RE: Where to Start for the Cochlear Implant Process

[Guest guest]

Iva,

You say your sister was born deaf. Was she brought up oral? If so, she should

be evaluated by a Cochlear Implant Center. If it were me, I would go to a good

University Implant Center. There she would get a thorough evaluation and they

would be able to tell her if in fact she would be a good candidate.

That is where I would start.

Audiologists are often more interested in selling hearing aides if they are not

part of an implant center.

Happy Hearing!

Carol

Boca Raton, FL

Cochlear America Nucleus 24C - left ear - Sprint 12/11/01 then 3G then upgraded

to Freedom on 2/19/08

Cochlear America Freedom right ear -implanted 3/01/06 - activated 4/06/06 -

upgraded to Nucleus 5 on 8/30/2011

From: Iva

Sent: Monday, October 10, 2011 2:50 PM

Subject: Where to Start for the Cochlear Implant Process

So, I am starting to look into this for my sister. She is 36 and was born deaf.

I was reading that the FDA approved Cochlear Implants for those who are

considered disabled as those who would require a prosthetic limb like an amputee

and that the cost is covered under Medicare. The only help she has ever received

wasn't really help at all. The audiologists have only provided her with Hearing

Aids and have never even tried to do the assessments to make an effort for a

cochlear implant surgery. Should I have her go to a new audiologist to begin the

real testing to begin the process or what. I am so frustrated that the

audiologist hasn't even tried to help her get an implant. Any help or

recommendations would be greatly appreciated.

Thanks.

[Guest guest]

Where do you live? Many communities in the US are having Hearing Health

Seminars. Go to the Cochlear site-www.cochlearamericas.com and look to see

where these seminars are. There will be doctors and audiologist that deal with

cochlear implants to discuss your sister's case. There also will be people who

have cochlear implants.

On the Cochlear site-there is a tab that says-find a clinic. This will direct

you to where you live and then list hospitals and clinics that deal with

cochlear implants.

This should get you started.

Lil Klein

Hampshire, IL

>

> So, I am starting to look into this for my sister. She is 36 and was born

deaf. I was reading that the FDA approved Cochlear Implants for those who are

considered disabled as those who would require a prosthetic limb like an amputee

and that the cost is covered under Medicare. The only help she has ever received

wasn't really help at all. The audiologists have only provided her with Hearing

Aids and have never even tried to do the assessments to make an effort for a

cochlear implant surgery. Should I have her go to a new audiologist to begin the

real testing to begin the process or what. I am so frustrated that the

audiologist hasn't even tried to help her get an implant. Any help or

recommendations would be greatly appreciated.

>

> Thanks.

>

[Guest guest]

Joleen,

This is not correct information. Cochlear America is implanting Freedom

implants which is the same one that they had been implanting prior to the N5 and

also they continue to implant them in other countries.

The Freedom internal device is compatible with the N5 processor and that is the

combination that they are currently using in the US and Canada.

Happy Hearing!

Carol

Boca Raton, FL

Cochlear America Nucleus 24C - left ear - Sprint 12/11/01 then 3G then upgraded

to Freedom on 2/19/08

Cochlear America Freedom right ear -implanted 3/01/06 - activated 4/06/06 -

upgraded to Nucleus 5 on 8/30/2011

From: Joleen

Sent: Wednesday, October 12, 2011 7:30 PM

CI HEAR

Subject: Where to Start for the Cochlear Implant Process

I also want to mention there are several other companies out there. Each of

these websites has CI Centers. These Centers are the only ones authorized to

perform test and surgery.

I believe Cochlear America currently has a hold on all of their

implants/surgerys due to the recent recall.

I also would like to provide some advice regarding implants for the deaf, based

on my experience and perhaps reason why the Audi has not recommend it. Implants

are not for everyone,(and not everyone qualifies for one) and someone that is

profoundly deaf and never heard before, it will take time for them to get used

to hearing and recognizing sounds. Your sister has to be very motivated to want

an Implant and be willing to go for frequent visits as well as speech therapy if

there is a need for it. The Most important person is the audiologist as that

person will be one you will be spending a lot of time with. So, of course,

you'll want someone that your comfortable with. If you would like more info

based on my experience or general questions. You may email me off line.

Advance Bionics http://www.advancedbionics.com/us/en/home.html

Med-El

..http://www.medel.com/us/index/index/id/1/title/Home/index/index/id/1/title/Home

Envoy - http://www.envoymedical.com/

>

> So, I am starting to look into this for my sister. She is 36 and was born

deaf. I was reading that the FDA approved Cochlear Implants for those who are

considered disabled as those who would require a prosthetic limb like an amputee

and that the cost is covered under Medicare. The only help she has ever received

wasn't really help at all. The audiologists have only provided her with Hearing

Aids and have never even tried to do the assessments to make an effort for a

cochlear implant surgery. Should I have her go to a new audiologist to begin the

real testing to begin the process or what. I am so frustrated that the

audiologist hasn't even tried to help her get an implant. Any help or

recommendations would be greatly appreciated.

>

> Thanks.

>

[Guest guest]

Joleen, be careful with what you pass on as correct information. It is

not correct. Only the current N5 device is affected by the recall.

Quote of the nanosecond...

" Fool me once, shame on you. Fool me twice, prepare to die. "

--Klingon Proverb, Star Trek

& Dreamer Doll ke7nwn

E-mail-

Gone.to.Dawgs@...

Home Page-

http://webpages.charter.net/dog_guide/

Where to Start for the Cochlear Implant Process

I also want to mention there are several other companies out there. Each of

these websites has CI Centers. These Centers are the only ones authorized to

perform test and surgery.

I believe Cochlear America currently has a hold on all of their

implants/surgerys due to the recent recall.

I also would like to provide some advice regarding implants for the deaf,

based on my experience and perhaps reason why the Audi has not recommend it.

Implants are not for everyone,(and not everyone qualifies for one) and

someone that is profoundly deaf and never heard before, it will take time

for them to get used to hearing and recognizing sounds. Your sister has to

be very motivated to want an Implant and be willing to go for frequent

visits as well as speech therapy if there is a need for it. The Most

important person is the audiologist as that person will be one you will be

spending a lot of time with. So, of course, you'll want someone that your

comfortable with. If you would like more info based on my experience or

general questions. You may email me off line.

Advance Bionics http://www.advancedbionics.com/us/en/home.html

Med-El

..http://www.medel.com/us/index/index/id/1/title/Home/index/index/id/1/title/Home

Envoy - http://www.envoymedical.com/

>

> So, I am starting to look into this for my sister. She is 36 and was born

> deaf. I was reading that the FDA approved Cochlear Implants for those who

> are considered disabled as those who would require a prosthetic limb like

> an amputee and that the cost is covered under Medicare. The only help she

> has ever received wasn't really help at all. The audiologists have only

> provided her with Hearing Aids and have never even tried to do the

> assessments to make an effort for a cochlear implant surgery. Should I

> have her go to a new audiologist to begin the real testing to begin the

> process or what. I am so frustrated that the audiologist hasn't even tried

> to help her get an implant. Any help or recommendations would be greatly

> appreciated.

>

> Thanks.

>

[Guest guest]

I agree with bob, only the C1512 implant is part of the recall by cochlrar. (The

one I have) but thank god I was implanted before the recall was issued.

Re: Where to Start for the Cochlear Implant Process

Joleen, be careful with what you pass on as correct information. It is

not correct. Only the current N5 device is affected by the recall.

Quote of the nanosecond...

" Fool me once, shame on you. Fool me twice, prepare to die. "

--Klingon Proverb, Star Trek

& Dreamer Doll ke7nwn

E-mail-

Gone.to.Dawgs@...

Home Page-

http://webpages.charter.net/dog_guide/

Where to Start for the Cochlear Implant Process

I also want to mention there are several other companies out there. Each of

these websites has CI Centers. These Centers are the only ones authorized to

perform test and surgery.

I believe Cochlear America currently has a hold on all of their

implants/surgerys due to the recent recall.

I also would like to provide some advice regarding implants for the deaf,

based on my experience and perhaps reason why the Audi has not recommend it.

Implants are not for everyone,(and not everyone qualifies for one) and

someone that is profoundly deaf and never heard before, it will take time

for them to get used to hearing and recognizing sounds. Your sister has to

be very motivated to want an Implant and be willing to go for frequent

visits as well as speech therapy if there is a need for it. The Most

important person is the audiologist as that person will be one you will be

spending a lot of time with. So, of course, you'll want someone that your

comfortable with. If you would like more info based on my experience or

general questions. You may email me off line.

Advance Bionics http://www.advancedbionics.com/us/en/home.html

Med-El

..http://www.medel.com/us/index/index/id/1/title/Home/index/index/id/1/title/Home

Envoy - http://www.envoymedical.com/

>

> So, I am starting to look into this for my sister. She is 36 and was born

> deaf. I was reading that the FDA approved Cochlear Implants for those who

> are considered disabled as those who would require a prosthetic limb like

> an amputee and that the cost is covered under Medicare. The only help she

> has ever received wasn't really help at all. The audiologists have only

> provided her with Hearing Aids and have never even tried to do the

> assessments to make an effort for a cochlear implant surgery. Should I

> have her go to a new audiologist to begin the real testing to begin the

> process or what. I am so frustrated that the audiologist hasn't even tried

> to help her get an implant. Any help or recommendations would be greatly

> appreciated.

>

> Thanks.

>

[Guest guest]

Indeed, Joleen,

Be sure you have correct information before replying. The INTERNAL

array for the Nucleus5 is the only thing affected by the recall.

Cochlear is implanting the Freedom INTERNAL array, and using the NUCLEUS

5 externals currently.

So if you aren't sure, please don't reply and confuse people.

Thanks,

I believe Cochlear America currently has a hold on all of their

implants/surgerys due to the recent recall.

Joleen, be careful with what you pass on as correct information. It is

not correct. Only the current N5 device is affected by the recall.

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[Guest guest]

Joleen, I was dumfounded to read your irresponsible comments on Cochlear

Americas. Having said that, I was equally happy to see the number of people who

jumped to point out that the information was incorrect.

I think that should be a lesson to all of us, that there are many knowledgeable

readers here and we should be sure to check anything, other than opinions,

before we post.

Judy

ville, FL

HLA-Florida President

and Chapter Coordinator

> >

> > So, I am starting to look into this for my sister. She is 36 and was born

deaf. I was reading that the FDA approved Cochlear Implants for those who are

considered disabled as those who would require a prosthetic limb like an amputee

and that the cost is covered under Medicare. The only help she has ever received

wasn't really help at all. The audiologists have only provided her with Hearing

Aids and have never even tried to do the assessments to make an effort for a

cochlear implant surgery. Should I have her go to a new audiologist to begin the

real testing to begin the process or what. I am so frustrated that the

audiologist hasn't even tried to help her get an implant. Any help or

recommendations would be greatly appreciated. 

> > 

> > Thanks.

> >

>

>

[Guest guest]

and by the way..... the URL for the Cochlear website is

http://www.cochlearamericas.com

Happy Hearing!

Carol

Boca Raton, FL

Cochlear America Nucleus 24C - left ear - Sprint 12/11/01 then 3G then upgraded

to Freedom on 2/19/08

Cochlear America Freedom right ear -implanted 3/01/06 - activated 4/06/06 -

upgraded to Nucleus 5 on 8/30/2011

From: judygmartin

Sent: Thursday, October 13, 2011 10:16 AM

Subject: Re: Where to Start for the Cochlear Implant Process

Joleen, I was dumfounded to read your irresponsible comments on Cochlear

Americas. Having said that, I was equally happy to see the number of people who

jumped to point out that the information was incorrect.

I think that should be a lesson to all of us, that there are many knowledgeable

readers here and we should be sure to check anything, other than opinions,

before we post.

Judy

ville, FL

HLA-Florida President

and Chapter Coordinator

> >

> > So, I am starting to look into this for my sister. She is 36 and was born

deaf. I was reading that the FDA approved Cochlear Implants for those who are

considered disabled as those who would require a prosthetic limb like an amputee

and that the cost is covered under Medicare. The only help she has ever received

wasn't really help at all. The audiologists have only provided her with Hearing

Aids and have never even tried to do the assessments to make an effort for a

cochlear implant surgery. Should I have her go to a new audiologist to begin the

real testing to begin the process or what. I am so frustrated that the

audiologist hasn't even tried to help her get an implant. Any help or

recommendations would be greatly appreciated.

> >

> > Thanks.

> >

>

>

[Guest guest]

I am not a CI user, I wear hearing aids, but I follow the CI Hear list.

Joleen, I also want to point out that the Envoy Esteem is NOT a cochlear

implant, it is a completely implantable hearing aid. As such, there must be

enough residual hearing to be able to benefit from the device. And, it is

not without risks, it involves amputating the bones in the middle ear, which

if the user chooses not to use the device must then have the bones replaced

with a prosthetic in order to hear again without the device.

As others have mentioned, Cochlear America is only recalling their C1512,

the Freedom device is still being implanted.

Debbie, Colorado

From: [mailto: ] On Behalf Of

Joleen

Sent: Wednesday, October 12, 2011 5:31 PM

CI HEAR

Subject: Where to Start for the Cochlear Implant Process

I also want to mention there are several other companies out there. Each of

these websites has CI Centers. These Centers are the only ones authorized

to perform test and surgery.

I believe Cochlear America currently has a hold on all of their

implants/surgerys due to the recent recall.

I also would like to provide some advice regarding implants for the deaf,

based on my experience and perhaps reason why the Audi has not recommend it.

Implants are not for everyone,(and not everyone qualifies for one) and

someone that is profoundly deaf and never heard before, it will take time

for them to get used to hearing and recognizing sounds. Your sister has to

be very motivated to want an Implant and be willing to go for frequent

visits as well as speech therapy if there is a need for it. The Most

important person is the audiologist as that person will be one you will be

spending a lot of time with. So, of course, you'll want someone that your

comfortable with. If you would like more info based on my experience or

general questions. You may email me off line.

Advance Bionics http://www.advancedbionics.com/us/en/home.html

Med-El

..http://www.medel.com/us/index/index/id/1/title/Home/index/index/id/1/title/

Home

Envoy - http://www.envoymedical.com/

>

> So, I am starting to look into this for my sister. She is 36 and was born

deaf. I was reading that the FDA approved Cochlear Implants for those who

are considered disabled as those who would require a prosthetic limb like an

amputee and that the cost is covered under Medicare. The only help she has

ever received wasn't really help at all. The audiologists have only provided

her with Hearing Aids and have never even tried to do the assessments to

make an effort for a cochlear implant surgery. Should I have her go to a new

audiologist to begin the real testing to begin the process or what. I am so

frustrated that the audiologist hasn't even tried to help her get an

implant. Any help or recommendations would be greatly appreciated.

>

> Thanks.

>

[Guest guest]

That is very true debbie about the C1512 implant ( tthe one I was indeed

implanted with just under 6 months ago.

Cochlear N5 processor (left)

C1512 cochlear implant implanted 27.4.2011

Activated 26.5.2011

Right ear: hearing aid user; phonak Naida V UP

Where to Start for the Cochlear Implant Process

I also want to mention there are several other companies out there. Each of

these websites has CI Centers. These Centers are the only ones authorized

to perform test and surgery.

I believe Cochlear America currently has a hold on all of their

implants/surgerys due to the recent recall.

I also would like to provide some advice regarding implants for the deaf,

based on my experience and perhaps reason why the Audi has not recommend it.

Implants are not for everyone,(and not everyone qualifies for one) and

someone that is profoundly deaf and never heard before, it will take time

for them to get used to hearing and recognizing sounds. Your sister has to

be very motivated to want an Implant and be willing to go for frequent

visits as well as speech therapy if there is a need for it. The Most

important person is the audiologist as that person will be one you will be

spending a lot of time with. So, of course, you'll want someone that your

comfortable with. If you would like more info based on my experience or

general questions. You may email me off line.

Advance Bionics http://www.advancedbionics.com/us/en/home.html

Med-El

..http://www.medel.com/us/index/index/id/1/title/Home/index/index/id/1/title/

Home

Envoy - http://www.envoymedical.com/

>

> So, I am starting to look into this for my sister. She is 36 and was born

deaf. I was reading that the FDA approved Cochlear Implants for those who

are considered disabled as those who would require a prosthetic limb like an

amputee and that the cost is covered under Medicare. The only help she has

ever received wasn't really help at all. The audiologists have only provided

her with Hearing Aids and have never even tried to do the assessments to

make an effort for a cochlear implant surgery. Should I have her go to a new

audiologist to begin the real testing to begin the process or what. I am so

frustrated that the audiologist hasn't even tried to help her get an

implant. Any help or recommendations would be greatly appreciated.

>

> Thanks.

>