Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 Hi, Ruth here. THIS IS VIP STUFF AS FAR AS I'M CONCERNED!!!!!!!!!! A friend did some research for me and came up with a study on MCS by Pall, School of Molecular Biosciences, Washington State University, Pullman, WA. The study name is long but I will put it here for you in case you have read something about it: " NMDA sensitization and stimulation by peroxynitrite, nitric oxide, and organic solvents as the mechanism of chemical sensitivity in multiple chemical sensitivity. (2002) In the copy that my friend gave me, there is reference to a Dudley---here is a paragraph from that study about him---quote: Organic solvent action in MCS was first suggested to act via NMDA activity by Dudley based on clinical observations on his MCS patients (131). Dudley observed that the known NMDA antagonist, dextromethorphan, appeared to block the effects of organic solvents on his MCS patients. He prescribed dextromethorphan for his MCS patients on an episodic basis, suggesting they take it when unavoidably exposed to organic solvents or other triggers of MCS symptoms, reporting that the drug appeared to block or reverse the development of symptoms. In an interview (http://members.aol.com/DonationDrive/BrainMapping.html), Dudley described the effect of dextromethorphan as follows: " As a atreatment, blockers of glutamate and aspartate are used to stop the reaction before it gets started. Prior to treatment, a patient would walk by someone with perfume on and their whole day would be ruined, they're practically unable to think. With treatment, there is no reaction at all. " Two other physicians in Washington state, Gordon Baker and Buscher, have prescribed dextomethorphan for their MCS patients in a similar fashion, with apparently similar results (G. Baker and D. Buscher, personal communications). I have talked with two MCS patients who have used dextromethorphan on a episodic basis after unavoidable chemical exposure, and both observed that most of their symptoms were abrogated (eliminated--my word RR) by the drug. Ruth again---I nearly flipped out when I read this part of the study!!!!!!!!!!!!! I have NEVER EVER heard of anyone taking anything that stopped their symptoms dead in their tracks or prevented them in the first place. Have any of you ever been given this dextromethorphan for your MCS?? If so, PLEASE tell us about it. I plan to contact the author, L. Pall, since his email address is on the bottom of the page. Here it is: martin_pall@... in case any of you would like to join me in finding out more. Also, I want to connect with those other two docs out in Washington, Baker and Buscher. They should be in the phone book. This is just too good to be true, so I'm being cautious in my optimism, but hey! We need some encouragement!!!!!! Yesterday I accompanied my husband to Atlanta to Emory U. Hospital to have his PET scan done (prior to his surgery next Friday, the 18th) and while there, the room freshener on the walls of the rest rooms made me so ill, hard to breathe, and ruined my day. I was able to stay in the building though, with difficulty. Today it was another trip back to Atlanta, to Crawford :Long Hospital for heart and pulmonary tests for him---as soon as I entered the building, I had lung tightness---going to the rest room was difficult again, but they were not as strong smelling as the ones at Emory. I could not stay with my husband for his tests--I had to leave the building and sit outdoors most of the day!!!!!! We did have lunch in the cafeteria, but that was not without difficulty. I'm telling you all this because he will have lung cancer surgery on Friday with a five day stay at Crawford Long Hospital. I do not know if I will be able to stay with him!!! I will ask ahead of time for some compensations, such as that no nurses be allowed in his room with perfume on, that I have an air filter machine in the room with us, and that they do not use strong smelling cleaners on the floors or furniture of his room while he is there. I don't know if I will have my requests met---we'll see. I plan to talk with his surgeon on Monday when we varify the surgical appt.---it's too late today to call them. They left a call for us while we were on our way home from Atlanta today. So we'll have to wait until Monday to talk with them. After today's trouble breathing over there, I'm so concerned about that 5 days in the hospital. His daughters are coming from NC and SC to be with him, also, at least for a couple of days---so I will be able to get a break. And of course, I can go outdoors as I need to. There is a lovely garden with tables off the main building. What a day!!!!!!!!!!! I used my Reiki energy on myself immediately when I got home---didn't do another thing---just grabbed some water and shed my duds and layed down with peaceful music and my Reiki for a good 30 minutes or so. I was able to calm myself almost immediately!!! (no wonder they are now using it in hospitals for surgical patients and their family members!) Please, folks, get back to me on my question for you about the treatment for MCS, if you know anything about it or have had it tried on you. Thanks and may God bless us all! Ruth Quote Link to comment Share on other sites More sharing options...
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