Needing Help

[Guest guest]

How much Minocin are you taking?

Ethel

Dave Brantl wrote:

>

> From: " Dave Brantl " <jraeb@...>

>

> i have been on antibiotics for 10 months. the first 9 months i was taking

> doxycycline, and was able to drop methotrexate, sulfasalazine, plaquinel,

> daypro from my daily diet. i also reduced my prednisone to 3 mg/day, which

> is where i am at today. i also have been taking ra spes for about 5 months.

> a month ago, feeling that i had leveled off, i switched to minocycline. the

> past month has possible been the worst of my life. all joints

> swelled....the pain is becoming too much. i expected a herx when i

> switched...but did not expect it to last this long or be this tough. i take

> some aleve to help me get through it, but do not want to increase pred or

> start any other drugs. im needing some advice from some of you that have

> been through this please. should i go back to doxy.....should i do half

> doxy, and mino? i cant function like this anymore. help please.

> thank you,

> dave...ra-9 yrs, ap-10 mos

>

> ------------------------------------------------------------------------

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[Guest guest]

I would like to ask some advise my son was diagnose with apraxia we take

speech therapy 2 times a week 30 minutes at a time. I was wondering if I

should get him some OT to give him some additional therapy? I have seen a lot

of parents with apraxia children talking about OT does this help with the

apraxia?

Thank You I appreciate it

Dee

[Guest guest]

Hi, Dee. As I understand it, the OT does not help with verbal apraxia per

se. However, many apraxic kids have other conditions as well, such as low

tone (hypotonia), limb apraxia (difficulty coordinating fine/gross motor

skills), sensory issues, etc. OT helps with these conditions. So if your

child has issues besides verbal apraxia, OT could help.

Sandy, Illinois

[Guest guest]

Does anyone know of a site I can check to see what adaptive skills a

six-year-old should have? Supposedly my daughter does not qualify for OT

because she rated upper-average on an assessment the school did. HOWEVER,

she's nearly six now. She can't tie shoes, do velcro on shoes without

difficulty, can't write for any period of time (says her fingers are tired),

can't button, can't zip and can't snap so there are obviously dressing

issues. This doesn't seem like normal to me but what do I know, just being

a mom.

Tammy

Re: [ ] needing help

> Hi, Dee. As I understand it, the OT does not help with verbal apraxia per

> se. However, many apraxic kids have other conditions as well, such as low

> tone (hypotonia), limb apraxia (difficulty coordinating fine/gross motor

> skills), sensory issues, etc. OT helps with these conditions. So if your

> child has issues besides verbal apraxia, OT could help.

>

> Sandy, Illinois

[Guest guest]

Dee: YES! OT helps! Only I did not realize this until after 6 months

of speech therapy. The person who diagnosed my son with verbal apraxia

also recommended OT, but I didn't listen or agree. I thought that my son

only had speech delays....but finally realized that OT helps apraxia with

many areas, including sensory, fine/gross motor sequencing, etc. Also,

his speech therapist recommended OT and my daughter's speech therapist

recommended OT.

So, I finally agreed, and it has been wonderful for him. I regret waiting

so long.

Good luck! Kim

deeshamd@...

I would like to ask some advise my son was diagnose with apraxia we take

speech therapy 2 times a week 30 minutes at a time. I was wondering if I

should get him some OT to give him some additional therapy? I have seen a

lot

of parents with apraxia children talking about OT does this help with the

apraxia?

Thank You I appreciate it

                                         Dee

[Guest guest]

Hello, I think a complete enzyme would be worth trying - I really

like the Kirkman EnZym- Complete /DPP-IV 1-800-254-8282 they have

a 60 count for $ 20 -- enzymes are given with food around 3 times a

day- either you see some improvement or you won't-- I mix my sons

with honey and water and give with eyedropper.

Also I would look into and learn about Essential Fatty Acids(EFA) --

these make the nurons run smoothy.

I really like the book " Prescription for Nutritional Healing " third

edition by Balch and Balch $23 You can learn about amino acids

EFA's and many other helpful supplements. My 2 cents Ann

[Guest guest]

HI Sandy,

Is your daughter cognitively delayed, too?

If you have the $$$$, heading to Nashville and making a visit to

Vanderbilt could be a way to pinpoint concerns. Dr.

Camarata and his wife, , are spectacular. I have yet to make

the trip, but they have been helpful via phone and email.

Finding a large teaching hospital or Children's Hospital is a good

start. I live in WA, so I can't help.

We have a situation like yours: no diagnosis but real delays.

I wish you luck,

Pam

> I have an almost 6yo daughter who has no specific diagnosis.

There

> are definite developmental delays and language delays. We are

> reviewing options now that we are needing to see more academic

gains.

> Language is progressing, she has 3-4 word sentences, but this is

still

> a big concern. Would love input on any programs that have worked

for

> you. We live in the , MS area and are fairly new here. If

> anyone can tell us good sources for SLPs here or specialists in

the

> nearby states that they have used we would really appreciate it.

> Sandy

[Guest guest]

Dear Tracey,

I too try to stay away from sugar. However, GLUTEN (the protein in

wheat, barley, and rye) is what causes joint pain in my body. And

gluten, like sugar, is everywhere--even hidden in many processed

foods. Check out the book " Dangerous Grains " for an overview. I

don't know if this is your problem, but it's highly possible as at

least 20% of the US population has some form of gluten sensitivity

(Heidi will correct me if I've gotten this stat. wrong).

Many (but no all) folks on this list eat a gluten-free diet.

HTH,

> I am having symptoms like stiffness and soreness in my joints and

> muscles ALL the time. It is keeping me from resting at night...that

> makes me GROUCHY!

> Thanks for any assistance you can offer me!

[Guest guest]

Tracey,

I have the same problems with sugar, except add numbness and tingling to your

list. (Actually grains are more apt to cause joint pain and muscle tightness

for me, but I think sugar has too - can be a little difficult to isolate,

because sugar and grains so often come together in the form of many desserts.)

I was unable to get tested for sugar, but over the years, it has become so clear

to me, (from trial and error), that sugar causes a problem, that a test would be

superfluous to me. The best way to find out fairly quickly is to do a moderated

version of an elimination diet. Don't eat any sugar for 2 weeks and see if all

the symptoms go away. Then, if they do, add sugar back to your diet. (Just the

lack of symptoms from going without sugar would be enough for me, however, and I

wouldn't want to go back to the symptoms. And it didn't take 2 weeks for me

either.

:-) If you add it back, you should know within a couple of days after that,

when/if the symptoms come back. If it proves not to be sugar, try the same

thing with gluten and/or grains.

Carol

It is becoming apparent to me that I am having some sort of trouble

with possibly sugar. We don't use much sugar in the house but it is

everywhere outside the house.

I am having symptoms like stiffness and soreness in my joints and

muscles ALL the time. It is keeping me from resting at night...that

makes me GROUCHY!

Can someone help me research this? The nutritional counselor at our

Chiropractor's office suggested that I could be allergic to sugar?

How do I tell? What are the symptoms? What things are " allowed " if

I am allergic? Just taking the first steps in this.

We are working toward the Nourishing Traditions way of eating, we

have the book and the cow!

Thanks for any assistance you can offer me!

Tracey in NE Kansas---who needs to go do the chores!

[Guest guest]

>>Many (but no all) folks on this list eat a gluten-free diet.

HTH,

<<

~~~I started with eliminating gluten, but now, (several years later), I have had

to eliminate all grains. Slowly, the same symptoms that were caused only by

gluten are now caused by any grains, which has been quite an unpleasant

surprise.

Carol

[Guest guest]

Carol wrote:

> I have the same problems with sugar, except add numbness and tingling

> to your list. (Actually grains are more apt to cause joint pain and

> muscle tightness for me, but I think sugar has too - can be a little

> difficult to isolate, because sugar and grains so often come together

> in the form of many desserts.) <snip>

> :-) If you add it back, you should know within a couple of days after

> that, when/if the symptoms come back. If it proves not to be sugar,

> try the same thing with gluten and/or grains.

> Carol

> --------------

Tracey, Carol, et. al,

May I join this club? I too have these issues. I went on a vegetable

modified Atkins Diet (adding more veg at the get go) months ago and have

never looked back to grains or sugar. I might eat a bit of honey or

maple sugar occasionally, but I avoid all grains strictly, except the

minor indulgence of corn chips.

Since grains and starches can cause some of the same insulin issues that

sugar can, perhaps going without both for a time would be most telling.

Then you could add either sugar or grains and see the effects. But you

may improve so much that you don't want them anymore.

BTW, fruit does not provoke as much of an insulin response; berries and

melons especially.

Good luck.

Deanna

[Guest guest]

>I too try to stay away from sugar. However, GLUTEN (the protein in

>wheat, barley, and rye) is what causes joint pain in my body. And

>gluten, like sugar, is everywhere--even hidden in many processed

>foods. Check out the book " Dangerous Grains " for an overview. I

>don't know if this is your problem, but it's highly possible as at

>least 20% of the US population has some form of gluten sensitivity

>(Heidi will correct me if I've gotten this stat. wrong).

The numbers vary a lot, depending on who you talk to and

what test they used. 1 in 100 people have celiac (based on

samples from the blood bank) which is a very, very serious

result of gluten sensitivity. 1 in 10 have elevated IgA in

their blood. 1 in 3 might have it in their gut (but only small

studies have been done on that). The DG book lays it

all out nicely.

Anyway, it for sure messes up your joints. A few years ago

I could barely hobble down our hill, my feet and knees hurt

so bad, and my hands were starting to ache also. And my back and

neck. The doc said I was getting old. Now I'm older and my

joints are younger!

However, other allergens can cause the same problem. Corn

in larger quantities is also a problem for me. And sugar IS

a problem for some folks who are GF ... it seems that

anything that messes with the gut bacteria can trigger

joint pain. One lady I know started taking Pepto Bismol

as an experiment and her back pain went away as long

as she was taking it! So that is one experiment you

can try (take it 3x a day for a few days, see if it helps ... if

it does, you need to work on your digestion).

Getting your digestion working well is a long process

sometimes, because it is so individual for each person.

Kefir beer helps me a lot, and Pascalite clay. And of course

not eating the stuff that bothers me (gluten and casein, mainly).

And following the Warrior Diet (giving the gut a nice long rest).

Cod liver oil has been shown to work wonders with arthritis

in general also.

Heidi Jean

[Guest guest]

Hi Tracey,

If you're deficient in magnesium, that can lead to pain and

stiffness. The body consumes magnesium when it produces insulin, so

it could be helpful to avoid sugar and refined grains for a time.

That way, your body can stop using up its magnesium dealing with

sugar. So that would be another reason to consider limiting or

avoiding grains/sugars.

You might consider taking a magnesium supplement, too. There are

magnesium pills, and Soft Chews contain 500 mg of magnesium

each. They're pretty effective against hiccups, too! In fact, any

cramping or muscle stiffness might benefit from additional magnesium.

Minerals need to stay in balance, though, and you might be aware of

any calcium-related issues if you supplement with magnesium. They

tend to be antagonistic towards each other. If you have too much

calcium relative to magnesium, you can end up stiff and sore. If you

don't have enough calcium, you might get ankle swelling or soreness

around your teeth, etc.

I like cod liver oil for immune-related support, but I found that I

needed to take calcium with it. Vitamin D is used by the body to

both build bone and tear it down.

A couple more ideas are to take 1 tablespoon of raw apple cider

vinegar in water, and to make and eat NT-style bone broths. If you

can get it, use raw cream.

I always think we should try the easy stuff first!

>

> It is becoming apparent to me that I am having some sort of trouble

> with possibly sugar. We don't use much sugar in the house but it

is

> everywhere outside the house.

> I am having symptoms like stiffness and soreness in my joints and

> muscles ALL the time. It is keeping me from resting at

night...that

> makes me GROUCHY!

> Can someone help me research this? The nutritional counselor at

our

> Chiropractor's office suggested that I could be allergic to sugar?

> How do I tell? What are the symptoms? What things are " allowed "

if

> I am allergic? Just taking the first steps in this.

> We are working toward the Nourishing Traditions way of eating, we

> have the book and the cow!

>

> Thanks for any assistance you can offer me!

> Tracey in NE Kansas---who needs to go do the chores!

[Guest guest]

----- Original Message -----

From: " Deanna "

> May I join this club? I too have these issues. I went on a vegetable

> modified Atkins Diet (adding more veg at the get go) months ago and have

> never looked back to grains or sugar.

<nodding> I've been harboring a pet theory for a few years now that those

who respond to the Atkin's Diet are undxed celiacs. My dh went Atkins

before going gf and it was one of the links in the chain of evidence that

convinced us that he carries the celiac gene.

--s

[Guest guest]

>

> It is becoming apparent to me that I am having some sort of

trouble

> with possibly sugar.

Is there more I can read about the gluten thing? A book

recommendation perhaps? I have NEVER considered gluten, I AM a Type

2 diabetic however....I am encouraged but also daunted at the

prospect of giving up gluten...what IS gluten anyway?!!!!

Thanks, I'll wait for further response....hmmm, gluten? Bread,

oatmeal? What else? I think I need to read a book. Ladies, where

DO you learn these things?

Tracey in NE Kansas

[Guest guest]

>>>The best way to find out fairly quickly is to do a moderated version of an

elimination diet. Don't eat any sugar for 2 weeks and see if all the symptoms

go away. Then, if they do, add sugar back to your diet.<<<

It's highly likely that you'll feel worse before you feel better, as your body

has a withdrawal from the sugar (and grains if you do them as well). For the

first 3-4 days you may feel like you have the flu, or you may be very emotional.

After that you should feel pretty good.

Cheers,

Tas'.

[Guest guest]

>>>It's highly likely that you'll feel worse before you feel better, as your

body has a withdrawal from the sugar (and grains if you do them as well). For

the first 3-4 days you may feel like you have the flu, or you may be very

emotional. After that you should feel pretty good.<<<

~~~If that's the case, it could also be a candida problem.

Carol

Cheers,

Tas'.

[Guest guest]

Book Rec:

Dangerous Grains: Why Gluten Cereal Grains May Be Hazardous to Your Health

by Braly M.D., Ron Hoggan M.A.

Gluten is the protein found in wheat, barley, and rye. It's in TONS

of things, but since you're trying to switch to NT, it won't be that

hard to avoid the hidden gluten in processed foods. Oats do contain

small amounts of gluten (or are contaminated by gluten in the

processing) so gluten-free (GF) folks stay away from those too. It's

a bit difficult at first, but if you are indeed sensitive to gluten,

it's soooooooo worth it. Many folks on this list make GF bread,

cookies, cakes, etc. If your ethnic heritage is not middle-eastern

(where wheat was first cultivated), you are more likely to be

sensitive to it. Most people on the earth only started eating wheat

(and other glutenous grains) recently and our bodies don't do well on

it.

> Is there more I can read about the gluten thing? A book

> recommendation perhaps?

[Guest guest]

It's highly likely that you'll feel worse before you feel better, as

your body has a withdrawal from the sugar (and grains if you do them as

well). For the first 3-4 days you may feel like you have the flu, or you

may be very emotional. After that you should feel pretty good. - Tas'

------------------------

True for me. I felt light-headed for 2 days going lower carb. By lower

carbohydrate, I would say about twenty-five to forty grams a day. My

ravaging hunger then ceased. Energy levels normalized and remain

level. Now I see from experience that this is how my body feels best.

Beans properly soaked are fine once a week, but even they cause the full

feelings and lethargy to which I have long ago bid adieu. Otherwise my

clan is basically paleo plus dairy.

Interestingly, my younger son also has fared well on a more paleolithic

dietary approach. He would have swings in mood and energy which have

subsequently become more linear. My teenager is ASD and has been gluten

free for years. He is now grain free, eating dairy again this week

without issue. I am so pleased I gave it a whirl. In fact, the

lacto-fermented goodies have helped his chronic constipation tremendously.

Obviously, my family's Northern ancestors weren't agricultural until

very recently. They did raise dairy stock, however. I can't figure

this blood type diet as it goes straight against 80,000 years of dietary

fact for me genetically, and tells me I have to be a high-grain

vegetarian. Been there, done that with deleterious results.

Deanna

[Guest guest]

>>Book Rec:

Dangerous Grains: Why Gluten Cereal Grains May Be Hazardous to Your Health

by Braly M.D., Ron Hoggan M.A.<<

~~~Here's sort of a synopsis of the book:

http://www.mercola.com/2002/oct/5/dangerous_grains.htm

Carol

[Guest guest]

Tracey,

You might do a search on mercola.com for diabetes, grain, gluten, wheat.

That would give you something to get started on.

L.

>Is there more I can read about the gluten thing? A book

>recommendation perhaps? I have NEVER considered gluten, I AM a Type

>2 diabetic however....I am encouraged but also daunted at the

>prospect of giving up gluten...what IS gluten anyway?!!!!

>

>Thanks, I'll wait for further response....hmmm, gluten? Bread,

>oatmeal? What else? I think I need to read a book. Ladies, where

>DO you learn these things?

>

>Tracey in NE Kansas

>

>

>

>

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[Guest guest]

>It's highly likely that you'll feel worse before you feel better, as

>your body has a withdrawal from the sugar (and grains if you do them as

>well). For the first 3-4 days you may feel like you have the flu, or you

>may be very emotional. After that you should feel pretty good. - Tas'

When I went wheat free, I was really careful to NOT cut carbs, and I felt like

I'd been

kicked by a horse. A mean horse. I subbed Wasa Brot (my only wheat/rye/barley

bread

at the time) with rice crackers, and wine for beer, and suddenly my brain went

dead.

I just sat staring at the walls for a week, like I had a bad flu.

Nowadays, I do sometimes pig out on GFCF brownies or pecan pie, and I don't feel

GREAT after, but I can still function ok. From which I figure sugar is not as

big an

issue for me as the allergenic proteins.

Heidi Jean

[Guest guest]

Greetings friends, My family needs help! We lived in a trailer for

15 years that was loaded with mold. It was behind walls and when we

moved we tore it down and found tons of it! My daughter and 2 of my

sons have asthna and severe respiratory trouble. I myself am

disabled due to health problems that my docs cant pinpoint, Thank

God we are in a better home now but my doctor says that i need to

get air purifiesr for my kids. Therein lies the problem due to me

being disabled i cant afford them. Friends i need your help! Does

anyone have any purifiers they could donate to help? Im sorry to

bother you guys but i have to do something, Thank you and God Bless

[Guest guest]

Hi Kathie, Yes our family is still in need of air purifiers. Thanks!

Dying is easy , living is hard

__________________________________________________

[Guest guest]

Hopefully someone directed you to www.wrightslaw.com already.

I would argue against moving him without even implementing any program or support to help him. I would request a full educational evaluation be done. I would also request a "functional behavior assessment" FBA by someone qualified to do this. This is required to be done anytime a child has a problem with behavior that interferes with his learning or the learning of others around him. Go to wrightslaw and learn your rights asap. Also find your state parent information network. You can google that with the name of your state. They often will have people who can go to meetings with you to help out.

Roxanna

"I

predict future happiness for Americans if they can prevent the government from wasting the labors of the people under the pretense of taking care of them." - Jefferson

( ) Needing help

Hello, I've never posted before. I have a 6 year old son who has Aspergers. He is in the first grade. He transitioned to first grade fairly easy, but 2 weeks ago, he really started having some issues with angry outbursts, calling his "aid" and teacher names, and he even hit his "aid". His "aid" is not a para, she is a long term substitute teacher that has been with him for a year. He is currently on a 504 plan and we are going to his first initial IEP meeting next week. OKay, my concern is this... Ever since his really angry outbursts started, there has been talk of him being placed in a program called TDT that is a part of Ozark Guidance Center. He would no longer attend school, but go to this other building for "Thereputic Day Treatment" This is a place for children who has a bad home life (which he doesn't) and who just have a hard time in regular school. It's got children with behavior issues, sexual abuse, etc... His doctor has changed his medication, and he has had good days for about a week. He is smart, he is the "little professor" type. He is reading on a 4th grade level and is advanced in math. I have been told that the school can court order this. I am really scared, and sad, and angry... It seems like if he is not fitting the "mold" then they want him to go to this place. What are his rights, and mine as a parent? I am new to this. Any information would be helpful. Thank you

Sheri