thanks Donna

[Guest guest]

gail,

good luck with your battle..sounds like it's going to be a very tough one

indeed..i always put a piece of tape on my hand to remind myself mentally my

hand is 'taped down' and is NOT ALLOWED TO sign anything..i now bring

everything home and review for at least a week..it makes the school very

nervous...heheh but that is okay, they should be nervous... i hope you hang in

there and know you have our support, or at least mine :-) take care, leah

[Guest guest]

Leah,

You are great! I would have never thought of the " tape " . You must give

them [school] fits! LOL.

Terry

Mom to , 13 yrs.

[Guest guest]

In a message dated 12/8/00 9:46:13 AM Eastern Standard Time,

smilinggail@... writes:

<<

Donna, how did you keep Maddie in early intervention until she was 7? Here

they age out of that at age 3 !!!! But, we're in NY State, so that explains

a lot! >>

Here EI goes up until age 5. At the age of three, the kids come under the

Philly school district, but still receive EI services under a contract with a

group called Elwin. It's just that after 3, the services are paid for by

your SD.

<< It drives me crazy that

these people that have never even seen Seth can make the decisions of what is

best for him! >>

Gail, this was my BIGGEST argument at Maddie's IEP to get her into MM. There

were 12 of us at the table, and the ONLY two people fighting placement were

also the ONLY two people who never met Maddie. Everybody else *got it*. You

can be sure I made HUGE mention of that very point numerous times as they

squabbled with us.

<>

Yep. I know what you mean Gail!!!! I kept Maddie home today. The other

kids are off too, so I figure she and I needed it.....LOLOL

<<Is there a combination of TEACH and ABA? I think Seth gets

a mixture of the two. >>

I believe you can combine many of these techniques. Basically TEACCH is a

very visual (PECS) and schedule type program (so the kids can be aware of

what's coming next and they implement work stations for each child) and ABA

is repetitive/teaching by trials, reward system (they break goals down into

very small tasks----kind of guaranteed success). I see no reason you

couldn't individualize a specific program with both for a child. At MM,

essentially they use a combo of ABA and floortime (they just don't call it

that).

Good Luck and write when you can!! I'm eager to hear how you made out!!!

Donna (who's up to her elbows in cooking for a x-mas party Sunday. 40 of my

neighbors are coming over--I'm doing heavy hors de' ouerves)

[Guest guest]

Terry,

its so funny to see their expressions on their faces. they have no idea why i

have tape on my hand... lololol its so funny...like i have one up on them for a

change...try it next time matthew has an iep....take care, elh

[Guest guest]

Leah,

You bet I will try it! LOL Anything for an edge?! Heheheh!! Thanks for

the tip!

Terry

[Guest guest]

In a message dated 1/9/01 11:34:56 PM Eastern Standard Time,

brink_00@... writes:

<< I thought that a kid had to be in school to diagnoss them with autism.

I guess I was wrong.

>>

,

Seth got into the autistic preschool program because he had a diagnosis. He

couldn't get in if he didn't have it.

Gail

[Guest guest]

I thought that a kid had to be in school to diagnoss them with autism.

I guess I was wrong.

>From: smilinggail@...

>Reply-egroups

>egroups

>Subject: Thanks Donna

>Date: Tue, 9 Jan 2001 18:42:19 EST

>

>Donna,

>Thanks for the info. That was just what I needed to know. ( I think! )

>LOL

> I hope Maddie is feeling better now, as I didn't get this post, just saw

>Carole's response. Sure wish I could see another child like Seth at his

>age.

>Like Joan, I look at Seth and just see the cutest kid in the world. I

>don't

>see downs, or autism. I guess just because we are so used to him the way

>he

>is. Unlike Maddie, Seth just lost everything within a matter of days.

>When

>he was 21 months old everything went. Quit eating, bathing, playing, just

>everything. He used to feed himself, wave bye bye and knew a lot of games.

>We had his autism diagnosis 3 months later, when he was two years old. I

>just wonder because he was so young when they evaluated him if it is a

>valid

>one. I really thought they had to be older than that to do an eval. At

>one

>of his placement meetings last week, when they were listing the things he

>needs, I kept thinking they were making him sound worse than he is. Maybe

>I

>am not seeing things realistically because I feel so blessed to have him,

>but

>I just don't see where he is as bad as they say. Severe to me is when they

>are comatose! LOL You certainly did describe Seth, who I have to go

>detach

>from the wall now! LOL You wouldn't believe the size of the whole in my

>wall. LOL Yes you would! How is the soap eating going? LOL Thanks

>again

>Donna.

>Gail

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

In a message dated 1/9/01 6:50:25 PM Eastern Standard Time,

smilinggail@... writes:

<< I really thought they had to be older than that to do an eval. At one

of his placement meetings last week, when they were listing the things he

needs, I kept thinking they were making him sound worse than he is. Maybe I

am not seeing things realistically because I feel so blessed to have him,

but

I just don't see where he is as bad as they say. Severe to me is when they

are comatose! LOL You certainly did describe Seth, who I have to go

detach

from the wall now! LOL You wouldn't believe the size of the whole in my

wall. LOL Yes you would! How is the soap eating going? LOL Thanks

again

Donna. >>

I knew Maddie had autism from the time she was 2 1/2 Gail. But Dr. Capone

did feel she was too young to dx. As it turned out, I was glad, because

really, I wasn't ready to handle that then. We are so used to the stuff

Maddie does and it doesn't strike any of us as odd until we see other

people's responses. Even then, mostly the kids and I just get angry.

Especially the kids. They are incredibly protective. Duff just doesn't ever

give a hoot about faces or expressions people make. Our kids will just say

things like.... " Oh look how cute. " Even the other day, Maddie got out of the

tub and left a tiny little deposit on the bathroom floor, which I didnt' see

when I took her in her room. n couldn't stop laughing. He

said... " Mom, look at how cute her little poop is. Isn't that funny that she

just squatted? " .......Sick, huh? I just said... " Oh yea Bren, it's a

scream " .......LOLOL

Donna (Mom to the Queen of soap-eating)

[Guest guest]

In a message dated 1/10/01 10:14:10 AM Eastern Standard Time,

duffey48@... writes:

<< I knew Maddie had autism from the time she was 2 1/2 Gail. But Dr. Capone

did feel she was too young to dx. As it turned out, I was glad, because

really, I wasn't ready to handle that then. We are so used to the stuff

Maddie does and it doesn't strike any of us as odd until we see other

people's responses. Even then, mostly the kids and I just get angry.

Especially the kids. They are incredibly protective. Duff just doesn't

ever

give a hoot about faces or expressions people make. Our kids will just say

things like.... " Oh look how cute. " Even the other day, Maddie got out of

the

tub and left a tiny little deposit on the bathroom floor, which I didnt' see

when I took her in her room. n couldn't stop laughing. He

said... " Mom, look at how cute her little poop is. Isn't that funny that she

just squatted? " .......Sick, huh? I just said... " Oh yea Bren, it's a

scream " .......LOLOL

Donna (Mom to the Queen of soap-eating) >>

Donna,

I think I knew it too because I kept asking the therapists if he was. He was

just so different acting than other downs kids. It did surprise me that in

the little time the psych and doctor saw him at 2 years old that they could

give that diagnosis though. It must have been very plain to them. No

teachers or therapists think he is autistic though.

My girls do the same thing your kids do! Very protective over Seth and we

all think the strange things he does are so cute! LOL Some of the faces he

makes when he's dangling a shoe or spinning a lid! LOL Just doesn't seem to

me that any other human could look at him and see something bad, weird or

ugly. I know they do, but as of yet, they have not made it known to us. LOL

Probably scared the girls would scratch their eyes out! LOL

I don't know if any of us have gone as far as to think his little, ummm,

deposits are cute though! LOL That's real love! LOL

Gail

[Guest guest]

Ok, I think I undserstand now.

>From: smilinggail@...

>Reply-egroups

>egroups

>Subject: Re: Thanks Donna

>Date: Wed, 10 Jan 2001 00:39:25 EST

>

>In a message dated 1/9/01 11:34:56 PM Eastern Standard Time,

>brink_00@... writes:

>

><< I thought that a kid had to be in school to diagnoss them with autism.

> I guess I was wrong.

>

> >>

>

>,

>Seth got into the autistic preschool program because he had a diagnosis.

>He

>couldn't get in if he didn't have it.

>Gail

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

lolo donna....you must have a really special 15 year old in brendan...i dont

know many 15 year olds who are as nice as him.....thinking maddies poop is

cute, now that is a true gem........

>From: duffey48@...

>Reply-egroups

>egroups

>Subject: Re: Thanks Donna

>Date: Wed, 10 Jan 2001 10:05:36 EST

>

>In a message dated 1/9/01 6:50:25 PM Eastern Standard Time,

>smilinggail@... writes:

>

><< I really thought they had to be older than that to do an eval. At one

> of his placement meetings last week, when they were listing the things he

> needs, I kept thinking they were making him sound worse than he is.

>Maybe I

> am not seeing things realistically because I feel so blessed to have him,

>but

> I just don't see where he is as bad as they say. Severe to me is when

>they

> are comatose! LOL You certainly did describe Seth, who I have to go

>detach

> from the wall now! LOL You wouldn't believe the size of the whole in my

> wall. LOL Yes you would! How is the soap eating going? LOL Thanks

>again

> Donna. >>

>

>I knew Maddie had autism from the time she was 2 1/2 Gail. But Dr. Capone

>did feel she was too young to dx. As it turned out, I was glad, because

>really, I wasn't ready to handle that then. We are so used to the stuff

>Maddie does and it doesn't strike any of us as odd until we see other

>people's responses. Even then, mostly the kids and I just get angry.

>Especially the kids. They are incredibly protective. Duff just doesn't

>ever

>give a hoot about faces or expressions people make. Our kids will just say

>things like.... " Oh look how cute. " Even the other day, Maddie got out of

>the

>tub and left a tiny little deposit on the bathroom floor, which I didnt'

>see

>when I took her in her room. n couldn't stop laughing. He

>said... " Mom, look at how cute her little poop is. Isn't that funny that

>she

>just squatted? " .......Sick, huh? I just said... " Oh yea Bren, it's a

>scream " .......LOLOL

>Donna (Mom to the Queen of soap-eating)

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

In a message dated 5/6/02 1:45:33 AM Eastern Daylight Time,

smilinggail@... writes:

> What is this.....3 weekends in a row you have been

> galavanting around?

Yep, can you believe it?!?!? Well, first one was the seminar, second the

weekend wiht the girls (took all week to get my voice back...LOL). This

past one was the best though!!! SO NICE!!!!

<<Becky remembered the date from last year because there was a mexican

festival in the hotel that the girls crashed. LOL My 26 year old

always takes them on some crazy adventure! >>

LOLOL Gail!!! Too funny!!! At least they were creating memories while on

their learning excursion...LOL

<<Was Miss Maddie an angel while you were gone?>>

She actually was Gail. Although, anyone who takes care of Maddie is usually

wiped out for a while....LOL

is coming home for good today!! Everyone is excited!! Her friends

are coming here to decorate her room and the dining room and we are having a

surprise welcome home party for her. I'll do a barbecue and cake. She'll

be so happy!! Alison is literally bursting at the seams to have her big sis

back home!!!!

Donna

P.S. Thanks everyone for the well wishes and congratulations!!!

[Guest guest]

Donna,

That's great that you can go and know Maddie will do fine. How did the party

go? I'm sure is just as thrilled to be home, as you all are to have

her back!

Gail :-)

<< Was Miss Maddie an angel while you were gone?>>

She actually was Gail. Although, anyone who takes care of Maddie is

usually

wiped out for a while....LOL

is coming home for good today!! Everyone is excited!! Her friends

are coming here to decorate her room and the dining room and we are having a

surprise welcome home party for her. I'll do a barbecue and cake.

She'll

be so happy!! Alison is literally bursting at the seams to have her big

sis

back home!!!!

Donna

P.S. Thanks everyone for the well wishes and congratulations!!!

>>

[Guest guest]

Don't even get me started.....!! Donna

>And yes, while pizza and burritos are more what tempts

>me to overeat, I never met a cookie I didn't like.

>

>Hugs,

>

[Guest guest]

Thanks, ! I'm better now that meetings are over!

Donna

--- Pink <pinkpussycat@...> wrote:

> Thanks, Donna!

>

> I'm sorry you're having a rough morning but you

> got your workout in

> and that's fantastic! Some mornings it's so hard

> to not just slam

> down the snooze button!

>

> Congrats on sticking with your Tortoise and Hare

> rotation! I can

> barely stick to one week at a time, yet alone a

> month or more!

>

> Hugs,

> me

>

>

>

>

__________________________________________________

[Guest guest]

Thanks so much! That is exactly what I needed. I am going to save your words so I can read them again! Donna Bean <hotcalirunner@...> wrote: Hello ,First I want to say that for you to have come this far is great... This feeling will pass, I promise.. I know it doesn't feel like it, but it will. I also have little kids( we have 5 kids) and I know all to well about what you're saying. Yesterday was hard for me-I even cooked the meal and sat in the front room for a

while, while they ate so I wouldn't have to "see" them eating... Talk about hard..I had the lap band put in Feb. 2006 and lost 110 pounds in 8 months... I had to have it removed due to a VERY bad slippage and infection( due to another Dr. mistake) in Oct. 2006. I weighed 119 when I had it removed and was VERY sick. Follow what Dr. Aceves says with the eating and make such you do everything slowly and CHEW,CHEW, CHEW your food-when you're allowed to have it.You're going to see none scale victories.. I just had a gastric sleeve done the 13th. and going threw the same withdrawls(again) you are.. I went threw our house and switched all our kids snacks and drinks. What good for you is good for them. Teach them to eat healthy, have it be a family thing.Just remember ONE DAY AT A TIME.... You can do this.... We are ALL behind you..I wish you all the luck in the world, but your not going to need it, you're doing

great!!DonnaDORB(date of rebirth) 3/13/08210/190/125>> Hello,> This is my 9th day after the surgery. I still have some swelling and discomfort, but am doing quite well. However, Easter was really difficult for me. I have been trying to acess the difference between my actual hunger and wanting to eat the goodies that come along with a holiday. I have 4 kiddos and so I can't just for go getting them atleast a few sweets. Having regular meals is a must for them of course, but sometimes I just really want to eat too! (even though I'm not hungry) I knew this would be part of the process, but I'm feeling a bit insane. I really could use some tips and support. Did anyone else feel this way?> Thanks> > dob

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