Re: re : on working out.CFS/FMS

November 5, 2003

Hey girl, I am not giving up hope that you are going to get much better! Dimonds, I am praying for you. You may have a chronic disease the rest of your life, but I am going to believe that you are just only now starting to feel better....and that you are going to be improving lots more, like 90%, and even doing your exercises again someday. Hold on to that with me, okay? I believe it's going to happen for you...

Love,

Patty

----- Original Message -----

From: dimonds68

Sent: Wednesday, November 05, 2003 10:07 AM

Subject: re : on working out.CFS/FMS

Hey there. The working out sounds good. But it is not happening here. Before I was ill I worked out for 8 years, and getting motivated is not an issue for me. BUT I my DX is not just Fibro. I was diganosed with CFS first, which is similar(an overlapping syndrome) BUT with CFS, you cannot workout and push yourself too much because you will wind up flat on your back for a while. I know, I have tried Yoga(after trying to do it at home to work myself up), and the class on Mon. nite would put me in bed for almost a week.I have also tried other things too. I did not get Fibro until 2 and a half years AFTER I was diagnosed with CFS(over 1 yr AFTER implants were out). I do believe that because I was so fatiqued and bedridden, I did not feel the pain.So lucky me, now i have the pain ! I remember talking to Carry when she first got sick and said she was in so much pain, and I was not. All of us are so different and complex. Improvement has come, but relapses come for me also, but at shorter periods. So I have to be careful to 'not push the envelope'. I have a chronic disease which I will have to live with for the rest of my life, and know I will not be 100% like so many others. peace and health to all...dimonds68

November 5, 2003

Dimonds,

What about the pool workouts you said you did in the summer, you said

they made you feel better. I still think that is worth trying. You

have come so far, don't give up. I personally do not like and cannot

do yoga, it is too hard for me, I am not all that flexible and esp in

the mornings, yuck, for some of us it just takes time to figure out

what will work. I agree with Patty, I don't believe that you will be

like this forever, you have think more positively, and besides your

so much imporved. Maybe your in a flare cause your not doing to pool

anymore. The biggest pain about pool exercise is that you need to

have a pool! I will pray for you, I really believe that from all I

have researched, even on CFS, excercise can help. You have to be

careful but I think the more we lay around the worse we get, I still

firmly believe it, and believe that light to moderate workouts would

be something you can slowly move your body into, it may be hard at

first, but I truly believe it can help. Try to find a warm pool. I

mean there are people that are curing themselves with this therapy.

Never give up

In , " dimonds68 " <XENA6881@a...> wrote:

> Hey there. The working out sounds good. But it is not happening

> here. Before I was ill I worked out for 8 years, and getting

> motivated is not an issue for me. BUT I my DX is not just Fibro. I

> was diganosed with CFS first, which is similar(an overlapping

> syndrome) BUT with CFS, you cannot workout and push yourself too

> much because you will wind up flat on your back for a while. I

know,

> I have tried Yoga(after trying to do it at home to work myself up),

> and the class on Mon. nite would put me in bed for almost a week.I

> have also tried other things too. I did not get Fibro until 2 and a

> half years AFTER I was diagnosed with CFS(over 1 yr AFTER implants

> were out). I do believe that because I was so fatiqued and

> bedridden, I did not feel the pain.So lucky me, now i have the

> pain ! I remember talking to Carry when she first got sick and said

> she was in so much pain, and I was not. All of us are so different

> and complex. Improvement has come, but relapses come for me also,

> but at shorter periods. So I have to be careful to 'not push the

> envelope'. I have a chronic disease which I will have to live with

> for the rest of my life, and know I will not be 100% like so many

> others. peace and health to all...dimonds68

November 5, 2003

Dimonds

You also need to realize that working out does not mean like what you

used to do, I realize that you used to be a big time exercise person,

kick boxing and all that stuff. Your probably in the wrong frame of

mind and maybe the flare has you down too, which is totally

understandable, but I do believe you have to keep trying. Also if

your in allot of pain I do believe that there are things to help the

pain and once the pain is under control it makes it easier to work

out and loosens everything up.

Anyhow, i dont' mean to be pushy, I just want to help.

hugs