Re: Thanks for info on SG Workshop

[Guest guest]

They know they have a big problem on their hands. They know they are not

properly addressing it. They know they need to get the allergists out of the

control of the decision making process and put some infectious disease doctors

on it.

I honestly think that, over the years, they thought we were a bunch of

neurotic whiners. This position has been perpetuated by those occupational

doctors who evaluate on behalf of the insurance industry, worker's comp, etc.

Also

by companies like GlobalTox that have infiltrated the government decision

making process, yet do expert insurance litigation support for a living.

I spoke with Dr. Redd yesterday. He orally indicates they are willing to

listen to our doctors who practice integrated medicine. That and two cents

won't buy you a cup of coffee. It's not that I doubt Dr. Redd's word. It's

that

I am not certain how high of a priority this will be given to this

multifaceted problem. The trick now, is to politely stay in their faces until

they

have to act. It is mind boggling how many professional from phds, clinicians,

architects, etc have put uncountable hours into studying this issue, and they

are just now receptive to understanding that mycotic disease is real. What I

see as the heart of the problem is that every professional is trying to

address this from simply their aspect and a consorted effort to put all the

pieces together has not come into play. They acknowledged this as something

they

need to work on. This was the primary intent of the Surgeon General's

Workshop.

I am skeptical, yet encouraged by what I witnessed in DC. I honestly do

believe that most who are working on this issue sincerely want to help us.

They

just don't know what to do and have been subjected to misinformation of the

part of those who have put financial goals over the the goal of the

betterment of mankind.

I was able to get it out that the IOM report only studied the non-infection

aspect of the situation. Dr. had to say " yes " in a room filled with 400

scientists, clinicians, etc. when I asked her " wasn't the charge of the IOM

to only study the non-infection aspect? " Several doctors spoke of the need

to better understand the infection caused by poor indoor air quality. (They

still have difficulty using the " F word " - fungal!) A few more spoke of the

need to train clinicians as to the effects of serious systemic environmental

illnesses.

If we work together, if we stay on their radar, I think we can make a major

change. There were a lot of great suggestions that came out of this meeting.

The #1 positive that I saw was that it was virtually a unanimous consensus

that the public has to be made aware that illnesses from poor indoor air

quality, mainly mold, is an extremely serious health threat. That's HUGE!!

Segal from Congressman Conyers' office spoke about all the desperate

calls they receive over this issue. Over a two day period, I felt a definite

change in attitude in that room. At the beginning of the first day, it felt

like skepticism to our plight was high. By the end of the second day,

had about 5 or 6 professionals around him at any given time discussing how we

can work together to make a change. did a fantastic job of adding

credibility to what we are going through. I just can't thank him enough!

Sharon