Guest guest Posted July 8, 2000 Report Share Posted July 8, 2000 ÿþ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2000 Report Share Posted July 10, 2000 Welcome to the group Kay. Sorry you are here because you are hurting. I hope you get as much out of this group as I have. I think you will find us a bunch of crazy but very compassionate people. If there is ever anything I can do to help you please let me know. Again welcome. Tina1 >From: " Elderwyn Management " <promote@...> >Reply-egroups > " Being Sick Support Group " <egroups> >Subject: Welcome >Date: Sun, 9 Jul 2000 13:00:53 +1000 > >KAY > >1) Name: > >2) Location: Massachusetts, U.S.A. > >3) Personal Info: myself, married 16 years, Lyme disease, Ehrlichiosis > & Babesiosis for at least 25 of my 44 years. diagnosed 7 months ago son; 14 >years, same diseases, gestationally infected, diagnosed 7 months ago at age >13 daughter; 11 years, same diseases, gestationally infected, diagnosed 13 >months ago at age 10. > >4) Interests: research, science, reading, walking > >5) Email: yes: b10g7@... > >7) Webpage: no webpage but just opened lyme-informationegroups > >8) Birthday: November 4, scorpio > > >On behalf of the members of the Being Sick Support Group welcome to the >list. > >Yours Sincerely, > >Elderwyn Management. >PO Box 252 >Seaforth >NSW 2092 >Australia >Australian Residents - ph/fax (02) 8569 1948 >International calls - ph/fax +612 8569 1948 >http://www.elderwyn.com > > ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2000 Report Share Posted July 22, 2000 Thanks Ian, always a pleasure, and Hi everyone. Be speaking to you all soon Take Care H. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 In a message dated 8/5/00 9:05:22 AM Pacific Daylight Time, MBrayley@... writes: << I'm the one who talks too much... >> , Not even! ) Jeannie Mom to Mark and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2000 Report Share Posted August 31, 2000 Hi (Conn): A belated welcome to the group. I have been reading your posts and have been wanting to welcome you, but, with a toddler and an 8-mo old at home with me, my allotted computer time is both unpredictable and limited! I know you can relate to that, being the mother of 3. I know others have responded to your messages, so I'll try not to be redundant. It takes a great deal of strength to deal with the fact that not one, not two, but all three of your children have been given a diagnosis. I echo your shock and grief, and hope that you have opportunities to take care of yourself in this difficult time. Hang in there, with your committment, perseverance and caring for your children, things can become a lot better, even it may often seem otherwise. It sounds like Ian did not receive E/RP for his OCD, possibly because his main difficulty was with rage. Now that he is doing well with his rages, it might actually be very good timing to have a CBT therapist evaluate the status of his OCD (you say you're not sure how much obsessive thinking he's doing) and start E/RP if indicated. CBT is a lot easier to do in moments of calm, believe me, and very difficult in the midst of crisis, when all you can do is put out the most destructive fires. About his throat clearing---tics DO come and go, so perhaps I don't know enough about the nature of his throat clearing to understand why his docs thought that " come and go " ruled out tics. With regard to organization, ADHD, etc, I would recommend Teaching the Tiger by Marilyn Dornbush and Sheryl Pruitt--an excellent resource to share with the school for kids with ADHD, behavioral probs, OCD, TS. Your son's rages may or may not be part of OCD. Kids with TS also have rages, and since TS and OCD and ADHD often happen together, rages may be a part of the manifestation of " disinibition " that stems from the brain. If your son does have tics, the Tourette Syndrome Association (see Links for website) is a wealth of info, advocacy. It also has local chapters in most states. With regard to Gracie, I'm guessing that she was diagnosed with OCD for other symptoms in addition to the potty withholding? It's unlikely that contamination fears began in early infancy (she would have been too young to have that level of thinking), when you noted that the constipation began. Perhaps they have evolved to contamination more recently? With regard to the CB therapist saying she would use play therapy, I hope she means that she will use play as a means to build rapport, trust, and as a vehicle for presenting the behavior therapy. Play therapy in itself does not work for OCD, but it can be used as a means to an end. Helping young children understand OCD and ERP is very important---I have worked with a few kids as young as 4, and they can understand it and they can do ERP successfully, in my experience. You mentioned you couldn't find the book Up and Down the Worry Hill---the OCF does carry it, but it's very new, and they have yet to update their listing. It's also available at http://www.Lighthouse-Press.com When kids understand OCD and ERP, it's like an " aha! " experience, which can be a turning point in their treatment. Gotta run, kids up from nap. Take care, Aureen P. Wagner, Ph.D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2000 Report Share Posted August 31, 2000 Dear Dr. Wagner: Thanks very much for the welcome and the insights. I am just learning about CBT and play therapy so I appreciate any advice. I must admit I'm really not sure why Ian's docs ruled out his throat clearing as TS. I was just so relieved. I thought their reasoning was that the tics come and go - I may be wrong. I haven't heard any today - usually we notice them when he's reading or doing homework. Maybe it's just a habit. Gracie's diagnosis did come as a result of other symptoms as well. She has been pulling her hair out since she was about 18 months old (ttm) and her pediatrician was concerned that she might be somewhat autistic or suffering from some form of PPD (pervasive whatever). Her speech has been delayed and unclear. Anyway, based on his recommendation and the gastro dr.'s who felt the severe constipation was a result of withholding and not organic in nature, we went to a neurologist. He considered the ttm as a SIB due to OCD, ruled out autism,and felt the constipation was withholding (it's not just from the potty, she won't even go in her diaper if she can help it). Also, he based his diagnosis on family history. He doesn't recommend any meds at this time. He recommended her enrollment in PPCD (preschool program for children with disabilities) at our elementary school. She had already qualified due to her speech delays. As much as I hate labels, the OCD diagnosis will help her stay in the program as "other health impaired". She started school on 8/10 (M-F 7:30 - 1) and is doing great! When she went last spring for a week's evaluation, she hated it and cried most of the time. Now she just loves it and cries when she gets home because she can't stay longer! Her speech has grown by leaps and bounds. She comes home just chattering and singing. We are really enjoying her communicating more. She has quit pulling her hair out but now picks at her top lip when stressed or uncertain. She is learning great socialization skills and they are beginning to work on the potty problem also. No other preschool would take her without being trained. Her class has 6 PPCD students and 4 teacher's preschool children with 1 teacher and 2 full-time aides. This is a much better ratio than I've ever gotten at daycare or private preschool. She also gets speech therapy twice a week and bus transportation to help with separation anxiety (hers and her mother's!). It was very hard to leave her screaming at school. When I had her in private preschool, she would cry for long periods and not really participate in group activities. Sorry for the long post - I'm not used to having someone who really understands my kids' problems to talk to! I'm ordering both books as well as "Blink, Blink, Clop, Clop" for my older kids. Thanks again, lmconn@... Re: Welcome Hi (Conn):A belated welcome to the group. I have been reading your posts and havebeen wanting to welcome you, but, with a toddler and an 8-mo old at homewith me, my allotted computer time is both unpredictable and limited! Iknow you can relate to that, being the mother of 3.I know others have responded to your messages, so I'll try not to beredundant. It takes a great deal of strength to deal with the fact that notone, not two, but all three of your children have been given a diagnosis. Iecho your shock and grief, and hope that you have opportunities to take careof yourself in this difficult time. Hang in there, with your committment,perseverance and caring for your children, things can become a lot better,even it may often seem otherwise.It sounds like Ian did not receive E/RP for his OCD, possibly because hismain difficulty was with rage. Now that he is doing well with his rages, itmight actually be very good timing to have a CBT therapist evaluate thestatus of his OCD (you say you're not sure how much obsessive thinking he'sdoing) and start E/RP if indicated. CBT is a lot easier to do in moments ofcalm, believe me, and very difficult in the midst of crisis, when all youcan do is put out the most destructive fires. About his throatclearing---tics DO come and go, so perhaps I don't know enough about thenature of his throat clearing to understand why his docs thought that "comeand go" ruled out tics. With regard to organization, ADHD, etc, I wouldrecommend Teaching the Tiger by Marilyn Dornbush and Sheryl Pruitt--anexcellent resource to share with the school for kids with ADHD, behavioralprobs, OCD, TS. Your son's rages may or may not be part of OCD. Kids withTS also have rages, and since TS and OCD and ADHD often happen together,rages may be a part of the manifestation of "disinibition" that stems fromthe brain. If your son does have tics, the Tourette Syndrome Association(see Links for website) is a wealth of info, advocacy. It also has localchapters in most states.With regard to Gracie, I'm guessing that she was diagnosed with OCD forother symptoms in addition to the potty withholding? It's unlikely thatcontamination fears began in early infancy (she would have been too young tohave that level of thinking), when you noted that the constipation began.Perhaps they have evolved to contamination more recently? With regard tothe CB therapist saying she would use play therapy, I hope she means thatshe will use play as a means to build rapport, trust, and as a vehicle forpresenting the behavior therapy. Play therapy in itself does not work forOCD, but it can be used as a means to an end. Helping young childrenunderstand OCD and ERP is very important---I have worked with a few kids asyoung as 4, and they can understand it and they can do ERP successfully, inmy experience. You mentioned you couldn't find the book Up and Down theWorry Hill---the OCF does carry it, but it's very new, and they have yet toupdate their listing. It's also available athttp://www.Lighthouse-Press.com When kids understand OCD and ERP, it's likean "aha!" experience, which can be a turning point in their treatment.Gotta run, kids up from nap.Take care,Aureen P. Wagner, Ph.D.You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD . You may access the files, links, and archives for our list at http://www.egoups.com/group/ . Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2000 Report Share Posted September 5, 2000 Dear Dr. Wagner: Thanks very much for the welcome and the insights. I am just learning about CBT and play therapy so I appreciate any advice. Gracie's diagnosis did come as a result of other symptoms as well. She has been pulling her hair out since she was about 18 months old (ttm) and her pediatrician was concerned that she might be somewhat autistic or suffering from some form of PPD (pervasive whatever). Her speech has been delayed and unclear. She started school on 8/10 (M-F 7:30 - 1) and is doing great! When she went last spring for a week's evaluation, she hated it and cried most of the time. Now she just loves it and cries when she gets home because she can't stay longer! Her speech has grown by leaps and bounds. She comes home just chattering and singing. We are really enjoying her communicating more. She has quit pulling her hair out but now picks at her top lip when stressed or uncertain. She is learning great socialization skills and they are beginning to work on the potty problem also. Hi , Glad to hear that Gracie is doing so well in school--that must be very encouraging. It sounds like Gracie might need an integrated treatment approach that involves not just CBT for her OCD, but also takes into account her language development, potty issues, socialization etc. CBT can be more challenging when there are language or learning delays involved, so her therapist will have to factor this in. I think play therapy is a great vehicle for this. BTW, ttm that starts very early, eg, at toddler age, is more likely to be transient and not persist into adulthood than in ttm that starts in later years. Hope that Gracie's ttm falls into that spectrum. Take care, and keep us posted, Aureen Wagner, Ph.D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2000 Report Share Posted September 8, 2000 Welcome Shipp Family! Hope to read lots more from you :0) Arlene shannon 13 -- http://www.geocities.com/mum2shan/school.html I will be going to Mexico in January. One heart to touch at a time :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2001 Report Share Posted February 17, 2001 In a message dated 2/17/01 10:22:02 AM Eastern Standard Time, ROBLISFISH@... writes: << Help! I am a new subscriber to the group. I sent back my confirmation and got a welcome note. I then sent a note out introducing myself, and my family, etc. But I can't see where that went, nor have I gotten any responses. I am getting a lot of e-mails that are going back and forth to people, however, I am guessing the messages get posted elsewhere. >> Glad I saw your post ...and welcome! :-) I hope you will find this list worth the wait. LOL How about another introduction so we can get to know you. Gail Gail, Mom to; Seth-5 ds/asd/pdd/pica, jo-8, Becky-10, -23, Jen-25, Grandma to Errick-4 and wife to -my hero Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2001 Report Share Posted February 17, 2001 In a message dated 2/17/01 12:37:33 PM Eastern Standard Time, ROBLISFISH@... writes: << Your saw my post because I e-mailed it to you directly. Is there a way that messages are posted to the whole group?? >> , You sent both of your posts to the whole group. :-) We found Seth's autism when we went to the psych for eating problems. LOL As far as school placements, Seth will just be leaving preschool this coming fall, and I haven't found a class I feel comfortable with. Seth is in an autistic program, 6-1-1 class. I agree, even after 3 years of dealing with it, it is still overwhelming! I think parents of older kids would agree at times too. Sounds like you have a wonderful family. Wish I had some magic words for you, but I am finding the more I learn, the dumber I get. There is so much out there and trying to make the right choice is hard. I have resolved to do what *I* think is best, and if it doesn't work, I will try something else. Oh, if you see the return address as ds/autism, that is the group. e-groups was much easier than ! LOL Glad to have you aboard ! Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2001 Report Share Posted February 17, 2001 Your saw my post because I e-mailed it to you directly. Is there a way that messages are posted to the whole group?? I am and am Mom to Matt- 12 (almost 13-wow!), Allie- 11, AJ- 3 with DS and Autism and Lizzie-2. Our wonderful dad and husband is Rob! We found about AJ's autism when we went to a dr. to talk about dry skin. He asked us other questions and then out of the blue said he had autism. We did get a second opinion to confirm. This came in December. It has been a bit of a roller coaster ride. We were 1 week before our first IEP. There was a lot of questions to if the preschool we picked out, which he was starting to go in Jan., was the right choice. For me, I knew it was going to be a big transition wherever he went. He had been on home based services. The school said they could handle the diagnosis. Some people thought he should be in a " behavior " program. It was/is all so overwhelming. We decided to try out the original choice and see how he did. His home based OT works there as well, she is a big sensory proponent and has been doing sensory therapy with him for 6 months. I am still not sure it has been the right choice. Unfortunately his attendance has been poor because he was sick 1 week with the stomach virus--the poor kid was the first to get it in our family, and still had it when everyone else recovered. Now he has a horrible head cold and ear infection. It has been close to a week already and nothing seems to be touching it. Our dr. said we need to ride it out...easy for him to say withal child who can't/won/t blow his nose and can't stand to have anyone anywhere near his nose. But we are committed to have him finish out until summer and do some investigation of other schools until then. It is so hard..everyone says they have the best approach! Thanks for the e-mail! Talk to you soon..... Re: welcome > In a message dated 2/17/01 10:22:02 AM Eastern Standard Time, > ROBLISFISH@... writes: > > << Help! I am a new subscriber to the group. I sent back my confirmation and > got a welcome note. I then sent a note out introducing myself, and my > family, etc. But I can't see where that went, nor have I gotten any > responses. I am getting a lot of e-mails that are going back and forth to > people, however, I am guessing the messages get posted elsewhere. >> > > > Glad I saw your post ...and welcome! :-) I hope you will find this > list worth the wait. LOL How about another introduction so we can get to > know you. > Gail > Gail, Mom to; Seth-5 ds/asd/pdd/pica, jo-8, Becky-10, -23, Jen-25, > Grandma to Errick-4 > and wife to -my hero > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2001 Report Share Posted February 18, 2001 Thanks for allowing me to join this list...I am from NE Texas and new to soapmaking, etc... I am looking for some info and hope you can help me...If this is inappropriate, I aplologize and just let me know....A guy came through town a while back, selling cleaner...I cannot get hold of him and I'm trying to figure out how to make this cleaner...He called it " Dirt Buster " ...I know that it has 4 chemicals in it..something like NP-9, caustic soda 50%, and 2 others....EB (?) and SOD SIL (?)....Perhaps someone can tell me a chemical company, hopefully here in Texas, that can maybe analyze this product for me? The label does not include the ingredients, I just know this by talking to him...He mixes it up in a drum and adds water.... Once again, I apologize if this is inappropriate....and I will not post anything pertaining to this again, if you let me know. Thanks, GAL in TExAS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 It will be interesting to find out what ingredients are including here. I know I looked on a bar of Fels Naptha and there were no ingredients at all on the label which I found interesting. I am wondering if manufactureres of soaps do not have put ingredients on their labels. Re: Welcome > Thanks for allowing me to join this list...I am from NE Texas and new to > soapmaking, etc... > I am looking for some info and hope you can help me...If this is > inappropriate, I aplologize and just let me know....A guy came through town a > while back, selling cleaner...I cannot get hold of him and I'm trying to > figure out how to make this cleaner...He called it " Dirt Buster " ...I know > that it has 4 chemicals in it..something like NP-9, caustic soda 50%, and 2 > others....EB (?) and SOD SIL (?)....Perhaps someone can tell me a chemical > company, hopefully here in Texas, that can maybe analyze this product for me? > The label does not include the ingredients, I just know this by talking to > him...He mixes it up in a drum and adds water.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 That's right if it is sold as soap. Just that, no claims about moisturizing or cleansing or anything else, then you don't have to include the ingredients. Heidi > It will be interesting to find out what ingredients are including here. > I know I looked on a bar of Fels Naptha and there were no ingredients at all > on the label which I found interesting. I am wondering if manufactureres of > soaps do not have put ingredients on their labels. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Must be about # 9,876,053,017,294 ...but who is keeping count anyway... Barbara <molesareus@...> wrote: Welcome Michele (don't know what number you are) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 I am!!! Its Michele #5 Aisha > > > Must be about # 9,876,053,017,294 ...but who is keeping count anyway... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2001 Report Share Posted March 31, 2001 Hi Nerys, Thanks for the welcome your posts are indicative of a rather "effervescent" personality ( if that is the correct term!). How do you manage to keep up all the study as well as the caring and maintain that sense of humour all at the same time. What part of Oz are you from? P.S.We won't be able to send chocolate over the net as we want you to keep talking! BTW thanks everyone for the humour over the past few days - certainly therapeutic! Take care. Craig Weavers welcome Hi guys Just wanted to say a really belated hello to all the new people who have joined recently. It is a good to see another aussie too. Wooohooo welcome Craig!!! Yep I am an aussie too, I am a carer for my hubby.I have been really quiet recently as have started a uni course, I am mad for sure!!! Normally I have to be bribed with chocolate to hush up!!! LMAO Take care and welcome to all the newies Lots of love Nerys ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityVisual problems with colors?Click the link below and select the modify link to your right. Then select the **Send Plain Text Email** option. This will stop you receiving emails with colored or enlarged fonts./joinMembers Lounge:-Photo Album, memorial page, members profiles, birthdays, locations, medical resources, counselling via email and a whole bunch of free things.http://www.elderwyn.com/members Message Archives and Digest Attachment Pictures:-/messagesChat:- Scheduled Daily Chats at # on IRC DALnet./files/chat.htmBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator either via email <-owner > Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe ~~~~ *** ~~~ *** ~~~ *** ~~~~“Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go." - Pueblo Prayer~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 Hiya Craig, Where are you from again? (Asks the sydney sider...) Whats been going on in your neck of the woods... Hows your wife? How are you coping? Please hang in there ok? Vent to us anytime you need. Much love, Aisha. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 Aisha, Thanks for your kind words. Have you developed RSI yet from all those emails?!! I'm from N.S.W., Killarney Vale, the Central Coast.- not too far distant from our Sydney cousins! How'd you go with the storm this evening? Or did it miss your area- pretty bad, eh? 's been having a lot of seizures and bombed out of her brain with all the medication ( none of which really seems to do much, aside from a whole heap of side effects!) I've been hitting the painkillers in the past couple of days ( something which I do very reluctantly) and pretty much taking it slowly excepting where the circumstances require otherwise.At least theis episode seems to be settling now! You hang in there, and take it easy too, this is an excellent group and you are providing some great support for a lot of people. A kind word or two makes the day seem a little easier. Thanks. Craig. Re: welcome Hiya Craig, Where are you from again? (Asks the sydney sider...) Whats been going on in your neck of the woods... Hows your wife? How are you coping? Please hang in there ok? Vent to us anytime you need. Much love, Aisha. ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick Community Visual problems with colors? Click the link below and select the modify link to your right. Then select the **Send Plain Text Email** option. This will stop you receiving emails with colored or enlarged fonts. /join Members Lounge:- Photo Album, memorial page, members profiles, birthdays, locations, medical resources, counselling via email and a whole bunch of free things. http://www.elderwyn.com/members Message Archives and Digest Attachment Pictures:- /messages Chat:- Scheduled Daily Chats at # on IRC DALnet. /files/chat.htm Bookmarks:- Add a website URL you have found useful. /links Personal Complaints or problems:- Please contact a moderator either via email <-owner > Subscription Details:- 1) Individual email - means that every email sent to the list you receive. 2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email. 3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email. To modify your subscription settings please visit:- /join To subscribe or unsubscribe please email:- -subscribe -unsubscribe ~~~~ *** ~~~ *** ~~~ *** ~~~~ " Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go. " - Pueblo Prayer ~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 Hiya Craig, Ahhh this is nothing! You should see my inbox! I ignore those for a few days then have these huge frenzied clean outs! LOLOL... The price of fame (sheesh the pension dont buy much huh? lol) Killarey Heights is near me but actually never been to the Central Coast. Did we have storms? I'm pretty vague and usually miss everything... We are fine thanks for asking and you guys??? No storm damage I hope! I'm sorry to hear about beth, what is wrong with her again. Sorry I dont remember, but its neurological (thats my area!!!) and I know alot bout neuro meds (none really good lol) and yes, they usually make you feel really horrible. Central Coast - is that near Gosford? OOOOH if it is I know a really good Neurologist..... Are you a full time care giver or do you have medical stuff rumbling along also? Either are terrible things to have to cope with. Do you get much support from friends or family? Hang in there!! Love Aisha. > Aisha, > Thanks for your kind words. > Have you developed RSI yet from all those emails?!! > I'm from N.S.W., Killarney Vale, the Central Coast.- not too far distant from our Sydney cousins! How'd you go with the storm this evening? Or did it miss your area- pretty bad, eh? > > 's been having a lot of seizures and bombed out of her brain with all the medication ( none of which really seems to do much, aside from a whole heap of side effects!) I've been hitting the painkillers in the past couple of days ( something which I do very reluctantly) and pretty much taking it slowly excepting where the circumstances require otherwise.At least theis episode seems to be settling now! > > You hang in there, and take it easy too, this is an excellent group and you are providing some great support for a lot of people. A kind word or two makes the day seem a little easier. > > Thanks. > Craig. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2001 Report Share Posted April 6, 2001 I'd switch doctors and fast, like you are doing. I had one in my face threatening me with neglect, as soon as I heard those words I calmly walked out and went back to my old doctor who supports my decision. It is an insurance game, doctor in YOUR county thing and we live like six miles from the line. I have one I am not too sure about after we moved and AGAIN the insurance is dictating who we see. I hate insurance companies sometimes... Western NY Welcome > >Anyway my babies doctor said that if we decided not to vaccinate she > would have to consider taking legal action. Of course that scared me to > death. > > my guess would be that that is exactly what she was trying to do----SCARE > you into vaccinating. perhaps she took that route to avoid getting into > any discussion of vaccine safety/efficacy, worried that you had done your > homework and could present intelligent, informed opinions. what a nasty > thing for her to do. talk about hitting at the heart of a parent! i don't > even know if she could do such a thing. the only thing i can see is that a > doctor by law must report child abuse, and conceivably she could view not > vaccinating as child abuse and report you to whatever authority, setting in > motion some sort of investigation. does anyone on the list know if this is > a likely scenario? of course, i suppose she could also fabricate a story > regarding abuse. definitely go to another doctor; a homeopath or > naturopath would be a good bet. > > >I've been looking for another doctor and have possibly found one. > >My husband is open to not vaccinating, I just need to present facts and > statistics to him. There is so much information out there, I'm overwhelmed > with what to show him. I need something short and simple but factual - any > ideas? > > a good, short and to-the-point book is " vaccines: are they really safe and > effective? " by neil z. miller. full of statistics :-) > > tami > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 > Hi Sue, > > Sorry about your son...I hope you find the answers you are looking for. Thanks, . I read an article that was posted a while back in my local town, and I just called them. http://www.thekansascitychannel.com/kc1/health/stories/health- 20001129-230506.html We'll see what happens! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2001 Report Share Posted May 4, 2001 > I am also researching sprouting and enzyme therapy for a new friend > who has ovarian cancer. Thanks for creating this online community. I > have a lot to learn. > > Peace, Yup. Lost a perfectly good mom to pancreatic. Walked everywhere. Ate 5 colors of veggies almost everday... Non-drinker. BillSF9c __________________________________________________________________ Get your own FREE, personal Netscape Webmail account today at http://webmail.netscape.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2001 Report Share Posted June 25, 2001 , castaway41@... This is great news! I 100% agree that the most helpful treatment for learning to live with ocd is cbt with erp,. with the use of medication as needed. As a parent, learning to not reassure and comply to ocd's rules is the most difficult, but most helpful things we can do! where do you live? take care, wendy, in canada ===================================================== What we have found the most helpful is the exposure/response behavioral therapy we do. he has been seeing a specialist weekly for a year & exposing him to what makes him anxious has been SO effective & right now, his OCD is really controllable. (at least now we feel we have the tools & the know how on what to do when it increases) And that is NOT to reassure him! Good to talk with you, _______________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2001 Report Share Posted June 25, 2001 , we live in MA & go to a specialist at UMASS Hospital in Worc. >From: w birkhan <birkhanw@...> >Reply- > >Subject: Re: Welcome >Date: Mon, 25 Jun 2001 15:40:08 -0400 (EDT) > >, castaway41@... > >This is great news! I 100% agree that the most helpful >treatment for learning to live with ocd is cbt with >erp,. with the use of medication as needed. As a >parent, learning to not reassure and comply to ocd's >rules is the most difficult, but most helpful things >we can do! > >where do you live? > >take care, wendy, in canada >===================================================== >What we have found the most helpful is the >exposure/response behavioral therapy we do. he has >been seeing a specialist weekly for a year & exposing >him to what makes him anxious has been SO effective & >right now, his OCD is really controllable. (at least >now we feel we have the tools & the know how on what >to do when it increases) And that is NOT to reassure >him! >Good to talk with you, > > >_______________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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