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Hello! I am (almost) 30 years old and just started Lexapro 4

days ago. I have generalized anxiety disorder. I have a tendency to

get depressed on and off, but not a diagnosis. My major difficulty

is the GAD. This past year (due to major life changes) I developed

performance anxiety and experienced a few panic attacks. This led me

to finally deciding to see a doctor and go back on medication.

I was diagnosed with GAD 5 years ago. I started with Paxil. I

had terrible side effects and gained 40 pounds. Coming off of the

drug was an experience I would rather not repeat. My doctor then put

me on Sarafem. This drug was alright, I did not have as many side

effects but I found it was not helping my GAD as much. After two

years of medicine I went off. I made it 3 years without taking

anything and used more natural methods (coping strategies,

meditation, positive affirmations/thinking etc.) to deal. However, I

am finding it is not enough anymore. So here I am on Lexapro!

So far I felt 'spacy' on and off. The main side effects seem to

have started 2 days ago. I noticed I was having difficulty focusing

while reading. My eyes seemed to hurt. My boyfriend looked at me

and noticed my pupils keep dilating (they are pulsing, getting bigger

and smaller). This is continuing. At times my eyes seem to calm

down a bit and other times they pulse. This is really irritating.

Has anyone else had this? How long did this last? Out of everything

this side effect is freaking me out the most.

My appetite has been low. Today is the first day I feel

exhausted. I slept later than I usually do and I feel like I cant

get motivated to do much today. My brain almost does not want to

turn on. I am hoping it is better tomorrow for my workshop!!

I know everyone experiences medications differently but it would

still be nice connecting and hearing what others go through. Glad I

found this group!

Lysh

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Hi - I started experiencing severe anxiety about a year ago  - was off work for

6 months - a combination of lexapro and other therapies put me on what has been

a very slow road to  recovery

 

You know all about lex - and it sounds like you have explored alternative

therapies too - 

  

what particularily interested me was your mention of meditation  - I find it

has really started to help  -  dod uyou stop using it ?

 

Mike

From: allysha2k6 <allysha2k6@...>

Subject: Re: Hello! New Here!

Lexapro

Date: Monday, 28 July, 2008, 11:53 AM

Sorry for the blank post before! I know I might not have adrenal

problems, but it never hurts to look at other options. I am going to

give it a little bit of time to see if the symptoms go away and then

take it from there. If it continues to be a problem at least I have

a question I can bring up to my doctor. Thanks again!

Lysh

> >

> > From: allysha2k6 <allysha2k6@ ...>

> > Subject: Re: Hello! New Here!

> > Lexapro@groups .com

> > Date: Sunday, July 27, 2008, 6:00 PM

> >

> >

> >

> >

> >

> >

> > ,

> > Thank you, I will look into those websites. Did you have the

pupil

> > dilation problems prior to taking lexapro or was it the

medication

> that

> > made it apparent?

> >

> > Lysh

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

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Guest guest

I did stop meditating and I think that caused some of my anxieties to

become more severe. I do believe meditating helps and I am working on

bringing it back into my life. How long have you been working on it?

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Hi Allysha 

 

I started meditating about 20 years ago - I had a couple of depresive episodes

in my late teens early twenties and when I met some people who

practised meditation I could see the possible benefits

 

I meditated on and off ( you know what its like) for quite a few years but had

stopped for a few years before developing severe anxiety associated with health

problems about a year ago

 

It has taken about 9 months on Lex plus relaxation therapy, yoga counselling

 etc etc. just to get back  to the point back where I was able to actually

start meditating again few months ago -  it is really starting to help me feel

I have some control over my anxiety and improve my mood - I am down to taking

5mg of Lex every 2 / 3 days which is good

 

let me know if you want more details

 

Mike

From: allysha2k6 <allysha2k6@...>

Subject: Re: Hello! New Here!

Lexapro

Date: Thursday, 31 July, 2008, 10:11 PM

I did stop meditating and I think that caused some of my anxieties to

become more severe. I do believe meditating helps and I am working on

bringing it back into my life. How long have you been working on it?

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  • 2 years later...

Glad you made a decision already! I am still on pain meds even after the

stimulator However, I can get outta bed now and before that was all I did and

wanted to do.

I wish I could tell u a few tricks to make it feel better..so far I found

nothing except really soft socks and slippers.

As a matter of fact it is flared up right now and I think it might be the change

to cooler weather:) just a strange disorder.

I hope you are feeling good about the decision and hope you are having a " good "

day. All we can hope for and some days are better than others!

Mind if I ask what kind of pain med you are trying now?

I use avinza and started testing lyrica.

Seems to make me feel better than I have in a very long time.

A

On Oct 11, 2010, at 6:55 PM, " Brandee " <brandeejo6@...> wrote:

> Thank you so much for the response! I had my appt to discuss the stimulator

last Tues. I decided to try it! I figure at this point, I'll try anything! now,

it's just a waiting game for Comp to approve it. Hopefully it will help me also,

but if not, I will have tried. They now have started me on yet another new pain

med. I have only taken it twice thus far, so not yet sure yet if I will have a

reaction to it too. I hope you are feeling good today! And when I hear of the

approval/denial, I will be glad to let you know! By the way, are there any type

of " remedies " (so to speak) that help? I'm finding nothing on my own and all

I've tried. Thx..in advance! Brandee

>

>

> >

> > > Hello, my name is Brandee. I am a 32 yr old woman with RSD in my left

foot, diagnosed around Feb of this year. I have been on some pain meds, but

sadly have a bad reaction to all I've tried. I have tried the spinal nerve

blocks, which did nothing, other than make me worse. (Well, I assume it to have

resulted from my first injection, however, maybe it just happened to be timing.)

I have a consultation Tues to discuss a spinal stimulator trial. Any info

regarding RSD and/or stimulator would be greatly appreciated! TY! (And I hope

everyone is having a " good " pain day!)

> > >

> > >

> >

> >

> >

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Hi, Brandee; thea here.

I know what you mean about worrying that the opiates are addictive.

I don't have a stimulator for physical pain. But I can relate to your body not

liking meds too well.

I can't take SSRI's even though they treat a wider variety of symptoms of

depression and various forms of anxiety like PTSD and OCD.

I'm on a minimal dose of Methotrexate bc my liver doesn't like it. Meaning that

my RA is less controlled.

So more pain. I'm probably already dependent on opiates, but until the RA is

better controlled, it's the lesser of two evils for me.

I hope the stimulator works for you if you decide to try one.

I know what it's like to have your body reject one med after another.

Thea

From: Brandee

Sent: Friday, October 15, 2010 2:19 AM

stimulator

Subject: Re: Re: Hello! New here!

Now, I am currently on; Neurontin, Clonidine (to open blood vessels. I have to

monitor my bp at least a couple times a day. I have Hypothyroid and my bp always

runs low, and Clonidine is a bp pill typically.) Amitriptyline for sleep and

after time, can help w/ nerve issues, Nucynta (that is a new pain pill.) And I

have to take hydroxozine w/ the Nucynta to counter act the itch. (I itch bad on

many of the narcotic pain meds) I had been on Percocet 7.5/325 taking 2 at a

time and got no relief. After 1-2 months of taking it, I started to vomit from

it. Other Dr's (prior to pain clinic. Pain clinic btw, is where I got my

diagnosis. After many Dr's " treating " me for just typical pain I guess) had me

on different types of anti-inflamatory meds and so far, nothing has helped my

pain. I spoke to pain clinic yest regarding my reaction of itching and told her

the Nucynta is not helping. She told me to double my dose and see how that wrks.

It's still not helping! I

told her in last appt, last Tues, the Neurontin and/or Amitriptyline are not

helping. But, she still wants me to continue on them. And my orthopedic Dr

suggested the Nucynta. It has less GI issues typically. So far, knock on wood,

no GI issues. But sadly, it is not touching my pain! I'm beginning to become

very nervous! Not so much abt the stimulator but if the stimulator doesn't work

for me. Dr told me, stimulator is last option. If it doesn't work I'll just be

treated w/ pain meds for rest of my life. Or until something new is discovered.

I'm 33yrs old (as of yest) I'm very fearful of addiction to the narcotics, there

is so much I can't take due to my reactions to so many. And nothing I have tried

has helped at all. I can't imagine living with this pain for the rest of my

life! I'm hoping stimulator works but not getting my hopes to high. I dnt want

it to not work and be devastated. I'm trying to stay positively optimistic but

it gets harder and

harder each day. Every day I wake up in pain. Every night I go to bed hoping to

wake up pain free, then I come back to reality and hope to wake up w/ a " good

pain day " and that doesn't happen either. Sry to ramble so much and Ty for your

responses! Oh, I noticed you are on Lyrica. May I ask if you are experiencing

many side effects? I ask because, my injury was work related, I'm on comp. I

had, had a comp nurse gng to appts w/ me. When my pain clinic Dr (I actually see

the PA for typical appts but the term " Dr " is just easier to say..Haha) anyway,

she said she wanted to start me on Neurontin, the comp nurse asked why not

Lyrica? Dr (PA) said she has found less side effects w/ Neurontin ad oposed to

the Lyrica. Again, sry to ramble. And I apologize for my shotycutting words. I

know that is close to a " pet peave " to some people. Hope you are having a good

day! And ty again! ~Brandee

On Thu Oct 14th, 2010 9:25 AM EDT Amy wrote:

>Glad you made a decision already! I am still on pain meds even after the

stimulator However, I can get outta bed now and before that was all I did and

wanted to do.

>I wish I could tell u a few tricks to make it feel better..so far I found

nothing except really soft socks and slippers.

>As a matter of fact it is flared up right now and I think it might be the

change to cooler weather:) just a strange disorder.

>I hope you are feeling good about the decision and hope you are having a " good "

day. All we can hope for and some days are better than others!

>Mind if I ask what kind of pain med you are trying now?

>I use avinza and started testing lyrica.

>Seems to make me feel better than I have in a very long time.

>A

>

>On Oct 11, 2010, at 6:55 PM, " Brandee " <brandeejo6@...> wrote:

>

>> Thank you so much for the response! I had my appt to discuss the stimulator

last Tues. I decided to try it! I figure at this point, I'll try anything! now,

it's just a waiting game for Comp to approve it. Hopefully it will help me also,

but if not, I will have tried. They now have started me on yet another new pain

med. I have only taken it twice thus far, so not yet sure yet if I will have a

reaction to it too. I hope you are feeling good today! And when I hear of the

approval/denial, I will be glad to let you know! By the way, are there any type

of " remedies " (so to speak) that help? I'm finding nothing on my own and all

I've tried. Thx..in advance! Brandee

>>

>>

>> >

>> > > Hello, my name is Brandee. I am a 32 yr old woman with RSD in my left

foot, diagnosed around Feb of this year. I have been on some pain meds, but

sadly have a bad reaction to all I've tried. I have tried the spinal nerve

blocks, which did nothing, other than make me worse. (Well, I assume it to have

resulted from my first injection, however, maybe it just happened to be timing.)

I have a consultation Tues to discuss a spinal stimulator trial. Any info

regarding RSD and/or stimulator would be greatly appreciated! TY! (And I hope

everyone is having a " good " pain day!)

>> > >

>> > >

>> >

>> >

>> >

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Brandee....what was ur injury again? What state r u in? I am also on workers

comp and I was injured right after I turned 30....that was 8 1/2 yrs ago. What

is ur diagnosis?

I didn't have side effects when I was on lyrica but it didn't help my pain

either. I have also been on many meds and had little to no results as far as

pain relief. How long ago was ur injury?

Deanna

Sent from my iPhone

On Oct 15, 2010, at 5:19 AM, Brandee <brandeejo6@...> wrote:

Now, I am currently on; Neurontin, Clonidine (to open blood vessels. I have to

monitor my bp at least a couple times a day. I have Hypothyroid and my bp always

runs low, and Clonidine is a bp pill typically.) Amitriptyline for sleep and

after time, can help w/ nerve issues, Nucynta (that is a new pain pill.) And I

have to take hydroxozine w/ the Nucynta to counter act the itch. (I itch bad on

many of the narcotic pain meds) I had been on Percocet 7.5/325 taking 2 at a

time and got no relief. After 1-2 months of taking it, I started to vomit from

it. Other Dr's (prior to pain clinic. Pain clinic btw, is where I got my

diagnosis. After many Dr's " treating " me for just typical pain I guess) had me

on different types of anti-inflamatory meds and so far, nothing has helped my

pain. I spoke to pain clinic yest regarding my reaction of itching and told her

the Nucynta is not helping. She told me to double my dose and see how that wrks.

It's still not helping! I

told her in last appt, last Tues, the Neurontin and/or Amitriptyline are not

helping. But, she still wants me to continue on them. And my orthopedic Dr

suggested the Nucynta. It has less GI issues typically. So far, knock on wood,

no GI issues. But sadly, it is not touching my pain! I'm beginning to become

very nervous! Not so much abt the stimulator but if the stimulator doesn't work

for me. Dr told me, stimulator is last option. If it doesn't work I'll just be

treated w/ pain meds for rest of my life. Or until something new is discovered.

I'm 33yrs old (as of yest) I'm very fearful of addiction to the narcotics, there

is so much I can't take due to my reactions to so many. And nothing I have tried

has helped at all. I can't imagine living with this pain for the rest of my

life! I'm hoping stimulator works but not getting my hopes to high. I dnt want

it to not work and be devastated. I'm trying to stay positively optimistic but

it gets harder and

harder each day. Every day I wake up in pain. Every night I go to bed hoping to

wake up pain free, then I come back to reality and hope to wake up w/ a " good

pain day " and that doesn't happen either. Sry to ramble so much and Ty for your

responses! Oh, I noticed you are on Lyrica. May I ask if you are experiencing

many side effects? I ask because, my injury was work related, I'm on comp. I

had, had a comp nurse gng to appts w/ me. When my pain clinic Dr (I actually see

the PA for typical appts but the term " Dr " is just easier to say..Haha) anyway,

she said she wanted to start me on Neurontin, the comp nurse asked why not

Lyrica? Dr (PA) said she has found less side effects w/ Neurontin ad oposed to

the Lyrica. Again, sry to ramble. And I apologize for my shotycutting words. I

know that is close to a " pet peave " to some people. Hope you are having a good

day! And ty again! ~Brandee

On Thu Oct 14th, 2010 9:25 AM EDT Amy wrote:

>Glad you made a decision already! I am still on pain meds even after the

stimulator However, I can get outta bed now and before that was all I did and

wanted to do.

>I wish I could tell u a few tricks to make it feel better..so far I found

nothing except really soft socks and slippers.

>As a matter of fact it is flared up right now and I think it might be the

change to cooler weather:) just a strange disorder.

>I hope you are feeling good about the decision and hope you are having a " good "

day. All we can hope for and some days are better than others!

>Mind if I ask what kind of pain med you are trying now?

>I use avinza and started testing lyrica.

>Seems to make me feel better than I have in a very long time.

>A

>

>On Oct 11, 2010, at 6:55 PM, " Brandee " <brandeejo6@...> wrote:

>

>> Thank you so much for the response! I had my appt to discuss the stimulator

last Tues. I decided to try it! I figure at this point, I'll try anything! now,

it's just a waiting game for Comp to approve it. Hopefully it will help me also,

but if not, I will have tried. They now have started me on yet another new pain

med. I have only taken it twice thus far, so not yet sure yet if I will have a

reaction to it too. I hope you are feeling good today! And when I hear of the

approval/denial, I will be glad to let you know! By the way, are there any type

of " remedies " (so to speak) that help? I'm finding nothing on my own and all

I've tried. Thx..in advance! Brandee

>>

>>

>> >

>> > > Hello, my name is Brandee. I am a 32 yr old woman with RSD in my left

foot, diagnosed around Feb of this year. I have been on some pain meds, but

sadly have a bad reaction to all I've tried. I have tried the spinal nerve

blocks, which did nothing, other than make me worse. (Well, I assume it to have

resulted from my first injection, however, maybe it just happened to be timing.)

I have a consultation Tues to discuss a spinal stimulator trial. Any info

regarding RSD and/or stimulator would be greatly appreciated! TY! (And I hope

everyone is having a " good " pain day!)

>> > >

>> > >

>> >

>> >

>> >

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Well ty Thea, for the response. I still haven't heard on approval/denial from

comp for stimulator, but, I'm expecting it to take quite a while. They dnt move

very fast. I'm still awaiting approval for my hydroxozine from last week or

possibly week prior. I forget exactly when. My mind seems to slow dwn greatly

when I have so much on my mind! (And I've been on hydroxozine already, so I'm

not sure y its taking them so long to approve it again?!) So far, I am dng ok on

the Nucynta. Thank goodness! Knock on wood! My Dr did adbeevise me (again, last

wk or wk prior maybe) to double the dosage. It still isn't dng a whole lot for

my pain, but, I do keep taking it, with the hope that it will help at least

some, one of these days. Living with pain like this is so overwhelming! I hope u

r having a good day today! And Ty again for the response!

On Mon Oct 18th, 2010 12:44 PM EDT thea ramsay wrote:

>Hi, Brandee; thea here.

>I know what you mean about worrying that the opiates are addictive.

>I don't have a stimulator for physical pain. But I can relate to your body not

liking meds too well.

>I can't take SSRI's even though they treat a wider variety of symptoms of

depression and various forms of anxiety like PTSD and OCD.

>I'm on a minimal dose of Methotrexate bc my liver doesn't like it. Meaning that

my RA is less controlled.

>So more pain. I'm probably already dependent on opiates, but until the RA is

better controlled, it's the lesser of two evils for me.

>I hope the stimulator works for you if you decide to try one.

>I know what it's like to have your body reject one med after another.

>Thea

>

>

>From: Brandee

>Sent: Friday, October 15, 2010 2:19 AM

>stimulator

>Subject: Re: Re: Hello! New here!

>

>

>

>Now, I am currently on; Neurontin, Clonidine (to open blood vessels. I have to

monitor my bp at least a couple times a day. I have Hypothyroid and my bp always

runs low, and Clonidine is a bp pill typically.) Amitriptyline for sleep and

after time, can help w/ nerve issues, Nucynta (that is a new pain pill.) And I

have to take hydroxozine w/ the Nucynta to counter act the itch. (I itch bad on

many of the narcotic pain meds) I had been on Percocet 7.5/325 taking 2 at a

time and got no relief. After 1-2 months of taking it, I started to vomit from

it. Other Dr's (prior to pain clinic. Pain clinic btw, is where I got my

diagnosis. After many Dr's " treating " me for just typical pain I guess) had me

on different types of anti-inflamatory meds and so far, nothing has helped my

pain. I spoke to pain clinic yest regarding my reaction of itching and told her

the Nucynta is not helping. She told me to double my dose and see how that wrks.

It's still not helping! I

>told her in last appt, last Tues, the Neurontin and/or Amitriptyline are not

helping. But, she still wants me to continue on them. And my orthopedic Dr

suggested the Nucynta. It has less GI issues typically. So far, knock on wood,

no GI issues. But sadly, it is not touching my pain! I'm beginning to become

very nervous! Not so much abt the stimulator but if the stimulator doesn't work

for me. Dr told me, stimulator is last option. If it doesn't work I'll just be

treated w/ pain meds for rest of my life. Or until something new is discovered.

I'm 33yrs old (as of yest) I'm very fearful of addiction to the narcotics, there

is so much I can't take due to my reactions to so many. And nothing I have tried

has helped at all. I can't imagine living with this pain for the rest of my

life! I'm hoping stimulator works but not getting my hopes to high. I dnt want

it to not work and be devastated. I'm trying to stay positively optimistic but

it gets harder and

>harder each day. Every day I wake up in pain. Every night I go to bed hoping to

wake up pain free, then I come back to reality and hope to wake up w/ a " good

pain day " and that doesn't happen either. Sry to ramble so much and Ty for your

responses! Oh, I noticed you are on Lyrica. May I ask if you are experiencing

many side effects? I ask because, my injury was work related, I'm on comp. I

had, had a comp nurse gng to appts w/ me. When my pain clinic Dr (I actually see

the PA for typical appts but the term " Dr " is just easier to say..Haha) anyway,

she said she wanted to start me on Neurontin, the comp nurse asked why not

Lyrica? Dr (PA) said she has found less side effects w/ Neurontin ad oposed to

the Lyrica. Again, sry to ramble. And I apologize for my shotycutting words. I

know that is close to a " pet peave " to some people. Hope you are having a good

day! And ty again! ~Brandee

>

>On Thu Oct 14th, 2010 9:25 AM EDT Amy wrote:

>

>>Glad you made a decision already! I am still on pain meds even after the

stimulator However, I can get outta bed now and before that was all I did and

wanted to do.

>>I wish I could tell u a few tricks to make it feel better..so far I found

nothing except really soft socks and slippers.

>>As a matter of fact it is flared up right now and I think it might be the

change to cooler weather:) just a strange disorder.

>>I hope you are feeling good about the decision and hope you are having a

" good " day. All we can hope for and some days are better than others!

>>Mind if I ask what kind of pain med you are trying now?

>>I use avinza and started testing lyrica.

>>Seems to make me feel better than I have in a very long time.

>>A

>>

>>On Oct 11, 2010, at 6:55 PM, " Brandee " <brandeejo6@...> wrote:

>>

>>> Thank you so much for the response! I had my appt to discuss the stimulator

last Tues. I decided to try it! I figure at this point, I'll try anything! now,

it's just a waiting game for Comp to approve it. Hopefully it will help me also,

but if not, I will have tried. They now have started me on yet another new pain

med. I have only taken it twice thus far, so not yet sure yet if I will have a

reaction to it too. I hope you are feeling good today! And when I hear of the

approval/denial, I will be glad to let you know! By the way, are there any type

of " remedies " (so to speak) that help? I'm finding nothing on my own and all

I've tried. Thx..in advance! Brandee

>>>

>>>

>>> >

>>> > > Hello, my name is Brandee. I am a 32 yr old woman with RSD in my left

foot, diagnosed around Feb of this year. I have been on some pain meds, but

sadly have a bad reaction to all I've tried. I have tried the spinal nerve

blocks, which did nothing, other than make me worse. (Well, I assume it to have

resulted from my first injection, however, maybe it just happened to be timing.)

I have a consultation Tues to discuss a spinal stimulator trial. Any info

regarding RSD and/or stimulator would be greatly appreciated! TY! (And I hope

everyone is having a " good " pain day!)

>>> > >

>>> > >

>>> >

>>> >

>>> >

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Deanna, I broke my heel bone June 09. The fractured healed but as a result of

injury, I developed RSD/Complex Regional Pain Syndrome. I'm not finding any

relief from any of the meds I've been on and/or am currently taking. Oh, I live

in NY. And comp seems to drag their feet with everything! Even approving meds.

Meds that I've been on too. Not just the new meds. As if the fact of chronic

pain and the literal physical pain aren't overwhelming alone, then to add in the

frustration of having to wait for meds to be approved! I wld almost rather pay

co-pays angle such from my medical insurance as oposed to comp paying. Assuming

my ins carrier wldnt make me wait so long. But, I cld not afford to be out of

wrk, continue to pay for health ins and then all the co-pays, etc. So, sadly I'm

stuck having to deal w/ all the downfalls of comp. I hope u r having a good pain

day! And I appreciate ur response and quest. It's so nice to have the feeling of

someone else

understanding where I am coming from w/ many of the same or similar issues.

However, knowing u too are in constant or close to constant pain, I sympathise

and wish you didn't have to experience all the negative!

On Mon Oct 18th, 2010 3:19 PM EDT Deanna Ramsey wrote:

>Brandee....what was ur injury again? What state r u in? I am also on workers

comp and I was injured right after I turned 30....that was 8 1/2 yrs ago. What

is ur diagnosis?

>I didn't have side effects when I was on lyrica but it didn't help my pain

either. I have also been on many meds and had little to no results as far as

pain relief. How long ago was ur injury?

>

>Deanna

>

>Sent from my iPhone

>

>On Oct 15, 2010, at 5:19 AM, Brandee <brandeejo6@...> wrote:

>

>Now, I am currently on; Neurontin, Clonidine (to open blood vessels. I have to

monitor my bp at least a couple times a day. I have Hypothyroid and my bp always

runs low, and Clonidine is a bp pill typically.) Amitriptyline for sleep and

after time, can help w/ nerve issues, Nucynta (that is a new pain pill.) And I

have to take hydroxozine w/ the Nucynta to counter act the itch. (I itch bad on

many of the narcotic pain meds) I had been on Percocet 7.5/325 taking 2 at a

time and got no relief. After 1-2 months of taking it, I started to vomit from

it. Other Dr's (prior to pain clinic. Pain clinic btw, is where I got my

diagnosis. After many Dr's " treating " me for just typical pain I guess) had me

on different types of anti-inflamatory meds and so far, nothing has helped my

pain. I spoke to pain clinic yest regarding my reaction of itching and told her

the Nucynta is not helping. She told me to double my dose and see how that wrks.

It's still not helping! I

>told her in last appt, last Tues, the Neurontin and/or Amitriptyline are not

helping. But, she still wants me to continue on them. And my orthopedic Dr

suggested the Nucynta. It has less GI issues typically. So far, knock on wood,

no GI issues. But sadly, it is not touching my pain! I'm beginning to become

very nervous! Not so much abt the stimulator but if the stimulator doesn't work

for me. Dr told me, stimulator is last option. If it doesn't work I'll just be

treated w/ pain meds for rest of my life. Or until something new is discovered.

I'm 33yrs old (as of yest) I'm very fearful of addiction to the narcotics, there

is so much I can't take due to my reactions to so many. And nothing I have tried

has helped at all. I can't imagine living with this pain for the rest of my

life! I'm hoping stimulator works but not getting my hopes to high. I dnt want

it to not work and be devastated. I'm trying to stay positively optimistic but

it gets harder and

>harder each day. Every day I wake up in pain. Every night I go to bed hoping to

wake up pain free, then I come back to reality and hope to wake up w/ a " good

pain day " and that doesn't happen either. Sry to ramble so much and Ty for your

responses! Oh, I noticed you are on Lyrica. May I ask if you are experiencing

many side effects? I ask because, my injury was work related, I'm on comp. I

had, had a comp nurse gng to appts w/ me. When my pain clinic Dr (I actually see

the PA for typical appts but the term " Dr " is just easier to say..Haha) anyway,

she said she wanted to start me on Neurontin, the comp nurse asked why not

Lyrica? Dr (PA) said she has found less side effects w/ Neurontin ad oposed to

the Lyrica. Again, sry to ramble. And I apologize for my shotycutting words. I

know that is close to a " pet peave " to some people. Hope you are having a good

day! And ty again! ~Brandee

>

>On Thu Oct 14th, 2010 9:25 AM EDT Amy wrote:

>

>>Glad you made a decision already! I am still on pain meds even after the

stimulator However, I can get outta bed now and before that was all I did and

wanted to do.

>>I wish I could tell u a few tricks to make it feel better..so far I found

nothing except really soft socks and slippers.

>>As a matter of fact it is flared up right now and I think it might be the

change to cooler weather:) just a strange disorder.

>>I hope you are feeling good about the decision and hope you are having a

" good " day. All we can hope for and some days are better than others!

>>Mind if I ask what kind of pain med you are trying now?

>>I use avinza and started testing lyrica.

>>Seems to make me feel better than I have in a very long time.

>>A

>>

>>On Oct 11, 2010, at 6:55 PM, " Brandee " <brandeejo6@...> wrote:

>>

>>> Thank you so much for the response! I had my appt to discuss the stimulator

last Tues. I decided to try it! I figure at this point, I'll try anything! now,

it's just a waiting game for Comp to approve it. Hopefully it will help me also,

but if not, I will have tried. They now have started me on yet another new pain

med. I have only taken it twice thus far, so not yet sure yet if I will have a

reaction to it too. I hope you are feeling good today! And when I hear of the

approval/denial, I will be glad to let you know! By the way, are there any type

of " remedies " (so to speak) that help? I'm finding nothing on my own and all

I've tried. Thx..in advance! Brandee

>>>

>>>

>>> >

>>> > > Hello, my name is Brandee. I am a 32 yr old woman with RSD in my left

foot, diagnosed around Feb of this year. I have been on some pain meds, but

sadly have a bad reaction to all I've tried. I have tried the spinal nerve

blocks, which did nothing, other than make me worse. (Well, I assume it to have

resulted from my first injection, however, maybe it just happened to be timing.)

I have a consultation Tues to discuss a spinal stimulator trial. Any info

regarding RSD and/or stimulator would be greatly appreciated! TY! (And I hope

everyone is having a " good " pain day!)

>>> > >

>>> > >

>>> >

>>> >

>>> >

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Share on other sites

Know what you mean. Went through a small panic last week when my new dr seemed

to be reluctant to prescribe my usual morphine and oxy bc my old doc left Maui

for the mainland. The new doc finally did prescribe the meds, but not be4 I went

through this panic.

Thea

From: Brandee

Sent: Tuesday, October 19, 2010 4:34 AM

stimulator

Subject: Re: Re: Hello! New here!

Well ty Thea, for the response. I still haven't heard on approval/denial from

comp for stimulator, but, I'm expecting it to take quite a while. They dnt move

very fast. I'm still awaiting approval for my hydroxozine from last week or

possibly week prior. I forget exactly when. My mind seems to slow dwn greatly

when I have so much on my mind! (And I've been on hydroxozine already, so I'm

not sure y its taking them so long to approve it again?!) So far, I am dng ok on

the Nucynta. Thank goodness! Knock on wood! My Dr did adbeevise me (again, last

wk or wk prior maybe) to double the dosage. It still isn't dng a whole lot for

my pain, but, I do keep taking it, with the hope that it will help at least

some, one of these days. Living with pain like this is so overwhelming! I hope u

r having a good day today! And Ty again for the response!

On Mon Oct 18th, 2010 12:44 PM EDT thea ramsay wrote:

>Hi, Brandee; thea here.

>I know what you mean about worrying that the opiates are addictive.

>I don't have a stimulator for physical pain. But I can relate to your body not

liking meds too well.

>I can't take SSRI's even though they treat a wider variety of symptoms of

depression and various forms of anxiety like PTSD and OCD.

>I'm on a minimal dose of Methotrexate bc my liver doesn't like it. Meaning that

my RA is less controlled.

>So more pain. I'm probably already dependent on opiates, but until the RA is

better controlled, it's the lesser of two evils for me.

>I hope the stimulator works for you if you decide to try one.

>I know what it's like to have your body reject one med after another.

>Thea

>

>

>From: Brandee

>Sent: Friday, October 15, 2010 2:19 AM

>mailto:stimulator%40

>Subject: Re: Re: Hello! New here!

>

>

>

>Now, I am currently on; Neurontin, Clonidine (to open blood vessels. I have to

monitor my bp at least a couple times a day. I have Hypothyroid and my bp always

runs low, and Clonidine is a bp pill typically.) Amitriptyline for sleep and

after time, can help w/ nerve issues, Nucynta (that is a new pain pill.) And I

have to take hydroxozine w/ the Nucynta to counter act the itch. (I itch bad on

many of the narcotic pain meds) I had been on Percocet 7.5/325 taking 2 at a

time and got no relief. After 1-2 months of taking it, I started to vomit from

it. Other Dr's (prior to pain clinic. Pain clinic btw, is where I got my

diagnosis. After many Dr's " treating " me for just typical pain I guess) had me

on different types of anti-inflamatory meds and so far, nothing has helped my

pain. I spoke to pain clinic yest regarding my reaction of itching and told her

the Nucynta is not helping. She told me to double my dose and see how that wrks.

It's still not helping! I

>told her in last appt, last Tues, the Neurontin and/or Amitriptyline are not

helping. But, she still wants me to continue on them. And my orthopedic Dr

suggested the Nucynta. It has less GI issues typically. So far, knock on wood,

no GI issues. But sadly, it is not touching my pain! I'm beginning to become

very nervous! Not so much abt the stimulator but if the stimulator doesn't work

for me. Dr told me, stimulator is last option. If it doesn't work I'll just be

treated w/ pain meds for rest of my life. Or until something new is discovered.

I'm 33yrs old (as of yest) I'm very fearful of addiction to the narcotics, there

is so much I can't take due to my reactions to so many. And nothing I have tried

has helped at all. I can't imagine living with this pain for the rest of my

life! I'm hoping stimulator works but not getting my hopes to high. I dnt want

it to not work and be devastated. I'm trying to stay positively optimistic but

it gets harder and

>harder each day. Every day I wake up in pain. Every night I go to bed hoping to

wake up pain free, then I come back to reality and hope to wake up w/ a " good

pain day " and that doesn't happen either. Sry to ramble so much and Ty for your

responses! Oh, I noticed you are on Lyrica. May I ask if you are experiencing

many side effects? I ask because, my injury was work related, I'm on comp. I

had, had a comp nurse gng to appts w/ me. When my pain clinic Dr (I actually see

the PA for typical appts but the term " Dr " is just easier to say..Haha) anyway,

she said she wanted to start me on Neurontin, the comp nurse asked why not

Lyrica? Dr (PA) said she has found less side effects w/ Neurontin ad oposed to

the Lyrica. Again, sry to ramble. And I apologize for my shotycutting words. I

know that is close to a " pet peave " to some people. Hope you are having a good

day! And ty again! ~Brandee

>

>On Thu Oct 14th, 2010 9:25 AM EDT Amy wrote:

>

>>Glad you made a decision already! I am still on pain meds even after the

stimulator However, I can get outta bed now and before that was all I did and

wanted to do.

>>I wish I could tell u a few tricks to make it feel better..so far I found

nothing except really soft socks and slippers.

>>As a matter of fact it is flared up right now and I think it might be the

change to cooler weather:) just a strange disorder.

>>I hope you are feeling good about the decision and hope you are having a

" good " day. All we can hope for and some days are better than others!

>>Mind if I ask what kind of pain med you are trying now?

>>I use avinza and started testing lyrica.

>>Seems to make me feel better than I have in a very long time.

>>A

>>

>>On Oct 11, 2010, at 6:55 PM, " Brandee " <mailto:brandeejo6%40> wrote:

>>

>>> Thank you so much for the response! I had my appt to discuss the stimulator

last Tues. I decided to try it! I figure at this point, I'll try anything! now,

it's just a waiting game for Comp to approve it. Hopefully it will help me also,

but if not, I will have tried. They now have started me on yet another new pain

med. I have only taken it twice thus far, so not yet sure yet if I will have a

reaction to it too. I hope you are feeling good today! And when I hear of the

approval/denial, I will be glad to let you know! By the way, are there any type

of " remedies " (so to speak) that help? I'm finding nothing on my own and all

I've tried. Thx..in advance! Brandee

>>>

>>>

>>> >

>>> > > Hello, my name is Brandee. I am a 32 yr old woman with RSD in my left

foot, diagnosed around Feb of this year. I have been on some pain meds, but

sadly have a bad reaction to all I've tried. I have tried the spinal nerve

blocks, which did nothing, other than make me worse. (Well, I assume it to have

resulted from my first injection, however, maybe it just happened to be timing.)

I have a consultation Tues to discuss a spinal stimulator trial. Any info

regarding RSD and/or stimulator would be greatly appreciated! TY! (And I hope

everyone is having a " good " pain day!)

>>> > >

>>> > >

>>> >

>>> >

>>> >

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Share on other sites

How long will it take to get your stimulator?

I had an appointment with a new doc bc my former left the island. My appointment

was on the 14th, but they changed it to the 27th, leaving me not enough pain

meds.

My former dr was ok with my pain meds, but my new doc seemed not to be. Even if

they want to pull me off the opiates, they’d have to prescribe more so I had

enough to last till the next appointment.

Small panic, then they did.

Thea

From: Brandee

Sent: Tuesday, October 19, 2010 4:34 AM

stimulator

Subject: Re: Re: Hello! New here!

Well ty Thea, for the response. I still haven't heard on approval/denial from

comp for stimulator, but, I'm expecting it to take quite a while. They dnt move

very fast. I'm still awaiting approval for my hydroxozine from last week or

possibly week prior. I forget exactly when. My mind seems to slow dwn greatly

when I have so much on my mind! (And I've been on hydroxozine already, so I'm

not sure y its taking them so long to approve it again?!) So far, I am dng ok on

the Nucynta. Thank goodness! Knock on wood! My Dr did adbeevise me (again, last

wk or wk prior maybe) to double the dosage. It still isn't dng a whole lot for

my pain, but, I do keep taking it, with the hope that it will help at least

some, one of these days. Living with pain like this is so overwhelming! I hope u

r having a good day today! And Ty again for the response!

On Mon Oct 18th, 2010 12:44 PM EDT thea ramsay wrote:

>Hi, Brandee; thea here.

>I know what you mean about worrying that the opiates are addictive.

>I don't have a stimulator for physical pain. But I can relate to your body not

liking meds too well.

>I can't take SSRI's even though they treat a wider variety of symptoms of

depression and various forms of anxiety like PTSD and OCD.

>I'm on a minimal dose of Methotrexate bc my liver doesn't like it. Meaning that

my RA is less controlled.

>So more pain. I'm probably already dependent on opiates, but until the RA is

better controlled, it's the lesser of two evils for me.

>I hope the stimulator works for you if you decide to try one.

>I know what it's like to have your body reject one med after another.

>Thea

>

>

>From: Brandee

>Sent: Friday, October 15, 2010 2:19 AM

>mailto:stimulator%40

>Subject: Re: Re: Hello! New here!

>

>

>

>Now, I am currently on; Neurontin, Clonidine (to open blood vessels. I have to

monitor my bp at least a couple times a day. I have Hypothyroid and my bp always

runs low, and Clonidine is a bp pill typically.) Amitriptyline for sleep and

after time, can help w/ nerve issues, Nucynta (that is a new pain pill.) And I

have to take hydroxozine w/ the Nucynta to counter act the itch. (I itch bad on

many of the narcotic pain meds) I had been on Percocet 7.5/325 taking 2 at a

time and got no relief. After 1-2 months of taking it, I started to vomit from

it. Other Dr's (prior to pain clinic. Pain clinic btw, is where I got my

diagnosis. After many Dr's " treating " me for just typical pain I guess) had me

on different types of anti-inflamatory meds and so far, nothing has helped my

pain. I spoke to pain clinic yest regarding my reaction of itching and told her

the Nucynta is not helping. She told me to double my dose and see how that wrks.

It's still not helping! I

>told her in last appt, last Tues, the Neurontin and/or Amitriptyline are not

helping. But, she still wants me to continue on them. And my orthopedic Dr

suggested the Nucynta. It has less GI issues typically. So far, knock on wood,

no GI issues. But sadly, it is not touching my pain! I'm beginning to become

very nervous! Not so much abt the stimulator but if the stimulator doesn't work

for me. Dr told me, stimulator is last option. If it doesn't work I'll just be

treated w/ pain meds for rest of my life. Or until something new is discovered.

I'm 33yrs old (as of yest) I'm very fearful of addiction to the narcotics, there

is so much I can't take due to my reactions to so many. And nothing I have tried

has helped at all. I can't imagine living with this pain for the rest of my

life! I'm hoping stimulator works but not getting my hopes to high. I dnt want

it to not work and be devastated. I'm trying to stay positively optimistic but

it gets harder and

>harder each day. Every day I wake up in pain. Every night I go to bed hoping to

wake up pain free, then I come back to reality and hope to wake up w/ a " good

pain day " and that doesn't happen either. Sry to ramble so much and Ty for your

responses! Oh, I noticed you are on Lyrica. May I ask if you are experiencing

many side effects? I ask because, my injury was work related, I'm on comp. I

had, had a comp nurse gng to appts w/ me. When my pain clinic Dr (I actually see

the PA for typical appts but the term " Dr " is just easier to say..Haha) anyway,

she said she wanted to start me on Neurontin, the comp nurse asked why not

Lyrica? Dr (PA) said she has found less side effects w/ Neurontin ad oposed to

the Lyrica. Again, sry to ramble. And I apologize for my shotycutting words. I

know that is close to a " pet peave " to some people. Hope you are having a good

day! And ty again! ~Brandee

>

>On Thu Oct 14th, 2010 9:25 AM EDT Amy wrote:

>

>>Glad you made a decision already! I am still on pain meds even after the

stimulator However, I can get outta bed now and before that was all I did and

wanted to do.

>>I wish I could tell u a few tricks to make it feel better..so far I found

nothing except really soft socks and slippers.

>>As a matter of fact it is flared up right now and I think it might be the

change to cooler weather:) just a strange disorder.

>>I hope you are feeling good about the decision and hope you are having a

" good " day. All we can hope for and some days are better than others!

>>Mind if I ask what kind of pain med you are trying now?

>>I use avinza and started testing lyrica.

>>Seems to make me feel better than I have in a very long time.

>>A

>>

>>On Oct 11, 2010, at 6:55 PM, " Brandee " <mailto:brandeejo6%40> wrote:

>>

>>> Thank you so much for the response! I had my appt to discuss the stimulator

last Tues. I decided to try it! I figure at this point, I'll try anything! now,

it's just a waiting game for Comp to approve it. Hopefully it will help me also,

but if not, I will have tried. They now have started me on yet another new pain

med. I have only taken it twice thus far, so not yet sure yet if I will have a

reaction to it too. I hope you are feeling good today! And when I hear of the

approval/denial, I will be glad to let you know! By the way, are there any type

of " remedies " (so to speak) that help? I'm finding nothing on my own and all

I've tried. Thx..in advance! Brandee

>>>

>>>

>>> >

>>> > > Hello, my name is Brandee. I am a 32 yr old woman with RSD in my left

foot, diagnosed around Feb of this year. I have been on some pain meds, but

sadly have a bad reaction to all I've tried. I have tried the spinal nerve

blocks, which did nothing, other than make me worse. (Well, I assume it to have

resulted from my first injection, however, maybe it just happened to be timing.)

I have a consultation Tues to discuss a spinal stimulator trial. Any info

regarding RSD and/or stimulator would be greatly appreciated! TY! (And I hope

everyone is having a " good " pain day!)

>>> > >

>>> > >

>>> >

>>> >

>>> >

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