Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 Patty, I know from my experience there are two thyroid antibodies that they test for (I am unsure if there are more) Anti Thyroglobulin and Anti thyroid peroxidase. (TPO) I was sopossed to be under two on both, and the anti thyroidglobulin was at 12,000 for a year, that is the one most likely to be high in the case of thyroid cancers, so they really watch the nodules, as in my case. Meanwhile, the anti thyroid peroxidase (TPO) is usually the most common marker found in women with Hashimotos, usually not seen in relation to thyroid cancers. But some women have both, like me. I had both markers. My TPO was at 1100, or 1200 for over a year. Then, 3 Months after explant, and being on Dr Mercola's diet, with no Gluten (He believes that almost all thyroid is due to wheat intolerance, and also infectious) Wheat is also listed to be related in a lot of thyroid books, and on Shonman's site. Both went down , from 12,000 to 70 after explant, and the TPO from 1100 to 90 . (Now at 60) If you are asking me, I would look at your diet more closely and see if you may have a fool allergy triggering it. Maybe Gluten, or Dairy. I would cut out one, and have my doc retest in 4 weeks to see if the antibodies go down, that’s what I did with dairy. Then try the other. I seem to be ok with Dairy but def not Gluten. Or simply, you could request to have a gliadon antibody testing, to see if you are definitly allergic to wheat (celiac disease or sensitivity) and that may help. Celiac disease or just a small case of it, such as a sensitivity can trigger/cause RA, HAshimtos, Lupus, and many other auto immune illness, that upon eliminating them from your diet, everything calms down, and the secondary issues, like perhaps thyroid for you, would correct itself. By doing the blood test, you aren't cutting out a food that may be beneficial, as and I were talking about, you would know for sure. I know they say that the thyroid is really impacted/affected by food allergies. I believe it. Also if you are low on thyroid (meds), or having thyroid resistance (Dr Lowe-I want to go to him so bad!) then you will continue to have high antibodies as the thyroid is struggling, and stimulating itself to make more hormone, thinking it isnt making enough. Does that make sense? Its so hard to explain, I had to re-read some of my thyroid books two and three times to get it. And then there is mycoplasma infection, (didn’t you say that was in your implants) and its ability to get into the thyroid gland, causing a toxic gland, (that is what goiters and hashimtos are considered, and medically termed-"toxic") Perhaps you may want to rule that out, and get a panel performed on to list any mycoplasma's done. That infection had been found in thyroid glands, messing up function, and causing disease. Dr Nicolson talks about it on his site. Search it, Patty. www.immed.org Anyway, hope that helps a little, hope you doing well, hun. --- Original Message ----- From: *~Patty~* Sent: Monday, August 25, 2003 9:05 AM Subject: hashimoto's, , Since my Anti-TPO antibodies tested way higher at 50.5 recently, after being only 7 or 8 for the last year, I was wondering what kind of variations you have seen in your blood work. Can you share numbers? I remember you saying that something went down by the thousands when you got your implants out....was that the Anti-TPO antibodies? Thanks, Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2003 Report Share Posted August 26, 2003 Thanks , I did get tested for food allergies back in 1998 by my naturopath in Tucson and that is when I found the food allergy to chocolate and brewer's yeast. (First time in my life I knew about being allergic to chocolate!) Maybe I should be tested again. I have wondered about the wheat. I seem to get either a runny nose or brain fog sometimes--not every time--after eating wheat products. Eggs too. Food seems to have become an issue in my life, where it never was before. So we are pretty much at around the same place with our anti-TPO antibodies...I was just so shocked to see mine at 50 when it has been at 7! I don't know what triggers it, so it sounds like I really do need to take a look at my foods. I remember that guy that wrote the book on how he cured his Hashimoto's--he did it pretty much through diet, right? Thanks . I hope you are feeling better too! I am doing good--have energy again, kids are back in school, I am getting back into a schedule! I noticed a little pain in my hand joints and in my feet, but I am hoping with working out again, and doing a fast (planning one soon) will make it go away. Patty ----- Original Message ----- From: JOSEPH PALANCA Sent: Monday, August 25, 2003 12:24 PM Subject: Re: hashimoto's, Patty, I know from my experience there are two thyroid antibodies that they test for (I am unsure if there are more) Anti Thyroglobulin and Anti thyroid peroxidase. (TPO) I was sopossed to be under two on both, and the anti thyroidglobulin was at 12,000 for a year, that is the one most likely to be high in the case of thyroid cancers, so they really watch the nodules, as in my case. Meanwhile, the anti thyroid peroxidase (TPO) is usually the most common marker found in women with Hashimotos, usually not seen in relation to thyroid cancers. But some women have both, like me. I had both markers. My TPO was at 1100, or 1200 for over a year. Then, 3 Months after explant, and being on Dr Mercola's diet, with no Gluten (He believes that almost all thyroid is due to wheat intolerance, and also infectious) Wheat is also listed to be related in a lot of thyroid books, and on Shonman's site. Both went down , from 12,000 to 70 after explant, and the TPO from 1100 to 90 . (Now at 60) If you are asking me, I would look at your diet more closely and see if you may have a fool allergy triggering it. Maybe Gluten, or Dairy. I would cut out one, and have my doc retest in 4 weeks to see if the antibodies go down, that’s what I did with dairy. Then try the other. I seem to be ok with Dairy but def not Gluten. Or simply, you could request to have a gliadon antibody testing, to see if you are definitly allergic to wheat (celiac disease or sensitivity) and that may help. Celiac disease or just a small case of it, such as a sensitivity can trigger/cause RA, HAshimtos, Lupus, and many other auto immune illness, that upon eliminating them from your diet, everything calms down, and the secondary issues, like perhaps thyroid for you, would correct itself. By doing the blood test, you aren't cutting out a food that may be beneficial, as and I were talking about, you would know for sure. I know they say that the thyroid is really impacted/affected by food allergies. I believe it. Also if you are low on thyroid (meds), or having thyroid resistance (Dr Lowe-I want to go to him so bad!) then you will continue to have high antibodies as the thyroid is struggling, and stimulating itself to make more hormone, thinking it isnt making enough. Does that make sense? Its so hard to explain, I had to re-read some of my thyroid books two and three times to get it. And then there is mycoplasma infection, (didn’t you say that was in your implants) and its ability to get into the thyroid gland, causing a toxic gland, (that is what goiters and hashimtos are considered, and medically termed-"toxic") Perhaps you may want to rule that out, and get a panel performed on to list any mycoplasma's done. That infection had been found in thyroid glands, messing up function, and causing disease. Dr Nicolson talks about it on his site. Search it, Patty. www.immed.org Anyway, hope that helps a little, hope you doing well, hun. --- Original Message Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2003 Report Share Posted August 26, 2003 Hands and feet, isnt that something? Me too, the only places, I know they say that is thyroid related. Try to cut out any gluton products for a few weeks, and see. I did read that book , how he healed his hashimotos, and he did all by diet, supplements, and plenty of probiotics. Did you read it? Great, and short read. ----- Original Message ----- From: *~Patty~* Sent: Tuesday, August 26, 2003 8:32 AM Subject: Re: hashimoto's, Thanks , I did get tested for food allergies back in 1998 by my naturopath in Tucson and that is when I found the food allergy to chocolate and brewer's yeast. (First time in my life I knew about being allergic to chocolate!) Maybe I should be tested again. I have wondered about the wheat. I seem to get either a runny nose or brain fog sometimes--not every time--after eating wheat products. Eggs too. Food seems to have become an issue in my life, where it never was before. So we are pretty much at around the same place with our anti-TPO antibodies...I was just so shocked to see mine at 50 when it has been at 7! I don't know what triggers it, so it sounds like I really do need to take a look at my foods. I remember that guy that wrote the book on how he cured his Hashimoto's--he did it pretty much through diet, right? Thanks . I hope you are feeling better too! I am doing good--have energy again, kids are back in school, I am getting back into a schedule! I noticed a little pain in my hand joints and in my feet, but I am hoping with working out again, and doing a fast (planning one soon) will make it go away. Patty ----- Original Message ----- From: JOSEPH PALANCA Sent: Monday, August 25, 2003 12:24 PM Subject: Re: hashimoto's, Patty, I know from my experience there are two thyroid antibodies that they test for (I am unsure if there are more) Anti Thyroglobulin and Anti thyroid peroxidase. (TPO) I was sopossed to be under two on both, and the anti thyroidglobulin was at 12,000 for a year, that is the one most likely to be high in the case of thyroid cancers, so they really watch the nodules, as in my case. Meanwhile, the anti thyroid peroxidase (TPO) is usually the most common marker found in women with Hashimotos, usually not seen in relation to thyroid cancers. But some women have both, like me. I had both markers. My TPO was at 1100, or 1200 for over a year. Then, 3 Months after explant, and being on Dr Mercola's diet, with no Gluten (He believes that almost all thyroid is due to wheat intolerance, and also infectious) Wheat is also listed to be related in a lot of thyroid books, and on Shonman's site. Both went down , from 12,000 to 70 after explant, and the TPO from 1100 to 90 . (Now at 60) If you are asking me, I would look at your diet more closely and see if you may have a fool allergy triggering it. Maybe Gluten, or Dairy. I would cut out one, and have my doc retest in 4 weeks to see if the antibodies go down, that’s what I did with dairy. Then try the other. I seem to be ok with Dairy but def not Gluten. Or simply, you could request to have a gliadon antibody testing, to see if you are definitly allergic to wheat (celiac disease or sensitivity) and that may help. Celiac disease or just a small case of it, such as a sensitivity can trigger/cause RA, HAshimtos, Lupus, and many other auto immune illness, that upon eliminating them from your diet, everything calms down, and the secondary issues, like perhaps thyroid for you, would correct itself. By doing the blood test, you aren't cutting out a food that may be beneficial, as and I were talking about, you would know for sure. I know they say that the thyroid is really impacted/affected by food allergies. I believe it. Also if you are low on thyroid (meds), or having thyroid resistance (Dr Lowe-I want to go to him so bad!) then you will continue to have high antibodies as the thyroid is struggling, and stimulating itself to make more hormone, thinking it isnt making enough. Does that make sense? Its so hard to explain, I had to re-read some of my thyroid books two and three times to get it. And then there is mycoplasma infection, (didn’t you say that was in your implants) and its ability to get into the thyroid gland, causing a toxic gland, (that is what goiters and hashimtos are considered, and medically termed-"toxic") Perhaps you may want to rule that out, and get a panel performed on to list any mycoplasma's done. That infection had been found in thyroid glands, messing up function, and causing disease. Dr Nicolson talks about it on his site. Search it, Patty. www.immed.org Anyway, hope that helps a little, hope you doing well, hun. --- Original Message Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2003 Report Share Posted August 27, 2003 Sorry to hear that your still having issues, but glad that your working on ways to improve them. I am curious about the metabolism issues too. I wonder if your eating enough? Do you think you get enough calories? Do you fast often? I think fasting though it may be good for you could really wreak havoc on the metabolism too. Have you taken synthroid before? Did it work on you or not? Can't remember if you did or did not take it before. Me, I am always hungry. I hate it. Does not matter what I do either, weather I eat carbs or protein I still have this insatiable appetite. It drives me totally nuts. It sucks. I am lucky I have not gained wieght with my hunger issues. Blah, wish I could just not be hungry that would be awesome. hope you find answers to what is going on. Your still so newly recovering though I bet things will get better and better over the next year to two years. For me it was like that. The first 2 years still had way more up and downs than I do now. Hugs C In , " JOSEPH PALANCA " <juliejp61@m...> wrote: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 Hi , Yes, I did read his book. It was such a small, short and skeletal book (most of it was blank pages for you to record your own progress!) that I turned around and sold it right away on Amazon.com marketplace. I do remember that he was able to deal with his Hashimoto's almost entirely by diet. I need to work on cutting out the wheat products. It has been tough lately! We celebrated my son's birthday ( of course I had to have some of his birthday cake!), and went camping which included some packaged foods that had wheat of course, and next week is my birthday and wedding anniversary--no doubt I'll be eating foods with wheat in them again, although I will try not to. Cutting out grains is a huge challenge. By the way, my joint pain is gone! It wasn't bad to begin with, and it seemed to only be around for a short time, thank God for that. Hope you are doing well! Patty ----- Original Message ----- From: JOSEPH PALANCA Sent: Tuesday, August 26, 2003 11:30 AM Subject: Re: hashimoto's, Hands and feet, isnt that something? Me too, the only places, I know they say that is thyroid related. Try to cut out any gluton products for a few weeks, and see. I did read that book , how he healed his hashimotos, and he did all by diet, supplements, and plenty of probiotics. Did you read it? Great, and short read. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 Hello Patty.... Thought I would through in my two cents since I saw my endocrinologist last week. She said I had an underacted anxoius thyroid. I asked, her what that meant and what Hashimoto's was. She said that is what I have, it is the same thing. They drew some blood samples to see if they need to change my meds, have not heard anything yet this week. I have a question regarding wheat products, bread etc. Everytime I have bread and wheat products it seems to give me some kind of re-flux thing. My joint pain did get a little bit better after I e-mailed on vacation last month. But the last few days--since the Labor day weekend, my aches in my muscles and breathing (pressure in chest) have gotten worse. A week and a half ago I learned that the Atkins diet is good if you have an underactive thyroid. I tried it and seemed to do a little better. I am going back on it today.( blew it over the weekend, with Labor day) My second question is regarding alcohol. Drank a couple of margarita's over the weekend and a glass of wine one day, my aches have gotten worse. Could the carbs in everything be associated. Do you think the Atkin's diet is a good one to try. Thank you ......... S ----- Original Message ----- From: *~Patty~* Sent: Wednesday, September 03, 2003 8:06 AM Subject: Re: hashimoto's, Hi , Yes, I did read his book. It was such a small, short and skeletal book (most of it was blank pages for you to record your own progress!) that I turned around and sold it right away on Amazon.com marketplace. I do remember that he was able to deal with his Hashimoto's almost entirely by diet. I need to work on cutting out the wheat products. It has been tough lately! We celebrated my son's birthday ( of course I had to have some of his birthday cake!), and went camping which included some packaged foods that had wheat of course, and next week is my birthday and wedding anniversary--no doubt I'll be eating foods with wheat in them again, although I will try not to. Cutting out grains is a huge challenge. By the way, my joint pain is gone! It wasn't bad to begin with, and it seemed to only be around for a short time, thank God for that. Hope you are doing well! Patty ----- Original Message ----- From: JOSEPH PALANCA Sent: Tuesday, August 26, 2003 11:30 AM Subject: Re: hashimoto's, Hands and feet, isnt that something? Me too, the only places, I know they say that is thyroid related. Try to cut out any gluton products for a few weeks, and see. I did read that book , how he healed his hashimotos, and he did all by diet, supplements, and plenty of probiotics. Did you read it? Great, and short read. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 , I have been given the T3 by Dr. Royal, (cytomel). He actually put me on it last year when he first tested me and found the Hashimoto's, but when I went to a traditional endocrinologist, he took me off the T3, saying it was way too strong for me. He worked with me to get the NUMBERS right on the tests, but I started feeling really crappy again after he took me down to 1 grain of Biothroid. I told him I really would rather be on the two grains and feeling better. So, that is where I stayed for over 6 months. Then when I decided I might get a boost from Dr. Royal with a Vit C IV this past month, he did some blood tests again, and lo and behold, he wants me on T3, the cytomel again! I just don't know what to think about it...it seems that my T3 is in the high normal ranges, while my T4 is in the low normal ranges, so I am confused as to why he wants me on the T3...but apparently HE thinks it will make me feel better. I filled the script, but haven't taken it long enough to know if it is going to help or not. I'll be adding the BioPure too when I get that--maybe I should hold off and do one at a time to see which one is helping, rather than confuse the issue. Anyway, I hope you do get to try it....just to see if you feel better with it. I feel like a ping pong ball between these two docs. Patty ----- Original Message ----- From: JOSEPH PALANCA Sent: Wednesday, August 27, 2003 7:50 AM Subject: Re: Re: hashimoto's, , It has helped alot, really I mean my periods since the first month on it, are now every 26 days, used to be like every 16 or so, (thats totally hypothyroid symptoms) and spuratic , light and heavy, then bam , they would stop.Now pretty normal since being on the progesterone, and my joint pain has decreased like 50% since starting it, no more headaches, water retention has gotten better. Although I am sweating now for the 1st time in along time, I cant lose weight. And my energy is low on some days, too. I still have alot of thyroid symptoms. Its like I am having metabolism problems. Despite working out all sorts of differnt ways with and without weights for 55 min a day. Despite eating no grains. I am sick of it, and just want to be sure I am not having a tissue resistance to thyroid hormone. Dr Lowe sees patients with metabolim problems, due to not being on the right amount of thyroid /and or the right type (T3). Most of his patients have not done well on pig thyroid, or on synthetic. Both of which Ihave been on. And I do have signs of fibro, been told by differnt docs that I had it, so I have always been interested in seeing him.What could hurt? Before I go, I am going to ask Dr mercola if he will please treat me with a small added amount of t3 to see if that helps. If it doesnt, I am going. I willstill be a ptient of Dr mercola, as my regualr doc. But I obviously need to see a specialist when it comes to my metabolism, I need to get well. And I like the fact that he believes that patients that have mycoplasma infections, on the right amount of thyroid will become strong enough to fight it on its own, as tissues that dont get enough hormone, lack strength, and are suseptable to infections like these. No antibiotics, hmmm. Theres a plus. Anyway, we will see. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 Yup, me too! Lots of ups and downs for about 3 years in fact. Even 18 months after explant I was feeling poisoned still, but it got better slowly after that. This definitely just takes time and alot of dedication to healthy living. Patty ----- Original Message ----- From: naturalbeauty38 Sent: Wednesday, August 27, 2003 3:50 PM Subject: Re: hashimoto's, Sorry to hear that your still having issues, but glad that your working on ways to improve them. I am curious about the metabolism issues too. I wonder if your eating enough? Do you think you get enough calories? Do you fast often? I think fasting though it may be good for you could really wreak havoc on the metabolism too. Have you taken synthroid before? Did it work on you or not? Can't remember if you did or did not take it before. Me, I am always hungry. I hate it. Does not matter what I do either, weather I eat carbs or protein I still have this insatiable appetite. It drives me totally nuts. It sucks. I am lucky I have not gained wieght with my hunger issues. Blah, wish I could just not be hungry that would be awesome.hope you find answers to what is going on. Your still so newly recovering though I bet things will get better and better over the next year to two years. For me it was like that. The first 2 years still had way more up and downs than I do now.HugsC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2003 Report Share Posted September 4, 2003 Thanks Patty for your kind words You are in good hands, do you know how hard it is to get t3 alone or added? Lucky gal- you. Many docs are still in the dark about the potency, the strength of t3, esp for patients with conversion problems, or uptake. Like me. Even a more open doc like Dr Mercola is reluctant, and I have been begging for it for over a year. He thinks my labs are fine on just Armour, and does not think I need it. I think differently. Just like Dr Lowe says, some people that are not uptaking the hormone into tissues, try synthetic t4's and natural pig thyroid only to find they do not work, that is when t3 is the greatest option. How I wish I could get a doc to think so. I see Mercola in Oct, and that is it, I am filling a folder with info, and asking him one more time, for a trial on it. Its my last hope. I feel better, but not as good as I think I should, still exhibit some hypo symtpoms and I cannot lose weight no matter what. l don’t even want advise on losing weight as I have done it all, with patience. I currently joined Curves, work out the alternating days, eat almost all veggies and fruits, no dairy or red meat, and small portions of protein. I have had it with this resistant weight issue. it is so not me! you go girl , keep the t3- ITS LIKE GOLD! Message ----- From: *~Patty~* Sent: Wednesday, September 03, 2003 5:01 PM Subject: Re: Re: hashimoto's, , I have been given the T3 by Dr. Royal, (cytomel). He actually put me on it last year when he first tested me and found the Hashimoto's, but when I went to a traditional endocrinologist, he took me off the T3, saying it was way too strong for me. He worked with me to get the NUMBERS right on the tests, but I started feeling really crappy again after he took me down to 1 grain of Biothroid. I told him I really would rather be on the two grains and feeling better. So, that is where I stayed for over 6 months. Then when I decided I might get a boost from Dr. Royal with a Vit C IV this past month, he did some blood tests again, and lo and behold, he wants me on T3, the cytomel again! I just don't know what to think about it...it seems that my T3 is in the high normal ranges, while my T4 is in the low normal ranges, so I am confused as to why he wants me on the T3...but apparently HE thinks it will make me feel better. I filled the script, but haven't taken it long enough to know if it is going to help or not. I'll be adding the BioPure too when I get that--maybe I should hold off and do one at a time to see which one is helping, rather than confuse the issue. Anyway, I hope you do get to try it....just to see if you feel better with it. I feel like a ping pong ball between these two docs. Patty ----- Original Message ----- From: JOSEPH PALANCA Sent: Wednesday, August 27, 2003 7:50 AM Subject: Re: Re: hashimoto's, , It has helped alot, really I mean my periods since the first month on it, are now every 26 days, used to be like every 16 or so, (thats totally hypothyroid symptoms) and spuratic , light and heavy, then bam , they would stop.Now pretty normal since being on the progesterone, and my joint pain has decreased like 50% since starting it, no more headaches, water retention has gotten better. Although I am sweating now for the 1st time in along time, I cant lose weight. And my energy is low on some days, too. I still have alot of thyroid symptoms. Its like I am having metabolism problems. Despite working out all sorts of differnt ways with and without weights for 55 min a day. Despite eating no grains. I am sick of it, and just want to be sure I am not having a tissue resistance to thyroid hormone. Dr Lowe sees patients with metabolim problems, due to not being on the right amount of thyroid /and or the right type (T3). Most of his patients have not done well on pig thyroid, or on synthetic. Both of which Ihave been on. And I do have signs of fibro, been told by differnt docs that I had it, so I have always been interested in seeing him.What could hurt? Before I go, I am going to ask Dr mercola if he will please treat me with a small added amount of t3 to see if that helps. If it doesnt, I am going. I willstill be a ptient of Dr mercola, as my regualr doc. But I obviously need to see a specialist when it comes to my metabolism, I need to get well. And I like the fact that he believes that patients that have mycoplasma infections, on the right amount of thyroid will become strong enough to fight it on its own, as tissues that dont get enough hormone, lack strength, and are suseptable to infections like these. No antibiotics, hmmm. Theres a plus. Anyway, we will see. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2003 Report Share Posted September 4, 2003 Gee, no wonder the pharmacists all ask me if it really helps! Both times that I filled this cytomel script, the pharmacists look at me like they really want to hear my words of wisdom on it...they are so intent on knowing if I feel better on it. It's almost like they are skeptical. I didn't realize it was that big of a deal, mainly because Dr. Royal was so non-chalant about giving it to me. The endocrinologist was really pretty much against it. I hope you get to just TRY it....just to see how you feel. I wonder why Dr. Mercola is so dead set against it? I wonder if he knows something we don't! Now I'm really curious! I'll let you know how I feel on it...so far I have felt the best on 2 grains of Biothroid, but maybe I need to adjust to the cytomel. Time will tell. Guess I'll do a little more research too...time to hit those thyroid books again. Patty ----- Original Message ----- From: JOSEPH PALANCA Sent: Wednesday, September 03, 2003 9:49 PM Subject: Re: Re: hashimoto's, Thanks Patty for your kind words You are in good hands, do you know how hard it is to get t3 alone or added? Lucky gal- you. Many docs are still in the dark about the potency, the strength of t3, esp for patients with conversion problems, or uptake. Like me. Even a more open doc like Dr Mercola is reluctant, and I have been begging for it for over a year. He thinks my labs are fine on just Armour, and does not think I need it. I think differently. Just like Dr Lowe says, some people that are not uptaking the hormone into tissues, try synthetic t4's and natural pig thyroid only to find they do not work, that is when t3 is the greatest option. How I wish I could get a doc to think so. I see Mercola in Oct, and that is it, I am filling a folder with info, and asking him one more time, for a trial on it. Its my last hope. I feel better, but not as good as I think I should, still exhibit some hypo symtpoms and I cannot lose weight no matter what. l don’t even want advise on losing weight as I have done it all, with patience. I currently joined Curves, work out the alternating days, eat almost all veggies and fruits, no dairy or red meat, and small portions of protein. I have had it with this resistant weight issue. it is so not me! you go girl , keep the t3- ITS LIKE GOLD! Message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2003 Report Share Posted September 4, 2003 Rogene, My temps before thyroid replacement were in the 96 range. Very strange to me, but no doctor ever said anything about it. As for the T4, T3 issue, actually it is T4 that is converted into T3. Synthroid replacement (T4) is so common, because doctors take the view that T4 will convert to the needed T3, so that is all that is necessary for replacment therapy. Except that for some people, they don't convert T4 into T3 well at all. In those cases, the natural thyroid which supplies both T4 and T3 works better. That is what I take. T3 is the most powerful of the two hormones, and rarely do people need to take it alone. I guess only if you can't convert T4 into T3 at all. All this can be figured out with the right blood tests, but even then, some doctors don't interpret the tests right. Dr. Shames calls it the tyranny of the test, when Drs treat by numbers and not how the patient feels. Sometimes what is "low normal" for a person in the numbers may actually be true hypothyroidism for that person, and they do better on replacment therapy, even though doctors may not see it that way. I guess you can only really go by how you feel. Check this link out for ways to find your optimal thyroid dose: http://thyroid.about.com/library/weekly/aa012402a.htm Patty ----- Original Message ----- From: Rogene S Sent: Thursday, September 04, 2003 5:41 AM Subject: Re: Re: hashimoto's, Ladies with thyroid problems . . . is your normal body temperature well below normal? . . . Recently, when I saw the doc, my temp was 97 . . . not at all unusual for me. I was on Synthroid for some time. . . developed heart palipations, so I quit. (My body temp was low while on Synthroid too). I quit after repeatedly experiencing an irregular heart beat. After getting through the major part of recovery from implants, I couldn't tell any difference how I felt with, or without, Synthroid. For the most part the heart thing stopped and my labs are fine without Synthroid. (My doctor wasn't happy about my quitting, and quizzical about my labs afterwards) Nevertheless, I'm think there still is a thryoid problem. Maybe T3 uptake . . . isn't T3 what is used to make T4? or is it the other way around? I've heard that Synthroid doesn't address that. My metablolism is very slow, even while I have a lot of energy. I don't eat much - no sugar, no fatty foods. I'm trying to lose weight, but not "dieting" . .. I am losing weight very slowly . . . a couple pounds every six months or so. In addition, I have several "normal" goiter nodules (as determined by biopsy) that don't appear to be growing. Those could be affecting my thyroid function. Any ideas? Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 Hi , Hmmm, I've never heard of an underacted anxious thyroid before! But in any case, I am sorry to hear of your Hashimoto's diagnosis, NOT that I am surprised by it at all. Seems alot of us have that. Is this the first time you've been told you had Hashimoto's? As for the Atkin's diet....I've never tried it. I have read about it, and found that there are some drawbacks associated with it, and that has kept me from investigating it any further. However, if you feel good on it, then you should go with what feels good for you. You might want to read some of the information against it though, just to be informed. You can draw your own conclusions then, based on solid info. (Here's one: http://www.mercola.com/2002/aug/24/atkins.htm ) By the way, where did you hear it was good for those with an underactive thyroid? I would advise against drinking alcohol. It is pretty tough on the liver. I used to enjoy a half glass of red wine in the afternoon, after reading the book "What Would Jesus Eat?" by Dr. Don Colbert. He discussed all the beneficial components in red wine, and I thought I would be doing a good thing for myself. But I think for those of us who are ill, any form of alcohol is just plain bad. I stopped drinking any wine of any kind because I started having some joint pains too. Focus on a healthy diet, paying attention to anything that might be giving you slight reactions. Sometimes it is hard to discern. It took me years to realize what was giving me trouble, but I know potatoes do, corn does, soy does, egg, chocolate, and I suspect wheat at times, too. Hope this helps , and I hope you start feeling good! What kind of thyroid supplementation are you on? Patty ----- Original Message ----- From: Sent: Wednesday, September 03, 2003 12:57 PM Subject: Re: hashimoto's, Hello Patty.... Thought I would through in my two cents since I saw my endocrinologist last week. She said I had an underacted anxoius thyroid. I asked, her what that meant and what Hashimoto's was. She said that is what I have, it is the same thing. They drew some blood samples to see if they need to change my meds, have not heard anything yet this week. I have a question regarding wheat products, bread etc. Everytime I have bread and wheat products it seems to give me some kind of re-flux thing. My joint pain did get a little bit better after I e-mailed on vacation last month. But the last few days--since the Labor day weekend, my aches in my muscles and breathing (pressure in chest) have gotten worse. A week and a half ago I learned that the Atkins diet is good if you have an underactive thyroid. I tried it and seemed to do a little better. I am going back on it today.( blew it over the weekend, with Labor day) My second question is regarding alcohol. Drank a couple of margarita's over the weekend and a glass of wine one day, my aches have gotten worse. Could the carbs in everything be associated. Do you think the Atkin's diet is a good one to try. Thank you ......... S Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 Hi Patty...This is the first time I was actually told I have Hashimoto's. But I have had an enlarged thyroid since puberty. They said I would grow out of it. I believe the implants just made everything worse, with muscle aches and joint pain. Chest tightness ( I can breathe fine), it just really is tight and seems to be hard to breathe. As far as Atkins, I have found information on a support group in the UK, but I do not have the link anymore. Was feeling good on it, but started cheating. I am going to give it a good go at it and see what happens again. Never liked chocolate, my dad is allergic.. I believe you are right and I have read that soy is bad for underactive thyroid patients... I am ready to go back to my doctor. Not sure what he will do anymore....Take care.... S ----- Original Message ----- From: *~Patty~* Sent: Friday, September 05, 2003 7:48 AM Subject: Re: hashimoto's, Hi , Hmmm, I've never heard of an underacted anxious thyroid before! But in any case, I am sorry to hear of your Hashimoto's diagnosis, NOT that I am surprised by it at all. Seems alot of us have that. Is this the first time you've been told you had Hashimoto's? As for the Atkin's diet....I've never tried it. I have read about it, and found that there are some drawbacks associated with it, and that has kept me from investigating it any further. However, if you feel good on it, then you should go with what feels good for you. You might want to read some of the information against it though, just to be informed. You can draw your own conclusions then, based on solid info. (Here's one: http://www.mercola.com/2002/aug/24/atkins.htm ) By the way, where did you hear it was good for those with an underactive thyroid? I would advise against drinking alcohol. It is pretty tough on the liver. I used to enjoy a half glass of red wine in the afternoon, after reading the book "What Would Jesus Eat?" by Dr. Don Colbert. He discussed all the beneficial components in red wine, and I thought I would be doing a good thing for myself. But I think for those of us who are ill, any form of alcohol is just plain bad. I stopped drinking any wine of any kind because I started having some joint pains too. Focus on a healthy diet, paying attention to anything that might be giving you slight reactions. Sometimes it is hard to discern. It took me years to realize what was giving me trouble, but I know potatoes do, corn does, soy does, egg, chocolate, and I suspect wheat at times, too. Hope this helps , and I hope you start feeling good! What kind of thyroid supplementation are you on? Patty ----- Original Message ----- From: Sent: Wednesday, September 03, 2003 12:57 PM Subject: Re: hashimoto's, Hello Patty.... Thought I would through in my two cents since I saw my endocrinologist last week. She said I had an underacted anxoius thyroid. I asked, her what that meant and what Hashimoto's was. She said that is what I have, it is the same thing. They drew some blood samples to see if they need to change my meds, have not heard anything yet this week. I have a question regarding wheat products, bread etc. Everytime I have bread and wheat products it seems to give me some kind of re-flux thing. My joint pain did get a little bit better after I e-mailed on vacation last month. But the last few days--since the Labor day weekend, my aches in my muscles and breathing (pressure in chest) have gotten worse. A week and a half ago I learned that the Atkins diet is good if you have an underactive thyroid. I tried it and seemed to do a little better. I am going back on it today.( blew it over the weekend, with Labor day) My second question is regarding alcohol. Drank a couple of margarita's over the weekend and a glass of wine one day, my aches have gotten worse. Could the carbs in everything be associated. Do you think the Atkin's diet is a good one to try. Thank you ......... S Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 Hope you start feeling good again! At least you have a name for your disease now, (as if that really helps, right?) Patty ----- Original Message ----- From: Sent: Friday, September 05, 2003 8:34 AM Subject: Re: hashimoto's, Hi Patty...This is the first time I was actually told I have Hashimoto's. But I have had an enlarged thyroid since puberty. They said I would grow out of it. I believe the implants just made everything worse, with muscle aches and joint pain. Chest tightness ( I can breathe fine), it just really is tight and seems to be hard to breathe. As far as Atkins, I have found information on a support group in the UK, but I do not have the link anymore. Was feeling good on it, but started cheating. I am going to give it a good go at it and see what happens again. Never liked chocolate, my dad is allergic.. I believe you are right and I have read that soy is bad for underactive thyroid patients... I am ready to go back to my doctor. Not sure what he will do anymore....Take care.... S Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 Thank you Patty....hope all my other symptoms are affilated to it.....Have a great weekend... S ----- Original Message ----- From: *~Patty~* Sent: Friday, September 05, 2003 12:45 PM Subject: Re: hashimoto's, Hope you start feeling good again! At least you have a name for your disease now, (as if that really helps, right?) Patty ----- Original Message ----- From: Sent: Friday, September 05, 2003 8:34 AM Subject: Re: hashimoto's, Hi Patty...This is the first time I was actually told I have Hashimoto's. But I have had an enlarged thyroid since puberty. They said I would grow out of it. I believe the implants just made everything worse, with muscle aches and joint pain. Chest tightness ( I can breathe fine), it just really is tight and seems to be hard to breathe. As far as Atkins, I have found information on a support group in the UK, but I do not have the link anymore. Was feeling good on it, but started cheating. I am going to give it a good go at it and see what happens again. Never liked chocolate, my dad is allergic.. I believe you are right and I have read that soy is bad for underactive thyroid patients... I am ready to go back to my doctor. Not sure what he will do anymore....Take care.... S Quote Link to comment Share on other sites More sharing options...
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