to

October 15, 2000

Hi , I emailed you yesterday (quite lengthy) ...did you get it?

Let me know because I'll resend it if you didn't. Talk to you soon,

Tara Ü

> Tara

>

> Glad to see your hanging in there... Good for you. Hope to hear

from you

> soon.

November 6, 2000

Here you go:

Vaccineinfo

For the Vaccine Info Only

I'm posting from Egroups since my ISP and mail server are still down.

> How do I change over to just the news list? Thanks in advance.

>

> _____NetZero Free Internet Access and Email______

> http://www.netzero.net/download/index.html

May 16, 2001

Oh , this brought tears to me. It must be SO sad for you to have to

stand by and not be able to stop it. Of course you LOVE these children and

want the best for them, but it is not in your control. I feel very sad

about it. I know that this group would like to support you in any way it

can. Even if we can only be a place for you to vent, maybe we can still

help. And maybe sometime there will be a posting that could make a

difference to your daughter. I know you feel awful right now, and that's so

easy to understand, but I hope that another day you can still be there for

your daughter and her children. I think if the children suffer vaccine

damage that she can't deny, she WILL need you and it will be very hard for

her to admit that she was wrong. I do hope that you will stay on with this

group, and I wish you courage, and support, and all the best, in any case.

Hugs to you,

in Calgary, Canada

My daughter has informed me that she trusts doctors and hospitals.. I can

do no more for my grandchildren, so I'm signing off.

I won't argue with her about it but I won't be available for comment when

this child or any grandchild of mine suffers a permanent damage from

vaccinations. I refuse to be a part of any of it. I'm done with it. Don't

wanna hear about their illnesses, their screaming, their fevers, or their

medical problems that clearly are tied in with vaccinations.

Pediatrician has convinced my daughter that drugs are safe to use and that

vaccinations prevent diseases. And she a person with an IQ of 184. Can't

see that her baby has suffered pain and sickness, is allergic and may very

well develop chron's like her father's twin brother. She's set up for it

and vaccinations will most likely put her over the edge. I can't even stand

to watch it.

Can't even stand to hear about it any more.

Goodbye.

Crabtree ~ ACD Rescue in Ohio

Phone: 937-472-3606 ~ ICQ# 903008 ~ AIM Rosetaz ~ CUR# 354

E-mail: jakekc@... <mailto:jakekc@...> ~ Website:

http://www.acdrescue.com <http://www.acdrescue.com>

Grand Baby Album: http://www.zing.com/album/?id=4293436025

January 13, 2002

I know that now LOL

Diane

From: groupie aka <nancy6w@...>

Reply-achalasia

achalasia

Subject: Re: to Diane

Date: Sun, 13 Jan 2002 09:18:04 -0800 (PST)

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LOL i didn't mean to leave you, but my computer had other ideas

~

---------------------------------

January 18, 2002

,

Get a email address from one of the free services like . It will keep your box safe. Also, when you start giving your address on , they (the company) sells it to the spammers. Then you start getting all kinds of junk!

is the worst at capturing and selling private info.

Unpleasant and offensiveDate: Thu, 17 Jan 2002 12:57:07 -0000MIME-Version: 1.0Received: from [216.115.96.80] by hotmail.com (3.2) with ESMTP id MHotMailBE0FFD010014400431A1D8736050314A375; Thu, 17 Jan 2002 03:20:20 -0800Received: from [216.115.97.189] by n30. with NNFMP; 17 Jan 2002 11:18:24 -0000Received: (EGP: mail-8_0_1_3); 17 Jan 2002 11:18:23 -0000Received: (qmail 46640 invoked from network); 17 Jan 2002 11:18:23 -0000Received: from unknown (216.115.97.167) by m3.grp.snv. with QMQP; 17 Jan 2002 11:18:23 -0000Received: from unknown (HELO elm.eurobell.net) (212.24.65.75) by mta1.grp.snv. with SMTP; 17 Jan 2002 11:18:22 -0000Received: (qmail 57654 invoked from network); 17 Jan 2002 11:18:19 -0000Received: from unknown (HELO aidistru) (212.24.67.67) by elm.eurobell.net with SMTP; 17 Jan 2002 11:18:19 -0000From sentto-1073445-2745-1011266304-d1dn Thu, 17 Jan 2002 03:20:31 -0800X-eGroups-Return: sentto-1073445-2745-1011266304-d1dn=hotmail.com@...X-Sender: cmjfriary@...X-Apparently-achalasia Message-ID: <000a01c19f56$9964abc0$434318d4@aidistru>X-Priority: 3X-MSMail-Priority: NormalX-Mailer: Microsoft Outlook Express 5.50.4133.2400X-MimeOLE: Produced By Microsoft MimeOLE V5.50.4133.2400X--Profile: cmjfriaryMailing-List: list achalasia ; contact achalasia-owner Delivered-mailing list achalasia Precedence: bulkList-Unsubscribe: <mailto:achalasia-unsubscribe >Dear "friends" ,I say friends in a general term , but like many others I had come to see you as friends who cared and understand the problems encountered with this condition. We come from different backgrounds and cultures , this is ,however, (to remind those of you who seem to think your area/country is the "exclusive owner" of this support site) an INTERNATIONAL group.If you don't like this then feel free to leave now rather than be so offensive to me for living in the UK and mentioning this fact. Why should the USA members be allowed to mention the USA if I can't mention where I live?Today I received a posting to my private email address which was offensive and abusive.Besides the difference in country it was also plainly abusive regarding my attempts to CORRECTLY explain some physiology to another member about thyroid function, blood chemistry. etc. The person who commented on their situation has an equal rightt o do as somebody mentioning vomiting or pain etc. Some people in the group have no idea what it is like to have numerous other conditions besides "A" , we need support with the "Wider picture " that causes and if we wish to discuss these matters within the context of the groups aims we can do so!! I was upset and yet being level headed ( or at least trying to be !!) I have to see it as their problem not mine. I will consider further action if it occurs agin to the same serioulsy offensive levelCan you all remember we are all in this together , belong to the group because we feel we need to be here and not for fun ( as in not having anything better to do !! I DONOT mean we can't have "fun" before all the party pooper mails start up yet again!!!) or to cause others distress.Could you also remember we do have time differences and so we cannot all be available to reply to messages at the same time and all have a right to say things when we can not when you write !!If anybody else has received offensive mail, please contact me direct , not via the group . Any other general comments can be posted and will be gratefully received !!Chrishttp://go.readclick.com/refid.cgi?refid=80369get paid to read email._________________________________________________________________MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx

June 12, 2002

Hi

I am so sorry if I led you to believe that there was no hope!

It seems by reading the numerous messages, that there is no " given "

when it comes to " A " .

I am sure that whatever you chose to do, will be the best for you -

and although I still have the condition (and have been told I always

will) all my operations were succesful, and each one gave me relief.

It just seems that nothing works for me for too long.

My symptoms over the years have changed so much, especially after

each procedure, that you do learn to accept that your body needs the

occasional bit of maintenance to keep it ticking along.

But please, dont get me wrong - I consder my quality of life to be

as good as anyone else my age - I just have to be more considerate

than my peers, and listen to what my body is telling me.

Keep in touch - and sorry again.

Take care

Vix

> hi again,

> so are you saying you have had more than one hellers myotomy, i

wasnt even

> sure that that was possible, and you had a stretch 3 weeks ago,

so you are

> still having stretches even after the two myotomys, goodness and

here was me

> reading all the postings and thinking after a myotomy i " may " be

ok, or if

> not a hell of a lot better.

> i have had A for about 3 years but was only diagnosed recently,

my gp kept

> thinking that maybe things werent as bad as i said or it would get

better on

> its own, anyway i persevered and like i said before im seeing the

consultant

> in july........at last......

> i do get such a lot of hope from this group even if i dont post

all the

> while, just reading everyones stories gives me such hope.

>

> teresa

July 18, 2002

Hello Hanna & Everyone,

I've been apart of this group for sometime -

I read many of the msgs - I'm here - just haven't

posted in sometime. For me I've had excellent

results treating hepC alternatively - by changing

my diet - cutting out red meats - most of the fats

and sugars and eating more fresh fruits and veggies

and drinking lots and lots of water.

Anywho - this month marks the 4 year mark for me.

I 'used' to have really, really bad headaches,

bad fatigue, itchy skin and more and that started

clearing up right away with the alternatives. I

just use caution here on the board as its not a BB

to 'sell' products - I do have a website set up

sharing my story and about whats worked for me and

now many more. I hang in here because I love people

and I pop up and share when I can - feel moved to

do so like this morning. I feel a very big part

of my 'healing' has been in learning to love myself

more - being gentle with myself and more forgiving

with myself and others. Its not just about TX what

drugs or alternatives - its been about having a

much better attitude about myself and my life and

learning to love ...

God Bless each and every one of you. And Peace

be to our Hearts.

Love,

=====

I said to a man who stood at the gate of the year;

" Give me a light that I may tread safely into the unknown. " And he replied, " Go

out into the darkness and put your hand in the hand of God. That shall be to

you better than a light and safer than a known way. "

http://alternativehopeforhepc.com

My RBC Website Address is: http://hepc.royalbodycare.com

__________________________________________________

October 29, 2002

I am sorry but you have not read my posting to correctly or have misinterpreted what I was saying to .

I have never said who it was who didn't want non USA members involved. They are no longer part of the group as far as I am aware and they sent the email out of the group to my personal email address. Therefore it will not be available to you in the group postings and a good job too!

I am not aware of anybody calling you or anybody else an idiot as I most certainly have not done so.

I would love to see people use their own language if there are others who can support them and reply to them correctly and accurately as then perhaps they can arrange to communicate by 'phone or outside of the group too providing more support and translation of the other messages. Sadly the group isn't always found by people or they are put off by it being an English speaking group or something. I don;t know the real reasons.

As far as I can see the more diversity the better. The group is not just here for one or two but anybody who is suffering or think they are suffering form this disease.

I think this subject should be dropped as I have never seen any reference to 'idiots' and most certainly I am not associated with such comments if they have been made and I have deleted them when too ill to read loads of messages.

Chris

Plymouth UK

January 11, 2003

, I had read a little of the postings and have just seen that you had also told somebody else (well all of us but in a reply to another email) about these results earlier. Another step towards Chet getting some help. I am one of the group who despite 'treatment' live on fluids all the time. Lets hope and pray Chet gets some help that means he is a thousand times better than that soon.

Medical matters can move so slowly sometimes you wonder what they do, shuffle the papers and wonder which ones to deal with that day or something! Sorry to all those in medical admin. out there I know its a tough job really. But as we know being on the receiving end of this waiting game is a real nightmare.

I am not going to be in a position to read the posts every day as treatment for another non 'A' related condition is leaving me exhausted and so I will as ever post as and when I feel I want to. I am going to have the email system of just reading them through the website as getting so much email has good and not so good points when you are so tired, etc. I can in that way understand why you write and Chet reads! A good system I should think! We all need as much help as we can get esp. through the lowest points with any chronic condition. Support and a positive attitude is part of the huge step towards finding your own management plan! Different for each person.

Thanks for your support to me and hope things settle down and the Drs start working to help Chet ASAP!

Off to bed now. With the time difference its 22.04 here.

Chris

May 20, 2003

:

My best friend (who is an A), brought to my attention some chewable

orange-flavored " carb blocker. " Supposedly you chew it before you eat, and

it blocks the carbohydrates. Would that be okay for O's?

Richmond, Virginia

May 20, 2003

Unfortunately, dear , it appears from her postings that she hasn't

changed. I, for one, do not want dissention here. We have a good group,

and do not need this.

Richmond, Virginia

,

it is rudeness that you did to many of us - just because we asked

questions you didn't like .

If you changed, I don't mind to have you in this group - everybody that

listens and discusses normally is welcome .

So let us stop the discussion about the lists and

let us change experiences and advice to eachother, like it was before.

love to all of you

May 20, 2003

Not at all.

Best to avoid the carbs to begin with.

Love

RE: to

:

My best friend (who is an A), brought to my attention some chewable

orange-flavored " carb blocker. " Supposedly you chew it before you eat,

and

it blocks the carbohydrates. Would that be okay for O's?

Richmond, Virginia

September 28, 2003

Thanks, . I appreciate the good wishes.

to

,

Sending you good wishes for your visit Tuesday! Please let us know

how it goes.

Take care,

M.

November 6, 2003

posted 10-18-2003 12:17 AM

<http://www.foodforyourblood.com/cgi-local/ultimatebb.cgi?ubb=get_profil

e & u=00000059> Profile for Axel O+ <http://too%20lazy!> Author's

Homepage

<http://www.foodforyourblood.com/cgi-local/ultimatebb.cgi?ubb=email & ToWh

om=00000059> Email Axel O+

<http://www.foodforyourblood.com/cgi-local/ultimatebb.cgi?ubb=private_me

ssage & u=00000059> Send New Private Message

<http://www.foodforyourblood.com/cgi-local/ultimatebb.cgi?ubb=edit_post &

f=4 & t=000051 & reply_num=000009 & u=00000059> Edit/Delete Post

<http://www.foodforyourblood.com/cgi-local/ultimatebb.cgi?ubb=reply & f=4 &

t=000051 & replyto=000009> Reply With Quote

_____

quote:

_____

Originally posted by sadie o+ sec:

Where in the world do you get Elk liver and how did you get your little

graemlin to do that????

Sadie

_____

Well, I go to a Farmer's Market on the weekend and I know this lady

whose into cervidae mammals... and, well, to make a short story shorter,

I talked to her and got her to request the elk's liver from her

processor (killer/butcher). Then I buy the elk liver from her and thaw

it and cook it and eat it and absorb it into my being.

I link to the graphics from other sites, they aren't the default

graphics, they are external. Looking at my post from Oct 17th, 2003 I

can't see it, it is blank. So sad.

I remember my Seitan posts with Edna, er, Ocean Girl, er, Peppermint

Twist (it's funny how law-breakers and BTD breakers have a proclivity

for using many aliases... ).

Too bad the moderator has so few vertabra and couldn't stand up to the

people who complained against my awesomely creative and visually

stimulating posts that gave wit and charm and appropriate bite to a

poster who goes on at length about her wrecked home and couldn't stop

eating avoids and making a point of not following the diet and...

Too bad those awesome seitan posts were deleted. By " Of Few

Vertebra " Dekany.

http://www.foodforyourblood.com

to

dear ,

I don't think of you the Axel does - just wanted to say that to you .

love to all

November 6, 2003

Thanks . What can I say? I can't stand double standards. Read the

copy I pasted.

http://www.foodforyourblood.com

to

dear ,

I don't think of you the Axel does - just wanted to say that to you .

love to all

November 7, 2003

>>Guess what? I only had one rule as far as posting on this BB: " no

personal attacks " . Now I have two:

1 - No Personal Attacks

2 - Axel aka " mr pot head " will never post here again

the mind is a terrible thing to waste Axel - you'd make a good anti

drug commercial.

Now go & get a life elsewhere.

And don't bother e mailing me.<<

My objection is depicting me as a drug-addict/abuser. While booting

me off you are insulting me, saying that I've wasted my mind, that I

would make a good anti-drug commercial.

Personal attack against someone you are booting off for making a

personal attack? You keep fixating on marijuana, what a lame ass!

, you tell me how I've wasted my mind. I'm curious how you

think, what your standards are.

If you hadn't treated me as you did, I wouldn't be " misbehaving " as I

am. From my experience with the other NAP sellers, you simply gave me

permission to inform the people that a better option for purchasing

NAP products exists. No harm done, they just never wanted to make

issue of it (I'm not associated with either seller, just aware of

them and shop there).

First of all, you don't even know my drug habits. You don't even know

how or why I use, nor what I get from it, despite my writing about it

and hinting to the higher purposes (if not in detail). You are

exhibiting a lack of understanding more fitting of a pothead, the

label you ground in me when exiling me from your BBS. You demonstrate

more drug-user idiocy than I. So unable to learn.

I'm sure you would be far more supportive of an alcoholic who

repeatedly posts of her bad dietary & drug habits, habits which lead

to obesity and such... as opposed to marijuana, which, as I have read

in one of those health magazines curiously leads people to maintain a

lower body weight compared to non-marijuana smoking individuals of

same demographic group. (controls and such). Though calorie intake

was actually HIGHER in the marijuana group, they had less body fat

and lower body weight... now what is the deal with that?

Does anyone in this group have any ideas? You can bet that I do (a

few, actually). I have at least two very good ideas, and I've smoked

marijuana, in fact, I'm sure I could very easily speak/write circles

around sober people on the topic, even while " stoned " . I have in the

past...

For chemo-therapy and other conditions which decrease appetite,

marijuana can return a healthy sense of appetite and add precious

pounds... and yet, in other people without wasting conditions they

can eat MORE calories and are, on average, less heavy than other

people (when ht/wt, race, age, etc. are taken into account).

Isn't that interesting?

How interesting that didn't know I hadn't smoked pot for some

time... yet assumed I did.

Blackburn, how could she ignore my flirtation? (probably because she

has a hubby, though she never made point of it (hmm...)). Don't give

up on me, I need your attention!

When someone goes for months without smoking marijuana, they hardly

qualify as a pot head. When that same person is usually turned off by

other marijuana user's daily habits, they make for a flimsy drug-

abuser. Add to that my purpose, the function of this and other mind-

altering substances and your comments are stupid. Especially

considering how little understanding you reflect from what I have

already written on the subject. Dumbass! Everyone else who also

cannot comprehend, dumbasses!

BTW, for all of last year's summer I had smoked no marijuana. None.

Whatever misgiving and misperceptions you create against me from your

exiling post, , you can shove it up your simplistic ass.

But, as an aside, for the intelligent people's sake: I recognize

that many of those actively posting and squabbling over the commotion

I've made at ' and here don't have a fucking clue about what

this shamanic herb actually is, so occluded are they from the

government, their cultures and the irresponsible, ignorant users that

typify marijuana's negative image.

Those of you who understand the much deeper issue of this medicinal

and controversial herb, and the significance of herbs and the law in

the future... as well as the positive angle on enrichment,

exploration and responsible recreation, I assure you I could share

with you, and might voluntarily in the future, share with you my own

incredible experiences while under the influence of safe, high-

quality marijuana.

Wishing everyone (accept , , Blackbitch!, et al) a

sucksexfull blood type dieting experience!

Axel O+ secretor

posted 10-18-2003 10:18 AM

" Well put Steph! I think this Axel guy is weird. I see him on other

websites! Talk about long boring posts I usually skip right over his! "

--Blackburn

posted 10-20-2003 10:25 AM

" I agree with you ! Putting down other people just makes him

look like a loser. "

--Jane O neg secretor

" the mind is a terrible thing to waste Axel - you'd make a good anti

drug commercial. "

-- " Personal Attack " Dekany

March 4, 2004

Dear Group,

After reading the last weeks posts I have a question. I noticed that many of you

had your original surgeries after mine and yet you still were put into casts for

months. I had my original Harrington rod surgery in September 1973, at age 14,

and was supposed to be in casts till my surgeon found a surgeon in San Francisco

that was doing the surgery with only a brace following. It was a horrible stiff

plastic thing, but at least it wasn't a cast, and I wasn't bed ridden, and I was

back at school three weeks after being released from the hospital. Do any of

you know why they were still casting people then? Was I just lucky to be in the

right place at the right time or was there reasons that the practice continued?

Just wondering!

Denver

To

Hi !

No I have never gone to any scoliosis chapter meetings, I live almost

two hrs from New London. Jeez I hope that girl from newington is

O.K.? Thats scary she should respond Does any one know her name? I

hope her revision surgery went well or maybe it didn't and doesn't

want to scare anyone?

I am 44yr old, I had my HR surgery when I was 14 & 15yrs old in

74 & 75. The reason I have never gone to any scoliosis meetings in the

past is because my back never botherd me exept 10yrs ago when I had

sciatic pain thats when I found I had d.d. but thats all the ortho

told me. He gave me some exercises to do then sent me home I got

better after 6mths No problem til now It started with a sprain in my

waist in 2002 then progressed to hip pain while taking ant-

inflamatory drug and doing therapy exercises I used to dance and go

hicking with my 2 daughters till last fall, I couldn't hike more than

15min without my hip pain going all the way down to below my front

knee. I finaly gave in and went to see an ortho spine surgeon. He

told me I had flat back. I didnt know what that was till I did

research on HR and Flatback syndrome and found this site about a mth

ago. My God I had no clue. Reading about flatback and HR patients

having back problems years later was like reading a med science

fiction book I thought my back would be fine forever. BOY was I in

the dark. Oh well I go see my Dr monday I'v been in swim therapy no

improovement yet but I hope I can continue I like the warm water I

had epi injection they help either. Who Have you seen for revision

consultations? Do you have hip pain? how long have you been dealing

with this. Good luck with second consultation.

Franca

> Hi Franca - Isn't that funny that I have no idea of what prism

> glasses were! Since you live in CT, have you ever gone to any of

the

> Scoliosis Chapter of CT's meetings? They are usually held at

Lawrence

> and Memorial Hospital in New London or the Wm. Backus hospital in

> Norwich. I don't think that you have mentioned where in CT you

live,

> but are either of those locations close to you? I met another CT

gal

> last year there who also had her surgery at Newington. She has

since

> gone onto have her revision surgery, but I have never heard from

her

> again, nor did she ever post on this board again. I often wonder

how

> she made out. Anyway, have you gone for any consultations with a

> revision surgeon and if so, who? Just wondering as I have gone for

> one and am contemplating going for a second opinion and narrowing

> down whom I want to see. Respond when you get a chance. By the way,

I

> am 42 and was 12 1/2 when I had my surgeries done, how about you?

> from Rhode Island

Support for scoliosis-surgery veterans with Harrington Rod Malalignment

Syndrome. Not medical advice. Group does not control ads or endorse any

advertised products.

------------------------------------------------------------------------------

March 4, 2004

Hi, :

Wow, I had a fairly late HR surgery (1985) and while I wasn't in a

plaster cast, I was put in a hot, heavy plastic, foam-lined brace

for six months that I was NOT allowed to take off--I had to change

body stockings by safety-pinning the new one to the old one and

pulling it through--so it was effectively a cast (no bathing, etc.)

and I was confined to bed for at least three months except for 5-10

minute daily walks. While the confinement and itching were just

horrible, I can't imagine going back to school after three weeks,

since I was still nearly delirious from the pain for several weeks

after release. Of course, that's because all they gave me for pain

management after the hospital was Benadryl, but that's another issue

entirely.

There's no point to my story except to support the case that

everyone's story is really, really different.

Elissa

> > Hi Franca - Isn't that funny that I have no idea of what

prism

> > glasses were! Since you live in CT, have you ever gone to any

of

> the

> > Scoliosis Chapter of CT's meetings? They are usually held at

> Lawrence

> > and Memorial Hospital in New London or the Wm. Backus hospital

in

> > Norwich. I don't think that you have mentioned where in CT you

> live,

> > but are either of those locations close to you? I met another

CT

> gal

> > last year there who also had her surgery at Newington. She has

> since

> > gone onto have her revision surgery, but I have never heard

from

> her

> > again, nor did she ever post on this board again. I often

wonder

> how

> > she made out. Anyway, have you gone for any consultations with

a

> > revision surgeon and if so, who? Just wondering as I have gone

for

> > one and am contemplating going for a second opinion and

narrowing

> > down whom I want to see. Respond when you get a chance. By the

way,

> I

> > am 42 and was 12 1/2 when I had my surgeries done, how about

you?

> > from Rhode Island

>

> Support for scoliosis-surgery veterans with Harrington Rod

Malalignment Syndrome. Not medical advice. Group does not control

ads or endorse any advertised products.

>

> -------------------------------------------------------------------

-----------

>

March 4, 2004

Dear Elissa,

Wow, how did they think Benedryl would stop pain? I can't believe how varied our

stories are, it almost sounds like each surgeon made up the rules as they went

along. I hated that brace, but I got to take it off to shower, I can't imagine

what it must have been like to have it on 24/7. I remember at school people used

to walk up to me and knock on my brace and say " who's home " . They used to call me

Turtle. Of course I hated that, I could wait to throw the damned thing over the

edge at the dump and watch a tractor run over it! Revenge is sweet! Its always

helpful to hear of others struggles when you find yourself in the midst of a

pity party, I learn daily from the strength of others, thanks for sharing your

story!

Denver

Re: To