Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 I'm actually shocked that this is supposed to be a " support group " for CI users and those seeking info on CI's. Just cuz I made a remark about the Cochlear America recall (I said I " believe " ) I dont deserve to have all the nasty comments. This list, I noticed, strongly supports Cochlear American and was simply providing info that I thought the person would find informative. I included Enovy simply as a option since the person that was requesting info and since this IS supposed to be a " support group " I thought I'd be kind enough to provide a little bit of everything. I could care less what CI a person chooses, the main point is to provide support and HEAR AGAIN. In the future, I'll just make any comments and suggestions privately now, as this is not the first time I've been " ganged up " on for expressing my opinions. j:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 Joleen, You were not ganged up on because of your opinions. You made a blanket statement without checking facts and used the word " all " . This is a very good reason why none of us should speak on the brands we are not implanted with. Mistakes have been made from all sides and it probably will not be the last time it happenbs. If we do not know for a fact, then we should not say it. " I believe " or " its my understanding " can be problematic. Quote of the nanosecond... Sometimes we stare so long at a door that is closing that we see too late the one that is open. -- Graham Bell & Dreamer Doll ke7nwn E-mail- Gone.to.Dawgs@... Home Page- http://webpages.charter.net/dog_guide/ CI Info I'm actually shocked that this is supposed to be a " support group " for CI users and those seeking info on CI's. Just cuz I made a remark about the Cochlear America recall (I said I " believe " ) I dont deserve to have all the nasty comments. This list, I noticed, strongly supports Cochlear American and was simply providing info that I thought the person would find informative. I included Enovy simply as a option since the person that was requesting info and since this IS supposed to be a " support group " I thought I'd be kind enough to provide a little bit of everything. I could care less what CI a person chooses, the main point is to provide support and HEAR AGAIN. In the future, I'll just make any comments and suggestions privately now, as this is not the first time I've been " ganged up " on for expressing my opinions. j:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 , but reality, a CI support group should also be supporting of everyone's understanding. Not just a few. Otherwise it is not a support group. Even though I believe you make many good points, I don't always agree with all in fact have read some I knew was not completely accurate. . But here again everyone wouldn't agree with all I believe. I do believe this Cochlear America N-5 voluntary recall has been a sore subject for some. Not sure why. For I have the N-5 and have no problems talking about their problems. Doesn't make them bad, doesn't make them good. Just a personal choice. Do I like the fact I have to be re-implanted ? No. But that is my personal feelings. But I am still going with CA. Could choose to go otherwise. Was not required, from what I have read and advised. In fact the article that, I BELIEVE, was sent out by you. Also stated they were having a hard time getting some re-implants to accept the Freedom. Why, I don't know. But probably personal choice. For some it seems hard to accept an implant that is 7 years old. Not only that was told by my center the surgery s a little more time consuming because of the depth of Freedom compared with N-5. So see , so much can be discussed about Cochlear America's N-5 as well as all of the others. If this is a support group. I would think we can be open about everything. As long as it is to the best of our knowledge. I , personally do not believe there is much difference with all of the different brands. Just personal choices Sent from my iPad On Oct 14, 2011, at 6:00 PM, C <gone.to.dawgs@...> wrote: > Joleen, > You were not ganged up on because of your opinions. You made a blanket > statement without checking facts and used the word " all " . This is a very > good reason why none of us should speak on the brands we are not implanted > with. Mistakes have been made from all sides and it probably will not be > the last time it happenbs. > > If we do not know for a fact, then we should not say it. " I believe " or > " its my understanding " can be problematic. > > Quote of the nanosecond... > Sometimes we stare so long at a door that is closing that we see too late > the one that is open. > -- Graham Bell > & Dreamer Doll ke7nwn > E-mail- > Gone.to.Dawgs@... > Home Page- > http://webpages.charter.net/dog_guide/ > > CI Info > > I'm actually shocked that this is supposed to be a " support group " for CI > users and those seeking info on CI's. Just cuz I made a remark about the > Cochlear America recall (I said I " believe " ) I dont deserve to have all the > nasty comments. > This list, I noticed, strongly supports Cochlear American and was simply > providing info that I thought the person would find informative. I included > Enovy simply as a option since the person that was requesting info and since > this IS supposed to be a " support group " I thought I'd be kind enough to > provide a little bit of everything. I could care less what CI a person > chooses, the main point is to provide support and HEAR AGAIN. > > In the future, I'll just make any comments and suggestions privately now, as > this is not the first time I've been " ganged up " on for expressing my > opinions. > > j:) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 Wanda, There are two aspects to support (in my opinion). One is sharing personal experiences. The other is providing accurate information. We cannot go wrong with the first. There is no right or wrong, we simply talk about our own experiences. We can go wrong with " accurate " information. When we give " accurate " information that is not accurate, we can do more harm than good. Facts are verifiable. If we do not know, we should not bring it up. I dont have an AB product, nor a MedEl product so I best not talk about either unless I absolutely know I am giving accurate info. But since I am certain that users of those two products in this group know more about their devices, its safe to leave it to them. That is why " I believe " and " its my understanding " dont really benefit others. Quote of the nanosecond... Love is grand;divorce is a hundred grand. & Dreamer Doll ke7nwn E-mail- Gone.to.Dawgs@... Home Page- http://webpages.charter.net/dog_guide/ CI Info > > I'm actually shocked that this is supposed to be a " support group " for CI > users and those seeking info on CI's. Just cuz I made a remark about the > Cochlear America recall (I said I " believe " ) I dont deserve to have all > the > nasty comments. > This list, I noticed, strongly supports Cochlear American and was simply > providing info that I thought the person would find informative. I > included > Enovy simply as a option since the person that was requesting info and > since > this IS supposed to be a " support group " I thought I'd be kind enough to > provide a little bit of everything. I could care less what CI a person > chooses, the main point is to provide support and HEAR AGAIN. > > In the future, I'll just make any comments and suggestions privately now, > as > this is not the first time I've been " ganged up " on for expressing my > opinions. > > j:) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 , but a support group NEEDS, " I believe " or " My understanding " without it, it no longer would be a support group, it would be an ad for whatever brand you wanted to trump. As a for instance. I did a ton of research on AB as well as Cochlear America and found, here it is ,I Believe AB was more successful with long term deaf implantation. In fact my doctor as much as admitted it but said for me, because of magnet issue would be better with Cochlear America's. But you see I was speaking about AB, which I do not have. So maybe instead of attacking someone. Wouldn't it be better and come across more supporting with just stating YOUR understanding of it? Because I have to agree, it looked like an attack because someone made a comment about Cochlear America product that had chose to go with another company. I really don't think that would be in the best interest for CA. I have an N-5 and I certainly don't feel I need to protect the fact. I love dialog, with dialog there are viewpoints. Just my opinion. , there is a very successful support group for acoustic neuroma patients, in fact doctors now come on and write comments. And you will see what I mean. Patients give their views of different treatments as well as Center choices, and even address issues like CI's. Very interesting and informative site. All rounded around support. Just a thought. Wanda Sent from my iPad On Oct 14, 2011, at 7:13 PM, C <gone.to.dawgs@...> wrote: > Wanda, > There are two aspects to support (in my opinion). One is sharing > personal experiences. The other is providing accurate information. > > We cannot go wrong with the first. There is no right or wrong, we > simply talk about our own experiences. > > We can go wrong with " accurate " information. When we give " accurate " > information that is not accurate, we can do more harm than good. Facts are > verifiable. If we do not know, we should not bring it up. I dont have an > AB product, nor a MedEl product so I best not talk about either unless I > absolutely know I am giving accurate info. But since I am certain that > users of those two products in this group know more about their devices, its > safe to leave it to them. > > That is why " I believe " and " its my understanding " dont really benefit > others. > > Quote of the nanosecond... > Love is grand;divorce is a hundred grand. > & Dreamer Doll ke7nwn > E-mail- > Gone.to.Dawgs@... > Home Page- > http://webpages.charter.net/dog_guide/ > > CI Info > > > > I'm actually shocked that this is supposed to be a " support group " for CI > > users and those seeking info on CI's. Just cuz I made a remark about the > > Cochlear America recall (I said I " believe " ) I dont deserve to have all > > the > > nasty comments. > > This list, I noticed, strongly supports Cochlear American and was simply > > providing info that I thought the person would find informative. I > > included > > Enovy simply as a option since the person that was requesting info and > > since > > this IS supposed to be a " support group " I thought I'd be kind enough to > > provide a little bit of everything. I could care less what CI a person > > chooses, the main point is to provide support and HEAR AGAIN. > > > > In the future, I'll just make any comments and suggestions privately now, > > as > > this is not the first time I've been " ganged up " on for expressing my > > opinions. > > > > j:) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 Joleen, I'm an Advanced Bionics CI user and proud of it but even I was surprised at your blanket statement on Cochlear's recall. Only the N5 series implants are on recall. I believe the others were in the rights to set the facts straight for you. It is important all information presented about what each major CI company has to offer be accurate as much as possible so candidates or those thinking of getting a CI can make informed decisions. I can emphasize with people who want a Cochlear N5 implant but are upset with the recall and perhaps unwilling to go to an older implant like the Freedom. It wouldn't surprise me though if these people are willing to wait months until the Cochlear recall is lifted. I think that's great. When my older AB implant failed a few months ago after 11 years, AB's recall was still in effect. I was now completely deaf, not liking it, and actually considered other options such as Cochlear and Med-El because I really didn't want to wait months to hear again. But I love AB's excellent products and superb customer support so I was willing to wait months until the recall was lifted. I had simultaneously bilateral surgery on Sept. 23rd and had my revised side turned on just last week. So I'm a happy hearing camper again! I feel terrible for those who want a N5 implant system but now have to wait. I know how you guys feel! Let's pray they get to the market as quickly as possible. Geoff > > I'm actually shocked that this is supposed to be a " support group " for CI users and those seeking info on CI's. Just cuz I made a remark about the Cochlear America recall (I said I " believe " ) I dont deserve to have all the nasty comments. > This list, I noticed, strongly supports Cochlear American and was simply providing info that I thought the person would find informative. I included Enovy simply as a option since the person that was requesting info and since this IS supposed to be a " support group " I thought I'd be kind enough to provide a little bit of everything. I could care less what CI a person chooses, the main point is to provide support and HEAR AGAIN. > > In the future, I'll just make any comments and suggestions privately now, as this is not the first time I've been " ganged up " on for expressing my opinions. > > j:) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 Here's the thing, Wanda. All three companies are well represented in this group. Therefore, it only makes sense to allow those with a particuiar brand to give specifics on their brand. Why not? If someone gave wrong info, another user with the same brand can correct it. If I drove a Chevy, I would not find a Ford mechanic to be as credible as a mechanic who specializes in Chevys when it came to repairs. Sure, he might be proficient in Chevys but unless he was freelance, he probably would not be as up on Checy issues. Quote of the nanosecond... Patience is also a form of action. --Auguste Rodin, sculptor (1840-1917) & Dreamer Doll ke7nwn E-mail- Gone.to.Dawgs@... Home Page- http://webpages.charter.net/dog_guide/ CI Info > > > > I'm actually shocked that this is supposed to be a " support group " for > > CI > > users and those seeking info on CI's. Just cuz I made a remark about the > > Cochlear America recall (I said I " believe " ) I dont deserve to have all > > the > > nasty comments. > > This list, I noticed, strongly supports Cochlear American and was simply > > providing info that I thought the person would find informative. I > > included > > Enovy simply as a option since the person that was requesting info and > > since > > this IS supposed to be a " support group " I thought I'd be kind enough to > > provide a little bit of everything. I could care less what CI a person > > chooses, the main point is to provide support and HEAR AGAIN. > > > > In the future, I'll just make any comments and suggestions privately > > now, > > as > > this is not the first time I've been " ganged up " on for expressing my > > opinions. > > > > j:) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 Hey, I agree the person who can closer define their product is the one who owns one. BUT, , this is what i see as a problem. I personally know 3 people whom have chosen to quit coming to this site because when they do post or just want to read comments they feel some are very judgmental and their viewpoints are the only viewpoints. Now because I am involve with a few other support groups I know it is very easy to write in a lot that was not intended. So that is why I believe we could get our point across in a more kinder way. Me, personally, it would take a lot to get me off track. Maybe because I have gone through a lot. :0). So I have tougher skin. :0). Anyway you are right that for the most part those that have whatever brand they have know more about their experience with that brand than those that don't . But I personally would like to see more open discussion about our opinions of what we might have read somewhere or whatever . And not take offense at a comment that might be different than what you feel. To me that is more informative and supportive. Either way, not a problem. , think you sure very informative at times and really enjoy your posts! So please don't think I am saying you are not an asset to this board, you are. :0) Wanda Sent from my iPad On Oct 14, 2011, at 8:33 PM, C <gone.to.dawgs@...> wrote: > Here's the thing, Wanda. All three companies are well represented in > this group. Therefore, it only makes sense to allow those with a particuiar > brand to give specifics on their brand. Why not? If someone gave wrong > info, another user with the same brand can correct it. > > If I drove a Chevy, I would not find a Ford mechanic to be as credible > as a mechanic who specializes in Chevys when it came to repairs. Sure, he > might be proficient in Chevys but unless he was freelance, he probably would > not be as up on Checy issues. > > Quote of the nanosecond... > Patience is also a form of action. > --Auguste Rodin, sculptor (1840-1917) > & Dreamer Doll ke7nwn > E-mail- > Gone.to.Dawgs@... > Home Page- > http://webpages.charter.net/dog_guide/ > > CI Info > > > > > > I'm actually shocked that this is supposed to be a " support group " for > > > CI > > > users and those seeking info on CI's. Just cuz I made a remark about the > > > Cochlear America recall (I said I " believe " ) I dont deserve to have all > > > the > > > nasty comments. > > > This list, I noticed, strongly supports Cochlear American and was simply > > > providing info that I thought the person would find informative. I > > > included > > > Enovy simply as a option since the person that was requesting info and > > > since > > > this IS supposed to be a " support group " I thought I'd be kind enough to > > > provide a little bit of everything. I could care less what CI a person > > > chooses, the main point is to provide support and HEAR AGAIN. > > > > > > In the future, I'll just make any comments and suggestions privately > > > now, > > > as > > > this is not the first time I've been " ganged up " on for expressing my > > > opinions. > > > > > > j:) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 Thanks Wanda. I just feel that when it comes to black and white, we should choose accuracy. I would rather make an error about my own brand and no one is going to get bent out of shape. Like Joe Friday used to say, Just the facts, ma'am. As to people leaving, unfortunately, we are talking about humans with different personalities and sometimes conflicts arise. You and I could stand shoulder to shoulder, looking at the same sunset, and have radically different opinions. There is no right or wrong, just a difference of opinion. That is perfectly aceptable. Of course I am right. LOL Quote of the nanosecond... Classified Ad: Super Bowel party & Dreamer Doll ke7nwn E-mail- Gone.to.Dawgs@... Home Page- http://webpages.charter.net/dog_guide/ CI Info > > > > > > I'm actually shocked that this is supposed to be a " support group " for > > > CI > > > users and those seeking info on CI's. Just cuz I made a remark about > > > the > > > Cochlear America recall (I said I " believe " ) I dont deserve to have > > > all > > > the > > > nasty comments. > > > This list, I noticed, strongly supports Cochlear American and was > > > simply > > > providing info that I thought the person would find informative. I > > > included > > > Enovy simply as a option since the person that was requesting info and > > > since > > > this IS supposed to be a " support group " I thought I'd be kind enough > > > to > > > provide a little bit of everything. I could care less what CI a person > > > chooses, the main point is to provide support and HEAR AGAIN. > > > > > > In the future, I'll just make any comments and suggestions privately > > > now, > > > as > > > this is not the first time I've been " ganged up " on for expressing my > > > opinions. > > > > > > j:) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 LoL Sent from my iPad On Oct 14, 2011, at 9:50 PM, C <gone.to.dawgs@...> wrote: > shape. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2011 Report Share Posted October 15, 2011 I like this group. Not much off topic postings with political/religious posturing. Great shared experiences. Sometimes the " facts " get out wrong and the " corrections " can seem too harsh. We can learn to be more gentle in that aspect. I do hope that we welcome all CI brands here. Each one has features that some people prefer over another. I am glad there is competition to help prod the improvements along. Plus we have more people hearing! Have a great weekend! From beautiful Texas (we need more rain though) Neely, Dallas > > > Joleen, > > I'm an Advanced Bionics CI user and proud of it but even I was surprised at your blanket statement on Cochlear's recall. Only the N5 series implants are on recall. I believe the others were in the rights to set the facts straight for you. > > It is important all information presented about what each major CI company has to offer be accurate as much as possible so candidates or those thinking of getting a CI can make informed decisions. > > I can emphasize with people who want a Cochlear N5 implant but are upset with the recall and perhaps unwilling to go to an older implant like the Freedom. It wouldn't surprise me though if these people are willing to wait months until the Cochlear recall is lifted. I think that's great. > > When my older AB implant failed a few months ago after 11 years, AB's recall was still in effect. I was now completely deaf, not liking it, and actually considered other options such as Cochlear and Med-El because I really didn't want to wait months to hear again. But I love AB's excellent products and superb customer support so I was willing to wait months until the recall was lifted. I had simultaneously bilateral surgery on Sept. 23rd and had my revised side turned on just last week. So I'm a happy hearing camper again! > > I feel terrible for those who want a N5 implant system but now have to wait. I know how you guys feel! Let's pray they get to the market as quickly as possible. > > > Geoff <<snipped>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2011 Report Share Posted October 15, 2011 You can thank Alice for that, . She keeps a close eye on us, and that is to our benefit. Judy > > > > > > Joleen, > > > > I'm an Advanced Bionics CI user and proud of it but even I was surprised at your blanket statement on Cochlear's recall. Only the N5 series implants are on recall. I believe the others were in the rights to set the facts straight for you. > > > > It is important all information presented about what each major CI company has to offer be accurate as much as possible so candidates or those thinking of getting a CI can make informed decisions. > > > > I can emphasize with people who want a Cochlear N5 implant but are upset with the recall and perhaps unwilling to go to an older implant like the Freedom. It wouldn't surprise me though if these people are willing to wait months until the Cochlear recall is lifted. I think that's great. > > > > When my older AB implant failed a few months ago after 11 years, AB's recall was still in effect. I was now completely deaf, not liking it, and actually considered other options such as Cochlear and Med-El because I really didn't want to wait months to hear again. But I love AB's excellent products and superb customer support so I was willing to wait months until the recall was lifted. I had simultaneously bilateral surgery on Sept. 23rd and had my revised side turned on just last week. So I'm a happy hearing camper again! > > > > I feel terrible for those who want a N5 implant system but now have to wait. I know how you guys feel! Let's pray they get to the market as quickly as possible. > > > > > > Geoff > > <<snipped>> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2011 Report Share Posted October 16, 2011 We do Appreciate ALL points of view!!! WE are NOT Ganging up you!!! Joe (Miami) ___________________________________________________ On 10/14/2011 8:48 PM, Joleen wrote: > > I'm actually shocked that this is supposed to be a " support group " for > CI users and those seeking info on CI's. Just cuz I made a remark > about the Cochlear America recall (I said I " believe " ) I dont deserve > to have all the nasty comments. > This list, I noticed, strongly supports Cochlear American and was > simply providing info that I thought the person would find > informative. I included Enovy simply as a option since the person > that was requesting info and since this IS supposed to be a " support > group " I thought I'd be kind enough to provide a little bit of > everything. I could care less what CI a person chooses, the main > point is to provide support and HEAR AGAIN. > > In the future, I'll just make any comments and suggestions privately > now, as this is not the first time I've been " ganged up " on for > expressing my opinions. > > j:) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2011 Report Share Posted October 17, 2011 Kathy, I am sure if they had known of the problem beforehand, they would not have implanted your granddaughter. Happy Hearing! Carol Boca Raton, FL Cochlear America Nucleus 24C - left ear - Sprint 12/11/01 then 3G then upgraded to Freedom on 2/19/08 Cochlear America Freedom right ear -implanted 3/01/06 - activated 4/06/06 - upgraded to Nucleus 5 on 8/30/2011 From: Kathy Kasparek Sent: Monday, October 17, 2011 7:54 AM Subject: Re: CI INFO I am the one whose granddaughter had both of her implants fail. Her parents would have appreciated knowing there might be problems before they implanted their daughter in June. On Sun, Oct 16, 2011 at 9:30 PM, Joleen <mailto:jrmars813%40> wrote: > ** > > > I want to make one thing very clear. I have absolutely no objections to > being told that I provided incorrect info. (I was " partially " correct) I > am not a " computer " nor have knowledge of everything thats going on in the > world. Just because I made a comment about CA recall, didn't mean that I > was trying to make CA look bad. Just because I didn't do my " research " as > said, I truly felt that I was " ganged up " on for that simple comment. > It makes a huge difference in HOW the comments/correction is made. I > truly felt offended by it. Again, the links I provided, I'm sure would > have mentioned this to anyone that was considering an implant. Like Wanda > said, I've been on this site for many years and found many informative info > and ideas that I benefited from...but.... > > > > j:) > > Quote Link to comment Share on other sites More sharing options...
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