Re: Sarcoidosis/to:

[Guest guest]

I certainly feel your post deserves the best attn. I believe a women on here Kathy will know the answer to your question. Have you read much on this site? Also there is a Dr. Kolb who can be found at by hitting the sites below. She is one of our doctors that everyone subscribes too. she could probalby give you the best medical advice. Actually getting a response may be hard, however she would be the one to know. A dr. feung, look at files same for Dr. Kolb will be able to give you excellent answers to. If you can find the phone numbers to dial their direct office lines with a little research you'll get them. I've heard they are very helpful.Try there. Also look for Kathy on here. I will alert her to your question. Certainly many of us have inflammation. Kathy understands about the damage that can happen to organs. Certainly silicone can affect the organs, thats why many are diagnosed with

Lupus, scheroderma, sojerners, and other connective tissue diseases. Stick around and keep asking. god Bless your wife, Blessings, james dloughy <james_dloughy@...> wrote:

My wife was diagnosed with Cardiac Sarcoidosis two years ago. Seven

years ago she was implanted with Saline filled Implants. She

does not present classic symptoms of Cardiac Sarcoidosis except the

discovery of inflammation in the thoracic cavity, including the

myocardium and a very small patch of non-caesating grandulomas in her

upper left lung. As a result of this disease, she has been implanted

with a ICD, placed on a dose of 20mg Prednisone or higher to suppress the inflammation and told she

has five years to live transplant free.

Doctors at the University of California, School of Medicine

report that for a woman with debilitating multisystem sarcoidosis

(multi-organ granulomas), her clinical condition dramatically improved,

after her silicone implants were removed. (International Archives of

Allergy and Immunology 105:4 [December 1994], 404-407). This journal

and many others suggest that there is a possibility that Anne Louise’s

inflammation is a result of her implants.

I am of the opinion that if the implants have one scintilla of a chance

of causing this idiopathic inflammation, an investigation is merited.

I would appreciate your thoughts on whether or not the possiblity

exists of the implants being related to the inflammation. And whether

you have knowledge of implants causing imflammation to the heart or any other vital organ.

Thank you.

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[Guest guest]

,

Actually, Dr. Kolb's advice has been quite controversial, and that is the reason I have made a request not to discuss her on this board. Please honor that request. It is not true that "she is one of our doctors that everyone subscribes too." I am not saying that she is not helpful, and in fact, she is quite knowledgeable. However, I have reasons, (which I have made clear to this forum), about taking all discussions of Dr. Kolb private, so please, again, honor this request.

Patty

----- Original Message -----

From: michelle king

Sent: Wednesday, September 17, 2003 10:48 PM

Subject: Re: Sarcoidosis/to:

I certainly feel your post deserves the best attn. I believe a women on here Kathy will know the answer to your question. Have you read much on this site? Also there is a Dr. Kolb who can be found at by hitting the sites below. She is one of our doctors that everyone subscribes too. she could probalby give you the best medical advice. Actually getting a response may be hard, however she would be the one to know. A dr. feung, look at files same for Dr. Kolb will be able to give you excellent answers to. If you can find the phone numbers to dial their direct office lines with a little research you'll get them. I've heard they are very helpful.Try there. Also look for Kathy on here. I will alert her to your question. Certainly many of us have inflammation. Kathy understands about the damage that can happen to organs. Certainly silicone can affect the organs, thats why many are diagnose d with Lupus, scheroderma, sojerners, and other connective tissue diseases. Stick around and keep asking. god Bless your wife, Blessings,