Re: I've had it, too.

[Guest guest]

To Jeff in London and and the rest who have answered my post. Thank

you. Guess Im going through a bad period in my life right now. Its hard alone

with a kid at college and no money . The Portsmouth Naval Shipyard made me sick

then retires me on 400 dollars a month. Im stuck here with aircleaners. And

yes , I was sick for days after being in that building in Boston. I wish

I could have met you. And Sue, thank you for your quiet pushes. I need them.

I usually am fighting all the time. But workmens comp is jerking me around and

even though I have been out of my environment at work I am still getting

sick. Doctors here in Maine no nothing. I lost a nine year relationship because

he

couldnt handle my illness. I close windows on humid days. Try to avoid mold.

I can smell it from the ground in the summer. I still wear masks in old

buildings. Anyways, thanks for listening.

Janet

[Guest guest]

To Jeff in London and and the rest who have answered my post. Thank

you. Guess Im going through a bad period in my life right now. Its hard alone

with a kid at college and no money . The Portsmouth Naval Shipyard made me sick

then retires me on 400 dollars a month. Im stuck here with aircleaners. And

yes , I was sick for days after being in that building in Boston. I wish

I could have met you. And Sue, thank you for your quiet pushes. I need them.

I usually am fighting all the time. But workmens comp is jerking me around and

even though I have been out of my environment at work I am still getting

sick. Doctors here in Maine no nothing. I lost a nine year relationship because

he

couldnt handle my illness. I close windows on humid days. Try to avoid mold.

I can smell it from the ground in the summer. I still wear masks in old

buildings. Anyways, thanks for listening.

Janet

[Guest guest]

But ,

I have a child and no money? How can I justr pick up and go to the desert

as you say?

Janet

[Guest guest]

But ,

I have a child and no money? How can I justr pick up and go to the desert

as you say?

Janet

[Guest guest]

Janet, remember my message to you in which I said that if you

experienced relief INDOORS thanks to your multiple Hepa filters that

you were probably living in a spore-inundated area that was that was

beyond your ability to tolerate?

and I, and a whole bunch of people I know have had to make

the decision that if we didn't get out of such areas - no matter what

it took, that there was no chance to recover to the point of being

able to get a job or function normally.

We wound up abandoning everything and living in tents out in the

desert, but the reward was a massive reduction in symptoms and the

ability to " dip into " a normal life just long enough to maintain some

warped semblance of a life.

It is beyond comprehension to someone who had never experienced it

that there comes a point in which a chemically sensitive person will

crawl out of their clean, warm, " comfortable " house and sleep in

their cars or a tent pitched next to their car out in the snow rather

than spend one more godawful minute of living hell with fumes that

hurt like being burned.

I've also seen people who just laid inside their houses until they

died. One of the prices for adopting the " crazy " lifestyle is that

everyone you know calls you a liar and " mentally withdraws " from you

so completely that you feel completely alone and isolated. Sometimes

I envy people who just decided to die and never found out how

their " trusted friends " will treat them if they act in accordance

with the constraints of a MCS lifestyle.

I'm not always sure which is the superior option.

But I do know that I've managed to hold down a job and climb hundreds

of mountains, and go on backpacking trips and spend time acting

somewhat like a normal person - and it never would have happened if I

hadn't recognized that when a place, a region or even a sheet of

paper is having an effect on me - I must act in accordance with that

perception. To deny it is to drop.

I was at such a low point that Dr told me " You are at a

point where most people with CFS commit suicide " and that's what it

took for me to completely bail out of trying to act normal and do

everything according to what I could perceive rather than what I

wanted to believe, and I've been climbing mountains ever since.

Read " Cort's Story " and tell me what you think.

http://www.phoenix-cfs.org/The%20SITE/Cortsstory.htm

-

[Guest guest]

Janet, remember my message to you in which I said that if you

experienced relief INDOORS thanks to your multiple Hepa filters that

you were probably living in a spore-inundated area that was that was

beyond your ability to tolerate?

and I, and a whole bunch of people I know have had to make

the decision that if we didn't get out of such areas - no matter what

it took, that there was no chance to recover to the point of being

able to get a job or function normally.

We wound up abandoning everything and living in tents out in the

desert, but the reward was a massive reduction in symptoms and the

ability to " dip into " a normal life just long enough to maintain some

warped semblance of a life.

It is beyond comprehension to someone who had never experienced it

that there comes a point in which a chemically sensitive person will

crawl out of their clean, warm, " comfortable " house and sleep in

their cars or a tent pitched next to their car out in the snow rather

than spend one more godawful minute of living hell with fumes that

hurt like being burned.

I've also seen people who just laid inside their houses until they

died. One of the prices for adopting the " crazy " lifestyle is that

everyone you know calls you a liar and " mentally withdraws " from you

so completely that you feel completely alone and isolated. Sometimes

I envy people who just decided to die and never found out how

their " trusted friends " will treat them if they act in accordance

with the constraints of a MCS lifestyle.

I'm not always sure which is the superior option.

But I do know that I've managed to hold down a job and climb hundreds

of mountains, and go on backpacking trips and spend time acting

somewhat like a normal person - and it never would have happened if I

hadn't recognized that when a place, a region or even a sheet of

paper is having an effect on me - I must act in accordance with that

perception. To deny it is to drop.

I was at such a low point that Dr told me " You are at a

point where most people with CFS commit suicide " and that's what it

took for me to completely bail out of trying to act normal and do

everything according to what I could perceive rather than what I

wanted to believe, and I've been climbing mountains ever since.

Read " Cort's Story " and tell me what you think.

http://www.phoenix-cfs.org/The%20SITE/Cortsstory.htm

-

[Guest guest]

> I have a child and no money? How can I just pick up and go to the

desert as you say?

> Janet

Thanks to all the doctors who fought with their patients and told

them " Spray bleach and forget it " and " Mold doesn't hurt anybody " ,

people stay in their exposure situation until they are financially

destroyed (having given all their money to doctors) and so sick they

cannot take care of themselves.

I watched Dr D gradually develope all of the symptoms listed in the

next post " watching co-workers " and finally wound up yelling at

her " You don't want to end up like me! Get out NOW! " and she

said " But I can't just give up my job - I have responsibilities " and

just kept on until she dropped.

Unfortunately, if you are in an exposure that is gradually making you

sicker and it is not resolved or reduced, you will wind up at a point

where you cannot take care of your responsibilities or even stay

alive.

If you are headed in that direction, you must take action or you'll

just keep going downhill. I never slept inside a dumpster, but I

have right next to one, and out in the middle of some fields too.

And it wasn't because I was out of money either, I literally couldn't

find a place that wasn't knocking me flat - just like Dr Klein

describes with trying out so many different motels.

When Dr D finally " hit the wall " , I literally picked her up and

carried her out of her house and took her to the desert. She fought

with me about bailing out right up to the point where she hit the

floor.

When she recovered, she told me that she simply couldn't imagine that

the continued exposure would take her to such an extreme and wished

she had gotten out while she still had some options.

When this had happened to me, virtually all the doctors were fighting

with me and this delayed my response. But when I got out, I was

lucky enough to finally have a friend give me a place to sleep on an

office floor. I was so reactive that I couldn't use blankets and had

to sleep on an area of linoleum which I scrubbed beforehand, but I

was lucky. It was warm and mold free and that's what mattered.

The desert works faster but if you have anywhere to lay your head at

night that doesn't drive you to gasping for breath with your face

inches away from a Hepa filter as I know you are - that is where you

must go before things get worse.

If anybody knows any other way to deal with a place that is gradually

putting you below the threshold at which you can recover despite all

your efforts with nutrition, antifungals, Hepa filters and

remediation, I'd be glad to hear it, because I haven't seen it yet.

-

[Guest guest]

> I have a child and no money? How can I just pick up and go to the

desert as you say?

> Janet

Thanks to all the doctors who fought with their patients and told

them " Spray bleach and forget it " and " Mold doesn't hurt anybody " ,

people stay in their exposure situation until they are financially

destroyed (having given all their money to doctors) and so sick they

cannot take care of themselves.

I watched Dr D gradually develope all of the symptoms listed in the

next post " watching co-workers " and finally wound up yelling at

her " You don't want to end up like me! Get out NOW! " and she

said " But I can't just give up my job - I have responsibilities " and

just kept on until she dropped.

Unfortunately, if you are in an exposure that is gradually making you

sicker and it is not resolved or reduced, you will wind up at a point

where you cannot take care of your responsibilities or even stay

alive.

If you are headed in that direction, you must take action or you'll

just keep going downhill. I never slept inside a dumpster, but I

have right next to one, and out in the middle of some fields too.

And it wasn't because I was out of money either, I literally couldn't

find a place that wasn't knocking me flat - just like Dr Klein

describes with trying out so many different motels.

When Dr D finally " hit the wall " , I literally picked her up and

carried her out of her house and took her to the desert. She fought

with me about bailing out right up to the point where she hit the

floor.

When she recovered, she told me that she simply couldn't imagine that

the continued exposure would take her to such an extreme and wished

she had gotten out while she still had some options.

When this had happened to me, virtually all the doctors were fighting

with me and this delayed my response. But when I got out, I was

lucky enough to finally have a friend give me a place to sleep on an

office floor. I was so reactive that I couldn't use blankets and had

to sleep on an area of linoleum which I scrubbed beforehand, but I

was lucky. It was warm and mold free and that's what mattered.

The desert works faster but if you have anywhere to lay your head at

night that doesn't drive you to gasping for breath with your face

inches away from a Hepa filter as I know you are - that is where you

must go before things get worse.

If anybody knows any other way to deal with a place that is gradually

putting you below the threshold at which you can recover despite all

your efforts with nutrition, antifungals, Hepa filters and

remediation, I'd be glad to hear it, because I haven't seen it yet.

-

[Guest guest]

Janet --

You have to understand that this works. It's the only thing that

works. What would you be willing to pay for recovery?

I have no money either, really -- sometimes I make zero per month.

But I've been staying in my brothers back yard in Phoenix, and even a

few hours in his house gives me blinding headaches, diahhrea and

aching joints. It's probably either the swamp cooler or the drywalled

bathroom, as he has a teenager who has been taking hour long showers

for years. I've been on Cholestyramine for 13 days now, it seems to be

helping (at $110 per month) but nothing like avoidance.

When I go camp in the desert, I am symptomless in 24 hours.

You get $400 a month, wherever you live, right? What do you pay for

rent now? What if you had no rent? Retirees willingly leave for an

RV lifestyle for years. This is the choice we made, what would your

child in college want for you? Does he or she read this board?

> But ,

> I have a child and no money? How can I justr pick up and go to the

desert

> as you say?

> Janet

>

>

>

[Guest guest]

Janet --

You have to understand that this works. It's the only thing that

works. What would you be willing to pay for recovery?

I have no money either, really -- sometimes I make zero per month.

But I've been staying in my brothers back yard in Phoenix, and even a

few hours in his house gives me blinding headaches, diahhrea and

aching joints. It's probably either the swamp cooler or the drywalled

bathroom, as he has a teenager who has been taking hour long showers

for years. I've been on Cholestyramine for 13 days now, it seems to be

helping (at $110 per month) but nothing like avoidance.

When I go camp in the desert, I am symptomless in 24 hours.

You get $400 a month, wherever you live, right? What do you pay for

rent now? What if you had no rent? Retirees willingly leave for an

RV lifestyle for years. This is the choice we made, what would your

child in college want for you? Does he or she read this board?

> But ,

> I have a child and no money? How can I justr pick up and go to the

desert

> as you say?

> Janet

>

>

>

[Guest guest]

I, too, lost most of my friends who I used to do things with because

of the fatigue and fibromyalgia from the mold. If I had been hit by a

car, they would have been more understanding, but this is something

that they can't understand, so they just abandon you. Not that you

care. It's hard enough to get just normal little chores done without

having the energy to go out socially. Sad.

Barth

TOXIC MOLD SURVEY: www.presenting.net/sbs/sbssurvey.html

---

GAC> To Jeff in London and and the rest who have answered my post. Thank

GAC> you. Guess Im going through a bad period in my life right now. Its hard

alone

GAC> with a kid at college and no money . The Portsmouth Naval Shipyard made me

sick

GAC> then retires me on 400 dollars a month. Im stuck here with aircleaners. And

GAC> yes , I was sick for days after being in that building in Boston. I

wish

GAC> I could have met you. And Sue, thank you for your quiet pushes. I need

them.

GAC> I usually am fighting all the time. But workmens comp is jerking me around

and

GAC> even though I have been out of my environment at work I am still getting

GAC> sick. Doctors here in Maine no nothing. I lost a nine year relationship

because he

GAC> couldnt handle my illness. I close windows on humid days. Try to avoid

mold.

GAC> I can smell it from the ground in the summer. I still wear masks in old

GAC> buildings. Anyways, thanks for listening.

GAC> Janet

GAC>

[Guest guest]

I, too, lost most of my friends who I used to do things with because

of the fatigue and fibromyalgia from the mold. If I had been hit by a

car, they would have been more understanding, but this is something

that they can't understand, so they just abandon you. Not that you

care. It's hard enough to get just normal little chores done without

having the energy to go out socially. Sad.

Barth

TOXIC MOLD SURVEY: www.presenting.net/sbs/sbssurvey.html

---

GAC> To Jeff in London and and the rest who have answered my post. Thank

GAC> you. Guess Im going through a bad period in my life right now. Its hard

alone

GAC> with a kid at college and no money . The Portsmouth Naval Shipyard made me

sick

GAC> then retires me on 400 dollars a month. Im stuck here with aircleaners. And

GAC> yes , I was sick for days after being in that building in Boston. I

wish

GAC> I could have met you. And Sue, thank you for your quiet pushes. I need

them.

GAC> I usually am fighting all the time. But workmens comp is jerking me around

and

GAC> even though I have been out of my environment at work I am still getting

GAC> sick. Doctors here in Maine no nothing. I lost a nine year relationship

because he

GAC> couldnt handle my illness. I close windows on humid days. Try to avoid

mold.

GAC> I can smell it from the ground in the summer. I still wear masks in old

GAC> buildings. Anyways, thanks for listening.

GAC> Janet

GAC>