Guest guest Posted July 27, 2008 Report Share Posted July 27, 2008 Hello! I am (almost) 30 years old and just started Lexapro 4 days ago. I have generalized anxiety disorder. I have a tendency to get depressed on and off, but not a diagnosis. My major difficulty is the GAD. This past year (due to major life changes) I developed performance anxiety and experienced a few panic attacks. This led me to finally deciding to see a doctor and go back on medication. I was diagnosed with GAD 5 years ago. I started with Paxil. I had terrible side effects and gained 40 pounds. Coming off of the drug was an experience I would rather not repeat. My doctor then put me on Sarafem. This drug was alright, I did not have as many side effects but I found it was not helping my GAD as much. After two years of medicine I went off. I made it 3 years without taking anything and used more natural methods (coping strategies, meditation, positive affirmations/thinking etc.) to deal. However, I am finding it is not enough anymore. So here I am on Lexapro! So far I felt 'spacy' on and off. The main side effects seem to have started 2 days ago. I noticed I was having difficulty focusing while reading. My eyes seemed to hurt. My boyfriend looked at me and noticed my pupils keep dilating (they are pulsing, getting bigger and smaller). This is continuing. At times my eyes seem to calm down a bit and other times they pulse. This is really irritating. Has anyone else had this? How long did this last? Out of everything this side effect is freaking me out the most. My appetite has been low. Today is the first day I feel exhausted. I slept later than I usually do and I feel like I cant get motivated to do much today. My brain almost does not want to turn on. I am hoping it is better tomorrow for my workshop!! I know everyone experiences medications differently but it would still be nice connecting and hearing what others go through. Glad I found this group! Lysh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 Hi - I started experiencing severe anxiety about a year ago - was off work for 6 months - a combination of lexapro and other therapies put me on what has been a very slow road to recovery  You know all about lex - and it sounds like you have explored alternative therapies too -   what particularily interested me was your mention of meditation - I find it has really started to help  - dod uyou stop using it ?  Mike From: allysha2k6 <allysha2k6@...> Subject: Re: Hello! New Here! Lexapro Date: Monday, 28 July, 2008, 11:53 AM Sorry for the blank post before! I know I might not have adrenal problems, but it never hurts to look at other options. I am going to give it a little bit of time to see if the symptoms go away and then take it from there. If it continues to be a problem at least I have a question I can bring up to my doctor. Thanks again! Lysh > > > > From: allysha2k6 <allysha2k6@ ...> > > Subject: Re: Hello! New Here! > > Lexapro@groups .com > > Date: Sunday, July 27, 2008, 6:00 PM > > > > > > > > > > > > > > , > > Thank you, I will look into those websites. Did you have the pupil > > dilation problems prior to taking lexapro or was it the medication > that > > made it apparent? > > > > Lysh > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 I did stop meditating and I think that caused some of my anxieties to become more severe. I do believe meditating helps and I am working on bringing it back into my life. How long have you been working on it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2008 Report Share Posted August 1, 2008 Hi Allysha  I started meditating about 20 years ago - I had a couple of depresive episodes in my late teens early twenties and when I met some people who practised meditation I could see the possible benefits  I meditated on and off ( you know what its like) for quite a few years but had stopped for a few years before developing severe anxiety associated with health problems about a year ago  It has taken about 9 months on Lex plus relaxation therapy, yoga counselling  etc etc. just to get back  to the point back where I was able to actually start meditating again few months ago - it is really starting to help me feel I have some control over my anxiety and improve my mood - I am down to taking 5mg of Lex every 2 / 3 days which is good  let me know if you want more details  Mike From: allysha2k6 <allysha2k6@...> Subject: Re: Hello! New Here! Lexapro Date: Thursday, 31 July, 2008, 10:11 PM I did stop meditating and I think that caused some of my anxieties to become more severe. I do believe meditating helps and I am working on bringing it back into my life. How long have you been working on it? __________________________________________________________ Not happy with your email address?. Get the one you really want - millions of new email addresses available now at http://uk.docs./ymail/new.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2010 Report Share Posted October 14, 2010 Glad you made a decision already! I am still on pain meds even after the stimulator However, I can get outta bed now and before that was all I did and wanted to do. I wish I could tell u a few tricks to make it feel better..so far I found nothing except really soft socks and slippers. As a matter of fact it is flared up right now and I think it might be the change to cooler weather:) just a strange disorder. I hope you are feeling good about the decision and hope you are having a " good " day. All we can hope for and some days are better than others! Mind if I ask what kind of pain med you are trying now? I use avinza and started testing lyrica. Seems to make me feel better than I have in a very long time. A On Oct 11, 2010, at 6:55 PM, " Brandee " <brandeejo6@...> wrote: > Thank you so much for the response! I had my appt to discuss the stimulator last Tues. I decided to try it! I figure at this point, I'll try anything! now, it's just a waiting game for Comp to approve it. Hopefully it will help me also, but if not, I will have tried. They now have started me on yet another new pain med. I have only taken it twice thus far, so not yet sure yet if I will have a reaction to it too. I hope you are feeling good today! And when I hear of the approval/denial, I will be glad to let you know! By the way, are there any type of " remedies " (so to speak) that help? I'm finding nothing on my own and all I've tried. Thx..in advance! Brandee > > > > > > > Hello, my name is Brandee. I am a 32 yr old woman with RSD in my left foot, diagnosed around Feb of this year. I have been on some pain meds, but sadly have a bad reaction to all I've tried. I have tried the spinal nerve blocks, which did nothing, other than make me worse. (Well, I assume it to have resulted from my first injection, however, maybe it just happened to be timing.) I have a consultation Tues to discuss a spinal stimulator trial. Any info regarding RSD and/or stimulator would be greatly appreciated! TY! (And I hope everyone is having a " good " pain day!) > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2010 Report Share Posted October 18, 2010 Hi, Brandee; thea here. I know what you mean about worrying that the opiates are addictive. I don't have a stimulator for physical pain. But I can relate to your body not liking meds too well. I can't take SSRI's even though they treat a wider variety of symptoms of depression and various forms of anxiety like PTSD and OCD. I'm on a minimal dose of Methotrexate bc my liver doesn't like it. Meaning that my RA is less controlled. So more pain. I'm probably already dependent on opiates, but until the RA is better controlled, it's the lesser of two evils for me. I hope the stimulator works for you if you decide to try one. I know what it's like to have your body reject one med after another. Thea From: Brandee Sent: Friday, October 15, 2010 2:19 AM stimulator Subject: Re: Re: Hello! New here! Now, I am currently on; Neurontin, Clonidine (to open blood vessels. I have to monitor my bp at least a couple times a day. I have Hypothyroid and my bp always runs low, and Clonidine is a bp pill typically.) Amitriptyline for sleep and after time, can help w/ nerve issues, Nucynta (that is a new pain pill.) And I have to take hydroxozine w/ the Nucynta to counter act the itch. (I itch bad on many of the narcotic pain meds) I had been on Percocet 7.5/325 taking 2 at a time and got no relief. After 1-2 months of taking it, I started to vomit from it. Other Dr's (prior to pain clinic. Pain clinic btw, is where I got my diagnosis. After many Dr's " treating " me for just typical pain I guess) had me on different types of anti-inflamatory meds and so far, nothing has helped my pain. I spoke to pain clinic yest regarding my reaction of itching and told her the Nucynta is not helping. She told me to double my dose and see how that wrks. It's still not helping! I told her in last appt, last Tues, the Neurontin and/or Amitriptyline are not helping. But, she still wants me to continue on them. And my orthopedic Dr suggested the Nucynta. It has less GI issues typically. So far, knock on wood, no GI issues. But sadly, it is not touching my pain! I'm beginning to become very nervous! Not so much abt the stimulator but if the stimulator doesn't work for me. Dr told me, stimulator is last option. If it doesn't work I'll just be treated w/ pain meds for rest of my life. Or until something new is discovered. I'm 33yrs old (as of yest) I'm very fearful of addiction to the narcotics, there is so much I can't take due to my reactions to so many. And nothing I have tried has helped at all. I can't imagine living with this pain for the rest of my life! I'm hoping stimulator works but not getting my hopes to high. I dnt want it to not work and be devastated. I'm trying to stay positively optimistic but it gets harder and harder each day. Every day I wake up in pain. Every night I go to bed hoping to wake up pain free, then I come back to reality and hope to wake up w/ a " good pain day " and that doesn't happen either. Sry to ramble so much and Ty for your responses! Oh, I noticed you are on Lyrica. May I ask if you are experiencing many side effects? I ask because, my injury was work related, I'm on comp. I had, had a comp nurse gng to appts w/ me. When my pain clinic Dr (I actually see the PA for typical appts but the term " Dr " is just easier to say..Haha) anyway, she said she wanted to start me on Neurontin, the comp nurse asked why not Lyrica? Dr (PA) said she has found less side effects w/ Neurontin ad oposed to the Lyrica. Again, sry to ramble. And I apologize for my shotycutting words. I know that is close to a " pet peave " to some people. Hope you are having a good day! And ty again! ~Brandee On Thu Oct 14th, 2010 9:25 AM EDT Amy wrote: >Glad you made a decision already! I am still on pain meds even after the stimulator However, I can get outta bed now and before that was all I did and wanted to do. >I wish I could tell u a few tricks to make it feel better..so far I found nothing except really soft socks and slippers. >As a matter of fact it is flared up right now and I think it might be the change to cooler weather:) just a strange disorder. >I hope you are feeling good about the decision and hope you are having a " good " day. All we can hope for and some days are better than others! >Mind if I ask what kind of pain med you are trying now? >I use avinza and started testing lyrica. >Seems to make me feel better than I have in a very long time. >A > >On Oct 11, 2010, at 6:55 PM, " Brandee " <brandeejo6@...> wrote: > >> Thank you so much for the response! I had my appt to discuss the stimulator last Tues. I decided to try it! I figure at this point, I'll try anything! now, it's just a waiting game for Comp to approve it. Hopefully it will help me also, but if not, I will have tried. They now have started me on yet another new pain med. I have only taken it twice thus far, so not yet sure yet if I will have a reaction to it too. I hope you are feeling good today! And when I hear of the approval/denial, I will be glad to let you know! By the way, are there any type of " remedies " (so to speak) that help? I'm finding nothing on my own and all I've tried. Thx..in advance! Brandee >> >> >> > >> > > Hello, my name is Brandee. I am a 32 yr old woman with RSD in my left foot, diagnosed around Feb of this year. I have been on some pain meds, but sadly have a bad reaction to all I've tried. I have tried the spinal nerve blocks, which did nothing, other than make me worse. (Well, I assume it to have resulted from my first injection, however, maybe it just happened to be timing.) I have a consultation Tues to discuss a spinal stimulator trial. Any info regarding RSD and/or stimulator would be greatly appreciated! TY! (And I hope everyone is having a " good " pain day!) >> > > >> > > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2010 Report Share Posted October 18, 2010 Brandee....what was ur injury again? What state r u in? I am also on workers comp and I was injured right after I turned 30....that was 8 1/2 yrs ago. What is ur diagnosis? I didn't have side effects when I was on lyrica but it didn't help my pain either. I have also been on many meds and had little to no results as far as pain relief. How long ago was ur injury? Deanna Sent from my iPhone On Oct 15, 2010, at 5:19 AM, Brandee <brandeejo6@...> wrote: Now, I am currently on; Neurontin, Clonidine (to open blood vessels. I have to monitor my bp at least a couple times a day. I have Hypothyroid and my bp always runs low, and Clonidine is a bp pill typically.) Amitriptyline for sleep and after time, can help w/ nerve issues, Nucynta (that is a new pain pill.) And I have to take hydroxozine w/ the Nucynta to counter act the itch. (I itch bad on many of the narcotic pain meds) I had been on Percocet 7.5/325 taking 2 at a time and got no relief. After 1-2 months of taking it, I started to vomit from it. Other Dr's (prior to pain clinic. Pain clinic btw, is where I got my diagnosis. After many Dr's " treating " me for just typical pain I guess) had me on different types of anti-inflamatory meds and so far, nothing has helped my pain. I spoke to pain clinic yest regarding my reaction of itching and told her the Nucynta is not helping. She told me to double my dose and see how that wrks. It's still not helping! I told her in last appt, last Tues, the Neurontin and/or Amitriptyline are not helping. But, she still wants me to continue on them. And my orthopedic Dr suggested the Nucynta. It has less GI issues typically. So far, knock on wood, no GI issues. But sadly, it is not touching my pain! I'm beginning to become very nervous! Not so much abt the stimulator but if the stimulator doesn't work for me. Dr told me, stimulator is last option. If it doesn't work I'll just be treated w/ pain meds for rest of my life. Or until something new is discovered. I'm 33yrs old (as of yest) I'm very fearful of addiction to the narcotics, there is so much I can't take due to my reactions to so many. And nothing I have tried has helped at all. I can't imagine living with this pain for the rest of my life! I'm hoping stimulator works but not getting my hopes to high. I dnt want it to not work and be devastated. I'm trying to stay positively optimistic but it gets harder and harder each day. Every day I wake up in pain. Every night I go to bed hoping to wake up pain free, then I come back to reality and hope to wake up w/ a " good pain day " and that doesn't happen either. Sry to ramble so much and Ty for your responses! Oh, I noticed you are on Lyrica. May I ask if you are experiencing many side effects? I ask because, my injury was work related, I'm on comp. I had, had a comp nurse gng to appts w/ me. When my pain clinic Dr (I actually see the PA for typical appts but the term " Dr " is just easier to say..Haha) anyway, she said she wanted to start me on Neurontin, the comp nurse asked why not Lyrica? Dr (PA) said she has found less side effects w/ Neurontin ad oposed to the Lyrica. Again, sry to ramble. And I apologize for my shotycutting words. I know that is close to a " pet peave " to some people. Hope you are having a good day! And ty again! ~Brandee On Thu Oct 14th, 2010 9:25 AM EDT Amy wrote: >Glad you made a decision already! I am still on pain meds even after the stimulator However, I can get outta bed now and before that was all I did and wanted to do. >I wish I could tell u a few tricks to make it feel better..so far I found nothing except really soft socks and slippers. >As a matter of fact it is flared up right now and I think it might be the change to cooler weather:) just a strange disorder. >I hope you are feeling good about the decision and hope you are having a " good " day. All we can hope for and some days are better than others! >Mind if I ask what kind of pain med you are trying now? >I use avinza and started testing lyrica. >Seems to make me feel better than I have in a very long time. >A > >On Oct 11, 2010, at 6:55 PM, " Brandee " <brandeejo6@...> wrote: > >> Thank you so much for the response! I had my appt to discuss the stimulator last Tues. I decided to try it! I figure at this point, I'll try anything! now, it's just a waiting game for Comp to approve it. Hopefully it will help me also, but if not, I will have tried. They now have started me on yet another new pain med. I have only taken it twice thus far, so not yet sure yet if I will have a reaction to it too. I hope you are feeling good today! And when I hear of the approval/denial, I will be glad to let you know! By the way, are there any type of " remedies " (so to speak) that help? I'm finding nothing on my own and all I've tried. Thx..in advance! Brandee >> >> >> > >> > > Hello, my name is Brandee. I am a 32 yr old woman with RSD in my left foot, diagnosed around Feb of this year. I have been on some pain meds, but sadly have a bad reaction to all I've tried. I have tried the spinal nerve blocks, which did nothing, other than make me worse. (Well, I assume it to have resulted from my first injection, however, maybe it just happened to be timing.) I have a consultation Tues to discuss a spinal stimulator trial. Any info regarding RSD and/or stimulator would be greatly appreciated! TY! (And I hope everyone is having a " good " pain day!) >> > > >> > > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2010 Report Share Posted October 19, 2010 Well ty Thea, for the response. I still haven't heard on approval/denial from comp for stimulator, but, I'm expecting it to take quite a while. They dnt move very fast. I'm still awaiting approval for my hydroxozine from last week or possibly week prior. I forget exactly when. My mind seems to slow dwn greatly when I have so much on my mind! (And I've been on hydroxozine already, so I'm not sure y its taking them so long to approve it again?!) So far, I am dng ok on the Nucynta. Thank goodness! Knock on wood! My Dr did adbeevise me (again, last wk or wk prior maybe) to double the dosage. It still isn't dng a whole lot for my pain, but, I do keep taking it, with the hope that it will help at least some, one of these days. Living with pain like this is so overwhelming! I hope u r having a good day today! And Ty again for the response! On Mon Oct 18th, 2010 12:44 PM EDT thea ramsay wrote: >Hi, Brandee; thea here. >I know what you mean about worrying that the opiates are addictive. >I don't have a stimulator for physical pain. But I can relate to your body not liking meds too well. >I can't take SSRI's even though they treat a wider variety of symptoms of depression and various forms of anxiety like PTSD and OCD. >I'm on a minimal dose of Methotrexate bc my liver doesn't like it. Meaning that my RA is less controlled. >So more pain. I'm probably already dependent on opiates, but until the RA is better controlled, it's the lesser of two evils for me. >I hope the stimulator works for you if you decide to try one. >I know what it's like to have your body reject one med after another. >Thea > > >From: Brandee >Sent: Friday, October 15, 2010 2:19 AM >stimulator >Subject: Re: Re: Hello! New here! > > > >Now, I am currently on; Neurontin, Clonidine (to open blood vessels. I have to monitor my bp at least a couple times a day. I have Hypothyroid and my bp always runs low, and Clonidine is a bp pill typically.) Amitriptyline for sleep and after time, can help w/ nerve issues, Nucynta (that is a new pain pill.) And I have to take hydroxozine w/ the Nucynta to counter act the itch. (I itch bad on many of the narcotic pain meds) I had been on Percocet 7.5/325 taking 2 at a time and got no relief. After 1-2 months of taking it, I started to vomit from it. Other Dr's (prior to pain clinic. Pain clinic btw, is where I got my diagnosis. After many Dr's " treating " me for just typical pain I guess) had me on different types of anti-inflamatory meds and so far, nothing has helped my pain. I spoke to pain clinic yest regarding my reaction of itching and told her the Nucynta is not helping. She told me to double my dose and see how that wrks. It's still not helping! I >told her in last appt, last Tues, the Neurontin and/or Amitriptyline are not helping. But, she still wants me to continue on them. And my orthopedic Dr suggested the Nucynta. It has less GI issues typically. So far, knock on wood, no GI issues. But sadly, it is not touching my pain! I'm beginning to become very nervous! Not so much abt the stimulator but if the stimulator doesn't work for me. Dr told me, stimulator is last option. If it doesn't work I'll just be treated w/ pain meds for rest of my life. Or until something new is discovered. I'm 33yrs old (as of yest) I'm very fearful of addiction to the narcotics, there is so much I can't take due to my reactions to so many. And nothing I have tried has helped at all. I can't imagine living with this pain for the rest of my life! I'm hoping stimulator works but not getting my hopes to high. I dnt want it to not work and be devastated. I'm trying to stay positively optimistic but it gets harder and >harder each day. Every day I wake up in pain. Every night I go to bed hoping to wake up pain free, then I come back to reality and hope to wake up w/ a " good pain day " and that doesn't happen either. Sry to ramble so much and Ty for your responses! Oh, I noticed you are on Lyrica. May I ask if you are experiencing many side effects? I ask because, my injury was work related, I'm on comp. I had, had a comp nurse gng to appts w/ me. When my pain clinic Dr (I actually see the PA for typical appts but the term " Dr " is just easier to say..Haha) anyway, she said she wanted to start me on Neurontin, the comp nurse asked why not Lyrica? Dr (PA) said she has found less side effects w/ Neurontin ad oposed to the Lyrica. Again, sry to ramble. And I apologize for my shotycutting words. I know that is close to a " pet peave " to some people. Hope you are having a good day! And ty again! ~Brandee > >On Thu Oct 14th, 2010 9:25 AM EDT Amy wrote: > >>Glad you made a decision already! I am still on pain meds even after the stimulator However, I can get outta bed now and before that was all I did and wanted to do. >>I wish I could tell u a few tricks to make it feel better..so far I found nothing except really soft socks and slippers. >>As a matter of fact it is flared up right now and I think it might be the change to cooler weather:) just a strange disorder. >>I hope you are feeling good about the decision and hope you are having a " good " day. All we can hope for and some days are better than others! >>Mind if I ask what kind of pain med you are trying now? >>I use avinza and started testing lyrica. >>Seems to make me feel better than I have in a very long time. >>A >> >>On Oct 11, 2010, at 6:55 PM, " Brandee " <brandeejo6@...> wrote: >> >>> Thank you so much for the response! I had my appt to discuss the stimulator last Tues. I decided to try it! I figure at this point, I'll try anything! now, it's just a waiting game for Comp to approve it. Hopefully it will help me also, but if not, I will have tried. They now have started me on yet another new pain med. I have only taken it twice thus far, so not yet sure yet if I will have a reaction to it too. I hope you are feeling good today! And when I hear of the approval/denial, I will be glad to let you know! By the way, are there any type of " remedies " (so to speak) that help? I'm finding nothing on my own and all I've tried. Thx..in advance! Brandee >>> >>> >>> > >>> > > Hello, my name is Brandee. I am a 32 yr old woman with RSD in my left foot, diagnosed around Feb of this year. I have been on some pain meds, but sadly have a bad reaction to all I've tried. I have tried the spinal nerve blocks, which did nothing, other than make me worse. (Well, I assume it to have resulted from my first injection, however, maybe it just happened to be timing.) I have a consultation Tues to discuss a spinal stimulator trial. Any info regarding RSD and/or stimulator would be greatly appreciated! TY! (And I hope everyone is having a " good " pain day!) >>> > > >>> > > >>> > >>> > >>> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2010 Report Share Posted October 19, 2010 Deanna, I broke my heel bone June 09. The fractured healed but as a result of injury, I developed RSD/Complex Regional Pain Syndrome. I'm not finding any relief from any of the meds I've been on and/or am currently taking. Oh, I live in NY. And comp seems to drag their feet with everything! Even approving meds. Meds that I've been on too. Not just the new meds. As if the fact of chronic pain and the literal physical pain aren't overwhelming alone, then to add in the frustration of having to wait for meds to be approved! I wld almost rather pay co-pays angle such from my medical insurance as oposed to comp paying. Assuming my ins carrier wldnt make me wait so long. But, I cld not afford to be out of wrk, continue to pay for health ins and then all the co-pays, etc. So, sadly I'm stuck having to deal w/ all the downfalls of comp. I hope u r having a good pain day! And I appreciate ur response and quest. It's so nice to have the feeling of someone else understanding where I am coming from w/ many of the same or similar issues. However, knowing u too are in constant or close to constant pain, I sympathise and wish you didn't have to experience all the negative! On Mon Oct 18th, 2010 3:19 PM EDT Deanna Ramsey wrote: >Brandee....what was ur injury again? What state r u in? I am also on workers comp and I was injured right after I turned 30....that was 8 1/2 yrs ago. What is ur diagnosis? >I didn't have side effects when I was on lyrica but it didn't help my pain either. I have also been on many meds and had little to no results as far as pain relief. How long ago was ur injury? > >Deanna > >Sent from my iPhone > >On Oct 15, 2010, at 5:19 AM, Brandee <brandeejo6@...> wrote: > >Now, I am currently on; Neurontin, Clonidine (to open blood vessels. I have to monitor my bp at least a couple times a day. I have Hypothyroid and my bp always runs low, and Clonidine is a bp pill typically.) Amitriptyline for sleep and after time, can help w/ nerve issues, Nucynta (that is a new pain pill.) And I have to take hydroxozine w/ the Nucynta to counter act the itch. (I itch bad on many of the narcotic pain meds) I had been on Percocet 7.5/325 taking 2 at a time and got no relief. After 1-2 months of taking it, I started to vomit from it. Other Dr's (prior to pain clinic. Pain clinic btw, is where I got my diagnosis. After many Dr's " treating " me for just typical pain I guess) had me on different types of anti-inflamatory meds and so far, nothing has helped my pain. I spoke to pain clinic yest regarding my reaction of itching and told her the Nucynta is not helping. She told me to double my dose and see how that wrks. It's still not helping! I >told her in last appt, last Tues, the Neurontin and/or Amitriptyline are not helping. But, she still wants me to continue on them. And my orthopedic Dr suggested the Nucynta. It has less GI issues typically. So far, knock on wood, no GI issues. But sadly, it is not touching my pain! I'm beginning to become very nervous! Not so much abt the stimulator but if the stimulator doesn't work for me. Dr told me, stimulator is last option. If it doesn't work I'll just be treated w/ pain meds for rest of my life. Or until something new is discovered. I'm 33yrs old (as of yest) I'm very fearful of addiction to the narcotics, there is so much I can't take due to my reactions to so many. And nothing I have tried has helped at all. I can't imagine living with this pain for the rest of my life! I'm hoping stimulator works but not getting my hopes to high. I dnt want it to not work and be devastated. I'm trying to stay positively optimistic but it gets harder and >harder each day. Every day I wake up in pain. Every night I go to bed hoping to wake up pain free, then I come back to reality and hope to wake up w/ a " good pain day " and that doesn't happen either. Sry to ramble so much and Ty for your responses! Oh, I noticed you are on Lyrica. May I ask if you are experiencing many side effects? I ask because, my injury was work related, I'm on comp. I had, had a comp nurse gng to appts w/ me. When my pain clinic Dr (I actually see the PA for typical appts but the term " Dr " is just easier to say..Haha) anyway, she said she wanted to start me on Neurontin, the comp nurse asked why not Lyrica? Dr (PA) said she has found less side effects w/ Neurontin ad oposed to the Lyrica. Again, sry to ramble. And I apologize for my shotycutting words. I know that is close to a " pet peave " to some people. Hope you are having a good day! And ty again! ~Brandee > >On Thu Oct 14th, 2010 9:25 AM EDT Amy wrote: > >>Glad you made a decision already! I am still on pain meds even after the stimulator However, I can get outta bed now and before that was all I did and wanted to do. >>I wish I could tell u a few tricks to make it feel better..so far I found nothing except really soft socks and slippers. >>As a matter of fact it is flared up right now and I think it might be the change to cooler weather:) just a strange disorder. >>I hope you are feeling good about the decision and hope you are having a " good " day. All we can hope for and some days are better than others! >>Mind if I ask what kind of pain med you are trying now? >>I use avinza and started testing lyrica. >>Seems to make me feel better than I have in a very long time. >>A >> >>On Oct 11, 2010, at 6:55 PM, " Brandee " <brandeejo6@...> wrote: >> >>> Thank you so much for the response! I had my appt to discuss the stimulator last Tues. I decided to try it! I figure at this point, I'll try anything! now, it's just a waiting game for Comp to approve it. Hopefully it will help me also, but if not, I will have tried. They now have started me on yet another new pain med. I have only taken it twice thus far, so not yet sure yet if I will have a reaction to it too. I hope you are feeling good today! And when I hear of the approval/denial, I will be glad to let you know! By the way, are there any type of " remedies " (so to speak) that help? I'm finding nothing on my own and all I've tried. Thx..in advance! Brandee >>> >>> >>> > >>> > > Hello, my name is Brandee. I am a 32 yr old woman with RSD in my left foot, diagnosed around Feb of this year. I have been on some pain meds, but sadly have a bad reaction to all I've tried. I have tried the spinal nerve blocks, which did nothing, other than make me worse. (Well, I assume it to have resulted from my first injection, however, maybe it just happened to be timing.) I have a consultation Tues to discuss a spinal stimulator trial. Any info regarding RSD and/or stimulator would be greatly appreciated! TY! (And I hope everyone is having a " good " pain day!) >>> > > >>> > > >>> > >>> > >>> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2010 Report Share Posted October 22, 2010 Know what you mean. Went through a small panic last week when my new dr seemed to be reluctant to prescribe my usual morphine and oxy bc my old doc left Maui for the mainland. The new doc finally did prescribe the meds, but not be4 I went through this panic. Thea From: Brandee Sent: Tuesday, October 19, 2010 4:34 AM stimulator Subject: Re: Re: Hello! New here! Well ty Thea, for the response. I still haven't heard on approval/denial from comp for stimulator, but, I'm expecting it to take quite a while. They dnt move very fast. I'm still awaiting approval for my hydroxozine from last week or possibly week prior. I forget exactly when. My mind seems to slow dwn greatly when I have so much on my mind! (And I've been on hydroxozine already, so I'm not sure y its taking them so long to approve it again?!) So far, I am dng ok on the Nucynta. Thank goodness! Knock on wood! My Dr did adbeevise me (again, last wk or wk prior maybe) to double the dosage. It still isn't dng a whole lot for my pain, but, I do keep taking it, with the hope that it will help at least some, one of these days. Living with pain like this is so overwhelming! I hope u r having a good day today! And Ty again for the response! On Mon Oct 18th, 2010 12:44 PM EDT thea ramsay wrote: >Hi, Brandee; thea here. >I know what you mean about worrying that the opiates are addictive. >I don't have a stimulator for physical pain. But I can relate to your body not liking meds too well. >I can't take SSRI's even though they treat a wider variety of symptoms of depression and various forms of anxiety like PTSD and OCD. >I'm on a minimal dose of Methotrexate bc my liver doesn't like it. Meaning that my RA is less controlled. >So more pain. I'm probably already dependent on opiates, but until the RA is better controlled, it's the lesser of two evils for me. >I hope the stimulator works for you if you decide to try one. >I know what it's like to have your body reject one med after another. >Thea > > >From: Brandee >Sent: Friday, October 15, 2010 2:19 AM >mailto:stimulator%40 >Subject: Re: Re: Hello! New here! > > > >Now, I am currently on; Neurontin, Clonidine (to open blood vessels. I have to monitor my bp at least a couple times a day. I have Hypothyroid and my bp always runs low, and Clonidine is a bp pill typically.) Amitriptyline for sleep and after time, can help w/ nerve issues, Nucynta (that is a new pain pill.) And I have to take hydroxozine w/ the Nucynta to counter act the itch. (I itch bad on many of the narcotic pain meds) I had been on Percocet 7.5/325 taking 2 at a time and got no relief. After 1-2 months of taking it, I started to vomit from it. Other Dr's (prior to pain clinic. Pain clinic btw, is where I got my diagnosis. After many Dr's " treating " me for just typical pain I guess) had me on different types of anti-inflamatory meds and so far, nothing has helped my pain. I spoke to pain clinic yest regarding my reaction of itching and told her the Nucynta is not helping. She told me to double my dose and see how that wrks. It's still not helping! I >told her in last appt, last Tues, the Neurontin and/or Amitriptyline are not helping. But, she still wants me to continue on them. And my orthopedic Dr suggested the Nucynta. It has less GI issues typically. So far, knock on wood, no GI issues. But sadly, it is not touching my pain! I'm beginning to become very nervous! Not so much abt the stimulator but if the stimulator doesn't work for me. Dr told me, stimulator is last option. If it doesn't work I'll just be treated w/ pain meds for rest of my life. Or until something new is discovered. I'm 33yrs old (as of yest) I'm very fearful of addiction to the narcotics, there is so much I can't take due to my reactions to so many. And nothing I have tried has helped at all. I can't imagine living with this pain for the rest of my life! I'm hoping stimulator works but not getting my hopes to high. I dnt want it to not work and be devastated. I'm trying to stay positively optimistic but it gets harder and >harder each day. Every day I wake up in pain. Every night I go to bed hoping to wake up pain free, then I come back to reality and hope to wake up w/ a " good pain day " and that doesn't happen either. Sry to ramble so much and Ty for your responses! Oh, I noticed you are on Lyrica. May I ask if you are experiencing many side effects? I ask because, my injury was work related, I'm on comp. I had, had a comp nurse gng to appts w/ me. When my pain clinic Dr (I actually see the PA for typical appts but the term " Dr " is just easier to say..Haha) anyway, she said she wanted to start me on Neurontin, the comp nurse asked why not Lyrica? Dr (PA) said she has found less side effects w/ Neurontin ad oposed to the Lyrica. Again, sry to ramble. And I apologize for my shotycutting words. I know that is close to a " pet peave " to some people. Hope you are having a good day! And ty again! ~Brandee > >On Thu Oct 14th, 2010 9:25 AM EDT Amy wrote: > >>Glad you made a decision already! I am still on pain meds even after the stimulator However, I can get outta bed now and before that was all I did and wanted to do. >>I wish I could tell u a few tricks to make it feel better..so far I found nothing except really soft socks and slippers. >>As a matter of fact it is flared up right now and I think it might be the change to cooler weather:) just a strange disorder. >>I hope you are feeling good about the decision and hope you are having a " good " day. All we can hope for and some days are better than others! >>Mind if I ask what kind of pain med you are trying now? >>I use avinza and started testing lyrica. >>Seems to make me feel better than I have in a very long time. >>A >> >>On Oct 11, 2010, at 6:55 PM, " Brandee " <mailto:brandeejo6%40> wrote: >> >>> Thank you so much for the response! I had my appt to discuss the stimulator last Tues. I decided to try it! I figure at this point, I'll try anything! now, it's just a waiting game for Comp to approve it. Hopefully it will help me also, but if not, I will have tried. They now have started me on yet another new pain med. I have only taken it twice thus far, so not yet sure yet if I will have a reaction to it too. I hope you are feeling good today! And when I hear of the approval/denial, I will be glad to let you know! By the way, are there any type of " remedies " (so to speak) that help? I'm finding nothing on my own and all I've tried. Thx..in advance! Brandee >>> >>> >>> > >>> > > Hello, my name is Brandee. I am a 32 yr old woman with RSD in my left foot, diagnosed around Feb of this year. I have been on some pain meds, but sadly have a bad reaction to all I've tried. I have tried the spinal nerve blocks, which did nothing, other than make me worse. (Well, I assume it to have resulted from my first injection, however, maybe it just happened to be timing.) I have a consultation Tues to discuss a spinal stimulator trial. Any info regarding RSD and/or stimulator would be greatly appreciated! TY! (And I hope everyone is having a " good " pain day!) >>> > > >>> > > >>> > >>> > >>> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2010 Report Share Posted October 22, 2010 How long will it take to get your stimulator? I had an appointment with a new doc bc my former left the island. My appointment was on the 14th, but they changed it to the 27th, leaving me not enough pain meds. My former dr was ok with my pain meds, but my new doc seemed not to be. Even if they want to pull me off the opiates, they’d have to prescribe more so I had enough to last till the next appointment. Small panic, then they did. Thea From: Brandee Sent: Tuesday, October 19, 2010 4:34 AM stimulator Subject: Re: Re: Hello! New here! Well ty Thea, for the response. I still haven't heard on approval/denial from comp for stimulator, but, I'm expecting it to take quite a while. They dnt move very fast. I'm still awaiting approval for my hydroxozine from last week or possibly week prior. I forget exactly when. My mind seems to slow dwn greatly when I have so much on my mind! (And I've been on hydroxozine already, so I'm not sure y its taking them so long to approve it again?!) So far, I am dng ok on the Nucynta. Thank goodness! Knock on wood! My Dr did adbeevise me (again, last wk or wk prior maybe) to double the dosage. It still isn't dng a whole lot for my pain, but, I do keep taking it, with the hope that it will help at least some, one of these days. Living with pain like this is so overwhelming! I hope u r having a good day today! And Ty again for the response! On Mon Oct 18th, 2010 12:44 PM EDT thea ramsay wrote: >Hi, Brandee; thea here. >I know what you mean about worrying that the opiates are addictive. >I don't have a stimulator for physical pain. But I can relate to your body not liking meds too well. >I can't take SSRI's even though they treat a wider variety of symptoms of depression and various forms of anxiety like PTSD and OCD. >I'm on a minimal dose of Methotrexate bc my liver doesn't like it. Meaning that my RA is less controlled. >So more pain. I'm probably already dependent on opiates, but until the RA is better controlled, it's the lesser of two evils for me. >I hope the stimulator works for you if you decide to try one. >I know what it's like to have your body reject one med after another. >Thea > > >From: Brandee >Sent: Friday, October 15, 2010 2:19 AM >mailto:stimulator%40 >Subject: Re: Re: Hello! New here! > > > >Now, I am currently on; Neurontin, Clonidine (to open blood vessels. I have to monitor my bp at least a couple times a day. I have Hypothyroid and my bp always runs low, and Clonidine is a bp pill typically.) Amitriptyline for sleep and after time, can help w/ nerve issues, Nucynta (that is a new pain pill.) And I have to take hydroxozine w/ the Nucynta to counter act the itch. (I itch bad on many of the narcotic pain meds) I had been on Percocet 7.5/325 taking 2 at a time and got no relief. After 1-2 months of taking it, I started to vomit from it. Other Dr's (prior to pain clinic. Pain clinic btw, is where I got my diagnosis. After many Dr's " treating " me for just typical pain I guess) had me on different types of anti-inflamatory meds and so far, nothing has helped my pain. I spoke to pain clinic yest regarding my reaction of itching and told her the Nucynta is not helping. She told me to double my dose and see how that wrks. It's still not helping! I >told her in last appt, last Tues, the Neurontin and/or Amitriptyline are not helping. But, she still wants me to continue on them. And my orthopedic Dr suggested the Nucynta. It has less GI issues typically. So far, knock on wood, no GI issues. But sadly, it is not touching my pain! I'm beginning to become very nervous! Not so much abt the stimulator but if the stimulator doesn't work for me. Dr told me, stimulator is last option. If it doesn't work I'll just be treated w/ pain meds for rest of my life. Or until something new is discovered. I'm 33yrs old (as of yest) I'm very fearful of addiction to the narcotics, there is so much I can't take due to my reactions to so many. And nothing I have tried has helped at all. I can't imagine living with this pain for the rest of my life! I'm hoping stimulator works but not getting my hopes to high. I dnt want it to not work and be devastated. I'm trying to stay positively optimistic but it gets harder and >harder each day. Every day I wake up in pain. Every night I go to bed hoping to wake up pain free, then I come back to reality and hope to wake up w/ a " good pain day " and that doesn't happen either. Sry to ramble so much and Ty for your responses! Oh, I noticed you are on Lyrica. May I ask if you are experiencing many side effects? I ask because, my injury was work related, I'm on comp. I had, had a comp nurse gng to appts w/ me. When my pain clinic Dr (I actually see the PA for typical appts but the term " Dr " is just easier to say..Haha) anyway, she said she wanted to start me on Neurontin, the comp nurse asked why not Lyrica? Dr (PA) said she has found less side effects w/ Neurontin ad oposed to the Lyrica. Again, sry to ramble. And I apologize for my shotycutting words. I know that is close to a " pet peave " to some people. Hope you are having a good day! And ty again! ~Brandee > >On Thu Oct 14th, 2010 9:25 AM EDT Amy wrote: > >>Glad you made a decision already! I am still on pain meds even after the stimulator However, I can get outta bed now and before that was all I did and wanted to do. >>I wish I could tell u a few tricks to make it feel better..so far I found nothing except really soft socks and slippers. >>As a matter of fact it is flared up right now and I think it might be the change to cooler weather:) just a strange disorder. >>I hope you are feeling good about the decision and hope you are having a " good " day. All we can hope for and some days are better than others! >>Mind if I ask what kind of pain med you are trying now? >>I use avinza and started testing lyrica. >>Seems to make me feel better than I have in a very long time. >>A >> >>On Oct 11, 2010, at 6:55 PM, " Brandee " <mailto:brandeejo6%40> wrote: >> >>> Thank you so much for the response! I had my appt to discuss the stimulator last Tues. I decided to try it! I figure at this point, I'll try anything! now, it's just a waiting game for Comp to approve it. Hopefully it will help me also, but if not, I will have tried. They now have started me on yet another new pain med. I have only taken it twice thus far, so not yet sure yet if I will have a reaction to it too. I hope you are feeling good today! And when I hear of the approval/denial, I will be glad to let you know! By the way, are there any type of " remedies " (so to speak) that help? I'm finding nothing on my own and all I've tried. Thx..in advance! Brandee >>> >>> >>> > >>> > > Hello, my name is Brandee. I am a 32 yr old woman with RSD in my left foot, diagnosed around Feb of this year. I have been on some pain meds, but sadly have a bad reaction to all I've tried. I have tried the spinal nerve blocks, which did nothing, other than make me worse. (Well, I assume it to have resulted from my first injection, however, maybe it just happened to be timing.) I have a consultation Tues to discuss a spinal stimulator trial. Any info regarding RSD and/or stimulator would be greatly appreciated! TY! (And I hope everyone is having a " good " pain day!) >>> > > >>> > > >>> > >>> > >>> > Quote Link to comment Share on other sites More sharing options...
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