Re: a request of my neighbors who like pesticides

September 3, 2004

My experience has been that such requests often result in EXTRA

chemical use.

You've probably seen this yourself. Ask someone to decrease their

perfume/cologne load and the next time you see them, you'll notice

that they actually increased it.

Watch how much pesticide your neighbors apply next time you see them

out spraying.

I'll bet it will have increased.

Humans are interesting creatures.

-

September 3, 2004

My experience has been that such requests often result in EXTRA

chemical use.

You've probably seen this yourself. Ask someone to decrease their

perfume/cologne load and the next time you see them, you'll notice

that they actually increased it.

Watch how much pesticide your neighbors apply next time you see them

out spraying.

I'll bet it will have increased.

Humans are interesting creatures.

-

September 4, 2004

No tests for me either.

I came to my understanding of Stachy by insisting that I was reactive

to a substance that created certain symptoms.

I begged Drs for years to help me with this. It's even in my medical

records that I was asking Dr Cheney and Dr to help me find

out why mold was having this effect on me from the very beginning of

the Incline Village CFS epidemic.

But after all these years, not one doctor would help.

In fact almost all insisted that such reactivity was absolutely

impossible.

So I hired someone at great expense to help me identify which mold it

was and had the mycologist accompany me while I went around to

various colonies I had located. When we disturbed a mold that

knocked me flat, I said " That's the one " . It was Stachy.

So I didn't hear about Stachy and decide to become hysterical.

I responded to the sensation and discovered Stachy.

Now that I knew the name I spent years fighting with hundreds of

doctors, researchers, toxicologists, immunologists, mycologists, CFS

doctors and researcher, allergists and all but a handful of humans

about this response.

I asked Dr to help me research this effect but he also told

me that I was wrong.

So I just got a sample and learned by controlled exposure to identify

the feeling and devised an elaborate avoidance protocol. It was by

employing some of the tricks I've learned that I was able to identify

a spore plume in Dr Marinkovichs own reception room.

Pretty amazing to go to the top mold guy and diagnose him with " Sick

Reception Room " .

But the truly amazing thing was that after a year of concerted

avoidance of the mycotoxin response, my MCS abated.

When I described this to Cythia of CIIN, she told me that

Duehring had turned her attention to mycotoxins at the very

last. I feel very fortunate that I followed up this lead before I

was completely disabled.

As I've described before on this board, I've offered this

information to many of the most prominent CFS, MCS researchers over

the last six years with only one significant response from a doctor.

In 1998 I went to several CFS support groups and found people reeking

of mold and told my story only to find that the very people suffering

the most from these very mold specific complaints were more obstinate

and contradictory than the doctors.

Rather unfortunate for them, but that was their choice.

-

September 4, 2004

No tests for me either.

I came to my understanding of Stachy by insisting that I was reactive

to a substance that created certain symptoms.

I begged Drs for years to help me with this. It's even in my medical

records that I was asking Dr Cheney and Dr to help me find

out why mold was having this effect on me from the very beginning of

the Incline Village CFS epidemic.

But after all these years, not one doctor would help.

In fact almost all insisted that such reactivity was absolutely

impossible.

So I hired someone at great expense to help me identify which mold it

was and had the mycologist accompany me while I went around to

various colonies I had located. When we disturbed a mold that

knocked me flat, I said " That's the one " . It was Stachy.

So I didn't hear about Stachy and decide to become hysterical.

I responded to the sensation and discovered Stachy.

Now that I knew the name I spent years fighting with hundreds of

doctors, researchers, toxicologists, immunologists, mycologists, CFS

doctors and researcher, allergists and all but a handful of humans

about this response.

I asked Dr to help me research this effect but he also told

me that I was wrong.

So I just got a sample and learned by controlled exposure to identify

the feeling and devised an elaborate avoidance protocol. It was by

employing some of the tricks I've learned that I was able to identify

a spore plume in Dr Marinkovichs own reception room.

Pretty amazing to go to the top mold guy and diagnose him with " Sick

Reception Room " .

But the truly amazing thing was that after a year of concerted

avoidance of the mycotoxin response, my MCS abated.

When I described this to Cythia of CIIN, she told me that

Duehring had turned her attention to mycotoxins at the very

last. I feel very fortunate that I followed up this lead before I

was completely disabled.

As I've described before on this board, I've offered this

information to many of the most prominent CFS, MCS researchers over

the last six years with only one significant response from a doctor.

In 1998 I went to several CFS support groups and found people reeking

of mold and told my story only to find that the very people suffering

the most from these very mold specific complaints were more obstinate

and contradictory than the doctors.

Rather unfortunate for them, but that was their choice.

-

September 4, 2004

In a message dated 9/4/2004 10:44:40 AM Pacific Daylight Time,

erikj6@... writes:

But the truly amazing thing was that after a year of concerted

avoidance of the mycotoxin response, my MCS abated... and elaborate

avoidance protocol

That is, basically, my strategy - avoidance, avoidance, avoidance - that one

is emphasized by Dr. Kaye Kilburn as the single most important idea - that

continuing the exposures in any manner is going to make one sicker and sicker.

So I apply this to the MCS and the molds - which is a challenge as these are

in many buildings. Thus, I stay out of most of them and am extremely cautious

entering a new one (one I am not familiar with) - I note that the molds can

be " felt " - the air seems heavy and unpleasant - as if filled with fine

particulate matter - and I cannot get a good breath. When I note this, on a day

when I am being wise, I turn on my heels and do not go into the building/room.

This goes for chemicals too. Recently, I have been unable to go to the

dentist and eye doctor as a result of them being in sealed buildings where they

are

recirculating the chemicals they use daily, which are extremely noxious to

me. If I expose myself to these I react with an inflammatory reaction, similar

to arthritis, that lasts for weeks. I am learning.

I appreciate the comments of and - as well as others - your

experiences help us all to know what might work.

Further, having an Environmental Medicine type doctor is helpful - even if

they don't know everything we need them to know. I just found one in my area

and it is like a breath of fresh air (pun intended) - his office even has lots

of tiled floors, open windows and doors, with sea breeze coming through from

two blocks away from Pacific Ocean. What a find!

Thanks to , Jonathon, and all...

PS You should write a book - I would buy it....

September 4, 2004