Activation

[Guest guest]

Larry,

Congratulations! Welcome to the world of hearing. Everything I mean

everything makes noise. Just take it one day at a time. It only gets

better. Work with your audi this is very important.

Welcome!

From: Larry Burgess <lburg@...>

Subject: RE: Activation

Date: Wednesday, September 10, 2008, 9:05 PM

Hello all,

I was finally activated today.

<http://geo.. com/serv? s=97359714/ grpId=7962067/ grpspId=17050134

90/msgId

=60127/stime= 1220972597/ nc1=5170419/ nc2=5191955/ nc3=5379228> It was a long

first session, almost 2 1/2 hours. Went through a series of beeps to

establish the appropriate levels and frequencies. There were some

frequencies that I haven't heard in a long time , if ever. Very wierd

feeling to be hooked up to a computer and to suddenly hear sounds in your

head and realize it's not tinnitus. It was pretty cool to see the changes

being made for decibels and frequencies and see what you can and cannot

hear.

When the processor was actually turned on for speech, the voices all sounded

the same and computer generated(actually it is!). What caught my attention

immediately was the 'S' and 'SH' sounds. " Suzy sells seashells down by the

seashore " . I wasn't sure what to make of them at first. Is that normal? Is

that gibberish? I then realized it was something I was never really hearing

before. I've gone so long without hearing high frequencies that it's almost

another language for me to learn. Aaaa, Ooooo, Eeeee all sound the same

right now.

At one point, it was quiet in the room but I was hearing a noise through the

door behind me. My wife and the audi realized it was the fan from the

mainframe computer behind the door. I'm like...wow I can hear sounds in

another room?! Granted it was not clear at all but nothing is at this

point. At this point, the audi has a limited program installed with a

limited range of frequencies. I need to get used to this range before he

can expand it.

I drove home listening to everything in the car. Of course I had to try

listening to a CD. Then had to shut it off. Too much noise. I did however

hear the blinkers which was neat.

At home, I was next to my oldest son out in the backyard. At first, I

though he was talking to me but it was actually my youngest son's voice

across the yard. Again, nothing is clear right now but it was a good first

step today. I go back on Monday for another mapping. I was actually

hoping to understand more today so I'm trying very hard to be patient with

this....one step at a time.

Larry

Left Implanted 7/28/08

Left Activated 9/10/08

[Guest guest]

That's the best way to do it, Larry. Baby steps. I was just activated Aug. 25

and had my second mapping two weeks later on Sept. 9. The first mapping was very

basic, all with ADRO in each program, but with added volume in each program. At

first it was all high-pitched noise to me (like a hearing aid whistling in my

ear).

 

The new map is just about the same, with even more increased volume. Last night

while doing dishes, the running water actually sounded like running water. The

dishes clinking actually sounded like dishes clinking. Sounds are becoming more

natural (or as natural or normal to me). Voices are still " heliumized. "

 

Wow, that's really good that you can hear a voice on the other side of the yard.

With this mew map, I'm able to recognize sounds more. Sometimes I can hear the

ticking of the clock and then the dog or someone would walk by and that sound

would just go haywire. I guess my brain doesn't know how to interpret it yet.

 

Again, as time goes on, I hope you have many " CI moments. "

 

Shari in WI

[Guest guest]

You are off to a good start, Shari.

[Guest guest]

Way to go Larry. BTW, it's " She sells seashells by the seashore " Gets

another SH word in. Very old thing from childhood days, and cruel for a

person with a lisp. Another one, I've never heard used in audiology

testing, but have heard as a child is " Rubber baby buggy bumpers " As

kids we'd try to say them really fast and get them all messed up and

laugh. My favorite is : " Amidst the mist and coldest frost with

stoutest wrists and loudest boasts, he thrusts his fists against the post

and still insists he sees the ghost. " Lawrence used that in his

Archie McNally books claiming it was an audiology chant, and if you could

say it with no mistakes, then you were not yet drunk!

It will only get better as your brain learns to process this sound a new

way.

What caught my attention immediately was the 'S' and 'SH' sounds. " Suzy

sells seashells down by the seashore " .

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[Guest guest]

I was activated 7 days after surgery, & no problem.

activation

My activation is scheduled 9 days post surgery. I've been told that this is

fine and i've been told that it is not, that i should wait a month. Can any

of you illuminate this issue for me? Is it just how your feel? Can the

external magnet pull the internal plate loose if it's applied too early?

thanks

[Guest guest]

I don't think there's a danger. It mostly has to do with the tenderness

around the incision site and whether the swelling will have gone down enough

for the magnet to stick to your head.

[Guest guest]

Hi Bruce,

First thing the audiologist checks for is magnet strength. If there

is stills welling at the incision site, a stronger magnet may be used,

but they will use the weakest one that works.

I could have been mapped 2 weeks after surgery, but the software

wasn't in yet. So had to wait a month. I've had 3 mappings in the 2

months since implantation.

My activation is scheduled 9 days post surgery. I've been told that this

is fine and i've been told that it is not, that i should wait a month.

Can any of you illuminate this issue for me? Is it just how your feel?

Can the external magnet pull the internal plate loose if it's applied too

early? thanks

____________________________________________________________

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[Guest guest]

Dear Bruce, I am thrilled for you! Yours is the dream of all CI

recipients. Jackie )

[Guest guest]

I was activated 3 weeks after surgery, but because I had to go down for a

second surgery 8 days later, it was an option to be activated then.  My clinic

told me they've activated people the next day...usually people who live far, far

away and need to get back home soon. 

So you should be good to go!  Best of luck!!  And, keep us posted on your

experience!

 

________________________________

From: Bruce <musicinmy.ears@...>

Sent: Fri, November 13, 2009 8:38:28 AM

Subject: activation

 

My activation is scheduled 9 days post surgery. I've been told that this is fine

and i've been told that it is not, that i should wait a month. Can any of you

illuminate this issue for me? Is it just how your feel? Can the external magnet

pull the internal plate loose if it's applied too early? thanks

[Guest guest]

Yes you will have to camp out in the audi's office. LOL

No, the first time may be a couple hours then you go back the next day

or so for more mapping. You may find even the next day might not be soon

enough. The brain can adaot pretty quickly to the new sounds coming in. So

keep tha tin mind and dont freak out when/if things seem to get too faint or

weird. You might leave the office thinking its too loud and by the time you

get home, its too soft!

Its exctiing! You will need to come see us and hear the ocean. And the

sea gulls too. They are a hoot, fun to listen to.

Quote of the nanosecond. . .

My friend has a baby. I'm recording all the noises he makes so later I can

ask him what he meant.

& Dreamer Doll ke7nwn

E-mail-

rclark0276@...

Home Page-

http://webpages.charter.net/dog_guide/

Re: CI qualification hearing tests (to new member Teri &

others)

Date: Wednesday, February 24, 2010, 4:29 PM

Â

If you folks think the PRE testing is fun, wait until you get in Audio

Verbal therapy. I had a test where the speaker you were supposed to be

listening to and the background noise was at the same volume. Now in a

real life situation, I would move to a place where the noise wasn't that

loud, but had to sit listening to what was basically gibberish and then

answer questions about what the story was about. " I haven't a clue " was

not one of the choices, but would have been what I chose each time.

Tried to tell the guy that anyone with any smarts would move away from

too loud background noise, OR use lipreading, so it wasn't really a fair

test. But it's giving tests like that which show them how stupid the

tests are. Because I have 97% comprehension in each ear alone in quiet.

And together, 100% in quiet. In noise, probably 93% - 95%. So whoever

designed that test is a moron.

Teri, I had to go for two evaluations, then approved.

Got it in 2003. If I wasn't such a long time good lipreader, I think I

would have been mostly housebound til they thought I was 'ready.'

Honestly, I don't understand how with all the technology we have that

they can't duplicate real life situations and see how a person copes with

hearing loss at different levels of losses in a natural setting.

I would come home totally spent from exhaustion after visiting with

friends for 2-3 hours. It's like being on your tippy toes for all that

time! They have no clue that when a deep voiced person, or a

somewhat-loud and clear person can make all the difference in a group.

Ditto for kind people who don't mind repeating what was missed. I have

been in numerous groups and it's a matter of luck whether you will find

someone who is patient or who speaks clearly or who is easy to lipread.

It's a heavenly difference. Bless them for helping! I always make sure I

sit next to them. :} Sometimes all you need is one person.

____________ _________ _________ _________ _________ _________ _

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[Guest guest]

thanks for explaining that, robert.  and we are most definitely going tob e

planning a trip to the beach soonl

Have a great day!

Debbie Cole

From: Nucleus24 <nucleus24juno (DOT) com>

Subject: Re: CI qualification hearing tests (to new member Teri &

others)

groups (DOT) com

Date: Wednesday, February 24, 2010, 4:29 PM

Â

If you folks think the PRE testing is fun, wait until you get in Audio

Verbal therapy. I had a test where the speaker you were supposed to be

listening to and the background noise was at the same volume. Now in a

real life situation, I would move to a place where the noise wasn't that

loud, but had to sit listening to what was basically gibberish and then

answer questions about what the story was about. " I haven't a clue " was

not one of the choices, but would have been what I chose each time.

Tried to tell the guy that anyone with any smarts would move away from

too loud background noise, OR use lipreading, so it wasn't really a fair

test. But it's giving tests like that which show them how stupid the

tests are. Because I have 97% comprehension in each ear alone in quiet.

And together, 100% in quiet. In noise, probably 93% - 95%. So whoever

designed that test is a moron.

Teri, I had to go for two evaluations, then approved.

Got it in 2003. If I wasn't such a long time good lipreader, I think I

would have been mostly housebound til they thought I was 'ready.'

Honestly, I don't understand how with all the technology we have that

they can't duplicate real life situations and see how a person copes with

hearing loss at different levels of losses in a natural setting.

I would come home totally spent from exhaustion after visiting with

friends for 2-3 hours. It's like being on your tippy toes for all that

time! They have no clue that when a deep voiced person, or a

somewhat-loud and clear person can make all the difference in a group.

Ditto for kind people who don't mind repeating what was missed. I have

been in numerous groups and it's a matter of luck whether you will find

someone who is patient or who speaks clearly or who is easy to lipread.

It's a heavenly difference. Bless them for helping! I always make sure I

sit next to them. :} Sometimes all you need is one person.

____________ _________ _________ _________ _________ _________ _

Senior Assisted Living

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[Guest guest]

Hi Debbie

My activation was a 2 hour mapping. I then went back the following week and had

a hearing test and another mapping which was about an hour to an hour and a

half.. Then 2 weeks after that I had another mapping and hearing test. I will go

back next month at the 3 month mark from activation for another hearing test and

mapping.

regina

 

________________________________

From: DEBORAH COLE <deborah_anne419@...>

Sent: Wed, February 24, 2010 10:16:11 PM

Subject: Activation

 

A ? please...

After the implant surgery and the healing... I will go for the activation.  she

will put the processor on and slap on the magnet.  LOL  does this activation

take place for 2 days or jsut one day?  I believe i recall someone mentioning 2

days.  what is included here?

thank you!

Have a great day!

Debbie Cole

From: Nucleus24 <nucleus24juno (DOT) com>

Subject: Re: CI qualification hearing tests (to new member Teri &

others)

groups (DOT) com

Date: Wednesday, February 24, 2010, 4:29 PM

 

If you folks think the PRE testing is fun, wait until you get in Audio

Verbal therapy. I had a test where the speaker you were supposed to be

listening to and the background noise was at the same volume. Now in a

real life situation, I would move to a place where the noise wasn't that

loud, but had to sit listening to what was basically gibberish and then

answer questions about what the story was about. " I haven't a clue " was

not one of the choices, but would have been what I chose each time.

Tried to tell the guy that anyone with any smarts would move away from

too loud background noise, OR use lipreading, so it wasn't really a fair

test. But it's giving tests like that which show them how stupid the

tests are. Because I have 97% comprehension in each ear alone in quiet.

And together, 100% in quiet. In noise, probably 93% - 95%. So whoever

designed that test is a moron.

Teri, I had to go for two evaluations, then approved.

Got it in 2003. If I wasn't such a long time good lipreader, I think I

would have been mostly housebound til they thought I was 'ready.'

Honestly, I don't understand how with all the technology we have that

they can't duplicate real life situations and see how a person copes with

hearing loss at different levels of losses in a natural setting.

I would come home totally spent from exhaustion after visiting with

friends for 2-3 hours. It's like being on your tippy toes for all that

time! They have no clue that when a deep voiced person, or a

somewhat-loud and clear person can make all the difference in a group.

Ditto for kind people who don't mind repeating what was missed. I have

been in numerous groups and it's a matter of luck whether you will find

someone who is patient or who speaks clearly or who is easy to lipread.

It's a heavenly difference. Bless them for helping! I always make sure I

sit next to them. :} Sometimes all you need is one person.

____________ _________ _________ _________ _________ _________ _

Senior Assisted Living

Put your loved ones in good hands with quality senior assisted living. Click

now!

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[Guest guest]

My activation was scheduled over a three day period since I live 8 hours away

from my CI audiologist.  Then I went back every 2 weeks for 2 day appointments

2 more times, and then after that it was based on what I needed.  I actually

ended up going back once a month for two more times, and then I waited for my 6

mo. appointment.  Then I went back down every two months until my 1 year

appointment.  But, in my case, I was profound to totally deaf in my implanted

ear for 51 years, so I had a lot of adapting to do. 

 

________________________________

From: DEBORAH COLE <deborah_anne419@...>

Sent: Wed, February 24, 2010 9:16:11 PM

Subject: Activation

 

A ? please...

After the implant surgery and the healing... I will go for the activation.  she

will put the processor on and slap on the magnet.  LOL  does this activation

take place for 2 days or jsut one day?  I believe i recall someone mentioning 2

days.  what is included here?

thank you!

Have a great day!

Debbie Cole

From: Nucleus24 <nucleus24juno (DOT) com>

Subject: Re: CI qualification hearing tests (to new member Teri &

others)

groups (DOT) com

Date: Wednesday, February 24, 2010, 4:29 PM

 

If you folks think the PRE testing is fun, wait until you get in Audio

Verbal therapy. I had a test where the speaker you were supposed to be

listening to and the background noise was at the same volume. Now in a

real life situation, I would move to a place where the noise wasn't that

loud, but had to sit listening to what was basically gibberish and then

answer questions about what the story was about. " I haven't a clue " was

not one of the choices, but would have been what I chose each time.

Tried to tell the guy that anyone with any smarts would move away from

too loud background noise, OR use lipreading, so it wasn't really a fair

test. But it's giving tests like that which show them how stupid the

tests are. Because I have 97% comprehension in each ear alone in quiet.

And together, 100% in quiet. In noise, probably 93% - 95%. So whoever

designed that test is a moron.

Teri, I had to go for two evaluations, then approved.

Got it in 2003. If I wasn't such a long time good lipreader, I think I

would have been mostly housebound til they thought I was 'ready.'

Honestly, I don't understand how with all the technology we have that

they can't duplicate real life situations and see how a person copes with

hearing loss at different levels of losses in a natural setting.

I would come home totally spent from exhaustion after visiting with

friends for 2-3 hours. It's like being on your tippy toes for all that

time! They have no clue that when a deep voiced person, or a

somewhat-loud and clear person can make all the difference in a group.

Ditto for kind people who don't mind repeating what was missed. I have

been in numerous groups and it's a matter of luck whether you will find

someone who is patient or who speaks clearly or who is easy to lipread.

It's a heavenly difference. Bless them for helping! I always make sure I

sit next to them. :} Sometimes all you need is one person.

____________ _________ _________ _________ _________ _________ _

Senior Assisted Living

Put your loved ones in good hands with quality senior assisted living. Click

now!

http://thirdpartyof fers.juno. com/TGL2141/ c?cp=OeyiWlPrlCE Q8OlVgLxltAAAJ1C

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[Guest guest]

Hi Debbie,

depends on your clinic. Mine was one day, but a 2.5 hour day, because

I wasn't leaving until I got comprehension. We tried everything, and

finally I suggested a few things, like doing the mapping the way they do

with little kids who are pre-verbal. That didn't work for me, so I

suggested a different strategy, and BINGO speech comprehension without

lipreading. Was a long day, but was done in one.

A ? please...

After the implant surgery and the healing... I will go for the

activation. she will put the processor on and slap on the magnet. LOL

does this activation take place for 2 days or jsut one day? I believe i

recall someone mentioning 2 days. what is included here?

thank you!

Have a great day!

Debbie Cole

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[Guest guest]

'Twas wondrous. I heard the turn signal of my car. And the birds-what noises

they made-chirping, tweeting, cawing, squeaking. But tennis balls bouncing

didn't sound right.

[Guest guest]

Half,

I probably whould have gone outside to talk and communicate with family and the

audi which I did not do.  When I had it on the first 15 or so minutes I noticed

I was getting tired.  I will spend more, alot more time with her next week. 

She told me to write down every concern/question I may have as well as what I

feel would make it easier to hear so we can try to resolve it next week so that

makes me feel better.  Just the first day so thought I would ask.  Besides

that I have no complaints.  Mine is definatly not as clear as yours though. 

But I will catch up with you.

O

________________________________

From: " halfencer@... " <halfencer@...>

Sent: Thu, March 25, 2010 7:19:03 PM

Subject: Re: Activation

 

'Twas wondrous. I heard the turn signal of my car. And the birds-what noises

they made-chirping, tweeting, cawing, squeaking. But tennis balls bouncing

didn't sound right.

[Guest guest]

If you're hearing anything remotely close to voices, you're doing much better

than I am. I've been activated for a week and still am only hearing a blaring

high-pitched siren or ringing sound. Voices are just a louder version of the

ringing. I can't believe this is going to sound like anything human anytime

soon! It's really crazy, but my audiologist assures me everyone has a different

experience and it's all okay and normal.

-

> From: <qglphx1@...>

> Subject: Activation

>

> Date: Thursday, March 25, 2010, 7:04 PM

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

>

>

> Evening everyone,

>

>

>

> Can you all tell me what it was like the day they activated

> you? What you heard? Did you hear electrical noises but

> voices as well but not real clear? I know it's only

> been 5 1/2 hours since activation and I am not feeling

> negative about any of it but just wanted to know what

> everyone else went thru.

>

>

>

> Stuart,

>

>

>

> Hope you are doing well my friend. I am sorry I wasn't

> around the other day but I honestly think everyone else gave

> you better advice than me. I have the same problem but knew

> I would have it before going into this so was prepared. Let

> me know how you are.

>

>

>

> O

>

>

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[Guest guest]

,

I can hear voices but not that well yet.  I need the audi to turn up the volume

or program it, whatever they call it.  It's the electrical sounds that are

irritating but I just talked to some friends from HLAA and it is making me feel

much better now as for they have the implants like alot of folks on here.  WE

will get better in time.

O

________________________________

From: Yuan <lisayuan3@...>

Sent: Thu, March 25, 2010 8:10:25 PM

Subject: Re: Activation

 

If you're hearing anything remotely close to voices, you're doing much better

than I am. I've been activated for a week and still am only hearing a blaring

high-pitched siren or ringing sound. Voices are just a louder version of the

ringing. I can't believe this is going to sound like anything human anytime

soon! It's really crazy, but my audiologist assures me everyone has a different

experience and it's all okay and normal.

-

> From: <qglphx1 (DOT) com>

> Subject: Activation

> groups (DOT) com

> Date: Thursday, March 25, 2010, 7:04 PM

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

>

>

> Evening everyone,

>

>

>

> Can you all tell me what it was like the day they activated

> you? What you heard? Did you hear electrical noises but

> voices as well but not real clear? I know it's only

> been 5 1/2 hours since activation and I am not feeling

> negative about any of it but just wanted to know what

> everyone else went thru.

>

>

>

> Stuart,

>

>

>

> Hope you are doing well my friend. I am sorry I wasn't

> around the other day but I honestly think everyone else gave

> you better advice than me. I have the same problem but knew

> I would have it before going into this so was prepared. Let

> me know how you are.

>

>

>

> O

>

>

>

>

>

>

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>

[Guest guest]

,

Ask your audiologist to lower the speed of your map and see if that

takes away the too loud noises and makes the speech easier to understand.

I had to get that done. Went to 250, which is as slow as ACE goes, and

then I got speech understanding without lipreading. This was 2 and a

half HOURS into the first mapping.

If you're hearing anything remotely close to voices, you're doing much

better than I am. I've been activated for a week and still am only

hearing a blaring high-pitched siren or ringing sound. Voices are just a

louder version of the ringing. I can't believe this is going to sound

like anything human anytime soon! It's really crazy, but my audiologist

assures me everyone has a different experience and it's all okay and

normal.

-

____________________________________________________________

Hotel

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[Guest guest]

Did you have tinnitus too? Part of the problem is my underlying tinnitus is so

loud, I couldn't hear anything coming in thru the implant. I have an appointment

with the audiologist next week, I'll discuss your suggestions with her then.

Thank you! It is getting a tiny bit better though. Today I think I actually

heard some " S " sounds...

________________________________

From: Nucleus24 <nucleus24@...>

Sent: Fri, March 26, 2010 5:05:20 PM

Subject: Re: Activation

,

Ask your audiologist to lower the speed of your map and see if that

takes away the too loud noises and makes the speech easier to understand.

I had to get that done. Went to 250, which is as slow as ACE goes, and

then I got speech understanding without lipreading. This was 2 and a

half HOURS into the first mapping.

If you're hearing anything remotely close to voices, you're doing much

better than I am. I've been activated for a week and still am only

hearing a blaring high-pitched siren or ringing sound. Voices are just a

louder version of the ringing. I can't believe this is going to sound

like anything human anytime soon! It's really crazy, but my audiologist

assures me everyone has a different experience and it's all okay and

normal.

-

____________ _________ _________ _________ _________ _________ _

Hotel

Hotel pics, info and virtual tours. Click here to book a hotel online.

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[Guest guest]

Each of us are individuals when it comes to activation. Even those of us who are

bilateral can have two very different activations with each ear.

I received my first ci in my right ear in 1989 after that ear had been deaf with

no auditory stimulation for 11 years. At activation, sounds had an underwater

sound to them and it took 3 months for voices to normalize. In 2008, I became

bilateral with a ci in my left ear, which had been deaf with no auditory

stimulation for 54 years. Due to the long term deafness, I was cautioned that I

might " feel " sounds as vibrations when I was activated, which is exactly what

happened. It has taken a lot of hard work to get the left ear to where it is

today.The ear has far exceeded my ci audiologist's expectations but then again I

felt I had nothing to lose and everything to gain, which I have. It still is not

as advanced or experienced as the right ear, which has 20+ years of ci

experience but together, I love being bilateral. Sounds are richer, more

vibrant,my brain much prefers hearing in stereo, and I rejoice in my newfound

sound localization skills, which help

me to determine where sounds are originating.

I feel that it is important for all of us cochlear implant recipients to see

ourselves as uniquely special and not to compare ourselves to anyone else.

Activation is just the start to your ci journey, whether you have an easy start

or a challenging start, like I did with my left ear. No matter where you begin

with your ci, you will improve with time, effort, and mappings with your ci

audiologist.

To me a big key to feeling successful with one's ci is to make sure that you:

practice daily, have patience with yourself, persevere and not give up, maintain

a positive attitude, and for me, pray daily as well. Also, it is important to

rejoice in the small sounds that bring you joy each day. In time, even the ci

recipient with a challenging activation will be able to look back and marvel at

how far you've come since you began. I know that I have. Back when I became deaf

in 1977, I thought that it would Heaven before I could hear. Well, I truly

believe that I definitely have a bit of Heaven here on earth with my bilateral

cochlear implants.

I wish you new ci recipients joy with your cochlear implants. Rejoice in your

new ci journey.

with double ci joy,

Margo

[Guest guest]

I agree with u, each of are different when it comes to activation. I have been

activated since December 6, 2007. I had troubles durning the first few weeks.

everything was so loud. I almost gave up wearing the ci, but i stayed with it. I

was only fully deaf in both ears for almost 2 years, when I went to see about

getting the ci in my right ear. Since my last check up. I scored 85% repeating a

single word back. They say I scored higher than most ci wear.

I believe it was because I didn't wait to long to see about getting a ci done.

As soon as I finish college, i will be able to get the left ear done. I know one

thing is that I now hear things that I never heard before in my life even with

hearing aids.

I met someone on my college campus that just got a ci done, I wish I would have

gotten her email address, she needs help with something I don't understand,

mostly because i didn't go through what she is going through. I gave her my

information. I wanted to give her this group to her, so she would have someone

to talk to. She had hers done about 3 months ago, and never went back to get

things fix to where she can handle wearing it. I even offer to go with her to

get her ci settings where she can handle it. She said something like when she

wearing it, she gets a virabltion from it. I am not sure what she means. I am

going to get to school early on monday if I can and see if I can find her.

>

> Each of us are individuals when it comes to activation. Even those of us who

are bilateral can have two very different activations with each ear.

>

> I received my first ci in my right ear in 1989 after that ear had been deaf

with no auditory stimulation for 11 years. At activation, sounds had an

underwater sound to them and it took 3 months for voices to normalize. In 2008,

I became bilateral with a ci in my left ear, which had been deaf with no

auditory stimulation for 54 years. Due to the long term deafness, I was

cautioned that I might " feel " sounds as vibrations when I was activated, which

is exactly what happened. It has taken a lot of hard work to get the left ear to

where it is today.The ear has far exceeded my ci audiologist's expectations but

then again I felt I had nothing to lose and everything to gain, which I have. It

still is not as advanced or experienced as the right ear, which has 20+ years of

ci experience but together, I love being bilateral. Sounds are richer, more

vibrant,my brain much prefers hearing in stereo, and I rejoice in my newfound

sound localization skills, which help

> me to determine where sounds are originating.

>

> I feel that it is important for all of us cochlear implant recipients to see

ourselves as uniquely special and not to compare ourselves to anyone else.

Activation is just the start to your ci journey, whether you have an easy start

or a challenging start, like I did with my left ear. No matter where you begin

with your ci, you will improve with time, effort, and mappings with your ci

audiologist.

>

> To me a big key to feeling successful with one's ci is to make sure that you:

practice daily, have patience with yourself, persevere and not give up, maintain

a positive attitude, and for me, pray daily as well. Also, it is important to

rejoice in the small sounds that bring you joy each day. In time, even the ci

recipient with a challenging activation will be able to look back and marvel at

how far you've come since you began. I know that I have. Back when I became deaf

in 1977, I thought that it would Heaven before I could hear. Well, I truly

believe that I definitely have a bit of Heaven here on earth with my bilateral

cochlear implants.

>

> I wish you new ci recipients joy with your cochlear implants. Rejoice in your

new ci journey.

>

> with double ci joy,

> Margo

>

[Guest guest]

Hi ,

Glad you're hearing Sibbilants - that's what " s " sounds are.

If you didn't have tinnitus before, you sure would after hearing WAY

TOO LOUD sounds like I heard for the first 2 hours of the initial

mapping. I kept telling her to TURN IT LOWER. She kept telling me I'd

get used to it. Finally, I said, " Look I've had an implant for 13 years,

I know what it's supposed to sound like, and this ISN'T it. " With it

this loud, I will not be wearing it, so I won't get used to it. Now

humor me and TAKE IT LOWER.

The LOVE me at the Cleveland Clinic because I know more about CIs than

most of the audiologists (because of my 13 years of wearing one), and I'm

not afraid to speak up about it either.

Do suggest she make it slower, and see if that works for you. It

worked for me.

Did you have tinnitus too? Part of the problem is my underlying tinnitus

is so loud, I couldn't hear anything coming in thru the implant. I have

an appointment with the audiologist next week, I'll discuss your

suggestions with her then. Thank you! It is getting a tiny bit better

though. Today I think I actually heard some " S " sounds...

____________________________________________________________

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[Guest guest]

To the both of you,

Besides the electrical noises I actually do hear sounds and words but does it

make since on the first mapping when the audi ask's " Is that loud enough " and

your only in her office talking to her and you tell her yes?  I wear mine but

am getting tired of those electrodes but was told to be patient by Mike and

others and that it will go away in a few weeks. 

When I was getting activated my brother was behind me and I guess he was saying

stuff and the audi asked if I heard him and I said I heard something but

couldn't put the words together.  Should I have her turn the volume program

thingy up?

It seems the stimulation part of it doesn't really do anything for me as well. 

Is that the norm for the first time getting activated?

O

________________________________

From: Nucleus24 <nucleus24@...>

Sent: Sat, March 27, 2010 4:06:07 PM

Subject: Re: Activation

 

Hi ,

Glad you're hearing Sibbilants - that's what " s " sounds are.

If you didn't have tinnitus before, you sure would after hearing WAY

TOO LOUD sounds like I heard for the first 2 hours of the initial

mapping. I kept telling her to TURN IT LOWER. She kept telling me I'd

get used to it. Finally, I said, " Look I've had an implant for 13 years,

I know what it's supposed to sound like, and this ISN'T it. " With it

this loud, I will not be wearing it, so I won't get used to it. Now

humor me and TAKE IT LOWER.

The LOVE me at the Cleveland Clinic because I know more about CIs than

most of the audiologists (because of my 13 years of wearing one), and I'm

not afraid to speak up about it either.

Do suggest she make it slower, and see if that works for you. It

worked for me.

Did you have tinnitus too? Part of the problem is my underlying tinnitus

is so loud, I couldn't hear anything coming in thru the implant. I have

an appointment with the audiologist next week, I'll discuss your

suggestions with her then. Thank you! It is getting a tiny bit better

though. Today I think I actually heard some " S " sounds...

____________ _________ _________ _________ _________ _________ _

Get Free Email with Video Mail & Video Chat!

http://www.juno. com/freeemail? refcd=JUTAGOUT1F REM0210

[Guest guest]

One thing to be aware of is that every audiologist has their own method of

madness when setting someone up at activation.  Some have the theory that it is

best to start easy and go slow. Other's feel that it is best to go all out, and

let the brain sort it out over time.  So, it really is up to you and your

individual needs and wants to determine what will work for you.  is

right, if it is too loud and too uncomfortable, you won't wear the processor,

and wearing it is critical for your brain to adapt, sort out the sounds, and

learn to understand what it is hearing.  So, if you need to have it turned

down and gradually turned up, tell your audiologist what you prefer.  Or, if

you know you can tolerate it knowing that it will get better, then leave it as

is.

My audiologist did the same thing for me after two months of trying to tolerate

the sounds in my processor.  She slowed the speed down to 250 Hz, and I used

that speed for about 8 months.  Then I tried the 900 Hz, and am able to

tolerate it much better now.  In my opinion, you have plenty of time to learn

to hear with the processor.  Why not start out slow so that you are willing to

put the processor on first thing in the morning and wear it all day.  Your

brain is constantly listening and adapting to what you have today.  Then the

next time you go in, you will be able to tell the audiologist that you can

take on a little more and then gradually get use to that.  This is all a

normal part of adjusting to hearing.

Now, , as to your question, it is possible your audi is starting you out

slower, and maybe you do need to have the volume turned up.  Keep in mind that

if your audi set your processor up to do so, you can turn up your own volume if

you feel it is too soft.  They usually give you a little range so you can

turn it up as you adapt to sound.  Some people adapt much faster to sound

than others and the brain demands more volume.  Others, like me, takes a

little longer.  But, ultimately, no matter what route you take, you will get

there eventually.  There is no right way or wrong way, there is the way that

works for YOU! 

And yes, it is the norm for inital activation.  Sometimes you don't feel like

you are getting much sound at all...and that is telling me that your audi may

be starting you out easier, with a quieter map.  But, if she did the same thing

as the audi did for my sister, she also told my sister at activation to turn up

the volume each week as she becomes use to sound, so that her brain will

continue to learn to tolerate more volume.  Jan had forgotten those

instructions when she went back for her second mapping session.  Is it

possible you were given the same instructions, but due to the amount of

information being passed on to you, you've forgotten?  Just an idea...

Best of luck to you all!  Rejoice in that you are hearing something...have

patience to know that your journey will be as individual as you are, and that

eventually you will be hearing what you want!

 

________________________________

From: Ortis <qglphx1@...>

Sent: Sat, March 27, 2010 6:49:44 PM

Subject: Re: Re: Activation

 

To the both of you,

Besides the electrical noises I actually do hear sounds and words but does it

make since on the first mapping when the audi ask's " Is that loud enough " and

your only in her office talking to her and you tell her yes?  I wear mine but

am getting tired of those electrodes but was told to be patient by Mike and

others and that it will go away in a few weeks. 

When I was getting activated my brother was behind me and I guess he was saying

stuff and the audi asked if I heard him and I said I heard something but

couldn't put the words together.  Should I have her turn the volume program

thingy up?

It seems the stimulation part of it doesn't really do anything for me as well. 

Is that the norm for the first time getting activated?

O

____________ _________ _________ __

From: Nucleus24 <nucleus24juno (DOT) com>

groups (DOT) com

Sent: Sat, March 27, 2010 4:06:07 PM

Subject: Re: Activation

 

Hi ,

Glad you're hearing Sibbilants - that's what " s " sounds are.

If you didn't have tinnitus before, you sure would after hearing WAY

TOO LOUD sounds like I heard for the first 2 hours of the initial

mapping. I kept telling her to TURN IT LOWER. She kept telling me I'd

get used to it. Finally, I said, " Look I've had an implant for 13 years,

I know what it's supposed to sound like, and this ISN'T it. " With it

this loud, I will not be wearing it, so I won't get used to it. Now

humor me and TAKE IT LOWER.

The LOVE me at the Cleveland Clinic because I know more about CIs than

most of the audiologists (because of my 13 years of wearing one), and I'm

not afraid to speak up about it either.

Do suggest she make it slower, and see if that works for you. It

worked for me.

Did you have tinnitus too? Part of the problem is my underlying tinnitus

is so loud, I couldn't hear anything coming in thru the implant. I have

an appointment with the audiologist next week, I'll discuss your

suggestions with her then. Thank you! It is getting a tiny bit better

though. Today I think I actually heard some " S " sounds...

____________ _________ _________ _________ _________ _________ _

Get Free Email with Video Mail & Video Chat!

http://www.juno. com/freeemail? refcd=JUTAGOUT1F REM0210