Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 Can you also let us know what reading materials he recommended? Thanks, Carol Dr In a message dated 8/11/03 11:24:36 PM Central Daylight Time, dawfogle@... writes: << I just wanted to comment that my son recently went to see him and he ordered numerous serological tests (not as many as Dr. G's protocal) for my son before medications would even be started and was very open to my thoughts on everything I had been reading and gave me a wealth of information to read. <other good stuff snipped> It all depends on the child and their progress (plus what he sees in the lab testing-which he does every 6 weeks). >> It's very good to hear that he's now ordering tests and lab testing every 6 weeks. The several other folks I know who saw him a bit longer ago said he diagnosed their kids' viral problems only with a strange ear test. If you don't mind sharing, what tests did he order and what tests does he run every 6 weeks? Gaylen ______________________________ `````````````````````````````` Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. ``````````````````````````````````````` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2003 Report Share Posted August 13, 2003 > If you don't mind sharing, what tests did he order and what tests does he run > every 6 weeks? > Gaylen He ordered the following for my son: cortisol level TSH Chem 7 (or SMA7 whichever you prefer) GH level He did not order the viral titer because he believes that the virus is in the inner ear. He looks through the childs history and the family history plus in office testing to see if your child is a potential patient for this. I know that all of you guys want proof of a virus being present before any anti-viral drugs are administered, but I believe my son has a viral problem (test or no test) and if this is one way of getting the medications he needs then I will do it this way. I understand that you all like the goldberg way of doing things but there are many other ways. I really got on this board to just get ideas on what to expect with anti-viral therapy, not to compare docs. I like Dr. and being a health practitioner myself believe in all that he is doing for my son. The reading materials were his theory on things and a study that was done on child with one of the medications he gave my son (provigil). He also gave my information about why neurotransmitters willnot cross blood-brain, as I was giving my son up to 6 pills a day just for this. I guess what I am trying to say is I think everyone should find out about docs on their own or talk with patients of his before making the decision not to follow there treatment plan. Just my $0.02, Dena Mother of Hayden (3yrs PPD-NOS) ______________________________ `````````````````````````````` Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. `````````````````````````````````````` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2003 Report Share Posted August 13, 2003 Dena, Another thing Dr. G looked at in my son (in looking for viruses) was his low white blood cell count and the fact that he had hypotonia (low muscle tone) as possible clues to an underlying virus even though nothing showed up in his " virus " labs. When we put my child on Valtrex, his muscle tone " normalized " , according to a pediatric specialist he had seen for years, and he began to have normal reflexes where he had had NONE before. Just thought you might be interested. I find it really interesting that Dr. believes a virus can affect the inner ear, as I have a hearing loss on one side which was attributed to my horrendous case of chicken pox when I was young. That inner ear has always been very tender and just feels different than the other ear, even though they told me it was nerve deafness. I always wonder about it. Caroline > On 8/12/03 6:12 PM, " dawfogle " <dawfogle@...> wrote: > I know that all of you guys want proof > of a virus being present before any anti-viral drugs are > administered, but I believe my son has a viral problem (test or no > test) and if this is one way of getting the medications he needs > then I will do it this way. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2003 Report Share Posted August 13, 2003 Dena, If I offended you with my comments about Dr. , I apologize. My comments were meant mainly to share info I'd gathered from several parents of kids who are or have seen Dr. , and a doctor who sends patients to him and is following several cases, on how his methods differed from Dr. Goldberg's. I fully agree that anyone planning to see a particular doctor should try to talk with current patients themselves and make up their own mind about if the doc is appropriate for their child (since every child is so different). But if you're willing to discuss your understanding of his experience/thoughts further, I think it might be helpful to those of us trying to learn as much as we can about viral issues and various treatment methods. For example: << He did not order the viral titer because he believes that the virus is in the inner ear.>> Does he believe the virus has settled only in the inner ear and nowhere else in the body? If so, is this like a chronic ear infection of sorts? Does he see that his patients who respond better to his treatment tend to have lots of balance problems or other symptoms usually associated with the inner ear? or tend to complain of more ear infections that can't be treated well? The inner ear theory would correspond with vestibular problems and a feeling of being off in general. << He looks through the childs history and the family history plus in office testing to see if your child is a potential patient for this. I know that all of you guys want proof of a virus being present before any anti-viral drugs are administered, >> Actually, many of the kids helped with do not show elevated viral titers at first and some never do because their bodies are not able to fight off the virus (and thus develop titers) until awhile into viral supression. Dr. G also uses history quite a bit in determining whether or not to treat a virus and does not require elevated titers for treatment. Most of the tests he refers to check for how the immune system in general is doing. <<The reading materials were his theory on things and a study that was done on child with one of the medications he gave my son (provigil).>> I've been hearing a little bit about this treatment through the grapevine and find it interesting. How is your son doing on Provigil? Gaylen _______________________________ ```````````````````````````````` Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. --------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2003 Report Share Posted August 13, 2003 > If I offended you with my comments about Dr. , I apologize. No, I was not offended and you don't need to apologize. > Does he believe the virus has settled only in the inner ear and nowhere else > in the body? He believes it is the inner ear only. Not really the ear infections as it is the whole vestibular system, thus causing the SID symptoms. Does he > see that his patients who respond better to his treatment tend to have lots of > balance problems or other symptoms usually associated with the inner ear? From the reading is those who orignally started him in treating ASD children. He treated vertigo and such. Related their symptoms to ASD and SID. > I've been hearing a little bit about this treatment through the grapevine and find it interesting. How is your son doing on Provigil? Hayden is doing well on it. He seems much more focused during therapy and he is no longer wearing his weighted vest for all sessions. Haven't seen any side effects so far. I will let you know how it goes. Dena ______________________________ `````````````````````````````` Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. `````````````````````````````````````` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 Dena, Dr. is an ENT, right? Do you know by any chance which medical school he went to and where he did his residency? thanks, Timary > > > If I offended you with my comments about Dr. , I apologize. > > No, I was not offended and you don't need to apologize. > > > > Does he believe the virus has settled only in the inner ear and > nowhere else > > in the body? > He believes it is the inner ear only. Not really the ear infections > as it is the whole vestibular system, thus causing the SID symptoms. > Does he > > see that his patients who respond better to his treatment tend to > have lots of > > balance problems or other symptoms usually associated with the > inner ear? From the reading is those who orignally started him in > treating ASD children. He treated vertigo and such. Related their > symptoms to ASD and SID. > > > I've been hearing a little bit about this treatment through the > grapevine and find it interesting. How is your son doing on > Provigil? > > Hayden is doing well on it. He seems much more focused during > therapy and he is no longer wearing his weighted vest for all > sessions. Haven't seen any side effects so far. I will let you > know how it goes. > > > Dena > > ______________________________ > `````````````````````````````` > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > `````````````````````````````````````` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 What is Provigil? What type of drug is it? What does it treat? Kathy Re: Dr > If I offended you with my comments about Dr. , I apologize. No, I was not offended and you don't need to apologize. > Does he believe the virus has settled only in the inner ear and nowhere else > in the body? He believes it is the inner ear only. Not really the ear infections as it is the whole vestibular system, thus causing the SID symptoms. Does he > see that his patients who respond better to his treatment tend to have lots of > balance problems or other symptoms usually associated with the inner ear? From the reading is those who orignally started him in treating ASD children. He treated vertigo and such. Related their symptoms to ASD and SID. > I've been hearing a little bit about this treatment through the grapevine and find it interesting. How is your son doing on Provigil? Hayden is doing well on it. He seems much more focused during therapy and he is no longer wearing his weighted vest for all sessions. Haven't seen any side effects so far. I will let you know how it goes. Dena ______________________________ `````````````````````````````` Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. `````````````````````````````````````` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 > Dena, Dr. is an ENT, right? Do you know by any chance which > medical school he went to and where he did his residency? > He went to UTMB in Texas. He did three residencies in Houston and in Dallas. His CV is on his website www.necs.us . Click on about the doctor and it will come up and answer these questions in detail. Dena ______________________________ `````````````````````````````` Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. ``````````````````````````````````````` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 > What is Provigil? What type of drug is it? What does it treat? Provigil is a drug initally marketed to treat nacolepsy. It is the first on a new class of wake-promoting drugs that works at the cortex of the brain and not through dopaminergic mechanisms. In a study done on children with ADHD the findings were that the children treated with provigil were more alert and attended to things with much more depth then before drug therapy with initiated. The doc said that it would make him more aware of what is going on and even help with his motor skills, in that he would be able to attended to what he wanted to do and would have better motor planning. Hayden is much more aware of what is going on, but he is still very stimmy which I was hoping would decrease with the awareness (but now I have been reading that it usually increases....hmmmmmm). Dena ______________________________ `````````````````````````````` Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. ``````````````````````````````````````` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2003 Report Share Posted August 15, 2003 Dena - are you sure the website is www.necs.us? I tried it and I get something else.. timary > > Dena, Dr. is an ENT, right? Do you know by any chance > which > > medical school he went to and where he did his residency? > > > He went to UTMB in Texas. He did three residencies in Houston and in > Dallas. His CV is on his website www.necs.us . Click on about the > doctor and it will come up and answer these questions in detail. > > Dena > > ______________________________ > `````````````````````````````` > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > ``````````````````````````````````````` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2003 Report Share Posted August 15, 2003 oops! I goofed! It is www.neca.us not necs-so sorry! Dena > > ______________________________ > > `````````````````````````````` > > Responsibility for the content of this message lies strictly with > > the original author, and is not necessarily endorsed by or the > > opinion of the Research Institute. > > ``````````````````````````````````````` Quote Link to comment Share on other sites More sharing options...
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