Blog Credibility & Believability

[Guest guest]

Hi All:

It is of great relief to hear many people talk about some of the

" Gotcha's " as I look into the possibility of going up the CI route for

the first time. It is not that I expected everything to be Peaches &

Cream, but the realistic conversations over the past couple of days have

added significant Credibility & Believability to this blog. Thanks to

everyone for all your enlightenment.

Joe

_____________________________________________________________

On 5/12/2011 6:11 PM, nucleus24@... wrote:

>

> Hi ,

> Thanks for your input. Indeed, not everyone does well with a CI.

> Some of us do well with the first, and not with the 2nd. I was one of

> those.

> I had my second CI, a Nucleus 5, done in September 2009. First

> mapping took HOURS and finally was able to comprehend what was being

> said, but it was all high pitched and chipmunky sounding. Figured it

> would go away. It didn't. I found out that I was being mapped with ACE

> strategy. I'd tried ACE on my older implant, and wasn't successful with

> it. So I asked for the new one to be mapped with SPEAK, the strategy I

> use so successfully on the older implant. Come to find out that ACE was

> the ONLY programming strategy available on the N5 implant. I was ticked.

> From " hearing as individualized as your fingerprint " to " one size fits

> all " was a total about face as far as I was concerned. Fortunately,

> SPEAK became available a while ago, and I went and had it put on my N5,

> and heard, comprehended, and can talk on the phone from minutes one.

> This after listening to hearing professionals tell me that " Slow ACE is

> the same as SPEAK " It is not. 93 maps into the game, I finally got what

> I wanted and can tell everyone, " I told you so " . I also had 2 of the

> higher frequencies turned OFF to save from having to listen to those high

> pitched sounds.

> With my first mappings, I was hearing traffic 3 blocks away. I don't

> NEED to hear that, and I don't want to hear it. So try going a lot lower

> on the volume and sensititivy. I keep mine about 3 or 4 on all maps.

> If you haven't had an audiologist from your implant company come out and

> MAP you, request one.

> If you are using a Nucleus 5 implant, have the audiologist try SPEAK

> or even CIS for you. Because some of us do better with slower strategies

> (SPEAK) and some do better with faster (CIS) strategies.

> It is highly frustrating to have annoying noises in your ears, and

> have everyone tell you that they've done all they can for you.

> Good luck. I was more than 18 months post activation and not hearing

> well with the N5. It's only because I had my other implant for so many

> years that I KNEW how good it could be. Just needed to get the mapping

> to do it.

>

>

> Hello,

>

> I've been hesitant to post any messages here, because the last thing I

> want to

> do is create any negativity relating to CIs. Obviously, from everyone's

> posts,

> the CI process is highly successful and has greatly improved the lives of

> most

> people. However, I am one of the few people that, after over a year of

> having my

> implant, am still hearing chipmunk voices and constant high-pitched

> tones, even

> after repeated mapping sessions. My comprehension is still poor too. The

> device

> has been tested, and CT scans have been conducted, yet everything looks

> normal.

> So audiologists are stumped. The last visit I had, my audiologist

> confided that

> even if my comprehension improves, if the sound quality is still poor

> after all

> this time, it's not likely to get much better. So I may be stuck hearing

> this

> high-pitched squawking forever, unless I decide to just stop wearing the

> implant.

>

> I do not want to discourage anyone from getting an implant, because I

> know from

> the stats, from all the posts here, and from everyone I personally know

> that has

> one, that the results are usually miraculous and wonderful. I fully

> believe in

> the process. But part of me also wishes that I had heard more of the less

>

> successful stories when I was doing all my initial research. I may be

> part of

> the 1% or less who have had less than thrilling results, but I still

> think

> people should be aware of the possibilities.

>

> -

> __________________________________________________________

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>