Re: Digest Number 2089

[Guest guest]

In a message dated 10/7/2001 12:10:38 AM Eastern Daylight Time,

writes:

> Message: 5

> Date: Sat, 6 Oct 2001 09:05:59 -0400

> From: " philcome " <philcome@...>

> Subject: SSDI Application

>

> I know some of you are going through the " wonderful " experience of applying

> for SSDI.It took me five years and two applications to apply for it.I am

> offering some suggestions from what I learned from my mistakes in the

> process.

Was that for Lyme or something else?

Love ine, Miyagi & Teka

" There is no Psychiatrist in the world like a monkey kissing your face "

President of and proud member Chapter 58 of The Simian Society

www.simiansociety.org

[Guest guest]

In a message dated 3/4/2004 6:39:40 AM Mountain Standard Time,

writes:

A regular pediatrician does not have to have any background in typical and

atypical development. This is an elective as is nutrition

It wasn't an elective when I was in residency!!!! (which wasn't THAT long

ago LOL!) I think for most pediatricians some training in development is

absolutely a requirement. That is not true if you have a family medicine doc or

GP, however.

Janis MD

[Guest guest]

In a message dated 3/4/2004 8:48:15 AM Eastern Standard Time,

JanisG213@... writes:

> A regular pediatrician does not have to have any background in typical and

> atypical development. This is an elective as is nutrition

> It wasn't an elective when I was in residency!!!!

I hope nuitrition wasn't an elective either!

I have to say my pediatrician's are very well versed in development. However

the developmental pediatrician has more time to perform a thorough

evaluation of how your child's developing. She picked up on his Nystagmus and

she was

the one I ran to when his EI school psychologist said he was hyper-active and

needed medication (NOT!). I think she has given me great re-inforcement. I

would recommend folks establish a relationship with one so you have someone

who has at least seen your child. That is, of course if time and insurance

allow.

Liam's geneticist is also an endocrinologist who followed his slightly

abnormal thyroid levels after birth. Otherwise I don't think I would have taken

him

as much as I did. He also, is an excellent resource who I could call if I

needed to, since DS is one of his specialties.

Kathy, Liam's mom( 5)

[Guest guest]

Hi,

If I said something out of line regarding kids with DS staying in the

hospital overnight, I'm sorry if I was wrong if it is medically suggested. I

was

just going by personal experience, of 9 years ago when amanda had hers removed

and insurance companies were fighting with me that they wouldnt/couldnt keep her

over night.

I do remember them saying we could stay for up to 23 hours if she required

it.

I would not dream of differing with the medical profession-

[Guest guest]

In a message dated 3/5/2004 6:09:45 PM Central Standard Time,

jbocci55@... writes:

> No one ever informed me of this.....I wish they had. has gone under

> several times and has NEVER been held overnight. No one even mentioned it.

> Hmmmmmmm.......

>

> Jackie, Mom to 16ds, 13, and Bradley 10.

HI Jackie

Sara's has always come home after T & A and eye surgerys but not without

starting a steroid treatment. Once after eye surgery they left in her IV hookup

and

sent her home ........... for just in case.

Heart surgery we were told would be a week stay, they were wrong, it was a 3

week stay. We had more post problems but the surgery went great.

They also keep her over night for bouts of seizures. Last DEC was 3 days

Kathy mom to Sara 12

¸...¸ ___/ /\ \___ ¸...¸

,·´º o`·, /__/ _/\_ \__\ ,·´º o`·,

```)¨(´´´ | | | | | | | | | ```)¨(´´´

¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-.¸

As for me and my house, we will serve the Lord.

Josh. 24:15

[Guest guest]

My daughter works at our university teaching hospital here on the island and she

said it is a matter of course that when a hild with DS goes under anesthesia

they keep them overnight for observation. It is standard procedure and I know I

personally would take advantage of it. To many things can go wrong.

Loree

Re: Depression and DS?

In a message dated 3/4/2004 5:18:26 PM Pacific Standard Time,

linman42@... writes:

I just cant figure out if its her raging hormones from

puberty or diabetes or teenage- hood and how do you know when its more than

that

and someone needs meds?

If anyone has any insight into this, I'd appreciate hearing from you.

I can't offer advice as far as having a teenager with DS. My son, ,

is

going to be three this month. This much I do have personal experience with.

I have a teenage daughter (16) and I have type 1 diabetes since the age of

12. I know I was difficult for my mother at many times with the teenage

girl

hormones and during my teen years my diabetes wasn't under the best control

and

I know that added fuel to the fire. I wouldn't do meds just from one

meeting

with this person. How is her diabetic control? Does your daughter use

injections or the pump?I have a pump if you ever want advice on that. As

for my

teenage daughter, there has been many occasions where she has had me close

to

pulling out my hair with her emotional rollercoaster ride. I for one would

hold

off on meds until you really look into everything and the side effects of

the

medication they want to give her.

mom to Noelle 16, 13, almost 3 DS, and almost 2

[Guest guest]

No one ever informed me of this.....I wish they had. has gone under

several times and has NEVER been held overnight. No one even mentioned it.

Hmmmmmmm.......

Jackie, Mom to 16ds, 13, and Bradley 10.

[Guest guest]

Hi,

Whenever my son had surgery they did what is called a 23hr stay. Insurance

will not pay for overnight for the usually " SIMPLE " stuff. He had 23hr stay for

Adenoids. If a problem had arisen during that time he would have been covered

for a longer stay.

Just my experience

Jean

[Guest guest]

Sarenda is correct about children with DS needing to be observed more

closely after a T & A than other child because of the smaller airways. It

comes straight from the " Medical Care of of Children with DS " book. If

however, you know your child is at a higher risk and you *choose* not to

have them observed overnight, that is perfectly reasonable.

But, I don't think it's wise to post in a public forum that it is not

necessary for them to stay overnight for observation and contradict the

medical experts on this. Some new parents that don't know the added risks

of a T & A for a child with DS may take your word for it.

Schulte

Message: 6

Date: Thu, 4 Mar 2004 19:53:09 EST

From: linman42@...

Subject: Re: Digest Number 2089---Info for Sharp on surgury

Hi,

Most kids with DS do not require to stay in the hospital over night for

tonsils and adnoid removal. My daughter stayed longer for observation, but

still

came home the same day and they were ready to keep her, if need be, but she

didnt need to stay.

Also, most insurance companies will not cover the overnight stay if its not

required.

~ Mom to 13 DS and Diabetes Type 1 and 9 NY

________________________________________________________________________

________________________________________________________________________

Message: 7

Date: Thu, 4 Mar 2004 20:15:23 EST

From: linman42@...

Subject: Depression and DS?

Hi,

Well, this is quite the challenging email to write, so here goes.

has

been seeing a therapist for a while now- ya know the teenage years,

transitions, etc. Recently, we (he and I) have been noticing some erratic,

outburst

types of behavior and there have been some serious incidents along the way.

So, he suggests an eval with a psychiatrist and possible medication. I

agree

and yesterday we had the eval. The psychiatrist suggested 'mood stablizing'

meds for amanda and thinks she may be possibly depressed and have tendencies

toward other problems. She also stated that people with ds have a tendency

to

exhibit more depression, which I was not sure I ever heard.

So I am confused and wondered how she could figure this all out with one 90

min eval and decided that she should see her for a few months first before

putting her on meds. I just cant figure out if its her raging hormones from

puberty or diabetes or teenage- hood and how do you know when its more than

that

and someone needs meds?

If anyone has any insight into this, I'd appreciate hearing from you.

Thanks,

~ Mom to 13 DS and Diabetes Type 1 and 9 NY

________________________________________________________________________

________________________________________________________________________

Message: 8

Date: Thu, 4 Mar 2004 20:41:12 EST

From: FROG70x7@...

Subject: Re: Depression and DS?

In a message dated 3/4/2004 5:18:26 PM Pacific Standard Time,

linman42@... writes:

I just cant figure out if its her raging hormones from

puberty or diabetes or teenage- hood and how do you know when its more than

that

and someone needs meds?

If anyone has any insight into this, I'd appreciate hearing from you.

I can't offer advice as far as having a teenager with DS. My son, ,

is

going to be three this month. This much I do have personal experience with.

I have a teenage daughter (16) and I have type 1 diabetes since the age of

12. I know I was difficult for my mother at many times with the teenage

girl

hormones and during my teen years my diabetes wasn't under the best control

and

I know that added fuel to the fire. I wouldn't do meds just from one

meeting

with this person. How is her diabetic control? Does your daughter use

injections or the pump?I have a pump if you ever want advice on that. As

for my

teenage daughter, there has been many occasions where she has had me close

to

pulling out my hair with her emotional rollercoaster ride. I for one would

hold

off on meds until you really look into everything and the side effects of

the

medication they want to give her.

mom to Noelle 16, 13, almost 3 DS, and almost 2

[Guest guest]

Im taking flucanazole 100 mgs

Janet

[Guest guest]

Im taking flucanazole 100 mgs

Janet