Guest guest Posted August 27, 2003 Report Share Posted August 27, 2003 GOsh I have not been on here much lately but I really wanted to say congrats on the explant. Try not to stress too much on how you look now. I know easier said than done right? Anyhow try to relax and pamper yourself. I found after almost 3 years that I love the way I look with small enhancers in my pocket bra, better than the gel bras and I wear them and feel confident and good about how I look. They make me a full B cup which fits my figure best I think! I do look good without them, naked my breasts don't look bad at all, the scars are pretty much gone, but I feel better with something in my bra when I am in clothes and the enhancers make me the size I want without implants. My husband thinks they look awesome not bad at all. Anyhow that is what I do and I feel good about it. To be honest I hardly ever even think about my boobs anymore. Besides I am too busy doing homework to think about boobs ha ha . Hope your recovering well and just take it one day at a time. It does really really get better. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2003 Report Share Posted August 30, 2003 Thanks for the encouragement! My problem with the way I look is...I never developed a right breast. This is why I got implants in the first place. My left breast is a full B cup (a little more stretched out now) and I have nothing but a nipple on the right side...not to mention the scars...but I've learned that my health is way more important than the way I look without my clothes on. I have been married for 6 years and my husband has been really wonderful in that department. My surgeon told me about a procedure I can have later where they take tissue from your abdomen or back to rebuild your breasts...I haven't heard much about it, but I'm going to do some research. I was so sick, my surgeon wanted to get the implants out and get me well before we put my body through any more surgery...so reconstruction (if I have any) will be way on down the line. From: " naturalbeauty38 " <naturalbeauty38@...> Reply- Date: Wed, 27 Aug 2003 22:56:43 -0000 Subject: To Colleen GOsh I have not been on here much lately but I really wanted to say congrats on the explant. Try not to stress too much on how you look now. I know easier said than done right? Anyhow try to relax and pamper yourself. I found after almost 3 years that I love the way I look with small enhancers in my pocket bra, better than the gel bras and I wear them and feel confident and good about how I look. They make me a full B cup which fits my figure best I think! I do look good without them, naked my breasts don't look bad at all, the scars are pretty much gone, but I feel better with something in my bra when I am in clothes and the enhancers make me the size I want without implants. My husband thinks they look awesome not bad at all. Anyhow that is what I do and I feel good about it. To be honest I hardly ever even think about my boobs anymore. Besides I am too busy doing homework to think about boobs ha ha . Hope your recovering well and just take it one day at a time. It does really really get better. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 Colleen, It sounds like you have a very smart surgeon.....definitely your health is more important than having breasts. Patty ----- Original Message ----- From: Colleen Sent: Saturday, August 30, 2003 11:34 AM Subject: Re: To Colleen Thanks for the encouragement! My problem with the way I look is...I never developed a right breast. This is why I got implants in the first place. My left breast is a full B cup (a little more stretched out now) and I have nothing but a nipple on the right side...not to mention the scars...but I've learned that my health is way more important than the way I look without my clothes on. I have been married for 6 years and my husband has been really wonderful in that department. My surgeon told me about a procedure I can have later where they take tissue from your abdomen or back to rebuild your breasts...I haven't heard much about it, but I'm going to do some research. I was so sick, my surgeon wanted to get the implants out and get me well before we put my body through any more surgery...so reconstruction (if I have any) will be way on down the line. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2005 Report Share Posted June 12, 2005 -Hi Colleen, You are so right, the internet brings the people all over the world closer together, and makes groups like this possible. It's fantastic! When Anniina was diagnosed, I used to spend hours on the computer, looking for information and answers to all my questions. Now I still search the internet daily for any new information or articles, but these supportgroups are really the best... There are actually others out there who know what this disease is!!! I got a letter from our rheumtologist, last friday, and she is indeed planning MTX- medication for Anniina. So the medications and treatments are pretty much the same all over the world, I think. Does MTX have any sideaffects I should know about and start preparing for? In a household with 4 children and a dog, there is never a quiet moment, an Anniina is allways on the move. It starts the minute she wakes up, and she keeps on going until it's bedtime, so as for exersise... She is getting plenty. Sometimes I just wish she would actually sit down for a while, and be quiet, but that seems to be impossible. She is a great kid, she just has so much energy, that one gets tired just looking at her go! Well, that is of course a good thing, becouse when she was very ill, she was totally a different girl. Allways tired, sleeping a lot, not wanting to play with the others, just wanted to be left alone. So, when a active kid gets like that, then you know for sure there is something terribly wrong with her. *Sini & Anniina* - In , Colleen <bookissmom@y...> wrote: > Hello Sini- > > Welcome to our board! Sometimes, I am awed contemplating that I am getting support from people in far off places that I have never seen, and will likely never see. Finland! And though I sometimes am saddened by the changes that technology has brought, I am so grateful for how far it allows my arms to reach! I can't imagine what this would be like without the internet to bring this family to me..... > > Anyway, I'm sorry that your daughter has turned around for the worse. Though I think it is quite a hopeful sign that she did well for so long. Many doctors think that how the disease responds in the early course of treatment offers some prediction of long-term outcome. That is another reason why many doctors recommend aggressive treatment early on. > > Though I can't offer any advice in the ways of European medicine, it seems like your next step might be a DMARD (disease modifying anti-rheumatic drug) such as methotrexate. Corticosteroids are only a short-term solution to bring disease releif and control - because of the side effects and complications that come with their use. So if the Naproxen is not controlling things, which it often doesn't in systemic cases, a DMARD is a likely next step. My daughter is seven, and was diagnosed four years ago with systemic JRA. She has been on methotrexate since diagnosis. > > My only other recommendation is to make sure that your daughter does some physical therapy for her knees and hips especially. Since you are so far from the hospital, perhaps you can get some ideas the next time you visit your doctor.... perhaps she has some pictures and descriptions she can give you. That way Anniina can do strectches and exercise at home so that she doesn't lose any range of motion in those joints. It sounds like you have a very busy household, so she probably is already very active. > > Just in closing I'd like to mention that Still's, like any other form of arthritis, manifests iteslf differently in children than it does in adults. For instance, adults who develop rheumatoid arthritis may respond to different medications, have a variety of different symptoms etc. than children. So even though they are quite similar, they are not exactly the same. I only mention that so you don't become alarmed if your course of treatment is different than what you may see reflected on the adult Still's site. That's why you also will see plenty of adults on this board with JRA - they may be 30 or 40 years old now... but if the disease onset was in childhood, it's still condidered JRA and it's a bit of a different animal than the disease than starts in adulthood. > > I have great hope for your daughter! many children are able to gain medical control over arthritis and I hope that she will be one of them! If there is anything I can do to help, please don't hesitate to ask!!! > > Colleen (mom to Caitlin, 7, systemic) > > sinikoskela <sininikula@g...> wrote: > Hi there, > I have a daughter, aged 5, who was diagnosed with Systemic-onset > Juvenile Rheumatoid Arthritis in the late autumn of 2002. I just > signed in with another support group, Stills diseaese, and there > , and n, told me about your group. I am looking for > information about this disease, about what to expect and am hoping > to learn more about what the future might be like for my daughter. > That's where you, all dear people, come in. > > We live in Finland in a small town called Pieksämäki, and the > doctors here, don't know anything about this disease. I have to take > my daughter to the University hospital of Kuopio, one hour drive > away, for all her examinations and check-ups. But I am happy to, > becouse the rheumatologist we have there is a very kind and > understanding woman, who really seems to know a lot about Stills, > allways takes me serious (many doctors don't) and, the most > important thing, my daughter really likes her. For Anniina, a trip > to the hospital seems to be a day off, and she is allways looking > forward to it. That makes everything so much easier. I hope our own > rheumatologist (Liisa Kröger from Kuopio university hospital) will > be our own doctor for a long time. > > With Anniina the disease started with a rash (allergy, they told > me), then she got pain in her ankle(bandage on), when the pain > didn't go away it was suddenly my fault ( I had taught my daughter > that she needed the bandage. It was supposed to be psycological, she > just needed my attention!?!)... Then came the fevers, 40-41 degrees > fahrenheit. I went to our own doctor, I went to the ER, we tried > everything and after weeks and weeks, finally a young doctor at the > ER admitted he didn't have a clue, and send us to a bigger hospital > in Mikkeli. There they gave her strong antibiotics (I.V.) and did > all kind of test, but still no clue what so ever. After 2.5 weeks in > Mikkeli we had to go to Kuopio. There Anniina had to go through many > tests and examinations again, but finally she was diagnosed with > Still's. > > It was a tough time with a very ill child and all the medicins. We > used Prednisolon, Hydrocortison, Naproxen for the pain,Atarax for > the allergic rash, Ferinsol for the anemia... Then there was the > milk > allergy... No milk, not anything that had ones been in a cow. It was > a pretty hectic time ( Aniina has two sisters and one brother, so it > is never quiet in the house). > > We had one year that she didn't have to use any medications, she did > need treatments for her ankle tough, but everything was looking > good. Finally her ankle was ok and I thought it was all over... Boy, > was I wrong. In the beginning of may this year, she started > complaining about her knee. We went to Kuopio and it seemed there > was something wrong with her knee AND with her hip. So, here we go > again.... > > So, dear people, I hope to hear from you all very soon, especially > people in Europe ( where are all the europeans hiding). What can we > expect from the future? Any advise? > > Sorry for all the mistakes with my vocabulary and grammar, but we > could allways write in finish =) > > A big hug to all of you, > Anniina and mummy-Sini > > > > > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
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