Gail

[Guest guest]

I am like a pesky fly, just when you think you scared it off it is back ;-)

Gaiil

New Member Introduction

Hi Everyone:My name is Jody and I am a 50 year old female from the Worcester, MA area, and I just had my defibrillator implanted two weeks ago today. I am rather new to all of this and have lived with Cardiomyopathy for the past 8 years on a minimal dose of Lisinopril. I started having problems with palpitations and a rapid heartbeat several months ago and after seeing my Cardiologist he recommended that I consider having a defibrillator put in to prevent a sudden death episode. After introducing several new meds (Water Pill, Beta Blocker and Potassium) and adjusting doseages the doctors decided to go ahead with the proceedure on 8/24/06. I was home for a week and after a few days I felt better and wanted to get back to work. Being at home there are so many things that I wanted to be doing, such as yard work, but until I'm off restrictions, I'm actually safer in the office sitting behind a desk doing paperwork and answering a phone. Yes I do come home tired, but, as I continue to heal from my implant, I hope I can get back to life as normal for me. The two issues I'm dealing with are finding a comfortable sleeping position other than on my back, and getting my drivers side seatbelt problem resolved. I ordered a sheepskin seatbelt cover hoping it will provide more padding than a towel wrapped around the seatbelt does. Right now even with a towel the pressure over my ICD is a bit uncomfortable. Maybe in time that will improve?I go back for my first check up on 9/11 and then to the Pacemaker Clinic on 9/28. I guess I'll get used to the routine soon enough, but I will say that I'm not looking forward to getting zapped for the first time either. I look forward to learning and sharing with all of you!Thanks for listening,Jody ChamplinHolden, MA

Stay in the know. Pulse on the new .com. Check it out.

Get your own web address for just $1.99/1st yr. We'll help. Small Business.

[Guest guest]

Be sure you do your distinctive buzz so I won't have to get the Deet out!charade799@... wrote: I am like a pesky fly, just when you think you scared it off it is back ;-) Gaiil New Member Introduction

Hi Everyone:My name is Jody and I am a 50 year old female from the Worcester, MA area, and I just had my defibrillator implanted two weeks ago today. I am rather new to all of this and have lived with Cardiomyopathy for the past 8 years on a minimal dose of Lisinopril. I started having problems with palpitations and a rapid heartbeat several months ago and after seeing my Cardiologist he recommended that I consider having a defibrillator put in to prevent a sudden death episode. After introducing several new meds (Water Pill, Beta Blocker and Potassium) and adjusting doseages the doctors decided to go ahead with the proceedure on 8/24/06. I was home for a week and after a few days I felt better

and wanted to get back to work. Being at home there are so many things that I wanted to be doing, such as yard work, but until I'm off restrictions, I'm actually safer in the office sitting behind a desk doing paperwork and answering a phone. Yes I do come home tired, but, as I continue to heal from my implant, I hope I can get back to life as normal for me. The two issues I'm dealing with are finding a comfortable sleeping position other than on my back, and getting my drivers side seatbelt problem resolved. I ordered a sheepskin seatbelt cover hoping it will provide more padding than a towel wrapped around the seatbelt does. Right now even with a towel the pressure over my ICD is a bit uncomfortable. Maybe in time that will improve?I go back for my first check up on 9/11 and then to the Pacemaker Clinic on 9/28. I guess I'll get used to the routine soon enough, but I will say that I'm not looking forward

to getting zapped for the first time either. I look forward to learning and sharing with all of you!Thanks for listening,Jody ChamplinHolden, MA Stay in the know. Pulse on the new .com. Check it out. Get your own web address for just $1.99/1st yr. We'll help. Small Business.

Get your email and more, right on the new .com

[Guest guest]

I too wanted to "chime in" here and say that I am glad that you are here whenever you can be. Thru it all you have been a positive member of this zapper family and we care about you too.

I am like a pesky fly, just when you think you scared it off it is back ;-)

Gaiil

[Guest guest]

I too wanted to "chime in" here and say that I am glad that you are here whenever you can be. Thru it all you have been a positive member of this zapper family and we care about you too.

I am like a pesky fly, just when you think you scared it off it is back ;-)

Gaiil

[Guest guest]

Yes, you are correct. Its seems our losses are magnified during the holidays. My husband has been gone for 13 years, and I do still feel down somewhat during these times.

Hugs, Adele (Dave from Maine's Mom)

[Guest guest]

I had a better time with the people that I live with. Was a bit down. Had orders to go to daughters, went, should have stayed home with friends. No on called for my b day, Turk sent e-mail (bless him) By New Years eve if any one said 1 word - would have killed!!!

Had tooth pulled on 26th, by 27th I knew I had problems there. Got that straightened out.Nothing could beat this year.

Gail

Gail

Hi Gail,

Just wanted you to know that I was thinking about you and your family this holiday season. For some reason holidays are the most difficult time of year when a loved one is no longer with us.

[Guest guest]



Oh Gail;

Have a WONDEFUL New Year -- it can only get better!?

Love, guin

From: charade799@...

Sent: Wednesday, January 03, 2007 10:10 AM

Subject: Re: Gail

I had a better time with the people that I live with. Was a bit down. Had orders to go to daughters, went, should have stayed home with friends. No on called for my b day, Turk sent e-mail (bless him) By New Years eve if any one said 1 word - would have killed!!!

Had tooth pulled on 26th, by 27th I knew I had problems there. Got that straightened out.Nothing could beat this year.

Gail

Gail

Hi Gail,

Just wanted you to know that I was thinking about you and your family this holiday season. For some reason holidays are the most difficult time of year when a loved one is no longer with us.

[Guest guest]

Happy belated Birthday Gail. Sure sounds like it has been a trying time for you lately. Things have got to get better this year for you and the rest of our family.

Hugz,

I had a better time with the people that I live with. Was a bit down. Had orders to go to daughters, went, should have stayed home with friends. No on called for my b day, Turk sent e-mail (bless him) By New Years eve if any one said 1 word - would have killed!!!

Had tooth pulled on 26th, by 27th I knew I had problems there. Got that straightened out.Nothing could beat this year.

Gail

[Guest guest]

Hi Guin; i just noticed the characters (  ) on top of oh Gail, is that from MSword? I get them with outlook!... I still can't figure out why? In the mean time I hope you and everyone else had a lovely new year. Regards TURKGuin Van Dyke <guin@...> wrote:  Oh Gail; Have a WONDEFUL New Year -- it can only get better!? Love, guin From: charade799earthlink (DOT) net Sent: Wednesday, January 03, 2007 10:10 AM Subject: Re: Gail I had a better time with the people that I live

with. Was a bit down. Had orders to go to daughters, went, should have stayed home with friends. No on called for my b day, Turk sent e-mail (bless him) By New Years eve if any one said 1 word - would have killed!!! Had tooth pulled on 26th, by 27th I knew I had problems there. Got that straightened out.Nothing could beat this year. Gail Gail Hi Gail, Just wanted you to know that I was thinking about you and your family

this holiday season. For some reason holidays are the most difficult time of year when a loved one is no longer with us. __________________________________________________

[Guest guest]

Hi Gail; I am sorry that you had a hard time. May you have a healthy, happy, wealthy and a properous new year. Regards TURKcharade799@... wrote: I had a better time with the people that I live with. Was a bit down. Had orders to go to daughters, went, should have stayed home with friends. No on called for my b day, Turk sent e-mail (bless him) By New Years eve if any one said 1 word - would have killed!!! Had tooth pulled on 26th, by 27th I

knew I had problems there. Got that straightened out.Nothing could beat this year. Gail Gail Hi Gail, Just wanted you to know that I was thinking about you and your family this holiday season. For some reason holidays are the most difficult time of year when a loved one is no longer with us. __________________________________________________

[Guest guest]

Dear Gail,

I hope 2007 is a better year for you.

Hugs, Adele

[Guest guest]

we are undetectable....it will always lie dormant...

gail

are you hep c free??

I am using the free version of SPAMfighter for private users.It has removed 1653 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now!

[Guest guest]

Hi folks.. Patty, your probaby gonna' think I'm such an ass imalation for saying this, but you mean it will always be with us, if undetectable, it is considered dormant, but not that it will always lie dormant?? It COULD come back...right? DelPat McBride <pmcbride1@...> wrote: we are undetectable....it will always lie dormant... gail are you hep c free?? I am using the free version of SPAMfighter for private users.It has removed 1653 spam emails to date.Paying users do not

have this message in their emails.Try SPAMfighter for free now!

Expecting? Get great news right away with email Auto-Check.Try the Beta.

[Guest guest]

Hi Gail... My muddy brain is at it again!! Isn't it true we are never cured? It is with us forever, but with successful tx, it will not show up in blood tests, and not be a bother, unless it flares up again? When you say 'No more damage can be done'.... do you mean while it is in remission, or undetectable? Should it flare up after any amount of time, and I THOUGHT that that could happen, and I think HAS happened to some, then you would be in the same boat as before, and it could damage your body/liver some more? Between you writing that no more damage can be done, and an earlier post saying it will lay dormant forever... er..always..... Then I truly need to change my thinking. I thought that even if I got a new liver, (healthy), that I would infect it right away, because I can't take present meds for tx. SOOOOoooo my question is, once you have tested and there are no signs of HEP C anymore...we

can be free??? With a healthy liver only infected by me for a short time, I may stand a chance! (with tx) No more worry or look over our shoulders for the rest of our lives..thinking it could flare up again?? I've always thought we were in a sense.... doomed.... to have this virus in our bodies for the rest of our lives, and that being the case, it could come up bite us on the butt at anytime..so plan on spending the rest of your life with that feeling...the feeling that maybe you shouldn't help someone that's bleeding, if you are too..... or having to tell docs and nurses you are an infected person, or someone you would like to get to know better... I have really thought it was a lifetime curse. I hope I have misunderstood the concept that we never 100% get over it..it's always there, stealing your happiness just a little day by day, because even though your not sick, it is still in you, and it's

always in the back of your mind that it could come back. Maybe at least not worry so much about the social stigmas?? You know....razors,fingernail clippers, sex, etc... I hope I have twisted the information on what I have led myself to believe, and that we can get to a state of health, to be able to say... No More damage can be done... stop worrying. It won't get any worse. I thought we had to, for the rest of our lives, tell whomever needs to know, that we are infected. That I have the capability to harm them, through my blood. Not like if you have some kind of VD or something, then you don't have to watch your actions after it's medicinally treated, and advise people to go away, that you will clean it up, should you cut yourself on a camping trip...or........ have to throw away food if you get cut in the kitchen, because you cut your finger on a can of beans, or whatever.

I'm not trying to be argumentative, I guess I'm just really pissed off right now and don't why and don't know what to do with it. I'm happy for you, that no more damage can be done...... but I have a hard time understanding this disease anyway, and I thought ,well I already said... I hope I haven't offended you GAIL, or anyone...I'm just mad for some reason.....ggggrrrrrrrr. Del gail <gaila@...> wrote: I will still test for hep c positive,but my viral load has been negative since treatment in 98-99.No more damage can be done,but there was lots of damage done before treatment. Gail

gail are you hep c free??

Everyone is raving about the all-new beta.

[Guest guest]

Hi Del, When they can't find the virus in your blood it's called SVR - sustained viral response. That's when the # of viruses in your blood is too small for the viral load test to count. It only means that they can't find any virus. THERE IS NO CURE YET!! Some people respond to tx but then it comes back so they're called relapsers. Some don't respond at all - like me - we're called non-responders. If you do relapse, at least the time between tx & relapse gives your liver a chance to heal a bit. When you get a t p the virus is still there & infects your new liver almost immediately. Things go down hill from there. The T P team that I saw

said that the new liver is infected within the first day you get it. Hope this clears things up for you. Hugs, SuZie & Sir SpYke the Fuzzy

Next time I'm coming back as a cat

[Guest guest]

I still have hep c if I get the bloodwork done but my viral load is negative since treatment in 98-99.The virus is no longer active.

Gail

gail

are you hep c free??

I am using the free version of SPAMfighter for private users.It has removed 1653 spam emails to date.Paying users do not have this message in their emails.Try SPAMfighter for free now!

[Guest guest]

I will still test for hep c positive,but my viral load has been negative since treatment in 98-99.No more damage can be done,but there was lots of damage done before treatment.

Gail

gail

are you hep c free??

[Guest guest]

If you have had treatment and your viral load is undetectable for six months,yes you can relapse.Once at a year of viral load being undetectable it is unlikely that you will relapse.The doctors check you for up to two years to make sure your viral load is undetectable and if it is you can relax.We all will test positive for hep c for the rest of our lives,but with no viral load for a period of 1or 2 years you can breath easy at one yr and feel safe at two yrs.If there is any active virus at all,it is sterile or can't populate,it is dormant and can not flare up unless you become infected again.If you get a new liver and go through treatment and treatment is successful then you will be fine.

Gail

gail

are you hep c free??

Everyone is raving about the all-new beta.

[Guest guest]

I tell my doctors that I have hep c but I no longer have a viral load since treatment.I have been with my husband for 17yrs and we do not use precautions and never have and he is fine.In my head I know I don't have to worry about passing this disease on,but I don't like to take chances and still use all the safety recautions to make me feel secure.I don't trust doctors anymore so I won't take chances.

Gail

gail

are you hep c free??

Everyone is raving about the all-new beta.

[Guest guest]

Might be a valid leason for him to start listening to what people say.Let us know how it worked out.Tell him you didn't raise him all these years just so he could be a bumb.Thats what I told me son.Didn't take long for him to get to a friends and find a job right away.Only mothers are supposed to put up with lazy children as far as they are concerned.

Gail

RE: Gail

Deadline has passed and all his stuff is still here. Since it’s still the weekend, I won’t bag it up today. But I will be locking all the doors up tight every day when I go to work. He lost his key. I don’t think he can get in through the dog door since it’s so small.

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of gailSent: Sunday, April 01, 2007 9:31 AMHepatitis CSupportGroupForDummies Subject: Re: Tx Twin.. & All

My son did that too where he didn't think I was serious until he had to leave.

Gail

[Guest guest]

Talked

to him 3 times today. He never mentioned a thing. Maybe if he ignores it, I’ll

never know the deadline passed?

Re:

Gail

Might be a valid leason for him to

start listening to what people say.Let us know how it worked out.Tell him you

didn't raise him all these years just so he could be a bumb.Thats what I told

me son.Didn't take long for him to get to a friends and find a job right

away.Only mothers are supposed to put up with lazy children as far as they are

concerned.

Gail

[Guest guest]

I know that now dummy me. Upset I might be doing this for nothing oh well gotta go with the flow. patgail <gaila@...> wrote: A biopsy gives the true story about what condition you liver is in.The ultra sound isn't nearly as accurate. Gail -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of Vickie GraySent: April 19, 2007 1:47 PMHepatitis CSupportGroupForDummies Subject: Re: VickieYou are lucky. Hugs! VickieGpatricia <pandas2sbcglobal (DOT) net> wrote: Glad your biposy went well no it doesn't sound like fun. I did get genotyped and I am 1-b and am on treatment 3rd week. All I ever had was blood work and two liver ultra-sounds. Have a good day. patVickie Gray <onelildeltagirl > wrote:

Ahhh..! .imagini ng that irresistible "new car" smell?Check out new cars at Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at

Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos.

[Guest guest]

I am being good did eat 31/2 times yesterday lol. That was good for me figure i can keep increasing until I am doing right by myself. The 1/2 feeding was half a yogurt just couldn't get rest down lol. Did you have a cough? If so what did you do for it if anything? patgail <gaila@...> wrote: I am glad to hear you are pushing yourself on the food end.I don't want them to take you off treatment because of your bad

condition from not eating enough to help keep your blood levels up.Treatment knocks the blazes out of a lot of us and we have to replenish our body as much as possible to be able to fight what is happening.When I was on treatment in 98-99 the doctors never knew very much about drinking lots of water,forcing yourself to eat and I was on a trial so I wasn't allowed to take any meds except for tylenol.I lost 30 pounds,could barly walk or breath by the time I was on treatment for 10 months.I told the specialist how bad it was and if I could quit and he said if I quit it would give me less of a chance of clearing the virus,then he went on holidays for 6wks.My family doctor kept track of everything and had already warned my husband that he didn't think I was going to survive treatment.My white count was down to 1.5 and 2.5 in Canada is considered serious.I did the 52wks of treatment at three shots a wk of interferon,and 5 riboveron a day for 3wks then they reduced the riboveron

down to three a day.I am genotype 1. In those days it was just one not a or b.Take care hon and push that food.I didn't get my computer until 2001 and that is when I started getting information about hep c.Fortunately my virus is no longer active because of treatment. Gail -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of patriciaSent: April 19, 2007 1:52 PMHepatitis CSupportGroupForDummies Subject: RE: Gail Hi Gail I kinda thought it was the pills, been eating better today trying to behave

lol. Probably should go munch on a yogurt now but I have ate twice today so far which is rare for me, usually only been twice aday with pills. I am working on eating and drinking more I don't think about it I just do it right now. You are so nice. pat

[Guest guest]

Yes I had a cough but because I was on a trial treatment I wasn't allowed to take anything for it.Ask your family doctor that is one of the sides you are getting and he can tell you what to get.

Gail

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of patriciaSent: April 20, 2007 6:19 AMHepatitis CSupportGroupForDummies Subject: RE: GailI am being good did eat 31/2 times yesterday lol. That was good for me figure i can keep increasing until I am doing right by myself. The 1/2 feeding was half a yogurt just couldn't get rest down lol. Did you have a cough? If so what did you do for it if anything? patgail <gaila@...> wrote:

I am glad to hear you are pushing yourself on the food end.I don't want them to take you off treatment because of your bad condition from not eating enough to help keep your blood levels up.Treatment knocks the blazes out of a lot of us and we have to replenish our body as much as possible to be able to fight what is happening.When I was on treatment in 98-99 the doctors never knew very much about drinking lots of water,forcing yourself to eat and I was on a trial so I wasn't allowed to take any meds except for tylenol.I lost 30 pounds,could barly walk or breath by the time I was on treatment for 10 months.I told the specialist how bad it was and if I could quit and he said if I quit it would give me less of a chance of clearing the virus,then he went on holidays for 6wks.My family doctor kept track of everything and had already warned my husband that he didn't think I was going to survive treatment.My white count was down to 1.5 and 2.5 in Canada is considered serious.I did the 52wks of treatment at three shots a wk of interferon,and 5 riboveron a day for 3wks then they reduced the riboveron down to three a day.I am genotype 1. In those days it was just one not a or b.Take care hon and push that food.I didn't get my computer until 2001 and that is when I started getting information about hep c.Fortunately my virus is no longer active because of treatment.

Gail

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of patriciaSent: April 19, 2007 1:52 PMHepatitis CSupportGroupForDummies Subject: RE: Gail

Hi Gail I kinda thought it was the pills, been eating better today trying to behave lol. Probably should go munch on a yogurt now but I have ate twice today so far which is rare for me, usually only been twice aday with pills. I am working on eating and drinking more I don't think about it I just do it right now. You are so nice. pat

[Guest guest]

Thank you Gail for the info. Cough isn't all the time but so annoying as you can't stop. Patgail <gaila@...> wrote: Yes I had a cough but because I was on a trial treatment I wasn't allowed to take anything for it.Ask your family doctor that is one of the sides you are getting and he can tell you what to get. Gail