to

[Guest guest]

Thanks, Dianne. I appreciate your concern. We are all in this for

the long haul, and sometimes I think we all tend to feel it's a

little much. You just have to keep going, allowing for your bad days

and being as kind to yourself as possible during the down times.

Easier said than done if you are really in the pits, as people with

severe chronic pain are bound to be at least now and then.

> > ,

> > The start of your post sounded so promising but by the end you

> sounded so disheartened.

> > Hang in there. We'll all be keeping you in our thoughts &

prayers.

> > Working in a pain clinic I can tell you there is a big

difference

> in how everyone looks at pain-doctors included! Sounds like you've

> found a group that is more understanding.

> > In my group all us nurses are older & falling apart so we can

> relate.

> > I could hardly walk yesterday when it was time to leave so one

of

> the docs I work with gave me a steroid & marcaine shot in the

> coccyx. Not fun! I couldn't sit down at all last night & found it

> hard to find a way to sleep. Today is better but am having to sit

on

> the very edge of the chair, actually more propped on it.

> > Have a good day.

> > Joyce, RN Atlanta

> >

> >

[Guest guest]

Thanks, .

This crazy shot hasn't helped yet. I'm sitting even further on the edge of

chairs then usual. Don't know how I keep from falling off. One of the ladies I

work said it may take about a week to make a difference.

I did make an appt. with a doctor at the Emory Spinal Center, Dr Rhee. By

his picture & bio he looks young enough to be one of my kids!

He is a partner of Dr Horton & also specializes in scoliosis.

Have a great day.

Joyce, RN Atlanta

[Guest guest]

,

I wish I would have met you while I was still working. I spent a lot

of time at the HP training center in a small suburb of Chicago. One

time I was there for three weeks in a row, they let me go home one of

the weekends. It would have been wonderful to have met you and had

coffee.

>

> Warmest congratulations on the arrival of your granddaughter!

> There is nothing like a birth in the family to renew our wonder and

> joy -- in spite of everything.

>

> Thank you also for your reference to a meeting in 2006. My thoughts

> exactly. Spring or summer would be good. I live in Chicago, where

the

> meeting would be held.

>

>

[Guest guest]

Dear ,

I think that 2006 time frame is great, I'd prefer summer, but it's up to way

more than me. We lived in Rolling Meadows 9 years ago, while my husband worked

as a product specialist for Bell & Howell, very close to Skokie. Living there was

tough for us since the weather is ucky so much of the year, and we just didn't

have that Mid-West sensability. We did love all the museums, and the aquarium.

We lasted eighteen months and then ran back to the west coast where we were

from. I would love to go back to visit since we still have friends from our Bell

& Howell days still there, and I'll take a side trip to see my Aunt in

Independance Iowa, about 4 hours away from Chicago. If I can be of help in any

way, just call! At least I know the area somewhat, aaand if I can help long

distance I will.

Off to see the new grandbaby tomorrow, she's already a week old, boy time flies!

Colorado Springs

To

Warmest congratulations on the arrival of your granddaughter!

There is nothing like a birth in the family to renew our wonder and

joy -- in spite of everything.

Thank you also for your reference to a meeting in 2006. My thoughts

exactly. Spring or summer would be good. I live in Chicago, where the

meeting would be held.

Support for scoliosis-surgery veterans with Harrington Rod Malalignment

Syndrome. Not medical advice. Group does not control ads or endorse any

advertised products.

[Guest guest]

Thanks for the prayers. Can always use more of those. I had to take

a leave from my job 2 years ago. I'm supposed to return in Aug, &

still hoping that I can.

> >> in OH, mom to: Grant 2 yo w/reflux, dysphagia

w/aspiration

> &

> > on thickened EO28, in OT & PT, hypotonia, intolerant to lots

with

> > immunologic responses, nodules found in duodenum indicate

possible

> > food allergy, possible oral allergy syndrome, on prevacid,

possible

> > achalasia

> >

> > Aleah 5 yo w/reflux, cyclic vomiting (Now not sure if accurate dx

> > since eliminating dairy), delayed gastric emptying, MPI, chronic

> > sinusitis, hypotonia, in OT, on prevacid & rhinocort

> >

> >

[Guest guest]

Yes I am going to try and set a meeting up next month. My wife is gone right now so when she gets back I will start working on that. As for your computer thing. The only thing I can think of is your computer might be infected. I do not know why your e-mails would just delet like that. I hope you had a good holiday.

in Suffolk

[Guest guest]

Well, I guess you could say I do. LOL I am glad you had a great time. I know that when I have more stress in my life it does get a little harder to eat and drink. Keeping the stress level down for me helps out a lot.

in Suffolk

[Guest guest]

Thanks , I had a great holiday. Best thing was going canoeing in Gozo in the warm Mediterranean. It was only one of those playabout types of canoe, but I still enjoyed it more than I can say. I learnt to canoe properly when I was 15 and it has always been a hidden passion.Worst part of the holiday was discovering that the hotel was waiter service. Debbie (onthe beach) has just been talking about the effects of stress and good and bad times and.as you can imagine, I didn't get much to eat that week, but then. having got home, can eat much better. Seems to be a common theme in Achalasia-land.Hope you are well . x x x x x >> Yes I am going to try and set a meeting up next month. My wife is gone > right now so when she gets back I will start working on that. As for your > computer thing. The only thing I can think of is your computer might be infected. > I do not know why your e-mails would just delet like that. I hope you had a > good holiday. > > in Suffolk>

[Guest guest]

PS . Have you got an American accent?

>

> Yes I am going to try and set a meeting up next month. My wife is gone

> right now so when she gets back I will start working on that. As for your

> computer thing. The only thing I can think of is your computer might be

infected.

> I do not know why your e-mails would just delet like that. I hope you had a

> good holiday.

>

> in Suffolk

>

[Guest guest]

Hi AnnSorry it's taken me a couple of days to reply - have been on two courses (teacher). We used to live in Dewsbury - my husband has an office in Heckmondwike, and I have friends over there - and no you are not too far away.So I will show her these posts and perhaps we could arrange a meetup. I just think it would do her the power of good to speak to someone who understands.We have great support from church, and I know what she has been through but nopne understands anything properly unless they have experienced it.And thanks for getting in touch.Ann <lilac_blossom_lady@...> wrote: Dear , There is no doubt whatsoever that she will benefit from being part of this Group.

I believe that the worst part of all is feeling like you are the only one in the World who is coping with it, which, of course, is not true, but that is how it feels when you don't know anyone else. And to actually meet up with another person is surreal. The day I met I regard as one of the most important days of my life. And if you think that is far-fetched, show her this post. She will understand. I live in Huddersfield, West Yorkshire. She could come to our next meet-up. You could come too. It would be extremely informative and wonderful for her and for all of us. So the answer is yes, tell her to dive straight in. She will be welcomed with open arms. Love from Ann xxxx

Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

Dear ,

Thanks for your reply. The towns you mention are both close to where I live. It would be very nice if the two of you could make it to the meet-up in borough when it takes place, although I realise it is quite a drive, more miles than for me.

It would be good to meet up with you both, either there or just between us. If it was just us, I could talk to my daughter, who is the same age group as yours and see if she would like to make it a foursome. See if you can get her to write something herself. I know it can seem really difficult at first, but you soon get used to it. I have only been part of this Group since last Autumn, but I already feel like part of the furniture . There are a lot of members the same age as your daughter.

Love from Ann in the next County xxx Dear ,> There is no doubt whatsoever that she will benefit from being part of this Group. I believe that the worst part of all is feeling like you are the only one in the World who is coping with it, which, of course, is not true, but that is how it feels when you don't know anyone else. And to actually meet up with another person is surreal. The day I met I regard as one of the most important days of my life. And if you think that is far-fetched, show her this post. She will understand.> I live in Huddersfield, West Yorkshire. She could come to our next meet-up. You could come too. It would be extremely informative and wonderful for her and for all of us. So the answer is yes, tell her to dive straight in. She will be welcomed with open arms.> Love from Ann xxxx> > >

[Guest guest]

Dear ,

I actually atempted to reply to your message earlier today, but I think it disappeared into cyberspace. So much for my computer skills! It would be nice to hear from your daughter on the Board, but I understand that it's a matter of confidence and she may prefer to stay in the background. However, I want to say that it would be an honour for me to meet up with you both and have a chat, in the hope that I could help you in some way.

If you feel that borough is too far to venture, maybe we could have our own private meet-up somewhere more local. Ask your daughter what she thinks. By the way I have an adult daughter too. I am glad that it is I who has (me who have) I who have (can't believe I did well in English Grammar at school LOL), I am glad that I am the one who has Achalasia and not my child. I think it is harder for you than it is for me.

With love from Ann in Yorkshire xxx Dear ,> There is no doubt whatsoever that she will benefit from being part of this Group. I believe that the worst part of all is feeling like you are the only one in the World who is coping with it, which, of course, is not true, but that is how it feels when you don't know anyone else. And to actually meet up with another person is surreal. The day I met I regard as one of the most important days of my life. And if you think that is far-fetched, show her this post. She will understand.> I live in Huddersfield, West Yorkshire. She could come to our next meet-up. You could come too. It would be extremely informative and wonderful for her and for all of us. So the answer is yes, tell her to dive straight in. She will be welcomed with open arms.> Love from Ann xxxx> > >

[Guest guest]

Thank you Lilli, that’s our goal.

To get as much information in one spot as possible. We have updated some here

lately and we search for new info almost daily!!! Recently we added History of

Achalasia on the All About Achalasia page, its quite interesting!! Thanks

again. Would any one mind anytime they go there to sign our guest book?

Please visit my new site,

www.achalasia.us

From:

achalasia [mailto:achalasia ] On Behalf Of Lillith

Sent: Thursday, June 22, 2006

12:44 PM

achalasia

Subject: To

I have visited your site several times and really like

it! As I am

new to this whole achalasia thing, it has been really helpful. It

has helped reading the personal stories. They have served as

cautionary tales for how to approach my own treatment. Thanks!

Lilli

>

>

>

> Hello All,

>

> We are excited to announce a new website we have created to help

those with

> Achalasia. We would like any feedback that anyone has to offer.

We are

> trying to get the word out to people, to either join the site and

share

> their stories, whether they have achalasia or just know some one

that does,

> or just for the education on this disease!! Thanks for checking

out our new

> site and we hope to hear back from you.

>

> Warren (Mimms)

>

>

>

> Please visit my new site, www.achalasia.us

>

[Guest guest]

Wow, it sounds like you've had a horrific time with MS. I

can't imagine how devastating it must have been to have to give up

your dream job (congratulations, by the way, on landing that

position! Woohooooo!) and then also gradually lose the ability to do

the activities you love to do. You're so courageous - especially

because you look at the positives rather than get swamped by the

negatives (although who could blame you if you do get overwhelmed at

times).

I know that at least one of our Feisties had Dr. Ondra perform her

surgery. Do you have any specific questions about him?

It sounds like you first plan to treat the MS before taking another

look at your spinal problems. How long will your chemo last? What

sort of outcome can you expect? I hope it gives you great relief.

You really deserve some - and soon.

Best Wishes,

Andy

> > >

> > > Hi all,

> > > I haven't posted before, but thought I'd add my stuff:

> > > My name is . I had my surgery at age 13 in 1989 at UW-

> > Madison

> > > by Dr. Mann. He's still there, and is very personable,

> even

> > has

> > > answered emails from me when I've had questions over the years.

> > > I had harrington-luque rods (is this drastically diff from

> regular

> > > harrington??) and was fused t4-l4. Was told I'd need to have

a

> > 2nd

> > > surgery to the sacrum at some point in my life, but now have

been

> > told

> > > they like to avoid that if possible. My original curves were

in

> > the

> > > low 70s and got corrected to about 50-55 each. I have a lot

of

> > lower

> > > back pain, especially the side with the lower curve.

> > > I am 30 yrs old, have a 1yr old and a 2.5 yr old. I currently

> use

> > a

> > > walker & a wheelchair because I have secondary progressive

> > multiple

> > > sclerosis. When I am walking, I am bent way forward. Docs

seem

> > to

> > > like to shuffle me back & forth when I have problems - neuros

say

> > it's

> > > orthopedic, orthos say is neurological. I have a good neuro

now,

> > but

> > > would like to still get my fusion checked by someone good. I

> have

> > a

> > > personal assistant provided by the state who helps with

cooking,

> > > cleaning, shopping, driving, etc for 25hr/wk. That has been a

> > > lifesaver for me! My family & my hubby's family are also

> > incredibly

> > > supportive.

> > > Anyone know how possible flatback-types of problems are in

> someone

> > who

> > > had an extensive harrington/luque surgery in the late 80s?

When

> I

> > > checked into it several years ago, most people seemed to think

it

> > only

> > > affected those fusions from the 60s and 70s.

> > > Thanks for listening!

> > >

> > >

> >

>

[Guest guest]

, I believe you're seeing one tomorrow you can trust.

Of course he is not a surgeon but I believe you will get the

right recommendations.

I am copying some text below taken from this article:

Temple Gastroenterology Faculty

quote:

Dr. Richter was named "Top Doctor" in the 2006 Philadelphia Magazine Top Doctors issue. To compile the list, doctors are asked which local physicians they would send their family members to for health care.

Four faculty in the Section of Gastroenterology were included in the "Best Doctors in America" database for 2005-2006. The faculty included are Dr. S. Fisher, Dr. Krevsky, Dr. Larry S. , and Dr. Richter.

Good luck,

Maggie - Alabama

[Guest guest]

You are so right Guess I don't feel comfortable with him Say a prayer for me tomorrow If did not just think of me

-- To

Dear ,

With regard to what you were saying about needing to be in control, may I give you a different way of looking at this?

Would it not be wiser to put the control of events in to the hands of the man who knows what he is dealing with? I think it is important that you are able to trust his judgement, and if you are not, then why are you allowing him to cut you open in the first place?

Love from Ann, hoping to help XX

All new "The new Interface is stunning in its simplicity and ease of use." - PC Magazine

[Guest guest]

I would insist on knowing what is going to happen to you!!

When I met with Dr. Richter (who I miss deeply) and then Dr. Rice, they both

assured me that nothing would be done unless I knew about it. They informed

me that they may have to remove part of it, but not all of it. I would

think they would do another barium swallow just before your surgery, if he hasn’t

seen it how can he make a true statement on what he is going to do? He

can’t!! I would discuss this in detail with Dr. Richter, and if nothing

else tell him its for YOUR peace of mind!!!!! ITS YOUR BODY!!!! You

should KNOW what it is going to go through.

Good Luck.

C Warren

Co-Founder

www.achalasia.us

From:

achalasia [mailto:achalasia ] On Behalf Of

Bartolino

Sent: Sunday, July 16, 2006 10:39 AM

achalasia

Subject: Re: To

You are so

right Guess I don't feel comfortable with him Say a

prayer for me tomorrow If did not just think of me

-------Original

Message-------

From: Ann Higgs

Date: 07/16/06 09:04:50

achalasia

Subject: To

Dear ,

With regard to what you were saying about needing to be in

control, may I give you a different way of looking at this?

Would it not be wiser to put the control of events in to the

hands of the man who knows what he is dealing with? I think it is

important that you are able to trust his judgement, and if you are not, then

why are you allowing him to cut you open in the first place?

Love from Ann, hoping to help XX

All

new " The new Interface is stunning in its simplicity and

ease of use. " - PC Magazine

[Guest guest]

Thanks soooooooooo much for your concern I need help Living like this isn't the way it should be CArrie

-- Re: To

, I believe you're seeing one tomorrow you can trust.

Of course he is not a surgeon but I believe you will get the

right recommendations.

I am copying some text below taken from this article:

Temple Gastroenterology Faculty

quote:

Dr. Richter was named "Top Doctor" in the 2006 Philadelphia Magazine Top Doctors issue. To compile the list, doctors are asked which local physicians they would send their family members to for health care.

Four faculty in the Section of Gastroenterology were included in the "Best Doctors in America" database for 2005-2006. The faculty included are Dr. S. Fisher, Dr. Krevsky, Dr. Larry S. , and Dr. Richter.

Good luck,

Maggie - Alabama

[Guest guest]

Dear Ann,

Thank you so much for this post. That means a lot to me that we

relate so closely. I'm flattered. Sometimes I get down about this

disease, and other days I thank God for it because it makes me

appreciate life more. My recovery is beyond wonderful, I eat so

well and I'm enjoying time off from work until the end of August.

Much love to you as well Ann.

in Michigan

>

> Dear ,

>

> Occasionally we get a post on this board that stops me in my

tracks for its simple and wise logic, and yours was one of those.

>

> I have printed it out to keep with those posts that I have

found informative both for me and for the people who love me.

>

> You and I are just ordinary women trying our best to make sense

of this disorder and doing whatever we can to make our lives more

normal and healthier. I related to you so closely and send you my

love.

>

> From Ann in England xx

>

>

> ---------------------------------

> Photos – NEW, now offering a quality print service from

just 7p a photo.

>

[Guest guest]

Hi Francine

I was wondering if you could tell me who did your surgery in Toronto last year and if you are happy with the results. I see you are approaching your one year anniversary. I'm from Kingston and just had a consult with Dr. at Toronto Western Hospital. Would appreciate any info as I would like to get at least one more opinion. The other name I have is Dr. Ford.

Thanks

To

Hi ,I'm from the Toronto area in Canada and had revision surgery last year on Novemver 6th. When I was at the stage you are at now, I experienced the loneliless you refer to as well. It's especiallly true for us in Canada who are out of the loop as far as finding out about top revision surgeons. There aren't many in this sub-specialty and with Canada having such a small population compared to the US, it's very, very limited. I found a good surgeon who had done many revisions and went with him. He isn't very well known because none of them here are very well-known. So far my surgery is a complete success. It's a long recovery- I'm still not totally healed but am very happy with my progress. Don't be alarmed if you have trouble getting info on your doctor. Ask him politely lots of questions such as how many of your type of revision has he done, what exactly is the plan, can you talk with

former patients of his, what kind of osteotomy is required etc. Best of luck to you, Francine

Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new

[Guest guest]

:

Hey - we're almost neighbours - I live in WHitby! I had surgery last

winter with Dr. . He's very nice. I didn't have the ultra

complicated two part revision that many talk about - but it was

complicated enough. I had a partial rod removal - some disk work,

put in spacers, more fusion - rods and screws into illiac. It was

about a 7 hour surgery. I did very well - no complications. I am

better - but not 100% - still have pain - especially in the evening -

where the screws go in.

You do have to be careful - as in any hospital these days no matter

where - about the after care. Not enough staff, too little time,

etc. I was very careful about what meds I took, you had to bug them

about certain things, etc. HOwever - I made it though well.

When are you going to see him? You can email me privately if you'd

like more info

Jane

>

> Hi Francine

>

> I was wondering if you could tell me who did your surgery in

Toronto last year and if you are happy with the results. I see you

are approaching your one year anniversary. I'm from Kingston and

just had a consult with Dr. at Toronto Western Hospital.

Would appreciate any info as I would like to get at least one more

opinion. The other name I have is Dr. Ford.

>

> Thanks

>

>

>

>

> To

>

> Hi ,

> I'm from the Toronto area in Canada and had revision surgery last

year

> on Novemver 6th. When I was at the stage you are at now, I

experienced

> the loneliless you refer to as well. It's especiallly true for us

in

> Canada who are out of the loop as far as finding out about top

revision

> surgeons. There aren't many in this sub-specialty and with Canada

> having such a small population compared to the US, it's very, very

> limited. I found a good surgeon who had done many revisions and

went

> with him. He isn't very well known because none of them here are

very

> well-known. So far my surgery is a complete success. It's a long

> recovery- I'm still not totally healed but am very happy with my

> progress. Don't be alarmed if you have trouble getting info on your

> doctor. Ask him politely lots of questions such as how many of your

> type of revision has he done, what exactly is the plan, can you

talk

> with former patients of his, what kind of osteotomy is required

etc.

> Best of luck to you, Francine

>

>

>

>

>

> ____________________________________________________

> Canada Toolbar: Search from anywhere on the web, and

bookmark your favourite sites. Download it now at

> http://ca.toolbar..

>

[Guest guest]

Hi Isabella,

No the whole disease is not effecting me but I get angry when someone

who knows nothing about me puts me in one square box labled 'DRUG

ADDICT'. That EVERYONE with an addiction get's put into by ignorant

people. Even professionals.

Which should NEVER happen.

So many people are TRUELLY addicts. They crave the drugs/meds all day

and night. They can't get through a day without a hit.

These people are physically, psychologically and mentally addicted.

Then you have people like me, that has taken meds for REAL PAIN,

decided when they found a non-drug option to get off the meds, that

their body goes through withdrawls.

The Body DOESN'T know or can tell who is a true addict and who is

just trying to get off the stuff in their system to live a 'normal'

med free life.

EVERY SINGLE person withdrawling GOES THROUGH tHE SAME SORT OF

WITHDRAWLS!!!!!

And even if Maureen does not want to admit it, the reality is that

she will go through withdrawl pain if she ever stopped her pain meds.

That's a fact.

I WILL NOT BE LABLED and STUCK IN THE BOX with true addicts. As I am

NOT and NEVER will be one.

To be accussed of one hurts more than you could even begin to believe.

That said.

The reason I never answered your messages Isabella is this is about

the same time I asked that all the messages stop getting sent

directly to my Hotmail account. As I might be away for a week to

return to 200+ messages from this site.

So I come on when I get time to check messges.

I did get your's but did not get the time to answer.

After much research and professional opipion I have decided not to

have the -ectomy done.

I would need to have the whole of my oesphagus and stomach removed

and replaced by a tube of intestine.

I will end up with more problems than what I have now. So I will stay

this way for now. Until something new comes along.

Sorry to anyone who takes offense to that, but that is my choice. And

not a light one at that.

The Doctor's will do the -ectomy but advise against it.

That is the Doctor's that are willing to touch me. Not too many of

them I can tell you.

Making it even harder is the fact on Thursday, while in for my 50th

dilitation, they found my oesphagus is getting worn out and although

still unco-ordinated, it is now getting too slack to push things

along against the pressure of the LES. Hence the frequent choking and

constant sticking of things I swallow.

Isabella, you have been honest and truthful with me and NEVER judged

me. That I will forever be greatful.

Thank you.

Australia

> >

> > Oh ,

> >

> > No you're not the only one! My Dutch achalasian -ectomy friend

> had way over 100, after which he stopped counting... This

all

> resulted in the -ectomy, as understandably after so many

dilatations

> myotomy was no option anymore.

> >

> > I understand that there a numerous ways to perform an -ectomy.

Over

> here in Holland they tend to have a golden standard: it's the -

ectomy

> where they cut the neck open and furthermore they either enter the

> stomach lap. or open (from breasts to belly button). They remove

the

> whole esophagus (exept for a few cm just below the chin) and half

the

> stomach. The other half of the stomach will be used to pull up into

> the neck area as to form the new esophagus.

> >

> > If there isn't enough stomach left, they follow about the same

> procedure, but instead of the stomach they will use some intestines

> to form the new esophagus.

> >

> > Don't you even have half a stomach left? If not, why would using

> intestines not be an option for you?

> >

> > How experienced are your doc's with -ectomies?

> >

> > By the way: yesterday my health insurance provided me with my

> new " food programme " -LOL-, a box full of Ensure and other types

> of " delicious " meals. Didn't dare to open a can yet, I had such a

> deja-vu feeling... I promised myself to open one in about one hour

> YACK YACK YACK. Well, just a few more weeks (at least that's what I

> hope and expect!).

> >

> > Love,

> > Isabella

> >

> >

> >

> > On average how many diliations have people

> have?

> >

> > Am I the only one who has had dilitations into the double digits?

> >

> > Am I the only one stupid enough to have this done so many times?!

> > Maybe don't answer that one. LOL

> >

> > I am going, (I know there will be some of you pulling your hair

out

> > right now),44th one on the 3rd.

> >

> > I know! I know! I know! I's stupid for keeping this up every few

> > months. But what other option do I really have? They have said no

> > myotomy or oesphectomy (sp). As the will have to take my stomach

as

> > well. The Moltilium is not working. Dr Herrmann says it's a mess

in

> > there. So much so even he is grossed out by it. It must be bad.

> > And I have just lost another 10kg's in the last few weeks. It

looks

> > and feels horrible. My bones are poking out.

> > I think I might be in for another PEG again.

> > Oh! Woe is me!

> >

> > They are taping the gastroscopy and diliatation this time and I

am

> > posting it on my channel on YouTube. They tried taping last time

> but

> > the Tech who knows all about the DVD recorder was away. So it

> didn't

> > get taped.

> >

> > Am I allowed to put the link to this video on here? Or do I need

> > permission? If so from whom?

> >

> >

> > Australia

> >

> >

> >

> >

> >

> >

>

______________________________________________________________________

> ______________

> > Looking for last minute shopping deals?

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[Guest guest]

I agree with you totally Deborah.

 

At the time when you need to be strongest, it is usually at the time when you

are at your most vulnerable.

 

- Is no-one, as in a friend or family member, helping you out with all

this? It seems to me that you are having to do everything yourself.

 

I know what my forthright Sister would do. She would be recruiting a local

newspaper reporter to tell the public about the scandal of her neglected family

member.

From: Deborah Lattimore <deborah_Lattimore@...>

Subject: to

achalasia

Date: Thursday, 23 April, 2009, 7:33 PM

It's very difficult to keep pushing for what one needs urgently when one is

already ill.....

Best of Luck and KEEP PUSHING !

 

all best, Deborah, still at the beach

[Guest guest]

Hi All

I plan to get in touch with my local rag (newspaper) if I don't get seen to. I

am that angry. Believe me I will get sorted out one way or another. Had a bad

night with the leaks again last night and it left me feeling drained with a

headache to boot. I will keep in touch.

from the UK

 

________________________________

From: Ann Higgs <lilac_blossom_lady@...>

achalasia

Sent: Friday, April 24, 2009 10:11:35 AM

Subject: Re: to

I agree with you totally Deborah.

 

At the time when you need to be strongest, it is usually at the time when you

are at your most vulnerable.

 

- Is no-one, as in a friend or family member, helping you out with all

this? It seems to me that you are having to do everything yourself.

 

I know what my forthright Sister would do. She would be recruiting a local

newspaper reporter to tell the public about the scandal of her neglected family

member.

From: Deborah Lattimore <deborah_Lattimore>

Subject: to

achalasia@grou ps.com

Date: Thursday, 23 April, 2009, 7:33 PM

It's very difficult to keep pushing for what one needs urgently when one is

already ill.....

Best of Luck and KEEP PUSHING !

 

all best, Deborah, still at the beach

[Guest guest]

Great! You really should do that! Maybe it's the only way to get your situation

to change.

Isabella

________________________________

From: Hulmes <christine.hulmes@...>

achalasia

Sent: Friday, April 24, 2009 3:21:01 PM

Subject: Re: to

Hi All

I plan to get in touch with my local rag (newspaper) if I don't get seen to. I

am that angry. Believe me I will get sorted out one way or another. Had a bad

night with the leaks again last night and it left me feeling drained with a

headache to boot. I will keep in touch.

from the UK

 

____________ _________ _________ __

From: Ann Higgs <lilac_blossom_ lady (DOT) co.uk>

achalasia@grou ps.com

Sent: Friday, April 24, 2009 10:11:35 AM

Subject: Re: to

I agree with you totally Deborah.

 

At the time when you need to be strongest, it is usually at the time when you

are at your most vulnerable.

 

- Is no-one, as in a friend or family member, helping you out with all

this? It seems to me that you are having to do everything yourself.

 

I know what my forthright Sister would do. She would be recruiting a local

newspaper reporter to tell the public about the scandal of her neglected family

member.

From: Deborah Lattimore <deborah_Lattimore>

Subject: to

achalasia@grou ps.com

Date: Thursday, 23 April, 2009, 7:33 PM

It's very difficult to keep pushing for what one needs urgently when one is

already ill.....

Best of Luck and KEEP PUSHING !

 

all best, Deborah, still at the beach