > > >> FMLA.ÃÆ'Æ'‚ÃÆ'‚Â Employers

> > > >>CAN require you to file your time

lossÃÆ'Æ'‚ÃÆ'‚Â under FMLA

> > > >> forÃÆ'Æ'‚ÃÆ'‚Â even the single days

> > > >>or for most kids, even sick days.ÃÆ'Æ'‚ÃÆ'‚Â

But so far my employer

> >doesn't

> > > >> realize

> > > >>that and I haven't pointed it out! :)

> > > >> >> ÃÆ'Æ'‚ÃÆ'‚Â

> > > >> >> Jane

> > > >> >>

> > > >> >>

> > > >> >>

> > > >> >>

> > > >> >> ____________ _________ _________ __

> > > >> >> From: Amy <amscales11@ ..>

> > > >> >> infantile scoliosis treatment @groups. com

> > > >> >> Sent: Tue, July 6, 2010 10:32:51 AM

> > > >> >> Subject: [infantile_scoliosi s] Time off from Work

> > > >> >>

> > > >> >> ÃÆ'Æ'‚ÃÆ'‚Â

> > > >> >> I used all my vacation time this last year on Makenna's doctors

> > > >>appointments. Is everyone else using vacation days for casting? Just

> > > >> curious...

> > > >>I coach gymnastics, so the business isn't very big - not like we have a

> > > >> human

> > > >>resource department :) LOL> So, I was just wondering what these medical

> > > >> days are

> > > >>technically counted as in the " real world " .

> > > >> >>

> > > >> >> Amy

> > > >> >> Mom to Makenna, 3. In 3rd cast from Chicago Shriners

> > > >> >>

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Guest guest

Your welcome Heidi :)

OK, my computer crashed twice so this will be quick. Abby is going to preschool

in September and we hope to set up a 504 plan, federal law requires all children

with physical needs to be met in order to go to school. If sand and water will

keep Bex from school, and you don't object to public schools, you can set up a

504 plan with the school. If Bex needs a special chair, no water, no pushing

etc. that's what the plan is all about.

There is a great post on it here

http://www.scoliosis.org/forum/archive/index.php/t-1583.html

good luck!

-Ami

> > > >> >>

> > > >> >> I use sick, vacation, personal, etc. days depending on what I have

> > > >>available.ÃÆ'Æ'‚ÃÆ'‚Â When Grace has had

surgery I still have to use

> >those

> > > >> leaves in

> > > >>order to be paid, butÃÆ'Æ'‚ÃÆ'‚Â my job is

" safe " because I file

> for

> > > >> FMLA.ÃÆ'Æ'‚ÃÆ'‚Â Employers

> > > >>CAN require you to file your time

lossÃÆ'Æ'‚ÃÆ'‚Â under FMLA

> > > >> forÃÆ'Æ'‚ÃÆ'‚Â even the single days

> > > >>or for most kids, even sick days.ÃÆ'Æ'‚ÃÆ'‚Â

But so far my employer

> >doesn't

> > > >> realize

> > > >>that and I haven't pointed it out! :)

> > > >> >> ÃÆ'Æ'‚ÃÆ'‚Â

> > > >> >> Jane

> > > >> >>

> > > >> >>

> > > >> >>

> > > >> >>

> > > >> >> ____________ _________ _________ __

> > > >> >> From: Amy <amscales11@ ..>

> > > >> >> infantile scoliosis treatment @groups. com

> > > >> >> Sent: Tue, July 6, 2010 10:32:51 AM

> > > >> >> Subject: [infantile_scoliosi s] Time off from Work

> > > >> >>

> > > >> >> ÃÆ'Æ'‚ÃÆ'‚Â

> > > >> >> I used all my vacation time this last year on Makenna's doctors

> > > >>appointments. Is everyone else using vacation days for casting? Just

> > > >> curious...

> > > >>I coach gymnastics, so the business isn't very big - not like we have a

> > > >> human

> > > >>resource department :) LOL> So, I was just wondering what these medical

> > > >> days are

> > > >>technically counted as in the " real world " .

> > > >> >>

> > > >> >> Amy

> > > >> >> Mom to Makenna, 3. In 3rd cast from Chicago Shriners

> > > >> >>

> > > >> >

> > > >> >

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  • 10 months later...
Guest guest

I flew on a Weds, surgery Thursday, home Sunday, and went back to work on Monday, so you should be just fine.  I wish I had taken a couple more days off because I was pretty tired, but otherwise ok.

 

Danae (who ran 4 miles yesterday in training for a 10K on 6/11!!)

 

 

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