Guest guest Posted September 13, 2003 Report Share Posted September 13, 2003 Hi ... What is the age of your daughter? Kids usually recover from spinal fusion pain relatively quickly (although some have a difficult time of it for 2-3 months or more, depending on how complex the surgery is). Most adults complain of significant pain for at least 5-6 weeks. It's common for pain from thoracoplasty to last several months or more. I assume that's what you're referring to (thoracostomy). Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2003 Report Share Posted September 14, 2003 , You don't say what dose of Duragesic patch she is using. Perhaps it needs to be increased. I started at 25 and settled in at 100 for a 72 hour period. Good luck. Thank goodness you understand that she really is in pain! Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2003 Report Share Posted September 14, 2003 Hi ... I'm so sorry that your daughter has had such a tough time of it. Many people I know who have had both a spinal fusion and thoracoplasty have told me that the pain from the thoracoplasty was worse and lasted longer. Hopefully, that's all that's going on with your daughter. I hope that the surgeon can help on Wednesday. Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2005 Report Share Posted March 20, 2005 a wrote.... http://www.yogaforscoliosis.com/ Dear a and other familar with Elise Browning 's tape, I know Elise has not had scoliosis fusion. My question is-are the yoga tape moves/stretching safe for scoliomites who have long fusions or made for those with scoliosis and no fusion? Anyone know? Thanks, Jolene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2005 Report Share Posted March 20, 2005 On the tape, they do say to contact your doctor first before attempting. I have an original long fusion and I can do most, using their suggested adaptive method, within my comfort range. I think the main point of the movements is stretching within your own limitations, but get some exercise. Since yoga is done using slow, non-jarring movements then you listen to your body and keep as many muscles as possible limber. If you are recovering from surgery, then I would recommend that you definitely speak with your doctor and/or physical therapist about which movements that you are allowed to do. My fear would be causing a set-back in my recovery. Llweyn Re: Post Op Pain a wrote.... http://www.yogaforscoliosis.com/ Dear a and other familar with Elise Browning 's tape, I know Elise has not had scoliosis fusion. My question is-are the yoga tape moves/stretching safe for scoliomites who have long fusions or made for those with scoliosis and no fusion? Anyone know? Thanks, Jolene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2011 Report Share Posted August 21, 2011 I have just had my operation . It has been 6 days now and I have been feeling discomfort and pain in and around my ear .I had a build up of fluid pressure and that left day before yesterday . When I went to see the assistant doctor he told me that they have cut some muscle from near my right temple to use as packing inside the inner ear . I was not aware that they were going to do this . I seem to be getting most of my discomfort from this muscle that has been cut away . Have other people been aware about this practice of cutting away muscle to use as packing in the inner ear? I keep getting a shooting pain branching out from my ear I am on antibiotics and have just finished the anti inflammatory tabs. I have strong painkiller but even this does not seem to put this annoying pain at rest only for some time . I go back to my surgeon in a couple of days . I wanted to know how others have coped with after op recovery and what they have gone through and if you have been aware if this can happen during an op . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2011 Report Share Posted August 22, 2011 > > I have just had my operation . It has been 6 days now and I have been feeling discomfort and pain in and around my ear .I had a build up of fluid pressure and that left day before yesterday . When I went to see the assistant doctor he told me that they have cut some muscle from near my right temple to use as packing inside the inner ear . I was not aware that they were going to do this . I seem to be getting most of my discomfort from this muscle that has been cut away . Have other people been aware about this practice of cutting away muscle to use as packing in the inner ear? I keep getting a shooting pain branching out from my ear I am on antibiotics and have just finished the anti inflammatory tabs. I have strong painkiller but even this does not seem to put this annoying pain at rest only for some time . I go back to my surgeon in a couple of days . I wanted to know how others have coped with after op recovery and what they have gone through and if you have been aware if this can happen during an op . > I was pretty much pain free after about 3 days, but it took about 2 weeks before I felt normal again. The pain throughout was pretty minimal. I believe the packing takes place in the middle ear in order to keep the electrode array from being able to migrate. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2011 Report Share Posted August 22, 2011 > I believe the packing takes place in the middle ear in order to keep the > electrode array from being able to migrate. Yes, and the packing in mine evidently didn't fully fill the hole drilled there and I have a fair sized round indentation in the skin behind my ear. It isn't a problem - just came as a bit of a surprise. Virg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2011 Report Share Posted August 23, 2011 Thanks for those responses , today is day nine . Have been experiencing the muscles on right side of face sleeping like right upper lips and find it strange to close my right eye fully, like after an anesthetic at dentist.Its very different to eat with half a mouth opening . My jaw is just a bit stiff on the right side and everything is not like it was before . Tommorrow I will speak to my surgeon. If I hear from more people I will get the feeling that I am not alone in this. I knew the chances of these affects being there , I just did not know that they could go on for a while. I know everyone is completely unique in how they recover , while some may be going back to work shortly after the operation , I for one will not do anything more with all these changes going on .It feels strange having half a face doing strange things,as well as feeling the sensations on and around my scalp .Did anyone else experience this too ? So Virg in your case the array has kept in place without the packing working . Cheers Marco > > > I believe the packing takes place in the middle ear in order to keep the > > electrode array from being able to migrate. > > Yes, and the packing in mine evidently didn't fully fill the hole drilled > there and I have a fair sized round indentation in the skin behind my ear. > It isn't a problem - just came as a bit of a surprise. > > Virg > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2011 Report Share Posted August 24, 2011 sounds like there may be some facial nerve involvement..... Happy Hearing! Carol Boca Raton, FL Cochlear America Nucleus 24C - left ear - Sprint 12/11/01 then 3G then upgraded to Freedom on 2/19/08 Cochlear America Freedom right ear -implanted 3/01/06 - activated 4/06/06 From: Marco Sent: Wednesday, August 24, 2011 12:54 AM Subject: Re: Post Op Pain Thanks for those responses , today is day nine . Have been experiencing the muscles on right side of face sleeping like right upper lips and find it strange to close my right eye fully, like after an anesthetic at dentist.Its very different to eat with half a mouth opening . My jaw is just a bit stiff on the right side and everything is not like it was before . Tommorrow I will speak to my surgeon. If I hear from more people I will get the feeling that I am not alone in this. I knew the chances of these affects being there , I just did not know that they could go on for a while. I know everyone is completely unique in how they recover , while some may be going back to work shortly after the operation , I for one will not do anything more with all these changes going on .It feels strange having half a face doing strange things,as well as feeling the sensations on and around my scalp .Did anyone else experience this too ? So Virg in your case the array has kept in place without the packing working . Cheers Marco > > > I believe the packing takes place in the middle ear in order to keep the > > electrode array from being able to migrate. > > Yes, and the packing in mine evidently didn't fully fill the hole drilled > there and I have a fair sized round indentation in the skin behind my ear. > It isn't a problem - just came as a bit of a surprise. > > Virg > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2011 Report Share Posted August 24, 2011 > > sounds like there may be some facial nerve involvement..... That's what I was thinking, too. That is a possibility with CI surgery. I hope that's not it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2011 Report Share Posted August 25, 2011 I have just come back from the Surgeon , he has given me steroids to calm down the inflammation of the facial nerve .That is why I am having a drooping lip and find it strange that my eye hardly winks . So more drugs until it all settles down .I think this is just one of the things that can happen. Still I can inform people that this may happen after implantation . Marco > > > > sounds like there may be some facial nerve involvement..... > > That's what I was thinking, too. That is a possibility with CI surgery. I hope that's not it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 Hi Marco, Glad to hear that you got medical help and now are on the steroids. The same thing happened during my surgery but I was away on vacation and I thought I was just having major pains and had to take pain medicine until my face drooped and my right eye wouldn't open/close properly then my doctor told us to rush to hospital and get help when we found out that I got Bell's Palsy - whew! It's really important to catch it in time so it doesn't get worst. My face and everything changed back but I swear I still have a tiny slight droop - oh well. I also had a lot of difficulty hearing with CI for the first few months - everything was ringing/ clanging and just not making sense but it got much better over time. Now it's just awesome and everything sounds great! Best Wishes! > > I have been five days now on the steroids and find that my face is slowly changing back to normal . But it is very slow, yet there is some feeling that it is changing . > > I was fitted with my processor yesterday and had switch on . I am finding that I cannot understand what I am hearing , it is all high pitches and whistles, But I am noticing things like hearing this morning someone walking across the carpet with slippers and the beep sounding with that . So it makes me notice and match where the sound is coming from . > > Will this change?? I realize I am hearing in monotone and that my voice sounds robotic ,will I be hearing music again ??? With melodies?? > > I have to go back to my audiologist tomorrow for more mapping . > > Cheers from Australia , > Marco Quote Link to comment Share on other sites More sharing options...
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