Re: Re: C1512

[Guest guest]

Wow I fEel for you deeply. And when they do the surgery they might or might now

replace the C1512 with the previous generation as that works with the N5

processor apparantly. It is constantly on my mind now that I am at rish of my

implant failing I'm just praying it doesn't. Iv got my " 3 month follow up " on

the 10th october (just few weeks away) and then 6 days later its my 25th

birthday so I would aPpreciate not to be told that it would need to be replaced.

I have a desire to go bilateral and have my right ear done as well but problem,

funding will be very hard to obtain because of the not so nice NICE guidelines

here in the UK which meand that adults 19 or over cannot have the other ear done

unless funding myself and for that I'd have to win the lottery! But I might be

able to in view of my other health problems but if I do I'm not sure if I will

want to have a freedom implant and rather wait for the C1512 to come back£ I was

referred on 5th feb 2008, op 27th april 2011 activated 26th may 2011. The reason

for the such long wait is because of funding (which they refused even before the

NICE guidelines came out) and also the AB recall of the 90k harmony CI which was

the one I was initially going to havr so basically I just got lucky with this

one. Life is cruel to me! Lol.

Re: c1512

> >

> >

> >  

> >

> > you are involved in the recall as it is the piece inside your head they

are recalling , like myself too, let's just cross our fingers and hope we don't

have a failure , and my sympathies go out to those who have , I'm sure

Reimplantation is the last thing any implantee wants. I had a difficult recovery

after surgery, it is not an experience I would like to repeat !

> >Neil

> >

> >Sent from my iPad

> >

> >

> >

>

>

[Guest guest]

My daughter went through two failed implants only they were AB

devices. She now has the Freedom device and uses the N5 processors.

She does wonderfully with them. My heart goes out to you because I

know how difficult it is to see your child go through surgery.

On Sep 16, 2011, at 10:34 PM, Kathy wrote:

> You are fortunate. My granddaughter is only 2. So when I read about

> hearing beeps when the processor is attached and pain, I have no

> idea what the experience is like for her. I just watch a child who

> seems confused that she did not hear, then heard with 2 ears, and

> now hears with 1. She cries in the night and hits her head with her

> palms. I know that she will have to have surgery again, this after

> her first 2 put in both implants was in June. We are afraid that the

> 2nd will fail and she'll have to have even another surgery. I am

> looking for others with failures to let us know what the experience

> has been like for them and how the Freedom is working with the 1512,

> if you have these 2 implants. So many questions!

>

> >

> > agreed, i am just praying that my one doesnt fail of course.

> fingers crossed

> >

> > From: Neil Corby <neilcorby69@...>

> > > " " < >

> > >Sent: Friday, 16 September 2011, 23:28

> > >Subject: Re: c1512

> > >

> > >

> > > Â

> > >

> > > you are involved in the recall as it is the piece inside

> your head they are recalling , like myself too, let's just cross our

> fingers and hope we don't have a failure , and my sympathies go out

> to those who have , I'm sure Reimplantation is the last thing any

> implantee wants. I had a difficult recovery after surgery, it is not

> an experience I would like to repeat !

> > >Neil

> > >

> > >Sent from my iPad

> > >

> > >

> > >

> >

> >

[Guest guest]

It does not help to speculate on what " they might or might not do " . In

your case, since you have the N5 implant, its a concern, but, dont let it

control you. If its working, they will not replace it.

Quote of the nanosecond...

Black Holes are where God divided by zero.

& Dreamer Doll ke7nwn

E-mail-

Gone.to.Dawgs@...

Home Page-

http://webpages.charter.net/dog_guide/

Re: c1512

> >

> >

> > Â

> >

> > you are involved in the recall as it is the piece inside your head

> >they are recalling , like myself too, let's just cross our fingers and

> >hope we don't have a failure , and my sympathies go out to those who have

> >, I'm sure Reimplantation is the last thing any implantee wants. I had a

> >difficult recovery after surgery, it is not an experience I would like to

> >repeat !

> >Neil

> >

> >Sent from my iPad

> >

> >

> >

>

>

[Guest guest]

Deap Kathy

I am so sorry to hear that this has happened. Maybr it would be good to inform

cochlear as I think that if they have an idea of the areas where the implants

are failing they would be able to find the source of the recent surge in

failures. They say only 1% has failed since launch in 2009 but a recent surge in

failures. My hrart gors out to your dAughter and her family

C1512 recipient (left)

London, UK

Re: C1512

Dear Kathy,

My heart goes out to your granddaughter! Prayers that this surgery will be

successful and her recovery a smooth one! So very sorry you are all going

through this! Keep us posted on how it's going for her.

Best Wishes,

Patti

>

> Well, I am sitting in the hospital waiting for my granddaughter to have both

of her 1512 implants replaced with Freedoms. The first completely failed, and

the second was failing.

>

[Guest guest]

That 1% failure rate is not quite correct, . As of September 9, there

were 162 cases of the implant ceasing to function out of 25,516 registered

users of the C1512 implant - LESS than 1% - .63% to be more specific.

Bob

......

From: [mailto: ] On Behalf Of

paultoovey@...

Sent: Thursday, September 29, 2011 2:39 AM

Subject: Re: Re: C1512

Deap Kathy

I am so sorry to hear that this has happened. Maybr it would be good to

inform cochlear as I think that if they have an idea of the areas where the

implants are failing they would be able to find the source of the recent

surge in failures. They say only 1% has failed since launch in 2009 but a

recent surge in failures. My hrart gors out to your dAughter and her family

C1512 recipient (left)

London, UK

[Guest guest]

I meant less than 1% and I got that info direct from cochlear in the letter I

was sent.

Re: Re: C1512

Deap Kathy

I am so sorry to hear that this has happened. Maybr it would be good to

inform cochlear as I think that if they have an idea of the areas where the

implants are failing they would be able to find the source of the recent

surge in failures. They say only 1% has failed since launch in 2009 but a

recent surge in failures. My hrart gors out to your dAughter and her family

C1512 recipient (left)

London, UK

[Guest guest]

Where did you get that information?

On Thu, Sep 29, 2011 at 7:19 AM, <paultoovey@...> wrote:

> **

>

>

> I meant less than 1% and I got that info direct from cochlear in the letter

> I was sent.

> Re: Re: C1512

>

>

>

>

>

> Deap Kathy

>

> I am so sorry to hear that this has happened. Maybr it would be good to

> inform cochlear as I think that if they have an idea of the areas where the

>

> implants are failing they would be able to find the source of the recent

> surge in failures. They say only 1% has failed since launch in 2009 but a

> recent surge in failures. My hrart gors out to your dAughter and her family

>

>

>

> C1512 recipient (left)

> London, UK

>

>

>

>

>

>

[Guest guest]

Trust me , Cochleare is very on top of this. And they will most

assuredly examine every inplant that comes back to them.

Quote of the nanosecond...

Death is life's way of telling you you've been fired.

& Dreamer Doll ke7nwn

E-mail-

Gone.to.Dawgs@...

Home Page-

http://webpages.charter.net/dog_guide/

Re: C1512

>

>

> Dear Kathy,

> My heart goes out to your granddaughter! Prayers that this surgery will

> be successful and her recovery a smooth one! So very sorry you are all

> going through this! Keep us posted on how it's going for her.

> Best Wishes,

> Patti

>

>>

>> Well, I am sitting in the hospital waiting for my granddaughter to have

>> both of her 1512 implants replaced with Freedoms. The first completely

>> failed, and the second was failing.

>>

>

>

>

>

>

>

[Guest guest]

I will send the file to your private email, Kathy. I am not at liberty to

disclose my source.

Bob

......

From: [mailto: ] On Behalf Of

Kathy Kasparek

Sent: Thursday, September 29, 2011 9:55 AM

Subject: Re: Re: C1512

Where did you get that information?

On Thu, Sep 29, 2011 at 7:19 AM, <paultoovey@...

<mailto:paultoovey%40.co.uk> > wrote:

> **

>

>

> I meant less than 1% and I got that info direct from cochlear in the

letter

> I was sent.

> Re: Re: C1512

>

>

>

>

>

> Deap Kathy

>

> I am so sorry to hear that this has happened. Maybr it would be good to

> inform cochlear as I think that if they have an idea of the areas where

the

>

> implants are failing they would be able to find the source of the recent

> surge in failures. They say only 1% has failed since launch in 2009 but a

> recent surge in failures. My hrart gors out to your dAughter and her

family

>

>

>

> C1512 recipient (left)

> London, UK

>

>

>

>

>

>

[Guest guest]

Cochlear direct. I have the C1512 in left and cochlear sent me a letter

obviously merged to all reciepments in the world

Re: Re: C1512

>

>

>

>

>

> Deap Kathy

>

> I am so sorry to hear that this has happened. Maybr it would be good to

> inform cochlear as I think that if they have an idea of the areas where the

>

> implants are failing they would be able to find the source of the recent

> surge in failures. They say only 1% has failed since launch in 2009 but a

> recent surge in failures. My hrart gors out to your dAughter and her family

>

>

>

> C1512 recipient (left)

> London, UK

>

>

>

>

>

>