Guest guest Posted January 25, 2009 Report Share Posted January 25, 2009 I have the same thing you have Ian. I do think it's morgellons I think morgellons comes from bird and rodent mites. I get blue red green and even white fibers that come off my skin when I lint brush it with a lint roller. I do know many others on here have this same thing and I have learned so much from everyone. the cralwing you feel is from the white mite so so keep clear tape near you when you on the computer and when you feel them moving put the tape in that spot. tommyFrom: Ian <tenchantre@...>Subject: Re: Update...bird mites Date: Saturday, January 24, 2009, 11:17 PM No, I don't know what kind of mite it is. I have been pretty lax in my research since August, when I gave up on using a computer. I'm getting back in gear but -- as you all must know, this snowballs like crazy. I have a microscope and have examined a lot of little crescent-shaped stuff that comes out of my skin, and fuzz balls on my head, and white and black specks my mother finds, and a few other things. They all seem to be by-products of the mite. For a long time I figured I had Morgellon's and was preparing to die (by my own hand). After reading more about bird and rat mites, I'm more convinced that we are just dealing with a mite. (I don't have Lyme, open sores, fatigue. I do find weird cotton balls on me, though, and chunks of white goo with threads throughout, but I'm not sure that isn't normal, either.) How do I trap the mite, and find it, so I can microscope it? I have a friendly entomologist who will ID it if I can just find it. (Doctor's biopsies and skin scrapings revealed nothing.) Thank you. Ian > From: Ian <tenchantre@ ...> > Subject: Update... > bird mites > Date: Friday, January 23, 2009, 7:32 PM > > > > > > > > > > > > Hi everyone. I am trying to be more active in the group, despite > > spotty computer access (my laptop is one big bug brick). I've > > been fighting the mites for nine months now and like most of you > > have been through hell and back quite a lot. > > > > I got sick over the holidays and the bugs severely infested my head > > (which I shave frequently). They even dance around and slither in a > > smoothly shaved head. I'm doing Head & Shoulders for 5 minutes in > > the bath, spraying Kleen Green, and using Tinactin in my ears, but > > it's only about 50% manageable. Any ideas? > > > > Other things I'm doing right now: > > Mopping w/ borax, leaving a lot on the floor > > Spraying bed and car with Windex and/or 91% alcohol > > Keeping everything bagged/in freezer (or outside when it's below > > zero) > > Full body scrubs with Head & Shoulders > > Suave hand cream mixed with clove and tea tree oil (helps a lot!) > > Soaking feet/hands in borax water or apple cider vinegar > > Washing clothes with ammonia or bleach > > Keeping all the hair shaved from my body (this helps TONS) but I > > look pretty freakish :/ > > > > Internally: > > Bactrim (suggested on Avianweb) > > Sporanox (about to start this at 200mg / day x 60 days) > > Echniacia > > Black Cohosh > > Cayenne (lots) > > BufferPH > > Ativan (nerves) > > Vitamin D3 > > Multivitamins > > Vit. C (1gm) > > Natural cellular defense > > Tried a couple parasite cleanses, going to try Parasitin next > > 1 gallon lemon water > > Sparse no sugar, no white flour diet. (lost over 100 pounds now) > > > > I don't know if the Bactrim (or the BufferPH) is doing its magics, > > but I felt a pretty big lull in activity since I started them. > > > > I'd like any feedback. My parents still have this and my mom is > > doing very badly. They have a big house and most of it is walled > > off in pastic, but it's still too much for conventional cleaning. > > > > thanks - and may you all find peace > > Ian > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2009 Report Share Posted January 25, 2009 I agree too, but he is describing the earlier days of my battle. I no longer have as much problems (for a few months now), but have not completely eliminated them. From: wtgwilliamthegreat <gibson-w@...>bird mites Sent: Sunday, January 25, 2009 12:11:49 AMSubject: Re: Update... Yes, I know what kind of insect it is. The post onwww.e-bug.net/ forum tells it all. If you scroll thru all the spam until you get to 11/26/08, there you will find a post by Greg called "Invisible to the naked eye". I agree with him 100% on what this condition is. WTG......... ......... ......... ......... ......> > From: Ian <tenchantre@ >> > Subject: Update...> > bird mites> > Date: Friday, January 23, 2009, 7:32 PM> > > > > > > > > > > > > > > > > > > > > > > > Hi everyone. I am trying to be more active in the> group, despite > > > > spotty computer access (my laptop is one big bug brick). I've > > > > been fighting the mites for nine months now and like most of you > > > > have been through hell and back quite a lot.> > > > > > > > I got sick over the holidays and the bugs severely infested my head > > > > (which I shave frequently). They even dance around and slither in a > > > > smoothly shaved head. I'm doing Head & Shoulders for 5 minutes in > > > > the bath, spraying Kleen Green, and using Tinactin in my ears, but > > > > it's only about 50% manageable. Any ideas? > > > > > > > > Other things I'm doing right now:> > > > Mopping w/ borax, leaving a lot on the floor> > > > Spraying bed and car with Windex and/or 91% alcohol> > > > Keeping everything bagged/in freezer (or outside when it's below > > > > zero)> > > > Full body scrubs with Head & Shoulders> > > > Suave hand cream mixed with clove and tea tree oil (helps a lot!)> > > > Soaking feet/hands in borax water or apple cider vinegar> > > > Washing clothes with ammonia or bleach> > > > Keeping all the hair shaved from my body (this helps TONS) but I > > > > look pretty freakish :/> > > > > > > > Internally:> > > > Bactrim (suggested on Avianweb)> > > > Sporanox (about to start this at 200mg / day x 60 days)> > > > Echniacia> > > > Black Cohosh> > > > Cayenne (lots)> > > > BufferPH> > > > Ativan (nerves)> > > > Vitamin D3> > > > Multivitamins> > > > Vit. C (1gm)> > > > Natural cellular defense > > > > Tried a couple parasite cleanses, going to try Parasitin next> > > > 1 gallon lemon water> > > > Sparse no sugar, no white flour diet. (lost over 100 pounds now)> > > > > > > > I don't know if the Bactrim (or the BufferPH) is doing its magics, > > > > but I felt a pretty big lull in activity since I started them. > > > > > > > > I'd like any feedback. My parents still have this and my mom is > > > > doing very badly. They have a big house and most of it is walled > > > > off in pastic, but it's still too much for conventional cleaning.> > > > > > > > thanks - and may you all find peace> > > > Ian> >> Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2009 Report Share Posted May 28, 2009 Well Done Malisa on your good progress. Â I hope that the spasms subside for you. Many people report an improvement after a few weeks, otherwise stick to the iced water! Â Well done too for taking things easy. It won't be long now before you feel you can tackle practically anything food-wise. Â Keep up the good work, love from Ann xx From: malprymate35 <malprymate35@...> Subject: Update... achalasia Date: Thursday, 28 May, 2009, 4:27 AM Hello all. I just wanted to give a quick update on what is happening with me. I'm now almost 6 weeks post op from Myotomy and fundo. I'm doing better every day. I almost thought I was never going to get better since I would take one step forward and two steps back. I have almost all foods back into my diet. Still no dairy, carbonated and cold foods yet, but I can live with that, and everything is still fine. YEAH!!!! As for the spasms...well I was prescribed the niphedipine and I will NEVER, NEVER, NEVER... take it again. I thought I was going to die. It made me have heart palpitations. ..which set off anxiety attacks. Obviously it wasn't for me. I still have to discuss medications to take with my doctor since that didn't work. I did go back to work....which I'm glad I did, since sitting around the house was driving me nuts. I feel like I'm actually get back to my old self. Malisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2009 Report Share Posted May 29, 2009 malisa-i am so happy you are recovering to nicely. there sre lots of suggestions regarding treatment of spasms. ice water works for my son. his spasms have greatly diminished as time goes along. again, yeah to you...angela achalasia From: malprymate35@... Date: Thu, 28 May 2009 03:27:06 +0000 Subject: Update... Hello all. I just wanted to give a quick update on what is happening with me. I'm now almost 6 weeks post op from Myotomy and fundo. I'm doing better every day. I almost thought I was never going to get better since I would take one step forward and two steps back. I have almost all foods back into my diet. Still no dairy, carbonated and cold foods yet, but I can live with that, and everything is still fine. YEAH!!!! As for the spasms...well I was prescribed the niphedipine and I will NEVER, NEVER, NEVER... take it again. I thought I was going to die. It made me have heart palpitations...which set off anxiety attacks. Obviously it wasn't for me. I still have to discuss medications to take with my doctor since that didn't work. I did go back to work....which I'm glad I did, since sitting around the house was driving me nuts. I feel like I'm actually get back to my old self. Malisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 Good to hear from you Stacey!  Glad you are much better. Being sick bites! I don't remember the last time for me (knock on wood).DarcyOn Sun, Aug 2, 2009 at 11:58 AM, Stacey Brennan-Melvin <billsgirl93@...> wrote:  hi! glad to be back online!! i planned to get back to exercising last week but unfortunately ended up catching the virus that all of the kids had. fever, chills, awful headache...had to go to the md and was prescribed an antibiotic. feeling much better:) i raced sean in the yard today and victory was mine!! it was fun to play outside in the rain. anyway my side is close to being healed--this makes me very happy. i should be good to go by mid week. my dh has a new interest in tai chi and we plan to try to figure out the moves together:) looking forward to that! had fun reading about everyone's workouts!! are we going to do the jari love rotation in september? stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 Good to hear from you Stacey!  Glad you are much better. Being sick bites! I don't remember the last time for me (knock on wood).DarcyOn Sun, Aug 2, 2009 at 11:58 AM, Stacey Brennan-Melvin <billsgirl93@...> wrote:  hi! glad to be back online!! i planned to get back to exercising last week but unfortunately ended up catching the virus that all of the kids had. fever, chills, awful headache...had to go to the md and was prescribed an antibiotic. feeling much better:) i raced sean in the yard today and victory was mine!! it was fun to play outside in the rain. anyway my side is close to being healed--this makes me very happy. i should be good to go by mid week. my dh has a new interest in tai chi and we plan to try to figure out the moves together:) looking forward to that! had fun reading about everyone's workouts!! are we going to do the jari love rotation in september? stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 Stacey Brennan-Melvin wrote: > hi! glad to be back online!! i planned to get back to > exercising last week but unfortunately ended up catching the > virus that all of the kids had. hi stacey! im glad that you are back! so sorry to hear that you have been sick glad to hear that you are feeling better now > are we going to do the jari love rotation in september? oh my! jari will probably kill me, but ya know, i seem to do alot better with high rep/low weight workouts, so hmmmm....... last year i did the second half of the jari love rotation by myself, so hmmmmm, im actually considering it again this year as long as you will do it with me!!! i would LOVE that!! lemme know, i could probably be talked into it...LOL :*carolyn. PS: i would probably have to take jari down to 2 days a week during the rotation, especially since i will hopefully be going back to work after 10 years out of the workforce! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 Stacey Brennan-Melvin wrote: > hi! glad to be back online!! i planned to get back to > exercising last week but unfortunately ended up catching the > virus that all of the kids had. hi stacey! im glad that you are back! so sorry to hear that you have been sick glad to hear that you are feeling better now > are we going to do the jari love rotation in september? oh my! jari will probably kill me, but ya know, i seem to do alot better with high rep/low weight workouts, so hmmmm....... last year i did the second half of the jari love rotation by myself, so hmmmmm, im actually considering it again this year as long as you will do it with me!!! i would LOVE that!! lemme know, i could probably be talked into it...LOL :*carolyn. PS: i would probably have to take jari down to 2 days a week during the rotation, especially since i will hopefully be going back to work after 10 years out of the workforce! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 Hi Stacey, I'm glad your side is almost completely healed and that you're over that summer bug. Summer bugs are always hard to get rid of. JenFrom: Stacey Brennan-Melvin <billsgirl93@...>Subject: update... Date: Sunday, August 2, 2009, 12:58 PM hi! glad to be back online!! i planned to get back to exercising last week but unfortunately ended up catching the virus that all of the kids had. fever, chills, awful headache...had to go to the md and was prescribed an antibiotic. feeling much better:) i raced sean in the yard today and victory was mine!! it was fun to play outside in the rain. anyway my side is close to being healed--this makes me very happy. i should be good to go by mid week. my dh has a new interest in tai chi and we plan to try to figure out the moves together:) looking forward to that! had fun reading about everyone's workouts!! are we going to do the jari love rotation in september? stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 Hi Stacey, I'm glad your side is almost completely healed and that you're over that summer bug. Summer bugs are always hard to get rid of. JenFrom: Stacey Brennan-Melvin <billsgirl93@...>Subject: update... Date: Sunday, August 2, 2009, 12:58 PM hi! glad to be back online!! i planned to get back to exercising last week but unfortunately ended up catching the virus that all of the kids had. fever, chills, awful headache...had to go to the md and was prescribed an antibiotic. feeling much better:) i raced sean in the yard today and victory was mine!! it was fun to play outside in the rain. anyway my side is close to being healed--this makes me very happy. i should be good to go by mid week. my dh has a new interest in tai chi and we plan to try to figure out the moves together:) looking forward to that! had fun reading about everyone's workouts!! are we going to do the jari love rotation in september? stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 Hi Stacey, I'm glad your side is almost completely healed and that you're over that summer bug. Summer bugs are always hard to get rid of. JenFrom: Stacey Brennan-Melvin <billsgirl93@...>Subject: update... Date: Sunday, August 2, 2009, 12:58 PM hi! glad to be back online!! i planned to get back to exercising last week but unfortunately ended up catching the virus that all of the kids had. fever, chills, awful headache...had to go to the md and was prescribed an antibiotic. feeling much better:) i raced sean in the yard today and victory was mine!! it was fun to play outside in the rain. anyway my side is close to being healed--this makes me very happy. i should be good to go by mid week. my dh has a new interest in tai chi and we plan to try to figure out the moves together:) looking forward to that! had fun reading about everyone's workouts!! are we going to do the jari love rotation in september? stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 Hi Stacey, we missed you! I'm jealous you have a romantic t'ai chi partner. I think you two will really enjoy this! Are you going to do it in a park or studio or are you going to use videos? Parting the horse's mane, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 Hi Stacey, we missed you! I'm jealous you have a romantic t'ai chi partner. I think you two will really enjoy this! Are you going to do it in a park or studio or are you going to use videos? Parting the horse's mane, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2011 Report Share Posted June 28, 2011 Hello everyone. I am guilty of lurking but have been reading just not so active these days. I have to thank the members of this wonderful support group who helped me through the past 18 or so months. I ahd another mapping yesterday. I've gained another 5% speech comprehension. I'm pleased that i have been able to understand 85% speech comprehension over the past year and before surgery zero. I did best with the beeps and tones almost a 100%. I did miss a few sentenses and especially the ones spoken by a man. To me men sound like donald duck. (IMHO) I still ahve trouble and probably always will in groups and lengthy conversations. I'm able to also use the telephone for amall talk. this makes my daughter so very happy. I'm also a deaf/blind (not totally but enough) After not working since 1986 I am even contemplating going back to work. thanks to everyone who's helped. *implanted right ear 4/1/2010 Oregon health and Science University Debbie Cole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2011 Report Share Posted June 28, 2011 Deb, Fantasic! Now come see us at the coast and lets chat. It would be great to talk about our CI journeys and what lies ahead. Quote of the nanosecond... A happy medium is one who makes contact with their party at a s'eance. & Dreamer Doll ke7nwn E-mail- Gone.to.Dawgs@... Home Page- http://webpages.charter.net/dog_guide/ Update... Hello everyone. I am guilty of lurking but have been reading just not so active these days. I have to thank the members of this wonderful support group who helped me through the past 18 or so months. I ahd another mapping yesterday. I've gained another 5% speech comprehension. I'm pleased that i have been able to understand 85% speech comprehension over the past year and before surgery zero. I did best with the beeps and tones almost a 100%. I did miss a few sentenses and especially the ones spoken by a man. To me men sound like donald duck. (IMHO) I still ahve trouble and probably always will in groups and lengthy conversations. I'm able to also use the telephone for amall talk. this makes my daughter so very happy. I'm also a deaf/blind (not totally but enough) After not working since 1986 I am even contemplating going back to work. thanks to everyone who's helped. *implanted right ear 4/1/2010 Oregon health and Science University Debbie Cole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2011 Report Share Posted June 28, 2011 Sounds good to me, robert. I'm off to buy a new bikini! Debbie Cole and the Lovable Leone From: C <gone.to.dawgs@...> Subject: Re: Update... Date: Tuesday, June 28, 2011, 7:46 PM  Deb, Fantasic! Now come see us at the coast and lets chat. It would be great to talk about our CI journeys and what lies ahead. Quote of the nanosecond... A happy medium is one who makes contact with their party at a s'eance. & Dreamer Doll ke7nwn E-mail- Gone.to.Dawgs@... Home Page- http://webpages.charter.net/dog_guide/ Update... Hello everyone. I am guilty of lurking but have been reading just not so active these days. I have to thank the members of this wonderful support group who helped me through the past 18 or so months. I ahd another mapping yesterday. I've gained another 5% speech comprehension. I'm pleased that i have been able to understand 85% speech comprehension over the past year and before surgery zero. I did best with the beeps and tones almost a 100%. I did miss a few sentenses and especially the ones spoken by a man. To me men sound like donald duck. (IMHO) I still ahve trouble and probably always will in groups and lengthy conversations. I'm able to also use the telephone for amall talk. this makes my daughter so very happy. I'm also a deaf/blind (not totally but enough) After not working since 1986 I am even contemplating going back to work. thanks to everyone who's helped. *implanted right ear 4/1/2010 Oregon health and Science University Debbie Cole Quote Link to comment Share on other sites More sharing options...
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