welcome

[Guest guest]

Hi

How are things down there in Porlock. It seems a long time since we were down there but I remember how beautiful it was. How is your health now and what medication are you taking - and - are you still working? So many questions.

Luv - Sheila

Re: Welcome

>> Testing message>Hi Sheila, it's down in Porlock. Just checking in as requested. Always like to see what's going on.Good luck on new forum.X

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.484 / Virus Database: 269.13.2/983 - Release Date: 01/09/2007 16:20

[Guest guest]

>

> Testing message

>

Hi Sheila

I've recently posted a message on this site, but had no reply yet. Am

using this site right. Anyway, I'm a novice to this site - it's a

marvellous refuge for me' as I thought I was all on my own with this

wretched hypothyroidism. I'm totally confused about which way to turn -

I want to give Armour Extract a go, as I feel so ill at times, brain

fog, insomnia, tiredness, lack of energy, etc, can't concentrate etc.

Can anyone help, do I have to visit an endrinologist for advice, -

addresses. Where can I get Armour Extract. I have so little faith in

local GP's - Please, help, I gain so much support from other

sufferers, Keep fighting, everyone, united we stand, divided we fall.

[Guest guest]

You are not receiving any messages because you opted to receive 'Special

Notices' only when you first registered for membership. This means you

only get messages from me when I write to members privately. I have

changed this in your settings so you will now receive a Daily Digest and

there will be up to 25 messages in that one email. There have been some

responses which you could have read direct from the website. I Hope this

helps Madeliene, you must have felt frustrated.

Luv - Sheila

> >

> Hi Sheila

>

> I've recently posted a message on this site, but had no reply yet. Am

> using this site right. Anyway, I'm a novice to this site - it's a

> marvellous refuge for me' as I thought I was all on my own with this

> wretched hypothyroidism. I'm totally confused about which way to turn

-

> I want to give Armour Extract a go, as I feel so ill at times, brain

> fog, insomnia, tiredness, lack of energy, etc, can't concentrate etc.

> Can anyone help, do I have to visit an endrinologist for advice, -

> addresses. Where can I get Armour Extract. I have so little faith in

> local GP's - Please, help, I gain so much support from other

> sufferers, Keep fighting, everyone, united we stand, divided we fall.

>

[Guest guest]

Amen to that and welcome to the group. We

are luck to have such a wonderful support available. I think you will learn

that this is a manageable chronic condition and, once the shock of an

unexpected diagnosis wears off, you will accept it as such.

Bonnie

From:

[mailto: ] On Behalf Of Wayne McPherson

Sent: Tuesday, April 29, 2008 9:14

AM

Subject: welcome

Welcome, .

May you lurk forever without ever needing treatment.

We hope this group serves you well.

Best wishes,

wayne

---------------------

Wayne McPherson

Cape Girardeau, MO.

68, CLLdx 9/99, stage 1, DATneg

trisomy 12, CD38+, unmutated, ZAP70+

w & w, WBC 113K when MyVax began 3/1/07, now 144K

Shores <ravengirl62comcast (DOT) net>

wrote:

My name is , I am in

the Baltimore MD area and am 46 yrs old. Dx

was on 3/31/08. I am a married mother of 4 wonderful kids and work at

s Hopkins Hospital

as a geriatric nursing assistant. I hope to be

lurking around this list quite a bit to stay informed and find out more

about this disease. Just wanted to say hello and introduce myself. Have

a great day all...

Be a better friend, newshound, and know-it-all with Mobile. Try

it now.

[Guest guest]

>

> I hope this group will help others like myself who would prefer

> talking to other people about how a drug affects them , rather than

> just read the information you get at the drugstore.Feel free to

> discuss any anti depressant and how it affects you .

>

[Guest guest]

Please don't post personal info such as home phone numbers. Cell or

otherwise. You are able to contact people off list and that's fine.

Thank you.

Barbara

> >

> > I hope this group will help others like myself who would prefer

> > talking to other people about how a drug affects them , rather than

> > just read the information you get at the drugstore.Feel free to

> > discuss any anti depressant and how it affects you .

> >

>

[Guest guest]

It didn't do much for me. I wasn't depressed but just wanted to quit wine for

two months to lose weight so it was prescribed to me. I tossed it yesterday

will take it today and then have a three day weekend to see how it goes without

it.

shayblacktrigger <shayblacktrigger@...> wrote:

>

> I hope this group will help others like myself who would prefer

> talking to other people about how a drug affects them , rather than

> just read the information you get at the drugstore.Feel free to

> discuss any anti depressant and how it affects you .

>

[Guest guest]

& nbsp;

& nbsp;

where do I start ? & nbsp;- you don't mention having a mental health problem such

as anxiety or depression so why are you taking an anti-depressant ? & nbsp;

& nbsp;

if you have a drink problem then counselling is probably the way to go first but

you say you only want to stop drinking for two months to lose weight & nbsp;

- & nbsp;well a common side effect of lexapro is weight gain

& nbsp;

taking an odd tablet here or there is definitely not the way to use anti -

depressants & nbsp; - no wonder you say it didnt do much for you & nbsp; - the only

good thing is it probably wont do you much harm either although the

manufacturers recommend against drinking alcohol when on it

& nbsp;

& nbsp;

Mike

& nbsp;

& nbsp;

& gt;

& gt; I hope this group will help others like myself who would prefer

& gt; talking to other people about how a drug affects them , rather than

& gt; just read the information you get at the drugstore.Feel free to

& gt; discuss any anti depressant and how it affects you .

& gt;

[Guest guest]

Hey Mike!

When I had a problem with my stim, I arranged a meeting with the rep, my

pain management Dr and my neurosurgeon. It took some work on my part, but it

was well worth it, as I got them all together and they were able to talk right

there...no phone tag...and the issue was resolved much quicker than it ever

would of been.

Maybe this will help you out a wee bit. I hope so.

I have two stims..When they placed my 2nd stim, they fractured three of my

vertebras to place it. It didn't really help my legs too much and my back was

in agony.

Try to follow the instructions on the recuperation as much as possible.

I will keep you in my prayers.

Gentle hugs to all,

Kathy g.

Co-owner

**************Looking for a car that's sporty, fun and fits in your budget?

Read reviews on AOL Autos.

(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017

)

[Guest guest]

! Glad to meet you.

I am new as well- I will be starting my loading days tomorrow.

This group is very small- and we seem to only get LOTS OF SPAM-

which is quite annoying.

I also am on the other HCG2 group. THERE are a ton of posts a day- so a

super busy group- lots of great information and some great ladies as well.

I would suggest that you join this other group and then check out all the

files and then do a search through the archived messages - there really is a

ton of info just doing these things alone will answer a lot of questions. If

not then be sure to ask.

I am not sure what to do about this SPAM laden group - anybody have any

ideas??

, glad you've heard about HCG and hope your able to start soon.

E-mail off loop if you like

>From: " melissa_trant " <melissa_trant@...>

>Reply-

>

>Subject: Welcome

>Date: Tue, 18 Nov 2008 21:05:17 -0000

>

>Welcome to all the new group members. I came here for support and help

>and there is not any action on here. I have not started yet due to

>having so many questions and too many different answers. Maybe we can

>help eachother out as new mambers. I hope so I would love to get

>started and have some sort of support group !! Thanks so much

>

[Guest guest]

Hi ,Welcome to the group. I don't write in very often, but I read everything. I have chronic multiple back problems, fibromyalgia, sjogrens, GERD, sleep apnea......and numerous other problems. I'm 53 and live alone. And I like you, feel it's important to talk to other people in the same situation. I think we're the only ones who truly understand what it's like to be disabled. But welcome and hope to chat with you soon. Take Care, B. in TEXASFrom: ANNA NUNNO <annam2237@...> Sent: Tuesday, December 2, 2008 10:35:02 PMSubject: Re: looking to connect with some new people

From: bennycat1985 <bennycat1985>Subject: looking to connect with some new people@grou ps.comDate: Tuesday, December 2, 2008, 3:11 PM

Hi, I am looking to connect with new people. I have cerebral palsy and

bisual impairment slong with depression and anxiety. I am willing to

talk to anyone who needs support because I know how important it is to

have support. Thank you for accepting me into your group.

bennycat 1985 HI MY NAME IS ANNA I HAVE CEREBRAL PALSY AND DEPRESSION I GET VERY DEPRESSED IN THE WINTER I FEEL TRAPPED IN SIDE A LOT WE GET A LOT OF SNOW AND ICE HERE IN UPSTATE NY IT IS LATE I HOPE YOU DO NOT MIND THE CAPSIT IS JUST EASIER FOR ME GOD BLESS ANNA

[Guest guest]

From: Patt Ladd <patt.ladd@...>

Subject: Re: welcome

bluejeans412003@...

Date: Saturday, February 28, 2009, 8:12 PM

Hello I'm Patt. I have had RSD for 21 yrs. and a scs for about 8 yrs..  I've

never participated in an online group before; so I have no idea what I'm doing. 

HELP!

From: lisa thompson <bluejeans412003@...>

patt.ladd@...

Sent: Saturday, February 28, 2009 4:27:15 AM

Subject: welcome

Hi my name is , I am one of the moderators of this group. I have had RSD for

7 years and my scs for 1 year. Would you like to introduce yourself to the

group?? You will find many caring and wonderful people here... and again,

Welcome !!

            soft hugs

          T

       group moderator

 lisa

[Guest guest]

Hi im new to the group. I have a 6 year old who has aspergers\adhd i was

wondering if anyones kids have the same two things and what are the treatments

that they are geting i know no two kids are alike . But i am wondering whats out

there. I have my son in reg. Ed class with an aide twice a week at a hour each

time,speech,counsling. Oh and he also has hypotonia. Thanks everyone and have a

great day!!!

Welcome

I want to welcome everyone who has joined this group in the last few

weeks. I can't remember how many exactly, but it was over 30. The

group is fairly quiet now, so if any of the new members want to

introduce themselves, ask a question, etc, etc, please feel free to do so.

[moderator]

[Guest guest]

my son has aspergers, adhd, anxiety, etc. He is on medication, Concerta, Intuniv, and Lexapro - works wonderful. Start working now on social skill training. If you need help, please visit us at www.TheAspergerChild.org and I can see what we can do to help you. I am the President, and we are in Florida, but I am sure that I can provide information and resources if you need them.

Baer

From: Emma Quiroz <lovedbytwoangels@...>Autism and Aspergers Treatment Sent: Fri, June 25, 2010 10:02:49 AMSubject: RE: Welcome

Hi im new to the group. I have a 6 year old who has aspergers\adhd i was wondering if anyones kids have the same two things and what are the treatments that they are geting i know no two kids are alike . But i am wondering whats out there. I have my son in reg. Ed class with an aide twice a week at a hour each time,speech,counsling. Oh and he also has hypotonia. Thanks everyone and have a great day!!! WelcomeI want to welcome everyone who has joined this group in the last few weeks. I can't

remember how many exactly, but it was over 30. The group is fairly quiet now, so if any of the new members want to introduce themselves, ask a question, etc, etc, please feel free to do so. [moderator]

[Guest guest]

My son (he's 10) has aspergers and adhd. I have my son on the GFCF diet, and his diet is generally free of chemicals -- especially food dyes. (Food dyes are often bad for those with ADHD.) In addition, we took him to a specialist for a brain mapping and then started him on neurofeedback. In the past, he has had physical and occupational therapy, since he tends to be rather uncoordinated (which his neurologists says often (but not always) comes with aspergers. When my son was younger he had hypotonia and very low reflexes, but through physical therapy he's gotten much stronger and improved his reflexes and balance. When he was in school, he did well in general ed class with an aide, but I had it written into his IEP that he could take sensory breaks when needed, which enabled him to get to a quiet room when, or if he just needed some physical releif he could jump on a mini trampoline or swing on monkey bars.

We currently homeschool, which gives him a little more flexibility. He was doing fine in school, but it could be stressful. Studying at home has enabled him to pursue his many interests and go into subjects deeper than they do in school. He has endless questions and likes to know details. It also enables him to take extra music classes (since he loves music), and he plays violin in a homeschool band. It's actually helped his socialization, because he sees smaller groups of kids (such as those in his homeschool band or others in park groups or volunteer activities) and for shorter lengths of time than the six to seven hours of class.

Good luck with everything. It sounds like he's getting good therapies. Is the speech primarily for social skills? Much speech therapy for aspies is to help them interact in small groups. That might be helpful to ask for in his next IEP, if it's not already included. Also with aspies, it helps if you take an interst in whatever topics they are obessessing on. My son becomes a little expert on different topics and so I just learn enough to be able to talk with him.

All the best,

Lora

Autism and Aspergers Treatment CC: From: lovedbytwoangels@...Date: Fri, 25 Jun 2010 09:02:49 -0500Subject: RE: Welcome

Hi im new to the group. I have a 6 year old who has aspergers\adhd i was wondering if anyones kids have the same two things and what are the treatments that they are geting i know no two kids are alike . But i am wondering whats out there. I have my son in reg. Ed class with an aide twice a week at a hour each time,speech,counsling. Oh and he also has hypotonia. Thanks everyone and have a great day!!! WelcomeI want to welcome everyone who has joined this group in the last few weeks. I can't remember how many exactly, but it was over 30. The group is fairly quiet now, so if any of the new members want to introduce themselves, ask a question, etc, etc, please feel free to do so. [moderator]

Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more.

[Guest guest]

Thanks i will check out the webiste.

Welcome

I want to welcome everyone who has joined this group in the last few

weeks. I can't remember how many exactly, but it was over 30. The

group is fairly quiet now, so if any of the new members want to

introduce themselves, ask a question, etc, etc, please feel free to do so.

[moderator]

[Guest guest]

Thanks Lora, i was just told my son has adhd. So i feel im in another ball game

now. But I am going to talk to the school after summer break to change his

i.e.p. Since its only for autism not adhd. Does hypotonia go in the i.e.p? My

son has no reflexes in the knees which explains his hate for p.e. Or any sports.

At school he gets counceled for his social skills and for his speech he recieves

30 min once a week because he struggles with the th sound. I will request a

assesment when he returns for p.therapy and o.therapy. That is what regional

center told me to request for. Can they have autism and OHI on there i.e.p. Or

how does that work? Thanks so much on the info. Since everything is new to me.

Welcome

I want to welcome everyone who has joined this group in the last few

weeks. I can't remember how many exactly, but it was over 30. The

group is fairly quiet now, so if any of the new members want to

introduce themselves, ask a question, etc, etc, please feel free to do so.

[moderator]

_________________________________________________________________

Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox.

http://www.windowslive.com/campaign/thenewbusy?ocid=PID28326::T:WLMTAGL:ON:WL:en\

-US:WM_HMP:042010_1

[Guest guest]

The summer school class I started out in was a Duel class. Which means they have more then one diagnosis. I had one guy that was downs and autistic. ADHD and Aspie seem to go hand in hand. Their brains just go so much faster then ours... :)From: Emma Quiroz <lovedbytwoangels@...>Subject: RE: WelcomeAutism and Aspergers Treatment Date: Friday, June 25, 2010, 2:02 PM

Hi im new to the group. I have a 6 year old who has aspergers\adhd i was wondering if anyones kids have the same two things and what are the treatments that they are geting i know no two kids are alike . But i am wondering whats out there. I have my son in reg. Ed class with an aide twice a week at a hour each time,speech,counsling. Oh and he also has hypotonia. Thanks everyone and have a great day!!!

Welcome

I want to welcome everyone who has joined this group in the last few

weeks. I can't remember how many exactly, but it was over 30. The

group is fairly quiet now, so if any of the new members want to

introduce themselves, ask a question, etc, etc, please feel free to do so.

[moderator]

[Guest guest]

Thanks for all the information Lora, since they added the adhd and hypotonia

last week it has been very overwhelming. And I'm just trying to get info

before he goes back to school in the beginning of August.

RE: Welcome

Hypotonia should be noted as part of his overall autism spectrum (aspergers)

disorder. As we all know, these spectrum disorders have a slew of things that

might accompany the diagnosis. But the hypotonia should be addressed, and I'm

not sure that the schools will do enough on their own to give adequate physical

therapy and occupational therapy. If it's like my son's district, they had very

lame OT services, and did 20-min consultations every other week or so. They did

-- for a time -- send him to an outside physical therapy clinic, which was great

and much better than what the school staff provided. If you have private

insurance, I would check into obtaining some therapy through it. If you're a

client of the regional center, you can also request services through them. We

are not clients of the regional center here.

What happens with my son is we rotate therapies now that he's older. When we

started out when he was just under two, it was intensive threrapies (Speech 3x a

week; PT 3x a week and OT 2x a week). It was expensive but worth it. As he got

older, we accepted what the schools offered, but then supplemented with private

therapies. And now, we don't get any services from the school (since we

homeschool), so we do it all through our insurance or paying ourselves. This

has enabled us to target different therapies at different times. With

hypotonia, you often have to keep up with certain exercises to keep the results

the same. So, it is good to get a list of protocol that can be done at home

that you know how to do with him. And, you need to be prepared to rotate

services back in. School systems often end services in one area when they feel

your child has reached a certain minimally satisfactory level, but these

therapies often are needed to maintain your child's abilities, plus what his

minimally satisfactory to them probably won't match your expectations for your

child.

I hope I made sense. I'm a terrible writer in the morning.

All the best,

Lora

To

[Guest guest]

Hypotonia should be noted as part of his overall autism spectrum (aspergers) disorder. As we all know, these spectrum disorders have a slew of things that might accompany the diagnosis. But the hypotonia should be addressed, and I'm not sure that the schools will do enough on their own to give adequate physical therapy and occupational therapy. If it's like my son's district, they had very lame OT services, and did 20-min consultations every other week or so. They did -- for a time -- send him to an outside physical therapy clinic, which was great and much better than what the school staff provided. If you have private insurance, I would check into obtaining some therapy through it. If you're a client of the regional center, you can also request services through them. We are not clients of the regional center here.

What happens with my son is we rotate therapies now that he's older. When we started out when he was just under two, it was intensive threrapies (Speech 3x a week; PT 3x a week and OT 2x a week). It was expensive but worth it. As he got older, we accepted what the schools offered, but then supplemented with private therapies. And now, we don't get any services from the school (since we homeschool), so we do it all through our insurance or paying ourselves. This has enabled us to target different therapies at different times. With hypotonia, you often have to keep up with certain exercises to keep the results the same. So, it is good to get a list of protocol that can be done at home that you know how to do with him. And, you need to be prepared to rotate services back in. School systems often end services in one area when they feel your child has reached a certain minimally satisfactory level, but these therapies often are needed to maintain your child's abilities, plus what his minimally satisfactory to them probably won't match your expectations for your child.

I hope I made sense. I'm a terrible writer in the morning.

All the best,

Lora

Autism and Aspergers Treatment CC: From: lovedbytwoangels@...Date: Sat, 26 Jun 2010 05:46:37 -0500Subject: RE: Welcome

Thanks Lora, i was just told my son has adhd. So i feel im in another ball game now. But I am going to talk to the school after summer break to change his i.e.p. Since its only for autism not adhd. Does hypotonia go in the i.e.p? My son has no reflexes in the knees which explains his hate for p.e. Or any sports. At school he gets counceled for his social skills and for his speech he recieves 30 min once a week because he struggles with the th sound. I will request a assesment when he returns for p.therapy and o.therapy. That is what regional center told me to request for. Can they have autism and OHI on there i.e.p. Or how does that work? Thanks so much on the info. Since everything is new to me. Welcome I want to welcome everyone who has joined this group in the last few weeks. I can't remember how many exactly, but it was over 30. The group is fairly quiet now, so if any of the new members want to introduce themselves, ask a question, etc, etc, please feel free to do so. [moderator] __________________________________________________________ Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. http://www.windowslive.com/campaign/thenewbusy?ocid=PID28326::T:WLMTAGL:ON:WL:en-US:WM_HMP:042010_1

Hotmail is redefining busy with tools for the New Busy. Get more from your inbox. See how.

[Guest guest]

Hi am also new to the group with a 6 year old boy diagnosed with apsergers, ADHD

- combined type, and speech disorder. There is evidence of him having auditory

processing disorder however he is too young to get an accurate diagnosis. We

are still trying to figure out the best therapies. He currently taking Daytona

patch (not much during the summer), goes to speech class once a week and is in a

5 day all day " camp " that is called a bridge program to help kids 5-6 make the

transition to 1st grade and kindergarten.

At the end of kindergarten we debated on holding him back a year because of his

physical and social immaturity. His teacher convinced us not to because he is

doing well academically. She is worried that if we hold him back he would

become bored with school and not develop academically. At the end of the school

year we had his ARD for first grade and he will be going to an out class 3 times

a week and have an aid in his classroom for about half the day.

His gross motor skills are easily a year behind most of the other boys in his

class. We want to have him start seeing an OT, but are afraid that he will get

burned out since he is in speech and summer bridge program. He goes swimming a

few times a week and participates in team sports. Since he is so far behind

developing his gross motor skills he struggles more than the other children; but

he still has fun and wants to keep playing. The other kids are pretty good with

him so that is a BIG plus. I don't think he has discovered his competitive

spirit yet, so struggling at sports does not really bother him. Other parents

of aspie kids have told us to be sure to keep him involved with group activities

so we intend to keep him in sports, choir, cub scouts, etc. as long as he is

enjoying it. I understand we have a steep hill in front of us with his social

development.

He is very advanced with the computer and electronic games (Nintendo DS). We

have to limit his time on both or he would stay on either for 24 hours. His

kindergarten teacher was amazed on the first day of computer lab. On the first

day of lab it is considered a success if the student can successfully log on to

the computer by themselves. Not only did my son log on to the computer, he

found a way to bypass the school's firewall and get to the Train games on

the internet, lol!

I would appreciate any advice from parents that have kids who are struggling

with their gross motor skills. Would you recommend OT on top of the other

activities he is doing? What exercises/activities would you recommend we do at

home? Is a gymnastics type class recommended?

He is our oldest child, so all of this is new. Thank you for creating this

site; it is a wealth of information!!!

>

> Hi im new to the group. I have a 6 year old who has aspergers\adhd i was

wondering if anyones kids have the same two things and what are the treatments

that they are geting i know no two kids are alike . But i am wondering whats out

there. I have my son in reg. Ed class with an aide twice a week at a hour each

time,speech,counsling. Oh and he also has hypotonia. Thanks everyone and have a

great day!!!

> Welcome

>

> I want to welcome everyone who has joined this group in the last few

> weeks. I can't remember how many exactly, but it was over 30. The

> group is fairly quiet now, so if any of the new members want to

> introduce themselves, ask a question, etc, etc, please feel free to do so.

>

> [moderator]

>

[Guest guest]

Hello, my name is Angel. My husband and I just received. Diagnosis on my 11 year old son of Aspergers, turrets, adhd and anxiety. We will be trying to get him an iep and an aid he does well in class, he is in an excelerated classroom he has a lot of problems with the unstructured times of the day. We also found out my six year old that he is adopting has autism and adhd she cannot verbalize very well, doesn't answer questions. She cannot stand to wear undies, she is usually off in her own little world and incredibly content with that. She has tons of toys and she never plays with them. She doesn't like to have to take care of her clothes or anything for that matter. We are planning to do an iep for her also and hopefully get her an aid. she was in a regular class for kindergarten she was the top of the class, so there is no need to remove her from a regular class There are also no support groups in our area and need help with effective discipline and ways to show our 7 other children relate, understand and cope. We are a blended family and that makes things all the more interesting. Thank you so much, it is nice to meet you.Sent on the Sprint® Now Network from my BlackBerry®From: "Emma Quiroz" <lovedbytwoangels@...>Sender: Autism and Aspergers Treatment Date: Sat, 26 Jun 2010 05:28:54 CDT<Autism and Aspergers Treatment >Reply Autism and Aspergers Treatment Subject: Re: Welcome Thanks i will check out the webiste. WelcomeI want to welcome everyone who has joined this group in the last few weeks. I can't remember how many exactly, but it was over 30. The group is fairly quiet now, so if any of the new members want to introduce themselves, ask a question, etc, etc, please feel free to do so. [moderator]

[Guest guest]

HI, I just wanted to mention re hypotonia.... our 12 yr old son with autism has

hypotonia along with the other usual autism issues. The hypotonia alone can be

a challenge, especially if the child cannot communicate to those who are pushing

him to use his muscles more intensely or faster (PE, handwriting, speaking,

sitting, standing, eating, motor planning, brushing teeth, grooming, dressing,

tying, etc.).

Hypotonia affects everything. Your 6 year old may have more involvement than

recognized. Basically, not only are the muscles less tonic, less working than

typical muscles, they also fatigue more quickly, need more frequent recovery,

cause more tiredness, cause less " cooperation " due to pain and fatigue.... none

of which many asperger/autistic people can communicate.

A highly trained pediatric OT with autism experience can help. Most schools do

NOT have pediatric OTs on staff. If OT on staff the usual issue addressed in IEP

is handwriting. This barely addresses how hypotonia affects equal access to

education.

Hypotonia does not go away, it's simply part of the person. The person has to

learn skills of recognizing and self-advocacy. One additional problem re

self-advocacy is that when a condition has been present all a person's life,

that person expects that everyone else has the condition also; the condition is

viewed as " normal " by that person. If the condition is normal and peers appear

to be functioning just fine, then the person with the condition assumes

something is wrong with them (whimpy, weak, less deserving, etc.) when they are

having difficulty and they often do not ask for help. This adds to problems of

self-esteem, worthiness, etc.

More time for any muscle work should be written into the IEP, especially as the

child ages and his hands either don't work as fast or as well or as long as the

typical student. This will affect handwriting, note taking, test taking,

keyboarding time needed. PE can become a nightmare for the older student with

hypotonia. Going from class to class in larger schools can be very difficult...

it's the amount of time needed to get there and recovery time. Carrying a load

of books also is a problem. Bully-types recognize the hypotonic child, this

creates social problems, especially in middle school and above. Underlying

fatigue and pain adds to stress levels which decreases the child's ability to

learn.

You will have to advocate for him within the school system as hypotonia is

definitely not something any typical or special ed teacher learns during their

training.

Priscilla in Kansas

>

> Hi im new to the group. I have a 6 year old who has aspergers\adhd i was

wondering if anyones kids have the same two things and what are the treatments

that they are geting i know no two kids are alike . But i am wondering whats out

there. I have my son in reg. Ed class with an aide twice a week at a hour each

time,speech,counsling. Oh and he also has hypotonia. Thanks everyone and have a

great day!!!

> Welcome

>

> I want to welcome everyone who has joined this group in the last few

> weeks. I can't remember how many exactly, but it was over 30. The

> group is fairly quiet now, so if any of the new members want to

> introduce themselves, ask a question, etc, etc, please feel free to do so.

>

> [moderator]

>

[Guest guest]

Hi! My name is Lynn Stipe. I have three wonderful children on the spectrum. The TLC Boys(, Landon, and Conner). They are all different with different abilities. When they were little it was hard. Now they are older it is hard. We homeschool all three boys. It works great for our family. We are also involved with Special Olympics year round because of the skills level and the higher team level.We can find a sport for all the boys. I love getting the posts because i am interested in all therapies for Autism. My boys have had amazing doctors and therapists. Thanks for all the great information! LynnFrom: <klriley@...>Sent: Tuesday, September 07, 2010 8:19 PMAutism and Aspergers Treatment Subject: Welcome We have had a number of new members recently, and I want to say 'welcome' to all of those people. Please feel free to introduce yourself, ask questions, answer other people's questions. Basically make yourself at home. And if anyone has had any good news, or anything happen that has made them excited, please share it. It isn't like most of us are over-burdened with good news in our own lives. One other matter: there seems to be an increase in people wanting to post ads for all sorts of things not directly connected with autism. If you have a product or service that is autism related that you want to promote, I am happy to see it posted here. But hair care products, pregnancy tips, courses in IT, etc, while they may be relevant to some of our members, are not directly related to autism and I won't be approving them. They will simply be deleted as SPAM Thank you [moderator]

[Guest guest]

Hi,hope this sight helps.We all are unique (obviously)lol, but

sometimes,knowing you are not alone,and a little support can go alone way. Good

luck. The database located on the left of the screen may help answer some of

your questions as well .

Just a note: circumstances in my life,kept me away from here a long time. Barb

(yipee) deserves every bit of credit for keeping this place going.

An amazing,dedicated lady .

again, welcome