Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 > k, > What came of Ampligen study? Is it on the market for AIDS, for CFS? > > Also what is: " my extreme mycotoxin avoidance > strategy that returned me > to mountain climbing and controlling my CFS " I heard rumors that Ampligen may be approved soon for CFS. I would have done it at the time but there was no way I could afford it. Difficult to tell how much it helps because you can't get a straight answer out of the ampligenites. I ask if anyone wants to go mountain climbing with me and compare recovery stories, but no takers so far. The dang peculiar thing is that no matter where I lived, I kept getting more sensitive to this darn mold. Moving just didn't make a huge difference. Then I realized that just the amount I carried on myself by walking through a spore plume could remain a driving force in my inflammatory response. So whenever I perceive a " mold hit " , I decontaminate and make sure that I don't carry spores home with me. That's what made the difference. Much more difficult and time consuming that it sounds from this brief description, but that's the basic principle. I became so extremely sensitive, especially after I started to recover (You see, I make a differentiation between Sensitivity - ability to perceive, and Reactivity - how bad it hurts) that I could consistently feel the same mold on the clothing of other CFS patients. I believe that I've already told the story on this list of sitting in the lab Dr s uses and DXing CFSers by how I got " hit " when they'd go by. I DID get snookered once though. A guy walks by and I get a " slam " from him and I asked if he was a patient. " Not me, but my wife is " . Presumably they were sharing the same house (one never knows...) But in all the years I've been doing this, I've found that CFSers consistently complain of the same symptoms that led me to this crazy mold avoidance thing. It's really interesting that I tried to warn a bunch of doctors that I was seeing more and more people turning into mold responders, and wound up finding a few sick doctors. But rather than try to help, figure this out, or make this information available to their patients, or even help themselves, they decided that they'd rather charge me for an appointment that spend their own time to learn from someone who has already " been there and done it " . The intense greed and unethical behavior I have seen from doctors has completely undermined my faith in the medical profession. They put on a better professional demeanor, but are generally worse than car salesmen. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 > k, > What came of Ampligen study? Is it on the market for AIDS, for CFS? > > Also what is: " my extreme mycotoxin avoidance > strategy that returned me > to mountain climbing and controlling my CFS " I heard rumors that Ampligen may be approved soon for CFS. I would have done it at the time but there was no way I could afford it. Difficult to tell how much it helps because you can't get a straight answer out of the ampligenites. I ask if anyone wants to go mountain climbing with me and compare recovery stories, but no takers so far. The dang peculiar thing is that no matter where I lived, I kept getting more sensitive to this darn mold. Moving just didn't make a huge difference. Then I realized that just the amount I carried on myself by walking through a spore plume could remain a driving force in my inflammatory response. So whenever I perceive a " mold hit " , I decontaminate and make sure that I don't carry spores home with me. That's what made the difference. Much more difficult and time consuming that it sounds from this brief description, but that's the basic principle. I became so extremely sensitive, especially after I started to recover (You see, I make a differentiation between Sensitivity - ability to perceive, and Reactivity - how bad it hurts) that I could consistently feel the same mold on the clothing of other CFS patients. I believe that I've already told the story on this list of sitting in the lab Dr s uses and DXing CFSers by how I got " hit " when they'd go by. I DID get snookered once though. A guy walks by and I get a " slam " from him and I asked if he was a patient. " Not me, but my wife is " . Presumably they were sharing the same house (one never knows...) But in all the years I've been doing this, I've found that CFSers consistently complain of the same symptoms that led me to this crazy mold avoidance thing. It's really interesting that I tried to warn a bunch of doctors that I was seeing more and more people turning into mold responders, and wound up finding a few sick doctors. But rather than try to help, figure this out, or make this information available to their patients, or even help themselves, they decided that they'd rather charge me for an appointment that spend their own time to learn from someone who has already " been there and done it " . The intense greed and unethical behavior I have seen from doctors has completely undermined my faith in the medical profession. They put on a better professional demeanor, but are generally worse than car salesmen. - Quote Link to comment Share on other sites More sharing options...
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